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ellenclark
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| Joined: | Sun Aug 3rd, 2008 |
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Posted: Fri Aug 8th, 2008 06:36 |
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ESR (Westergreen) result~ 5
Lipase result ~33
Vitamin D, 1,25 Dihydroxy ~72H
Vitamin D, 25-hydroxy, LCMSMS
Vitamin D 25 total ~ 35
Vitamin D 25, D3~ 35
Vitamin D 25, D2~<4
C-Reactive Protein 0.1
I do not know if the sample was frozen
I was reluctantly DX with Fibromyalgia by Stanford Pain Management Clinic He recommended to my primary care physician that I see a pain psychologist.
A Physical Therapist suggested I be tested for MS due to some of my symptoms? no Dr. has tested me for this but the pain management Dr. would not test me for MS so its an unknown.
I do not take vitamins. I am on Elavil 50mg/day, Tramadol HCL 50mg/day, Pepcid 40mg./day, Taking a five day course of Azithromycin 250 mg for ear inf. as well as antibotic ear drops.
I was tested and on the epstein bar panel it showed I did have it but not that it was chronic.
I have some injuries from domestic violence to the sacroiliac joints and last year I got cortizone injections in both joints as well as a cortizone inj.. in the right shoulder for an impingement. I also received Botox injections to control the neck spasms and shoulder spasms which were seeming to bring about ocular migraines (at least 2 per week)
My symptoms are fatigue, muscle spasms and pain, blurred vision, ocular migraines , tingling and numb hands, numbing and tingling from knee down when trying to sleep,
burning sensation particularly in right shoulder area, severe cervical pain(chronic)
I am avoiding Vitamin D and trying to learn more about whats wrong with me. The Nurse Practioner who ordered blood tests above has an uncle who is following the MP currently and he encouraged me to start researching. I dont understand very much of this maybe you could tell me if the blood test results lead to any conclusions. The nurse practioner doesn't know all that much but is trying to help me. Its a medical clinic and I haven't had the best of luck with getting dxs or treatment.
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P.Bear R.N.
Research Staff
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Posted: Fri Aug 8th, 2008 22:53 |
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Ellen,
Your 1,25-D is very elevated at 72pg/ml (the population average is 25-29 pg/ml). It is 4.53 sigma high and based on population studies, 100% of the population would be expected to have a lower number.
Your 1,25-D is above the maximum of 45pg/ml listed in the Merck Manual of Diagnosis and Therapy (15 Oct 2006 online). At levels above about 42 pg/ml, the 1,25-D (generated by the Th1 inflammation) begins to stimulate bone osteoclasts, causing bone to be resorbed (dissolved) back into the bloodstream. Not only does this lead to osteoporosis, but also to calcium being deposited into soft tissue of the body, including the lungs, breasts, and the kidneys (where it forms kidney stones). Please see Osteoporosis, osteopenia and Th1 illness.
Your level of elevation suggests inflammation in major organs such as heart, liver and lungs.
When should I be concerned about cardiac symptoms?
Your 25-D of 35ng/ml is high and reflects a suspected history of vitamin D supplementation. Because 25-D is immunosuppressive, you need to avoid ALL sources of Vitamin D to get it down to a therapeutic level of 12ng/ml or less. Please see Foods To Avoid and The importance of avoiding vitamin D.
"The 25-D seems to be the most critical factor as to whether the immune system is able to start working. Any level of 25-D above about 20ng/ml is likely to be acting as an immunosuppressant, with an action very similar to that of corticosteroids." Dr. Trevor Marshall, Ph.D.
The other labs posted are unremarkable.
Your D-tests, diagnosis and symptoms indicate Th1 inflammation. Please see Symptoms of Hypervitaminosis-D and you may recognize a few more. You will not get well and your health will continue to deteriorate if you don't treat the underlying bacterial cause of Th1 inflammation with the MP. Please see Is the MP an applicable treatment for my disease?
Most supplements and many medications must be avoided on the MP.
Our clinical study is temporarily closed to enrollment. As vacancies occur, we will admit subjects based on an application. To obtain an application forum, please send an email to marshallprotocol2@yahoo.com with 'request MP application' in the subject line.
best, P.B.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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ellenclark
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Posted: Sat Aug 9th, 2008 01:41 |
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Your 25-D of 35ng/ml is high and reflects a suspected history of vitamin D supplementation. Because 25-D is immunosuppressive, you need to avoid ALL sources of Vitamin D to get it down to a therapeutic level of 12ng/ml or less. Please see Foods To Avoid and The importance of avoiding vitamin D.
I do not take any vitamins but a thought occured to me. When I was in my 20's I went on the acne medication Accutane. I am wondering if that medicine could have negatively affected me? Just a thought
Thanks ,
Ellen
P.S. Sorry about the double post
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P.Bear R.N.
Research Staff
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Posted: Sat Aug 9th, 2008 21:54 |
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Ellen, Although Accutane can strongly effect the skin I doubt it would still be having much if any effect. If you have not taken vitamins I would suspect a food source or too much sun exposure to raise your 25-D to the level it is. It is the chronic L-from infections that we believe are driving your disease process, and you have likely had it for a very long time.
best, P.B.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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ellenclark
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Posted: Sun Aug 10th, 2008 20:45 |
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I am due to receive cortizone injections in both sacroiliac joints and a possible cortizone injection in my shoulder for an impingement. In light of these blood test results would it be advisable to not have these proceedures done this year?
Also I receive Botox Injections for muscle spasms in my neck and trapezious muscles. Is Botox a problem as well?
Thank You ,
Ellen
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P.Bear R.N.
Research Staff
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Posted: Sun Aug 10th, 2008 22:26 |
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Ellen, It is my personal opinion that steroids to manage joint pain are a bad idea since they permit your infection to proliferate. I would only try Botox for unbearable pain that can not be controlled with muscle relaxants or pain medications first. Your 1,25-D test indicates you are very ill and may need pain control with medications perhaps stronger than tramadol. In my opinion a psychologist can only help a little when chronic pain is overbearing; as yours seems to be.
best, P.B.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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ellenclark
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Posted: Tue Aug 12th, 2008 06:35 |
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Is it uncommon to have these high levels at the age of 44?
With out treatment I am imagining my health will decrease.
My biggest concern is that I am a single parent and not receiving
child support. I am the sole breadwinner and I have to keep
working.
I have persevered so far but its getting harder and
harder for me. I wonder if I get too bad would I qualify for
disability? I have heard that it is extremely difficult for FMS/CFS
diagnosis patients to be accepted. What about patients with
TH1 illness?
It's doubtful if disability would even pay my rent here
in CA so it would be a last alternative definitely. I'd rather get
treated and cured of this.
In a previous post you said its likely
that Ive had this for a long time. Question~do you think going
on the MP if I were to find a way would do any good at this point?
Also do patients undergoing the MP treatment continue working?
Or are the too ill for a period of time to continue working? If so
how long approximately would you have to take off work?
I have the Dr.s list but I find it doubtful that Medical will pay
for such treatment. I have had a battle getting any treatment
at all except for the nurse practitioner who ordered the tests
and told me about your site. All the other Dr.s including those
at Stanford Pain Management Clinic see to think my illness is
a psychological problem. Its frustrating but your symptoms list
was so helpful and validating to me.
For example, Ive been using
over the counter eye drops because my eyes are so red people
comment at work. I now understand its not allergy its from sun
exposure. I am an aide at an elementary school and i often have
to be on yard duty.
I appreciate this site tremendously because
now all the unknowns and whats wrong with me are explained
and the pieces are starting to fit together and make sense.
thanks ever so much,
ellen
[spaces added by moderator to aid legibility]
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
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Posted: Tue Aug 12th, 2008 07:37 |
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Ellen,
Th1 chronic inflammatory disease can happen at any age. 40's seems to be quite a popular time to have the disease diagnosed, although children and young adults often fall prey to pathogens.
Many have continued to work during the MP. Some continued to teach young school age children, but they took the process at a very deliberately unagressive pace and didn't impose short term time frames.
Family responsibilities
Words of advice and encouragement from seasoned members
The only thing that has worked time and again with Drs is for those who undertake the MP to be totally aware of everything about the MP, to the point that they are able to have a rational business meeting with their Dr every time they meet with the doctor. There are other tips here, but that is really the guiding principle. Only you can do the work of learning, the work of immunopathology, and the work of communicating effectively with your health care team/doctor(s).
It is your challenge to be aware of what is going on with your process of getting well, enough to report that to your doctor, and not panic about immunopathology (which BTW, means you can expect days your body will tell you without any question that it is doing a battle royal).
Your D test results and the response by a nurse moderator can help your doctor understand your situation better. You can also give your Doctor the link to: How to participate in the Private Section for Health Professionals.
For your eyes:
The Effect of Sunlight/daylight and Bright Lights
Protecting Your Eyes
Should I wear NoIRs, avoid natural light exposure and eliminate vitamin D before starting Benicar?
Best to you Ellen--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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ellenclark
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Posted: Mon Aug 18th, 2008 16:52 |
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Is this something that can be transmitted to family members?
For example if I were to drink out of the same glass as my daughter?
I would hate for my children to get this problem.
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JRFoutin
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Posted: Mon Aug 18th, 2008 17:07 |
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Ellen,
The pathogens find all our children eventually whether we share a glass or not.
Those who are not obviously ill at this time might appreciate avoiding known ways to create a great environment for Th1 pathogens to flourish.
Please read:
How does Th1 inflammation develop? What is successive infection?
Will re-infection occur if my partner or family members are not treated?
Am I contagious?
Some of my family members appear to have Th1 inflammatory symptoms. What should they do?
Can reinfection occur once we are healed?
Diet and Disease: Eating for Health You may want to start your own thread for questions in
** Ask your Questions in Here **
Click "New Topic" to create a discussion
Best to you and your family Ellen--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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