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tracyj
Member
| Joined: | Sat Nov 22nd, 2008 |
| Location: | |
| Posts: | 13 |
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Posted: Sat Nov 22nd, 2008 06:38 |
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Hi,
I have been on the mp now for 8 months and decided to get my 13 year old daughter tested and would like an individual opinion please.
Symptoms, From the age of 4 has always been tired, headaches,neck pain,insomia ,leg pain, cant tolerate the heat, gets out of breath when does excersice, heart palpitations, has slowly gotten worse over the years.
Diagnosis, Insisted two years ago that she have a echocardiogram, and was diagnosised as having a Aortic heart valve leak, i my self was told by my mp doc i have a Mitral heart valve leak yesterday. Around 4 or 5 years ago told she has had Glandular fever.
Blood tests, date drawn 31/10/2008 Ricikketsia - Negative, Q- Fever - Negative
Blood tests, date drawn 3/11/2008 FBE, ESR, E/LFTs, urea,creatinine, strep serology,chlamydia,pneumoniae serology all normal. Mycoplasma pneumoniae serology tested positive not sure of detals yet.
Blood tests, date drawn 3/11/08. 1,25 VitD 150pmol/L - Ref range 78- 190
25 - Hydroxy Vit D - 83 nmol/L - Ref Range >50
was frozen
My daughter is on no meds or supplements or she does not go out in sun much mostly in the last 8 months since i have been on mp.
Questions. Do you think she should be on mp, if so how do children cope with it? and if so if i decide to put her on the mp are you still taking new members so i can post updates on her.
Thanks, regards, tracyj
ps sorry for spelling mistakes, cant find spell check and i am very ill myself at the moment
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P.Bear R.N.
Research Staff
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Posted: Sun Nov 23rd, 2008 01:00 |
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Tracy,
Her 1,25-D is elevated at 62.5pg/ml (the population average is 25-29 pg/ml). It is 3.53 sigma high and based on population studies, 100% of the population would be expected to have a lower number.
Her 1,25-D is above the maximum of 45pg/ml listed in the Merck Manual of Diagnosis and Therapy (15 Oct 2006 online). At levels above about 42 pg/ml, the 1,25-D (generated by the Th1 inflammation) begins to stimulate bone osteoclasts, causing bone to be resorbed (dissolved) back into the bloodstream. Not only does this lead to osteoporosis, but also to calcium being deposited into soft tissue of the body, including the lungs, breasts, and the kidneys (where it forms kidney stones). Please see Osteoporosis, osteopenia and Th1 illness.
Her level of elevation suggests inflammation in major organs such as the heart, liver and lungs.
When should I be concerned about cardiac symptoms?
Her 25-D of 33.2ng/ml is high enough to dampen innate immune response in our experience. Because 25-D is immunosuppressive, she needs to avoid ALL sources of Vitamin D to get it down to a therapeutic level of 12ng/ml or less. Please see Foods To Avoid and The importance of avoiding vitamin D.
"The 25-D seems to be the most critical factor as to whether the immune system is able to start working. Any level of 25-D above about 20ng/ml is likely to be acting as an immunosuppressant, with an action very similar to that of corticosteroids." Dr. Trevor Marshall, Ph.D.
Your D-tests, diagnosis and symptoms indicate Th1 inflammation. Please see Symptoms of Hypervitaminosis-D and you may recognize a few more. You will not get well and your health will continue to deteriorate if you don't treat the underlying bacterial cause of Th1 inflammation with the MP. Please see Is the MP an applicable treatment for my disease?
Most supplements and many medications must be avoided on the MP.
The exact SED rate can still be useful to look at even if in "normal range"
Our clinical study is closed to enrollment.
We do have some kids on MP responding as expected, but with significant illness the light exposure at school is too much and many will need to be home schooled to stay out of the light for at least the first year.
best, P.B.
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