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Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Fri Aug 1st, 2008 22:42 |
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Posted: Sat Apr 21st, 2007 16:46
Edit
*BRIEFLY list your diagnosis or symptoms. POLYMIALGIA RHEUMATICA but I think I’ve had inflammatory disease and endocrine imbalance for 30+ years.
*The date the blood was drawn. 4/09/2007
*Which Lab did the tests? Qwest
*Was the 1,25-D sample was frozen for shipment? Yes
*Were you avoiding foods high in Vitamin D in the weeks before the sample was drawn? No
*How long have you been avoiding foods with vitamin D in them? 2 weeks
*Details of all meds and supplements, hormones etc you have been taking, are taking.
Armour Thyroid 30mg 2 2
Prednisone 5mg 3 2
Adderall 10mg 3 2
Human Growth Hormone .2 genotropin .2 4x week
DHEA Cream 0.1 ml DHEA 25mg 1 1
Hydocortisone 25mcg time release 1 1
Iron Protein Plus 300mg 2 2
Melatonin 3 mg 2
Coenzyme Q10 100's (200 a day) 1 1
Ambien CR 1
Maxivision (& Lutein) 1 1 1 1
Minocin (2), 100mg 3 times/eek MWF 1 1
Probiotic (1) 4 times a week T-TH-SA-SU
Iodine Lugol tablets 1
DHEA TABLETS 25 mg 1
2 teaspoons of celtic salt a day
Magnesium chewable 200mg (Natures Calm) 1 1
Vitamin B 6 1 1
Vitamin B-12 2500 mcg sublingual 1
T3-90mg time release capsules +50 Cytomel 90 50mg Cytomel
Adrenal Rebuilder 2 to 3 w food not taking 1 more if stressed
Triest/Progest/Test cream 20mg 1 1
Cipro 500mg 3 x a week w minocin 1 1
Pregnenolone 200mg 2x a day when needed
IBUPROFIN 34every 4 hours 1 1
Potassium
Avandia 2mg capsule 2 2 1
*Have you ever taken Vitamin D supplements, including the "standard" vitamin-mineral supplement which may contain vitamin D, and/or fish oil. NO vitamin D. I have taken fish oil in the past but not for 6 months or so.
*Have you in the weeks before the sample was drawn, taken Vitamin D supplements, including the "standard" vitamin-mineral supplement which may contain vitamin D, and/or fish oil? No
*If so please name supplement(s) you have taken. None
*How long did you take them? None
*How long have you been avoiding vitamin D supplements?
*Were you avoiding sun/lights at the time of the test? No
*Were you taking Benicar when the sample was drawn? Yes, for 2 days.
*Were you, or had you been, taking prednisone, any other steroid in any form, or an ACE inhibitor when the sample was drawn? (Use of immunosuppressants, especially prednisone will lower the 1,25-D by 25-40%. Considering the clinical picture will help you decide if this is a false low. and all of the above will be taken into consideration.) Yes, Prednisone 30mg.
*Include the measurements for both tests, 1,25D & 25D, noting either ng/ml and pg/ml or the metric equivalent; nmol or pmol.*
1,25-DIHYDROXY 49 pg/mL
Vitamin D, 25-OH 10 L ng/mL
____________________
Dx PMR Dec 05,but I believe inflam disease & endo imbalance 30+ yrs, D tests April 07 D25OH D3=10, D25OH D2=<4, D25hydroxy=10, MEDS:Armour 120 Pred 20 Adderall 50, H Grwth Hrmne .2 X 4, Hydrocrtsone t release 25mg X 2, Ambien, T3 105 mg, Cytomel 50
Carol,
Your 25-D of 10 ng/ml is low for someone not avoiding vitamin D in their diet and/or supplements. It suggests a rapid conversion of this pre-hormone to the active metabolite 1,25-D, and is indicative of Th1 inflammation.
You will want to diligently avoid ALL sources of Vitamin D to keep it down at a therapeutic level of 12ng/ml or less. Please see:
l OTC supplements were safe. Which ones should I be concerned about?
Your D ratio is elevated at 4.9, and clear indication that you have Th1 inflammation, and that the Marshall Protocol (MP) will help you to get well.
Your 1,25-D of 49 pg/ml is 2.11 sigma high. Based on population studies, 98.26% of the population would be expected to have a lower number.
It is above the Merck Physicians Guide maximum of 45pg/ml. At levels above about 42 pg/ml, the 1,25-D (generated by the Th1 inflammation) begins to stimulate bone osteoclasts (http://tinyurl.com/dp7a9), causing bone to be resorbed (dissolved) back into the bloodstream. Not only does this lead to osteoporosis, but also to calcium being deposited into soft tissue of the body, including the lungs, breasts, muscle bundles (Fibromyalgia) and the kidneys (where it forms kidney stones). A Review - Vitamin D and Calcium in Sarcoidosis
Your 1,25D would most likely be higher than this result shows if you weren't on either Benicar or Prednisone. Remember that Prednisone reduces the 1,25D by 25 to 40%. Benicar also reduces 1,25D levels.
Beginning to avoid sunlight now, which is also part of the MP, may also help you start to feel better sooner.
Even if you are fortunate enough to find a doctor who is willing to prescribe the MP, no doctor has the time to fill in all the information that the patient needs to follow the MP and get well. The more you know ahead of starting it, the easier it will be. It is up to the patient to be sure that the doctor follows the MP as it is written.
Thank you very much for the fast response and for the confirmation. I got my NoIRs today and am reading as much as possible.
This work that you all do is a godsend!
____________________
Dx PMR Dec 05,but I believe inflam disease & endo imbalance 30+ yrs, D tests April 07 D25OH D3=10, D25OH D2=<4, D25hydroxy=10, MEDS:Armour 120 Pred 20 Adderall 50, H Grwth Hrmne .2 X 4, Hydrocrtsone t release 25mg X 2, Ambien, T3 105 mg, Cytomel 50
carol165
Member
June 8, 2008
Dear MP staff,
I started on the MP last year but quit when the Herxing became so bad. My Doctor recommended that I go a ‘milder’ route with Doxycycline, Azithrmycin and Valtrex. After several months, I had not improved. The doctor then suggested Heparin to thin the blood to allow the antibiotics better access to the bacteria. I developed frequent nosebleeds and stopped this regimen.
I’m on Benicar (40mg every 6 hours) now and will start Minocycline June 22. Do I need to do anything more?
Please advise.
Many thanks.
Carol Wacker
____________________
Dx PMR Dec 05,but I believe inflam disease & endo imbalance 30+ yrs, D tests April 07 D25OH D3=10, D25OH D2=<4, D25hydroxy=10, MEDS:Armour 120 Pred 20 Adderall 50, H Grwth Hrmne .2 X 4, Hydrocrtsone t release 25mg X 2, Ambien, T3 105 mg, Cytomel 50
Aussie Barb
Research Team
Carol
MP Memberships have Temporarily Closed
Your D ratio is elevated at 4.9, and clear indication that you have Th1 inflammation, and that the Marshall Protocol (MP) will help you to get well.
Your 1,25-D of 49 pg/ml is 2.11 sigma high. Based on population studies, 98.26% of the population would be expected to have a lower number.
It is above the Merck Physicians Guide maximum of 45pg/ml. At levels above about 42 pg/ml, the 1,25-D (generated by the Th1 inflammation) begins to stimulate bone osteoclasts (http://tinyurl.com/dp7a9), causing bone to be resorbed (dissolved) back into the bloodstream. Not only does this lead to osteoporosis, but also to calcium being deposited into soft tissue of the body, including the lungs, breasts, muscle bundles (Fibromyalgia) and the kidneys (where it forms kidney stones). A Review - Vitamin D and Calcium in Sarcoidosis
Your 1,25D would most likely be higher than this result shows if you weren't on either Benicar or Prednisone. Remember that Prednisone reduces the 1,25D by 25 to 40%. Benicar also reduces 1,25D levels.
Beginning to avoid sunlight now, which is also part of the MP, may also help you start to feel better sooner.
Even if you are fortunate enough to find a doctor who is willing to prescribe the MP, no doctor has the time to fill in all the information that the patient needs to follow the MP and get well. The more you know ahead of starting it, the easier it will be. It is up to the patient to be sure that the doctor follows the MP as it is written.
Thank you very much for the fast response and for the confirmation. I got my NoIRs today and am reading as much as possible.
This work that you all do is a godsend!
____________________
Dx PMR Dec 05,but I believe inflam disease & endo imbalance 30+ yrs, D tests April 07 D25OH D3=10, D25OH D2=<4, D25hydroxy=10, MEDS:Armour 120 Pred 20 Adderall 50, H Grwth Hrmne .2 X 4, Hydrocrtsone t release 25mg X 2, Ambien, T3 105 mg, Cytomel 50
carol165
Member
Joined: Tue Feb 14th, 2006
Location: Carlsbad,, California USA
Posts: 5
Status: Online
Posted: Sun Jun 8th, 2008 23:38
Edit
June 8, 2008
Dear MP staff,
I started on the MP last year but quit when the Herxing became so bad. My Doctor recommended that I go a ‘milder’ route with Doxycycline, Azithrmycin and Valtrex. After several months, I had not improved. The doctor then suggested Heparin to thin the blood to allow the antibiotics better access to the bacteria. I developed frequent nosebleeds and stopped this regimen.
I’m on Benicar (40mg every 6 hours) now and will start Minocycline June 22.
____________________
Dx PMR Dec 05,but I believe inflam disease & endo imbalance 30+ yrs, D tests April 07 D25OH D3=10, D25OH D2=<4, D25hydroxy=10, MEDS:Armour 120 Pred 20 Adderall 50, H Grwth Hrmne .2 X 4, Hydrocrtsone t release 25mg X 2, Ambien, T3 105 mg, Cytomel 50Last edited on Fri Aug 1st, 2008 22:52 by Carol165
____________________
Carol from Carlsbad
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Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Fri Aug 1st, 2008 22:53 |
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Aug 1, 2008
I ramped up to Mino 100 and have been there for two weeks with no discernable herxing.
Ready to stsrt phase 2.
Please advise.
____________________
Carol from Carlsbad
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Julia
Advocate (on leave)
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Posted: Fri Aug 1st, 2008 23:40 |
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Hi Carol,
Thank you for copying your earlier thread from the study site which explains the background to your current situation.
Did you wean off your steroid medications before you started the MP, as Lottie advised? Also I see Human Growth Hormone in your signature line, which is contraindicated, but perhaps that's out of date now?
As you're on the MP independently, your doctor will guide you through Phase 2. S/he must be a member of the study site in order to access the Phase 2/3 guidelines and join the private Professionals' Forum. S/he should send an email to Moderators@MarshallProtocol.com listing their desired username and password.
You are welcome to ask any non-medical questions here in your own personal questions thread 
Julia 
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Sun Aug 10th, 2008 22:31 |
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Julia,
Thanks for your reply. I researched again through the list of banned medicines. I could not find HGH as banned. Please clear this up for me?
Also, I need a list of MP doctors in Southern California. I sent an email but did not get a response.
Also, I need to know how to SORT the list of members by location. Do you know how to do this?
Again, thanks.
____________________
Carol from Carlsbad
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Julia
Advocate (on leave)
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Posted: Mon Aug 11th, 2008 00:01 |
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Carol,
Please see Why should I avoid hormone supplementation? especially the section on HGH, where Dr Marshall says, All the steroid hormones weave a delicate balance between each other... ...I haven't specifically tested HGH to see what it affects most, but I did find that all the steroids affect all the Type 1 nuclear receptors, to greater and lesser extents. It is a homeostasis, a balance. Haven't you ever wondered why a disproportionate number of sportsmen end up with Sarcoidosis?
To request the doctor list please post in REQUEST FOR DOCTORS LIST (click here) Please READ INSTRUCTIONS first.. thank you..
How to find members in your area
Julia 
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Wed Aug 27th, 2008 18:08 |
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August 25, 2008 Thank you so much for responding. Currently taking Benicar 4x a day and Minocycline 100mg every other day. Herxing lessened quite a bit and is only in shoulders and hands with an occasional pain in the right ear. Recent blood tests show: Vitamin D 25 Hydroxy at 23.4; T3 at 4.0 so Md. said to reduce my Armour Thyroid from 180 to 150.
I have stopped B-12 injections and am weaning down from HGH; from 7x to 3x right now. I will stop it completely as you advised.
Now, what do i do to start phase 2?
Is this where I am supposed to put my weekly report?
Please advise.
Thank you.
____________________
Carol from Carlsbad
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Julia
Advocate (on leave)
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Posted: Thu Aug 28th, 2008 21:36 |
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Carol, please see Where to find phases two and three. Your weekly report should be in your Progress Report on the main study site. The moderators there will tell you what to do
You can still come here to ask non-medical questions, and you can talk to other MP members about life on the MP in MP-Lifestyles.org.
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Fri Aug 29th, 2008 00:28 |
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Currently taking Benicar 4x a day and Minocycline 100mg every other day. Herxing lessened quite a bit and is only in shoulders and hands with an occasional pain in the right ear. Recent blood tests show: Vitamin D 25 Hydroxy at 23.4; T3 at 4.0 so Md. said to reduce my Armour Thyroid from 180 to 150.
I have stopped B-12 injections and am weaning down from HGH; from 7x to 3x right now. I will stop it completely as you advised.
Now, what do i do to start phase 2?
Is this where I am supposed to put my weekly report?
Please advise.
____________________
Carol from Carlsbad
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Julia
Advocate (on leave)
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Posted: Fri Aug 29th, 2008 00:43 |
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Carol,
Please keep all your questions in your own personal thread. If you can't find it, click on 'My Account' at the top of the page and the link will be there.
You asked this before and I answered you in your own thread. Click here to go to it
Julia 
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
|
Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Fri Aug 29th, 2008 04:47 |
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Sorry, but I find the instructions being given to me are very confusing. Where do I find out how to get into phase 2? I filled in the questionnaire and posted my question under my account: carol165. Then I was told to post elsewhere. Now you tell me this is wrong? What do I do? HOW DO I GET THE INSTRUCTIONS FOR PHASE 2?
Thank you for your help.
____________________
Carol from Carlsbad
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natalie17
Advocate
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Posted: Fri Aug 29th, 2008 09:52 |
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Carol,
You have access to the Phases Two and Three Forum on the MarshallProtocol.com study site, click the "New Topic" button at the top, right hand side of the screen. The top of the forum will also contain the guidelines.
The way your Dr can gain access is by following the instructions under
About our Private Section for Health Professionals
He or she will be manually joined into the database after sending an email to Moderators@MarshallProtocol.com listing their desired username and password.
I hope this helps Carol.
Best of luck,
Natalie
____________________
I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Fri Aug 29th, 2008 23:44 |
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Natalie, G'day!
You solved my problem! No one suggested that I go back to the original website to get this information. I now have it thanks to you.
By the way, I loved Australia during my 2 visits. I am aching to return if and when I heal.
I hope that you are continuing to improve.
Carol
____________________
Carol from Carlsbad
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Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Sat Sep 6th, 2008 05:15 |
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| September 5, 2008. I started phase 2 on Sept. 3 with continuing 4 Benicar, [moderator note - medications edited out - study site only] Right hand still inflamed, painful but nothing else new to report
____________________
Carol from Carlsbad
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natalie17
Advocate
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Posted: Sat Sep 6th, 2008 05:53 |
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Carol,
You have access to the study site, http://www.marshallprotocol.com .
Please start a new topic in the Phase 2/3 forum over there where you can report your meds - have a look at other's progress reports if you're unsure on what to write.
This site is for general questions only.
I'm glad you enjoyed Australia on your visit, I'm sure you will make it back some day .
Thank you,
Natalie
____________________
I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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Carol165
Member
| Joined: | Fri May 30th, 2008 |
| Location: | Carlsbad |
| Posts: | 12 |
| Status: |
Online
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Posted: Mon Sep 8th, 2008 00:51 |
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| Thanks, once again.
____________________
Carol from Carlsbad
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