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7thson
Member
| Joined: | Fri Nov 21st, 2008 |
| Location: | Arizona USA |
| Posts: | 12 |
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Posted: Fri Nov 21st, 2008 20:04 |
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Hello; I'm new to forum but have followed research for two years.
I've had multiple allergies for 50 years, treated with old school antihistamines and decongestants for 35 years until had to stop; poisoned by a biocide 15 years ago
and have been diagnosed with Sarcoidosis, Celiac Disease, Chronic fatigue, and
multiple Environmental sensitivities.
Blood collected 10/29/08 by Sonora Quest; assured of correct handling. Results:
Vitamin D25 Total = 16 ng/ml Vitamin D 1,25-Dihydroxy= 25 pg/ml
Avoiding sunlight generally for 3 years. Eye and skin sensitivity goes back 5+ years.
Avoiding D supplemented foods and most Vitamin D foods for 3 years.
Supplementing with B12 injection, Testosterone injection, gH injection (briefly)
B complex orally, Avodart for BPH + Saw Palmetto. Lorazepam. Serevent. Tried
several BP meds for HBP, including Benicar... had reactions to all. Prednisone
briefly...stopped because of reactions.
Was not taking Benicar or any immunosuppressant at time of test, nor Vitamin D
or ACE inhibitor.
My Doc suggests 1000 mg D3 supplementation daily; results seem contradictory to
me, however; somewhat confusing.
Thank you
Steve Black / 7thson
Last edited on Fri Nov 21st, 2008 20:06 by 7thson
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7thson
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P.Bear R.N.
Research Staff
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Posted: Sat Nov 22nd, 2008 22:19 |
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Steve, It would be highly unusual for a person with sarcoidosis to be able to control their 1,25-D level to such and extent by just avoiding sun, so I suspect that sample may have been mishandled. People with sarc, chronic fatigue syndrome and environmental illness typically have markedly elevated 1,25-D levels. There could be some chance that one of your medications is altering lab result such as the avodart, that will alter hormonal balances. Your 1,25-D is average at 25 pg/ml. The population average is 25-29 pg/ml and it is above-average 1,25-D levels (hypervitaminosis-D) that cause many troublesome symptoms. Since you report many troublesome symptoms, either the lab result is in error or your paracrine (tissue) level of 1,25-D is much higher than the measured serum level. This sometimes occurs when the inflammation is in tissues not well perfused by blood (for example nerves, joints).
Your 25-D of 16ng/ml is somewhat low for a person in the developed world. Low levels are frequently related to a high 1,25-D. Because 25-D is immunosuppressive, you still need to avoid ALL sources of Vitamin D to get it down to a therapeutic level of 12ng/ml or less. Please see Foods To Avoid and The importance of avoiding vitamin D.
"The 25-D seems to be the most critical factor as to whether the immune system is able to start working. Any level of 25-D above about 20ng/ml is likely to be acting as an immunosuppressant, with an action very similar to that of corticosteroids." Dr. Trevor Marshall, Ph.D.
Your report that you could not tolerate Benicar is highly indicative that you have TH1 inflammation. Taking it was essentially a form of
a therapeutic probe
Although your D tests were ambiguous, your diagnoses and symptoms reveal Th1 inflammation. Please see Symptoms of Hypervitaminosis-D and you may recognize a few more. You will not get well and your health will continue to deteriorate if you don't treat the underlying bacterial cause of Th1 inflammation with the MP. Please see Is the MP an applicable treatment for my disease?
Most supplements and many medications must be avoided on the MP. The avodart and testosterone would need to be stopped. Flomax or a similar class of med might be a better choice; but the MP will actually treat BPH in my experience. (but it can take some time.)
Our clinical study is closed to enrollment.
best, P.B.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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7thson
Member
| Joined: | Fri Nov 21st, 2008 |
| Location: | Arizona USA |
| Posts: | 12 |
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Posted: Wed Nov 26th, 2008 01:11 |
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Thanks for the analysis;
Discussed with my Doc and I'm starting the MP on Friday after Thanksgiving. This was her preference because she has concerns about me winding up in an ER somewhere and calling her over the holiday. This is completely understandable because she has suffered familial loss recently and is going through a lot.
Her concern is based upon my using Benicar for 4 weeks some time back for BP and developing what appeared to be "allergic" reactions of significance. I explained to her as we went through the MP data that this was probably caused by the low daily dose at 20 mg and the other drugs/supplements I was on at the time. I discussed the need for the significant dose and Blockade which was never established before and she was OK with that as long as I could reach her if necessary. We go back 20 years and she has tried many unusual protocols with me, two of which saved my life. When I was poisoned by hidden mold and subsequent biocide use in '92, I had already been
on self injection of immunglobulin prior to the discovery which kept me alive while at least three others, two children, lost theirs. Truth is stranger than fiction.
Anyway, I digress. Can anyone help me in knowing what to expect more specifically as a Herx response to this new Benicar dose at 40mg every 8 hours? I've been ill a
LONG time, with deterioration over time. I actually have been avoiding sunlight as much as I can here in Arizona, and I eliminated Vitamin D sources from my diet for several months now in preparation for this. Plus, these actions made me feel a little "better" than when I was not so careful, which says something. Thanks in advance for any advice/observations. I'm alone now because of these years of gradual withdrawal because it ain't "manly" to be this sick and have to explain to people that don't care and cannot understand.
Be well, all.
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7thson
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P.Bear R.N.
Research Staff
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Posted: Wed Nov 26th, 2008 04:11 |
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Steve, Please study MP site and read:
Essential Information About the MP (Required Reading)
Marshall Protocol FAQs (Required Reading)
Note that you should not start Benicar until you have your NOIRs and home darkened.
Please start your own thread on this site so advocates can help answer non-medical questions.
You can expect profound hormonal shifts the first few weeks on Benicar and will need to hydrate well and use extreme caution when getting up to prevent fainting.
best, P.B.
____________________
Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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