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seanlane
Member
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Posted: Sat Jul 12th, 2008 06:40 |
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Thanks... preesh that
got it worked out. So you can split the capsules of minocycline?
I guess just measure the powder?
Benicar has really backed off a lot of inflammation rather quickly..I feel suprisingly
close to normal.....and that is great but I really want to kill this stuff.
You really get motivated to lower 1,25 d after reading so much of the literature....
and even more so motivated to CLEAN HOUSE!
I am not looking forward to feeling bad again[when I start mino], but this time I am gonna have a smile on my face![even if thru clinched teeth]
Sean
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
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Posted: Sat Jul 12th, 2008 06:52 |
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How do I divide the minocycline when the capsules only come in 50mg? CAUTION: Please be sure to be measuring the dose carefully, shaking the FULL contents of the capsule right out to divide accurately..
We recommend extra caution and special attention to detail if you have any level of brain fog or memory impairment. It's important to use a medication dosette and reliable alarm system. If necessary ask for support from a reliable family member when dividing, setting out and or taking meds.
best, Barb ...
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seanlane
Member
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Posted: Sat Jul 12th, 2008 16:36 |
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Has there been any more research on the safety of Provigil and how it works in the body?
Some previous research indicated it may have neuro-protective properties,
Most days I cannot wake up without it, is it safe to use with MP?
Are there safe alternatives?
Sean
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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seanlane
Member
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Posted: Sat Jul 12th, 2008 17:46 |
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I seem to do better with Benicar every 4 hours/ have some occasional light exposure.
Is this safe?
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Aussie Barb
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Posted: Sat Jul 12th, 2008 18:27 |
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see Stimulants
BENICAR-Basic Information (click here)
best, Barb...
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seanlane
Member
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Posted: Sun Jul 13th, 2008 03:09 |
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I started taking Benicar a few days ago, it seemed to make me feel better as I mentioned earlier.
Now I feel like I have lead in my body.....thinking has become very difficult.
It is like you want to be awake but you can only focus for so long before succumbing to fatigue
I have 20,000 dollars worth of jobs people want to book and I cant even fathom talking to them.
Does Benicar hit you hard in the first week or so until you get adjusted, or is this a sign that I'm not going to be functional any time soon?
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Aussie Barb
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Posted: Sun Jul 13th, 2008 03:23 |
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Sean
For Information: Look at the links within the link posted to you above
BENICAR-Basic Information (click here)
eg I just started Benicar. Why do I feel worse?
see also the ABC of MP
best, Barb...
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seanlane
Member
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Posted: Mon Jul 14th, 2008 18:39 |
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Just wanted to say that Benicar has turned out to be an amazing drug,
for me,after some initial tough adjustments, now Benicar is functioning with sound predictability.
If I began to suffer a rise in symptoms, usually due to a rise in 1,25 D I am sure,
or a food/chemical reaction,
increasing it brings down the inflammation...faster if I sublingual it.
This gives great confidence that I will tolerate mino and be able to adjust as needed.
I am not trying to avoid herx, but it is wonderful that what is explained about Benicar is right on target.
Trevor, I see a peace prize in your future.
Sean
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Aussie Barb
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Posted: Mon Jul 14th, 2008 18:56 |
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Sean
Thank you for letting us know that you have read and understood and successfully implemented the Information given to you.
all best, Barb ...
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seanlane
Member
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Posted: Tue Jul 15th, 2008 17:50 |
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| Is it ok to start minocycline earlier than than two weeks adjustment on Benicar?
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Aussie Barb
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Posted: Tue Jul 15th, 2008 18:43 |
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| Please discuss this Information with your Dr How long should I stay on Benicar? Why don't I feel better? When should I start minocycline? Thank you, Barb ...
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seanlane
Member
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Posted: Wed Jul 16th, 2008 16:20 |
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| I recently read that minocycline has been shown inhibit microglial activation in the CNS, is this why some people feel better on minocycline?
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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seanlane
Member
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Posted: Fri Jul 18th, 2008 21:59 |
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I was wondering if any one could tell me if Ativan is problematic in occasional low dose on M.P......1.5 mg on really bad days.
It is what my doctoer has me on, I noticed it allevates my Neuropathy and brain fatigue.
I don't want to poison myself with this stuff and definately don't want to get addicted.
I just don't know that much about it, is Valium safer?
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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P.Bear R.N.
Research Staff
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Posted: Sat Jul 19th, 2008 06:11 |
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Many seem to prefer low dose brand name Valium, but some have done OK with low doses of Ativan. I used higher doses of generic Valium on occasion and progressed to needing none. With any [size=benzodiazepine ]class drug, one wants to try and avoid daily use if possible.
best, P.B.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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seanlane
Member
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Posted: Mon Jul 21st, 2008 00:07 |
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I am a bit confused about Testosterone,
I read that it is responsible in part for DNA transcription of anti microbial peptides but supplementation is not recommended on M.P.
My doctor ordered me some because I am low.......but I don't know what to do or what the risk are.
Any answers for this?
Sean
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Aussie Barb
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Posted: Mon Jul 21st, 2008 00:15 |
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P.B. wrote:
"I do not recommend testosterone replacement. One can expect "free" levels to return to normal in time as your hormonal system rights itself with MP treatment. The hormonal system is so intricate that often times giving exogenous "replacement" causes suppression of endogenous production and causes dependence on a drug instead of letting your own body regulate itself and produce its own natural hormones. Drugs can never hope to equal the bodies ability to regulate itself. Only in a more dire situation would replacement be indicated in my opinion."
see Dr Marshall Here .
all best, Barb ..
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seanlane
Member
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Posted: Mon Jul 21st, 2008 03:38 |
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I am having terrible times with my wife.....she totally thinks MP is a falsehood.
I know without a doubt that it is not.
She has really never accepted any thing concerning all of the illness that I have had over the last 8 years since I have known her. When we got married I wasnt going through such bad symptoms because I was suppressing my immune system with drugs.
She has watched me try cures for so long she has just given up...if she would just look at the MP she would make sense of it all, but she has closed her mind.
It is very hard to go through this as it is, but this adds SO much more stress to the process.
What do you do when a family member/spouse, out of their own chosen ignorance, cannot accept you on this protocol and does not want anything to do with it in your household?
Is there any thing on the MP that addresses this?
Sorry for being so personal....it is just hard enough dealing with the illness and the MP herxes besides living with someone who thinks your selfish and crazy for trying to do a curative therapy.
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Aussie Barb
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Posted: Mon Jul 21st, 2008 05:11 |
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Sean
As well as others who may reply to you, there is Information at Personal, Family, Relationship Tips and you may like to make PM contact with some whose experiences are posted there.
all best, Barb ...
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seanlane
Member
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Posted: Mon Jul 21st, 2008 21:35 |
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I was wondering if some peopl move up to 50 mg mino faster, I am definately getting herx the first day, the second day I just feel better...no real herx on day no. 2.
Is it okay to goup to 50 mg every other day in your first week of mino?
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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
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Julia
Advocate (on leave)
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Posted: Mon Jul 21st, 2008 21:57 |
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Sean,
No! Please 'read, mark, learn and inwardly digest' the Phase 1 guidelines, especially 'step 8' on page 8. Take care 
It's normal to have a two-day herx pattern in phase 1.
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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