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Liopluridon
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Posted: Wed Jul 30th, 2008 22:18 |
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Hello,
I have results of labs from Quest.
D,25 - 14
D, 1,25 - 52
I am not a member of the study but I have a very helpful doc here who would help me along the way.
I have the Noirs but need to do a little more reading.
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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JRFoutin
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Posted: Wed Jul 30th, 2008 22:44 |
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Tommy,
Good to see you have some details to post, use this instruction set:
Help with Understanding D-metabolite tests
Moderators will help you understand the values returned from lab tests in this forum
Yes, do continue study. What you know will help you to correctly and accurately report to your Doctor so their effort and your outcome can be positive and rewarding.
Quick access to alphabetical index of topics to study: FAQ
Best to you Tommy--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Liopluridon
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Posted: Wed Jul 30th, 2008 23:56 |
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Thank you for the links Janet. Doc indicated the 1,25 D was too high in proprotion to the 25, D. I have been avoiding my favorite foods for a few weeks.
He will help me with the meds and I won't start for another week or so. The info on this site has been a tremedous help and I know everyones reaction is unique.
Tom
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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JRFoutin
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Posted: Thu Jul 31st, 2008 04:58 |
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Tommy,
IF you want nurse interpretation of the numbers along with any other bloodwork you have taken, then the link above tells you where and what to post.
All other questions you have are great on this thread, but posting your lab results in the right section gets more feedback about a number of details.
FWIW, my numbers looked similar enough when I started the MP, so your doctor should not have any trouble looking at the D's  . Still, wouldn't hurt to get the full reply back from experts on this site. Might as well!
Best to you Tommy--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Liopluridon
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Posted: Sat Aug 2nd, 2008 19:06 |
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Thank you Janet.
Is there any correlation to D25 level and responce to light when starting the MP with respect to reaction?
For example mine is 14 while although making a conscious effort to avoid Vit D, I am in the sun going to and from work and not drastically covered up at present. Could it be that my skin is just ineffecient at producing Vit D? Just wondering. Since your #'s were similar, was light a challenge at the beginning?
Thanks
Tommy
edit:
I found this which helped answer my question -
Light Sensitivity-Basic Information
Last edited on Sat Aug 2nd, 2008 19:39 by Liopluridon
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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JRFoutin
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Posted: Sat Aug 2nd, 2008 20:08 |
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Tommy,
Glad you are learning to find things in the library using the FAQ index. Good for you!
Remember that agressive conversion of 25D to 1,25D, beyond the standard body kidney/liver expectation, is part of the pathogen-directed process.
Light sensitivity seems to come in 2 varieties:
1. EYE sensitivity
I had massive light sensitivity, which meant the NoIRs were my best buddy. I did not have the other kind of light sensitivity or I didn't play around with fire cracker light exposure to find out if I had the other kind of light sensitivity. Very likely, my immediately sore eyeballs (even with NoIRs) kept me out of the light so it couldn't be my problem .
2. GENERAL light sensitivity
This seems to be more commonly ignored or not connected to trouble, because there isn't an immediate "ouch" effect like the eye sensitivity gives. Some have noted blood pressure changes within minutes, but most just seemed to get latent next day or so effects like being really impatient/cranky (into Lyme range dimensions sometimes), sleepy/exhausted or significantly more and/or more intense symptoms (even to really spiked levels).
COMPLIANCE
The eye light sensitivity seems to be pretty self-governing and probably helped me get and keep on task for the first 18 months, as I just couldn't comfortably stray into error's way (wink).
General light sensitivity seems to lose a few on many a turn because they just didn't get that their constant dancing in the light is keeping them from getting well and/or is making problems for their recovery.
You might want to use big picture long/term charting to help you discover more about yourself that day to day tends to hide. Also, when in doubt it never hurts to err or the side of caution and take the word of many who found out the hard way that light just isn't something to mess around with. Why take chances with slowing your progress?
Best to you Tommy--Janet
Suggest: Re-read all info as it is always being updated.
see also Dr. Marshall's recent paper Vitamin D Discovery outpaces FDA decision making describes the complicated feedback mechanism regarding 25-D and 1,25-D.
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Liopluridon
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Posted: Mon Aug 4th, 2008 18:33 |
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I requested the application for about a week ago. Waiting for that. In any case, I'm not in the cohort but doc prescribed the meds and will help me.
I just started the Benicar 40mg q6 as of yesterday. I'll keep a journal that I can post if accepted.
Thanks
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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JRFoutin
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Posted: Mon Aug 4th, 2008 18:58 |
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Tommy,
Please keep your a copy of the Phase 1 Guidelines close and refer to it often.
Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol
Safety warning Also helpful:
Downloadable MP Documents, Phase 1
Checklist: basic links for MP
adequate eye protection is a must.
Please see Foods To Avoid and The importance of avoiding vitamin D.
Most supplements and many medications must be avoided on the MP
Doctors have access to all phases of the MP if they are a member of the Private Section for Health Professionals . This is a must so your doctor gets the help and information you need. Please read Is there a right pace for the most effective healing on the Marshall Protocol? Don't be in a hurry to increase! Slow and steady wins the race. Please remember that Rushing through Phase 1 denies one of a learning opportunity that can serve well through the entire MP.
Do read posts on Phase One Alumni Forum.
Best to you Tommy--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Liopluridon
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Posted: Mon Aug 4th, 2008 23:29 |
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 Thank you Janet, The doc had a nice laminated guide he was going to give me but I figured all the details were here.
After 1 day, just a dull headache and slight dizziness/lightheadedness/tinitus. Have noirs.
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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Liopluridon
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Posted: Tue Aug 5th, 2008 01:03 |
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| I did a search for Rosac cream but didn't find anything. Just wondering if it would be an issue to use occasionally for some dermatitis problems while using the MP Meds.
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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JRFoutin
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Posted: Tue Aug 5th, 2008 04:00 |
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Tommy,
If it was me, the ingredient I would be concerned about is really the sulfa component. I would wonder if bacteriostatic antibiotics, even topical, might produce a different outcome during the MP than you are expecting.
Best to you Tommy--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Julia
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Posted: Tue Aug 5th, 2008 09:52 |
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Tommy,
I would have the same reservations as Janet about that cream. I have a lot of trouble with eczema, and I sometimes use hydrocortisone cream 1%. It's a mild steroid - not ideal, but I use as little as possible. Other tips are in the link I've developed a rash. What should I do?
Before I use the cream, I try washing the itchy area well with cold water and a soap that I know is okay for me. Sometimes that's enough to calm the itch.
Julia 
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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Liopluridon
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Posted: Thu Aug 7th, 2008 02:05 |
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Go raibh mile maith agat Julia. I will stop using it.
Well, after 3 days on Benicar 40mg every 6 hrs., The first day was the toughest. I have been ok on day 2 and 3. Just a note.
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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Liopluridon
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Posted: Thu Aug 21st, 2008 14:11 |
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I started the 1st abx yesterday (wed).
I have no major issues
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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Julia
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Posted: Thu Aug 21st, 2008 23:09 |
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Keep up the good work, Tom
Slainte!
Julia 
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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JRFoutin
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Posted: Thu Aug 21st, 2008 23:13 |
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Tommy,
Good for you!
I gave you the link above, but if you are working with your doctor, you both might appreciate some careful charting. This will help you identify what is a response, and get in the habit of rating them, what to look for, and when to look for it, as well as helping you and your doctor spot trends or possible red flags during incremental increases of medications:
Downloadable MP Documents, Phase 1
Best to you Tommy--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Liopluridon
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Posted: Sat Aug 23rd, 2008 00:15 |
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Thanks
That's a great guide
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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Liopluridon
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Posted: Thu Aug 28th, 2008 00:50 |
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Reading the Phase I questions and answers on the study has been very helpful.
I was wondering, by the time I get to Phase II independantly, is there some way I can read the Phase II topic on the study site as well?
Thanks
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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JRFoutin
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Posted: Thu Aug 28th, 2008 02:26 |
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Tommy,
Many in Ph2-3 are beginning to post on the alumni forum. There is no discussion of meds, just identifying what they are going through and some of their thoughts.
Nobody jumps from phase 1 to wellness, and much of the difficult part of the journey happens after the ramp of phase 1.
Best to you Tommy--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Liopluridon
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Posted: Fri Oct 10th, 2008 01:10 |
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Just a note.
I'm doing the phase 1 abx @100mg every 48 hrs and Benicar every 8hrs.
I had some reactions (Flu like) that kept me home a couple days last week but so far so good.
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Sarcoidosis/lungs Skin cancer 125D52 MP-Not Started NoIRs No major light avoidance exp r/t work 25D14(JUL08)
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