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EllenG
Member
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Posted: Tue Jul 1st, 2008 06:56 |
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| I have a thousand questions and my head is spinning after reading most of the info I could find on the MP. It was also a pleasure speaking to Dr. Marshall, thank you for getting me here. This is so exciting after having the Pulmonary specialist tell me the sarcoidosis will kill as there is no cure! Ha! I was diagnosed in October 2007 with sarcoidosis, that was the result after the biopsy. At the time I was getting ready for Breast cancer surgery and they found enlarged lymph nodes in my chest. I have granulomas in my lungs and about 5% loss. I am almost finished with my reconstruction, I have one more surgery, in August. My guess is I should wait till after the surgery, but how long do I wait? Thank you for all the wonderful info here. When I go to my doctors in the next week or so, I will be handing them info on the MP. I also have been hypthyroid since 1985.
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Live each day to the fullest, you never know what tomorrow will bring.
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Julia
Advocate (on leave)
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Posted: Tue Jul 1st, 2008 11:39 |
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Hi Ellen, and welcome!
If the surgery is essential to complete your treatment, it would be best to wait until after that before you start the MP. Otherwise you would be having to stop it for surgery anyway.
If you're given antibiotics after the surgery, they need to be well out of your system before you start taking Benicar, or you might land yourself a nasty dose of immunopathology (herx)  Most abx clear in a few days, but some take a few weeks - let us know which you're given.
There is also the question of your strength; reconstruction is pretty major, and you'll be a bit fragile for a while. Go extra cautiously when you start, within the guidelines of Phase 1.
Your wait is giving you time to familiarise yourself with the MP, which will be time well invested. I'll give you some links to start you off, if you haven't already found them, and there's plenty more in the vast MP 'library'!
Sarcoidosis Facts
"What is the Marshall Protocol?"
Simple Explanations
Before you begin the MP
Success Stories
Thyroid disease
Bacteriality - a blog by one of our members, with interviews with recovering members, science-made-easy articles, and an introductory video about the MP.
MP Memberships Temporarily Closed
Please ask any further questions here at your own personal thread by hitting the reply button 
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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EllenG
Member
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Posted: Tue Jul 1st, 2008 23:48 |
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Thank you for your response. I have been trying to read through the documents you listed. Some of them will not allow me in to see them as Membership enrollment is closed. Any suggestions on how to access them?
Thank you, Ellen
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Live each day to the fullest, you never know what tomorrow will bring.
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 138 |
| Status: |
Offline
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Posted: Wed Jul 2nd, 2008 01:11 |
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Ellen
Please let us know which in particular you are unable to view. Thank you. I logged out and can access all of the links Julia posted above. was there something else?
Thanks, Barb ...
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EllenG
Member
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Posted: Wed Jul 2nd, 2008 01:40 |
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Thanks for the quick response. The one I cannot access is "Before you begin" That is the one that requires a login the it tells me membership is closed.
Thank you,
Ellen
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Live each day to the fullest, you never know what tomorrow will bring.
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 138 |
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Offline
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Posted: Wed Jul 2nd, 2008 01:59 |
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Thank you Ellen
we will look into the accessibility of that link.
Barb ...
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 138 |
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Posted: Sat Jul 5th, 2008 23:06 |
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| Link Before you begin the MP
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EllenG
Member
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Posted: Sun Jul 6th, 2008 07:37 |
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Thank you for helping me to access this information. A lot of reading ahead of me. I have requested Doctor info, how long does it usually take to get this?
Thank you.
Ellen
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Live each day to the fullest, you never know what tomorrow will bring.
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 138 |
| Status: |
Offline
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Posted: Sun Jul 6th, 2008 08:42 |
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| Several moderators are unavailable so it may take a while to respond to your request. Thank you for your patience.
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EllenG
Member
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Posted: Tue Jul 29th, 2008 03:11 |
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Barb,
Thank you for the Doctors list.
We just got home from a house hunting trip in Oregon. Before we left I spoke to my Oncologist about the MP. She said it would be best for me to wait until I move to get started on the program as it might not be so easy to find a doctor near to where we will be living. The closest doctor on the list you sent is about 50 miles from where we will be living. She also said that if this is a phase 3 clinical trial I might be able to get a doctor(must be a Pulmenologist) In our insurance to work with me and the insurance would pay. Is this a phase 3 clinical trial?
Thank you for all your assistance.
Ellen
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Live each day to the fullest, you never know what tomorrow will bring.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
| Status: |
Offline
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Posted: Wed Jul 30th, 2008 23:10 |
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EllenG,
Appreciate your update. Please try to remember:
This is so exciting after having the Pulmonary specialist tell me the sarcoidosis will kill as there is no cure!
Try to choose a doctor that will work with you and has a compatible business case to consider working with you on the MP. Most Pulms are not ready for that yet and your oncologist may not be aware of that detail.
You will need a certified health care practitioner to work with you on the MP.
Few have doctors who have experience using the MP. But these doctors are still capable of monitoring your health status.
Downloadable MP Documents FORMATTED FOR DESKTOP PRINTING
you may wish to invite your Dr to join the
Private Section for Health Professionals
You will likely want to find a doctor who is adept and able to work through pharmacy and insurance challenges, as many of us have already discovered.
Other reading:
CANCER and Th1 inflammation
Best to you EllenG--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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EllenG
Member
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Posted: Fri Sep 26th, 2008 00:55 |
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Janet,
I have been busy and unable to reply to you. Had major reconstructive surgery in August and just haven't felt like being on the computer.
Thank you for the info about pulmonologists. I see you live in Oregon, that is where we plan on relocating to. What part of Oregon are you in. Only ask because you might be helpful in finding that doctor I will need when I get there.
Hope all is well with you.
Thank you,
Ellen
Live for today, for you don't know what tomorrow will bring
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Live each day to the fullest, you never know what tomorrow will bring.
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