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Yomi
Member
| Joined: | Tue Jul 8th, 2008 |
| Location: | Austin, Texas USA |
| Posts: | 20 |
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Posted: Tue Oct 14th, 2008 01:58 |
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Thanks Julie, I have posted my lab results in the forum you indicated and in my signature line.
Thanks
Yomi
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Sarcoid via lung biopsy 9/2001 25D-12, 1,25D-60..Ph1-9/12/08 Benicar -Q6..low lux setting in home...NOIRs..avoiding sunlight and vitamin D..Ph2-12/15/08
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Yomi
Member
| Joined: | Tue Jul 8th, 2008 |
| Location: | Austin, Texas USA |
| Posts: | 20 |
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Posted: Tue Oct 21st, 2008 21:37 |
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Hello,
I just wanted to say that I am now at 50mgs q48hrs....and started herxing significantly last week. In addition to the previous mentioned IP symptoms I have had slight chest pains ..(I gather this would be lung and heart herxing). Also, yesterday was the neck stiffness and lower back pain I believe from the neuropathy I experienced this summer. It subsided this morning. Today it seems I have moved on to jaw pain and a sense of "iciness" on my right forearm. Everything has been tolerable so far (although the back pain, neck and shoulder stiffness was formidable). I have been on 50 mgs since the 10th of this month and will continue to monitor throughout this week and hopefully will be able to move up to 75mgs every 48hrs soon. I am scheduled to see my Dr. on Thursday and hopefully will have him retest my 25D to make sure its under 12ng.
As always any info is appreciated
Thank you,
Yomi
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Sarcoid via lung biopsy 9/2001 25D-12, 1,25D-60..Ph1-9/12/08 Benicar -Q6..low lux setting in home...NOIRs..avoiding sunlight and vitamin D..Ph2-12/15/08
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natalie17
Advocate
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Posted: Wed Oct 22nd, 2008 08:03 |
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Hi Yomi,
You might liek to have a read of-
When should I be concerned about cardiac symptoms?
Will the MP treat paresthesia and neuropathy?
... if you haven't already.
Take care,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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Yomi
Member
| Joined: | Tue Jul 8th, 2008 |
| Location: | Austin, Texas USA |
| Posts: | 20 |
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Posted: Mon Dec 8th, 2008 22:51 |
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Hello,
I have been on Phase 1 since September of this year with the assistance of my primary care physician. I went to see him on Nov 20th to update him with my progress and we both agreed that I was ready for phase 2. My doctor said he would apply for access to phase 2 via the MP website.
I called him today and he said he was informed new physicians were not "being accepted"?? I had no idea that Drs were being limited in anyway. Please let me know if things have changed as I was looking forward to moving to the next stage. If you need the name of my Dr please send a private message or email and I will send you his info.
Thank You
Yomi
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Sarcoid via lung biopsy 9/2001 25D-12, 1,25D-60..Ph1-9/12/08 Benicar -Q6..low lux setting in home...NOIRs..avoiding sunlight and vitamin D..Ph2-12/15/08
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 138 |
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Posted: Mon Dec 8th, 2008 23:21 |
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Yomi
There is no limit on Drs joining. see Private Section for Health Professionals.
see my PM to you, and I can check if there has been any email received.
thanks, Barb ...
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Yomi
Member
| Joined: | Tue Jul 8th, 2008 |
| Location: | Austin, Texas USA |
| Posts: | 20 |
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Posted: Tue Dec 16th, 2008 18:43 |
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Hello,
I have a question about phase 2. I figure I'd ask here since my Dr and I are both learning as we go along here. After the first cycle I know I can increase the mino by 25 mgs if IP symptoms are tolerable
Can I incease mino mid-cycle if IP symptoms are tolerable or does the increase need to happen every cycle/10 days?
Thanks
Yomi
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Sarcoid via lung biopsy 9/2001 25D-12, 1,25D-60..Ph1-9/12/08 Benicar -Q6..low lux setting in home...NOIRs..avoiding sunlight and vitamin D..Ph2-12/15/08
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JoshR
Advocate
| Joined: | Mon Aug 18th, 2008 |
| Location: | Sydney, Australia |
| Posts: | 220 |
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Posted: Tue Dec 16th, 2008 20:32 |
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The guidelines say:
Wait to ramp Mino until the second cycle when you have had a chance to assess the effect of this new combo.
And afterwards:
Ramp up Mino by 25mg increments during each cycle only if symptoms are tolerable.
Do not increase Mino on days when Zith usually peaks (days 3-6 and 9).
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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Yomi
Member
| Joined: | Tue Jul 8th, 2008 |
| Location: | Austin, Texas USA |
| Posts: | 20 |
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Posted: Tue Dec 16th, 2008 21:20 |
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| thx
____________________
Sarcoid via lung biopsy 9/2001 25D-12, 1,25D-60..Ph1-9/12/08 Benicar -Q6..low lux setting in home...NOIRs..avoiding sunlight and vitamin D..Ph2-12/15/08
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JoshR
Advocate
| Joined: | Mon Aug 18th, 2008 |
| Location: | Sydney, Australia |
| Posts: | 220 |
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Posted: Tue Dec 16th, 2008 21:55 |
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| Hopefully both you and your doctor have a copy of the phase 2 guidelines, but just in case you don't, they can be downloaded here: Phase 2
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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