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natalie17
Advocate
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Posted: Fri Aug 29th, 2008 09:00 |
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Hi Sean,
I'm assuming you're aware of Amy Proal's http://www.bacteriality.com .. and had a search around? Especially the MP Intro (Video).
You could also take a look at Dr Marshall's Perspective.
Short of that all I can suggest is the Wikipedia page on Cytokines, and I'm not sure how much that will help.
Someone else may be able to help you more...
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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seanlane
Member
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Posted: Tue Sep 9th, 2008 06:20 |
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Well I sat down with [moderator note; Doctor's name removed for privacy] a neurologist here in Memphis,
It has been 6 months since I have seen him for Neuropathy..he has never heard of the MP...I of course did not know about it at the time
I was suprised at how serious he became when he looked at the liturature I gave him......he and his assistants were very curous about 1,25D and Benicar.
They had used minocycline in ALS cases with only pallitive results.
He has noticed substantial improvements in my recovery....but according to Trevor people with neurological complications probably won't see improvements until phase three....I think I had some remission...and I do feel like there have been some changes on phase one......but when the sun hits me...it is neuropathy time again. However there is no longer sensory problems or motor impairment .
I think healthcare personel do sense that there is something to the MP even as they first hear the outline. My neurologist wanted to see case studies of course and published papers.
I directed him to the website...I hope he looks into it....he is a well educated and respected guy around here.
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
| Status: |
Offline
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Posted: Wed Sep 10th, 2008 02:22 |
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Seanlane,
I like this group of published papers but it is only part. It's a good place to start though.
Remember too that most uses of minocycline outside of the MP use a different dose and schedule than the MP. It is has even been used with different dose/process than the MP within the MP for palliation.
Glad to see you are having improvement even early on. Improvement early on is always a good thing (wink).
Best to you Seanlane--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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seanlane
Member
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Posted: Mon Sep 15th, 2008 01:02 |
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Well I have to say that the MP website covers all the bases.
Here is an example of that.
My herxes were making my fatigue hard to bear, so I decided to do some moderate cardio...the first exercise I have decided to do since starting the MP. This was an attempt to get some relief.
The results....numbness in all limbs....and I thought I had fatigue before?.....I experienced such a herx even sleeping felt like work.Man ,I woke up looking like pale death!
Then ,apon reading about how exercise can mimic a response similar a high dose of antbiotics due to pathogens becoming more exposed or flushed out into the open[without 1,25D protecting them],I understood what was going on. So I am going to take it easy for a while.
The profound thing is this: without the protocol I would have become discouraged and fearful. Going through bad times with knowledge of what is happening makes all the difference in the UNIVERSE.
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Julia
Advocate (on leave)
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Posted: Mon Sep 15th, 2008 08:43 |
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Sean, we appreciate the fact that you do your own research. It's all there... somewhere!
What to do when immunopathology is too strong
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Always consult a physician
Essential Info; FAQ; Julia's story
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seanlane
Member
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Posted: Mon Sep 15th, 2008 21:18 |
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One of my clients has been diagnosed with lung cancer.
Can the Marshall Protocol help someone with this?
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Julia
Advocate (on leave)
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Posted: Mon Sep 15th, 2008 21:35 |
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Sadly, probably not. See Cancer and the MP.
Dr Marshall warns: Although Th1 inflammation causes the cancer it is not possible to resolve that inflammation quickly. With the MP, it takes several years to get down the bacterial load to a point where the body's immune system is working properly again. It would need to be a quite benign cancer to not proliferate significantly in that time.
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Always consult a physician
Essential Info; FAQ; Julia's story
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seanlane
Member
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Posted: Thu Sep 25th, 2008 22:20 |
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Had a great week......came out of about ten days of herxing and have been feelng really good.
Now it seems I am beginning to feel herxing coming on again,
My 25D measured 17.8 ng/ml....not sure what that is in measurements yet but if anybody wants to claify what it eans that would be great....I intend to find out on the MP website later if I can.
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Julia
Advocate (on leave)
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Posted: Thu Sep 25th, 2008 23:19 |
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D-metabolites tests 
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Always consult a physician
Essential Info; FAQ; Julia's story
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seanlane
Member
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Posted: Wed Oct 8th, 2008 05:23 |
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Can anyone direct me on how to post test results/diagnoses/ and form signature line?
Thanks
Last edited on Wed Oct 8th, 2008 05:26 by seanlane
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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natalie17
Advocate
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Posted: Wed Oct 8th, 2008 06:07 |
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Sean,
Please see - Help with Understanding D-metabolite tests
(Be sure to read How to post your D-metabolite Test results first).
To change your signature line click on the "My Account" button in the top right hand corner of the screen, then click on "Profile" in the green tabs to the left.
Sig line editing is at the bottom.
Take care,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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Bob
Member
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Posted: Fri Oct 17th, 2008 17:12 |
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Hi I was just wondering what Im suppost to feel its been a couple weeks on the 1st phraces.
and im finding it hard to find foods with out folic asid or vitamin d could you help me with this
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robert liberty
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Knochen
Advocate
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 224 |
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Online
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Posted: Fri Oct 17th, 2008 17:19 |
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http://www.mp-recipes.com/mp_recipes.html for suggestions on non-D foods.
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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Julia
Advocate (on leave)
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Posted: Fri Oct 17th, 2008 18:31 |
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Hi Bob,
Please could you start a new thread for your questions by clicking 'new topic' at the top of the page, call it 'Bob's questions', and that will be your own personal thread for all your questions
We would be able to answer your question better about how you're supposed to feel if you gave us some more details - diagnosis, vitamin D levels if tested, what dose of Benicar you're on and whether you've started minocycline, and how much you're avoiding light.
In addition to Knochen's great recipe site, see FOOD TIPS.
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Always consult a physician
Essential Info; FAQ; Julia's story
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seanlane
Member
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Posted: Tue Oct 21st, 2008 18:56 |
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Hey Bob,
I think it is different for everybody.....I felt good for the first week....and then went into somepretty severe herxing and light sensitvity.
I am in phase two now and I don't know what's going on.....herxing is barely noticable and light is just a nuisance-that is direct sunlight only, I never thought I would feel this good this soon.But the herxing is very unpredictable..time will tell
Sean
P.s. Everybody......my wile filed for divorce!!!!! Her claim is that the Marshall Protocol is just another crazy program to get well....she told me I will be ill for life ..that this is just one of those up times.....it is strange knowing that your healing and nodody understands or believes you.
Also....food sensitivities......thing of he past...like my marriage.
However any one who prays and reads this feel free to....I dont hold it against my wife.....she went throuh a hard time for years wth me....when I started MP that was the last straw...she said I was acting like Howard Hughes with the lights out and sunglasses on...there was no way to reach her.
Its really like trying to tell people that they have discovered the world is round....takes a while for people to step out of ignorance.
Last edited on Tue Oct 21st, 2008 19:06 by seanlane
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Julia
Advocate (on leave)
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Posted: Wed Oct 22nd, 2008 18:02 |
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Sean, I'm so very sorry to hear that. It's especially sad at a time when you're beginning to have hope for a healthier future.
with prayer,
Julia
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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seanlane
Member
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Posted: Wed Oct 22nd, 2008 22:27 |
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Thank you Julia,[and Aussie]
It is extremely sad esp. with my first baby Eve Claire......trauma doesn't describe it,
but it is ironic coming at a time when all systems are coming back online for the first time in 20 years.....I know there may be more healing yet to come....but it is almost hard to believe, I don't even consider myself bi-polar anymore...and I can't feel neuropathy or chronic fatigue at all...and I had CFS BAD!. This is bizzare considering in December my first neurologist told me I would probably not get rid of it....I could barely walk.
Food senstivities are gone man.......had those for years![with terrible mood swings/phobias/ocd....they have just vanished.
So it s a strange time......walking out of this grave so fast after so long....to find I cannot convince my wife that it is real....she thinks it is just remission ....she does say I am not myself.
For anyone who may be worried....I know healing when I feel it....its not some manic boost...it is just a sort of dawning that life has changed alot rather swiftly.
I don't know if it is a bad sign for the MP to work so well with my immune system this fast......I am getting zero herx from phase two.....and I know it might not be adviseable but I had to up my dose of [phase 2 antibiotic] and still nothing. That's not to say I am out of the woods.......most of you would tell me I am not....but it really feels different.
Thank God and the MP/Trevor that I am not experiencing this divorce under my previous circumstances!!!!!
Sean
[edited to remove name of phase 2 abx - mod.]
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Julia
Advocate (on leave)
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Posted: Wed Oct 22nd, 2008 23:50 |
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Great to hear of your progress You may find your IP increases as your 25-D level comes down to 12 or so. So take care with ramping abx - follow the guidelines strictly, even if you don't feel much IP just now. Each level of abx seems to get at different bugs. Also, the phase 2 abx can stay in your system for weeks, so you don't want to make a mistake and have to live with it that long 
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Always consult a physician
Essential Info; FAQ; Julia's story
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JoshR
Advocate
| Joined: | Mon Aug 18th, 2008 |
| Location: | Sydney, Australia |
| Posts: | 215 |
| Status: |
Offline
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Posted: Thu Oct 23rd, 2008 09:49 |
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Since you seem to have had a lot of neurological symptoms, you may also find that one of the Phase 3 antibiotics is quite good at causing herxing, since it seems to target nerve and brain tissue especially well.
But that's in the future; for now just keep doing Phase 2 'by the book'. Last edited on Thu Oct 23rd, 2008 10:01 by JoshR
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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seanlane
Member
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Posted: Thu Oct 23rd, 2008 14:52 |
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Thank both of you very much for your excellent advice,
I remain fascinated by this experience.............
I went to see my psychiatrist yesterday....if you can imagine a bi-polar patient who doesn't take lithium anymore trying to tell the doctor that he has found the cure for bi-polar disorder!!!!
Actually I was much more subtle .........but after he got the jest of it he told me he told the nurse not to schedule me in anymore.........that his group of doctors had to follow a certain criteria........so ...whatever....
Okay......does anyone have any specifics on how the VDR impacts PKA activity in the brain?..............just a brief summary will do..I know Trevor is the only one who could answer this but those of you who do converse with him might ask....I don't want to add to his already heavy load of e-mails......but I might be tempted due to this unprecedented new knowledge.....God forgive me
Last edited on Thu Oct 23rd, 2008 14:53 by seanlane
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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