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jmcvermont
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| Joined: | Thu Nov 13th, 2008 |
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| Posts: | 8 |
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Posted: Mon Nov 17th, 2008 19:59 |
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Diagnosis: Chronic Lyme Disease
Date Blood Tests drawn: 11/5/08
Lab Used: Mayo Clinic (via Porter Hospital Lab/Middlebury, Vermont
Sample was frozen for shipment.
I changed my diet 11/8/08 to eliminate Vit D. (I am improving diet as I learn more--but trying to be very strict!)
I started avoiding sunlight and bright lights 11/10/08 (using regular sunglasses). My Noirs arrived 11/10/08 and have been using them since. I did have to work 11/15/08 in a well-lit room. I used my Noir glasses and fully dressed in dark clothing, but did not use hat.
I discontinued all meds and supplements at 12 noon 11/5/08, except Nystatin 2,000,000 units/day and discontinued Nystatin at 12 noon 11/13/08 (all per MD orders) These included:
Plaquenil 200 mg BID
Azithromycin 500 mg q d
Rifampin 300 mg BID
Thyroid 1/2 gr q d
Triampterene/HCTZ 37.5/25 1/2 tab or 1 tab qd (took only PRN for swelling)
Vitamin D 800IU/day
Thorne's Extra Nutrients with 1000 IU Vit D3/day and folate (1000 mcg/day) EPA/DHEA 4 capsules/day (1000mg fish oil concentrate from anchovies & sardines/each
Calcium Citrate 150 mg with Vit C 16 mg BID
Magnesium Citrate170 mg BID
Glucosamine HCL(Shellfish free) 500 mg Chondroitin (Sulfate-bovine) 400 mg with
vitamin C 10 mg BID
Advanced Naturals Zyme Max (Plant Enzymes) BID (This included Soy Lecithin, L-Glutamine, Calcium, Quercetin and many other enzymes)
Remifemin (Black Cohash Extract) 1 tab q day
Probiotics:
Lactobacillus Acidophilis 2 Billion organisms q d (includes Bifidobacter bifidum 2 billion organisms & Fructooligosaccharides 150 mg
Saccharomyces Boulardii 250 mg (about 5 billion live cells/capsule)
Lactobacillus Sporogenes 150 mg or about 1.5 billion CFU with Vit C 8 mg
When and how long prednisone or any other immunosuppressants taken:
Advair 100/50 inhaler PRN rarely at least 1 year ago
Other inhalers PRN seasonly
Vioxx PRN many many years ago
Tylennol PRN rarely recently, and often years ago
ASA PRN at least 1 year ago (for a several years)
Naprosyn and other stronger anti-inflammatory meds 1982-1987 prescribed for various illnesses (pleurisy etc.
Prednisone--decreasing dose pack for an illness many two- three x in my life....can't remember when.
How long Vit D supplements:
Extra Nutrient multivits (Vitamin D3) since 5/02
Vitamin D supplements(in addition to multivits, 800 IU, and before that Vitamin D
Mulsion) past 2-3 years
EPA/DHEA ( and before this Super EPA/DHEA) since 5/02
I was not taking Benicar when the sample was drawn. Nor was I taking an ARB or ACE inhibitor when the sample was drawn.
My D Metabolite Tests of 11/5/08 are:
I-25D - 39 pg/ml
25D - 34 ng/mlDiagnosis: Chronic Lyme Disease
Signature line
Chroniclyme 125D39 Ph1nov508 25D34(11/5/05) no meds noirs no irs coveredup lowluxhomelight
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Diagnosis/chroniclyme 125D39 Ph1nov508 25D34(11/5/05) no meds noirs no irs coveredup lowluxhomelight
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P.Bear R.N.
Research Staff
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Posted: Mon Nov 17th, 2008 21:12 |
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Jmc,
Your 1,25-D is elevated at 39pg/ml (the population average is 25-29 pg/ml). It is 1.05 sigma high and based on population studies, 85.30% of the population would be expected to have a lower number. If sample was mishandled number would have been higher, or if you were not taking the vitamin D.
Your 1,25-D may at times be above the maximum of 45pg/ml listed in the Merck Manual of Diagnosis and Therapy (15 Oct 2006 online). At levels above about 42 pg/ml, the 1,25-D (generated by the Th1 inflammation) begins to stimulate bone osteoclasts, causing bone to be resorbed (dissolved) back into the bloodstream. Not only does this lead to osteoporosis, but also to calcium being deposited into soft tissue of the body, including the lungs, breasts, and the kidneys (where it forms kidney stones). Please see Osteoporosis, osteopenia and Th1 illness.
Your 25-D of 34ng/ml is high enough to dampen innate immune response and reflects your reported vitamin D supplementation. Because 25-D is immunosuppressive, you need to avoid ALL sources of Vitamin D to get it down to a therapeutic level of 12ng/ml or less. Please see Foods To Avoid and The importance of avoiding vitamin D.
"The 25-D seems to be the most critical factor as to whether the immune system is able to start working. Any level of 25-D above about 20ng/ml is likely to be acting as an immunosuppressant, with an action very similar to that of corticosteroids." Dr. Trevor Marshall, Ph.D.
Your D-tests, diagnosis and symptoms indicate Th1 inflammation. Please see Symptoms of Hypervitaminosis-D and you may recognize a few more. You will not get well and your health will continue to deteriorate if you don't treat the underlying bacterial cause of Th1 inflammation with the MP. Please see Is the MP an applicable treatment for my disease?
Would not take any Benicar until Zith elimination time is up, about three weeks after last dose.
Would continue thyroid meds if you are hypothyroid. Calcium and magnesium are fine if needed to meet daily needs. The rest are out.
Most supplements and many medications must be avoided on the MP.
Our clinical study is closed to enrollment.
best, P.B.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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jmcvermont
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| Posts: | 8 |
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Posted: Mon Nov 17th, 2008 22:15 |
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Thank you for interpreting my D metabolite tests. I am not clear about not being part of clinical study versus membership. Will I still be able to get advice from your nurses if I am not part of clinical study? My doctor wants me to be on the MP plan and to get advice from you. Is this still possible?
Chroniclyme 125D39Ph1nov508 25D34(11/5/05) no meds noirs no irs coveredup lowluxhomelight
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Diagnosis/chroniclyme 125D39 Ph1nov508 25D34(11/5/05) no meds noirs no irs coveredup lowluxhomelight
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jmcvermont
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| Joined: | Thu Nov 13th, 2008 |
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Posted: Tue Nov 18th, 2008 22:00 |
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I received your interpretation of my D Metabolite tests--thank you. I don't understand what being closed to enrollment in clinical study means. Does this mean that I can only get general information off your site but not specific recommendations in the event that I have specific problems? Please inform me ASAP. Thank you.
Signature Line
Chroniclyme125D39 Ph1nov508 25D34(11/5/05) no meds noirs no irs covereduplowluxhomelight
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Diagnosis/chroniclyme 125D39 Ph1nov508 25D34(11/5/05) no meds noirs no irs coveredup lowluxhomelight
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P.Bear R.N.
Research Staff
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Posted: Wed Nov 19th, 2008 06:22 |
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jmc, If not part of the clinical study you can not at this time rely on nurse assistance; but can get help with non-medical questions on curemyth1. You have to rely on your physician to guide you in any medical matters, so I would encourage your physician to join professional forum of MP site.
best, P.B.
____________________
Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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