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birz
Member
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Posted: Sun Jun 29th, 2008 21:07 |
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Greetings and Slautations from an aprehensive newbie.
Not too sure where to begin so will try to synopsize my journey and then ask my first questions.
I live in Canada in the province of Ontario in a reasonably remote location due to my health needs. Tucked away on 120 plus acers in an old log cabin my world should be idylic.
Approx. 14 years ago I had a horrific chemical injury with a multitude of garden centre chemicals: fertilizers/fungicides/herbicides/pesticides which resulted in MCS - Multiple Chemical Sensitivities with so many symptoms (many similar to Lyme) that my life was overwhelmed for years and this was the impetus to move where we are to now.
Recently 2.5 years ago I had the good fortune to become a patient of one of Ontario's rare EI doctors - an Environmental Doctor in Ottawa I have been seeing monthly since then.
We have been working to gether to regain much lost ground since.
The first thing introduced was a rotating (removal of grains/milk etc) type diet which regained me oodles of energy which unfortunately quickly resulted within two months - two heart attacks and the insertion of two stents for blockage.
After many extreme reactions to the prescriptions issued at the time I was released; now 2 years later I am off them all and relying on two natural products:
- Bulouke/Lumbrokinase to replace the prescription drug Plavix
and
- Serrepeptase to replace the prescribed daily asprin.
Unfortunately my energy did not return.
I have quite a heavy metal load from my chemical injury and have been slowly trying chelte these with a new suppository and infarred sauna. Lead is my highest.
This will be put on hold for now.
In the last two years my sed rate has been rising slowly - so we started checking several possiblilities and the first we dealt with was a positive test for toxoplasmosis
- in February 2008 - we dealt with this over a 3 week period - the when later testing the positive remains but it was felt it was a response still to the die-off factor. I just managed to get through the prescribed process of drugs.
My next positive was to Epstein Barr. We chose at this time to use several Natural Herbal Virals for the time being.
Then my TH1 / D went up and a test for Lyme was sent to California Igenex.
Needless to say it or I would not be here the results came back recently - firmly Positive. My doctor mentioned she had heard good results of the Marshal Protocol.
Unfortunately after reading I have discovered she prescribed the wrong drug Cozaar instead of Benicar so I need to remedy that before I can start.
My first hurtle will be first of all whether my body will allow me to use Benicar.
In the mean time I am making the cabin dark - darkening my monitor has already helped the ache in my eyes plus covering from the sun and have ordered my glasses.
I have also researched D foods and have begun their elimination.
I am wondering when I had first rec'd Lyme as I do not remember a rash or bull's eye - but as many of the symptoms of which after reading the list I have so many - I may have just put down to the plethora of things which also come with MCS also so similar.
IF it seems I can tolerate the Benicar and I will start ultra slowly with it and build up to full dose..
Finally my first questions will be about the Buluoke and Serrapeptse as I need to continue these especially for my stents are the newer problematic drug eluting variety.
Has anyone stayed on these and done this MP protocol?
I am on many other supplements but will discuss eliminating those after the first hurtle of whether I can tolerate Benicar is a success. I am ever so hopeful.
Apologies for this long convoluted dialog but felt I needed to present my whole health scenerio to receive a pertinent answer was foremost in my mind.
- it is so wonderful to have a place to ask these questions as I am worried as to how my system is going to react and how my journey will go..
Appreciate
Birz
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MCS, CFS, F, IBS, Celiac, 2 heart attacks 2006, drug eluding stents 2006, Lyme, Epstein Barr, Low thyroid, Low Lithium.
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Rico
Advocate
| Joined: | Wed Oct 17th, 2007 |
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| Posts: | 87 |
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Posted: Sun Jun 29th, 2008 21:15 |
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While you await a response from a moderator, you may want to read the following:
http://bacteriality.com/2008/05/23/interview20/
http://bacteriality.com/2007/12/28/interview14/
http://www.marshallprotocol.com/forum37/4661.html
http://tinyurl.com/5mf2vh
Last edited on Sun Jun 29th, 2008 21:19 by Rico
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Essential Info; FAQ; ABC's of MP; Side Topics; Perspectives
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birz
Member
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Posted: Mon Jun 30th, 2008 01:45 |
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Thank you appreciate ~ Birz
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MCS, CFS, F, IBS, Celiac, 2 heart attacks 2006, drug eluding stents 2006, Lyme, Epstein Barr, Low thyroid, Low Lithium.
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Julia
Advocate (on leave)
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Posted: Mon Jun 30th, 2008 11:38 |
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Hi Birz, and welcome!
Thank you for sharing your story.
Rico has given you some good links.
You have obviously been doing some reading in the vast MP 'library', which is great. You'll have realised by now that your problems are not caused by one specific pathogen, but by many, and that trying to target one at a time is going to take forever. Better to target the infected immune system itself, and let it do its proper job of clearing up all the various invaders.
IF it seems I can tolerate the Benicar and I will start ultra slowly with it and build up to full dose..
Please see Why shouldn't we ramp up the dose of Benicar? There are no exceptions.
Well done for spotting your doctor's mistake - there is no substitute for Benicar.
Medications To Avoid on the Marshall Protocol
Pain Control
Will the Marshall Protocol treat co-infections?
Will the MP treat MCS?
Will heavy metals or toxins hinder my recovery on the MP?
Phase One Guideline
I am on many other supplements
Why do I have to stop my alternative treatment and avoid most supplements?
Please ask all your questions here in your own personal thread 
Julia 
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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birz
Member
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Posted: Mon Jun 30th, 2008 16:14 |
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Julia wrote:Thank you for sharing your story.
Rico has given you some good links.
You have obviously been doing some reading in the vast MP 'library', which is great. You'll have realised by now that your problems are not caused by one specific pathogen, but by many, and that trying to target one at a time is going to take forever. Better to target the infected immune system itself, and let it do its proper job of clearing up all the various invaders. Julia appreciate your reply.
Yes read the interesting links that Rico supplied - was good to see scenerios that were similar in regards to MCS.
I have spent many hours reading with breaks in between as my comprehension level is fine but I have great problems with retention.
My short term memory is broke. And writing comprehensively takes much time - actually makes my head ache so please bear with me.
I will have to have help with keeping my times for pills straight. Hopefully my partner will be able to do it for me till my brain decides to work again.
He is 82 and this year I will be 62 soon and he is in much better shape than I.
I must admit I am terrified. I hope and pray you all are correct
- A year spent really rotten cannot be much different to many parts of the past 14 years.
I was pleased to read that when I start to have an immune system my lead and other heavy metals should natural be disposed - hard to believe at the moment as I get so sick when I try to remove them too fast with my IFR sauna and cheletion.
The topic I am searching for is one about these new drug eluting stents - inserted since 2006. There are major problems with it not healing properly due to the drugs which are impregnated into it.
According to my cardiologist I am supposed to remain on Asprin and Plavix till they understand these new complications better - as these drugs will continue to prevent blood clots from sticking to the exposed metal surface - my understanding the drug eluting stents work too well and tehy don't allow the body's cells to cover the bare metal - thus when both medicines are stopped it blood clots.
I had no problems moving from the asprin which made me ill to the Serrapeptase but it was a uge leap of faith to move from the Plavix to the Bulouke/Lumbrokinase.
My cardiologist was/is dead set against either change as they are not western medicine - he keeps telling me I will die not following his set ideas. He would have a S*** fit if he read the MP. Thank heavens I also have a wonderful EI doctor even though it is obvious she needs to read more to be of help.
BUT
Much to my cardiologists surprise - I am still here and with no problems in that specific area. Recent tests show no heart problems at the moment - other than I am grossly out of shape having had no oomph or energy for way to long
Now I am to have to give up my safety net for Benicar. Yikes!
I have a bad track record with precriptions as I mentioned before with many trips to the emergency which is I might mentioned an extremely long 60 min. drive away - my doctor at the moment is a 3.5 hours drive away in the opposite direction.
That is why I thought seeing if they would make my throat start to close or the red blotch burn on the skin or what else could be found by going slowly.
BUT I did read why your protocol says to jump in with both feet - it is rather a scary,terrifying thought and will be another leap of faith - if problems arrouse one takes more.. so opposite to what I know. I will have to print out the sheet for huge negative responses to have it handy.
- seems to be becoming almost a habit this leaping into the unknown..
I have put in a request for a doctor's list that is familiar to this MP for Ontario but no answers yet. Will keep my fingers crossed as this would be my best answer to have someone who truly understands the whole scenerio.
Most of the new reading suggestions you have made I have read since I wrote
- but will read those I have missed
- there is way too much
- so I have started a bookmark system in catagories until my retention improves.
I just have to remember to look.
My goals for this week is to revamp my diet list to intergrate the changes required.
To get my prescripton re-issued for the correct drug and to order the glasses
- as one way or another this will happen.
I also have to start darkening the cabin and lowering the light bulbs.
With my low energy/next to nil and lack of brain power the process will take time.
I do manage a trip a week into the world even with my MCS problems with the outside world so hopefully things will start to come together quicker than I expect.
In the meantime I will continue working towards less sun/light exposure and changing my diet and reading. Am I understanding correctly that foods I have not been eating due to food sensitivities I can reintroduce and just remove the D foods with no problems or should I keep my problematic items still aside.
With the Celiac does it also improve? I will have to search that word next.
This is going to be one interesting scary process I hope I am strong enough - I know I am stubborn - hopefully this will work in my favor.
- can I ask - has anyone died on MP? and get an answer?
That is my biggest fear must be cause I read so much about all the cardio symptoms that most people go through and my brain will panic when they start for sure as it took a long time to feel safe after my heart attacks and the stent insertion.. even though it knows my last tests were fine.
Having a written record of the process here will be a good thing.
Now I have to put my sore head away as it has been trying to think clarly for way too long.
We have been raining for days - now that I have decided to shun sun and bright light it is a glorius day - will have to finish my gardening late evening or just before sunrise. I can see that the dusk ends of day will become all important.
Sharon
Peace - Joy - and Positive Chi
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MCS, CFS, F, IBS, Celiac, 2 heart attacks 2006, drug eluding stents 2006, Lyme, Epstein Barr, Low thyroid, Low Lithium.
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Julia
Advocate (on leave)
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Posted: Mon Jun 30th, 2008 21:11 |
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Sharon,
You sound like a winner 
Take care with reducing light and D foods before you start Benicar. Vitamin D acts like a steroid and some gentle weaning is required. Benicar helps your body adjust.
I will have to have help with keeping my times for pills straight. See Pill reminder alarms. I use the countdown timer on my mobile phone, and a simple 7-compartment pill box, into which I put my meds every Saturday night.
Going off supplements may not include those prescribed for your stent problems. A medical moderator should be able to guide; please be patient as they're very overworked at present.
Am I understanding correctly that foods I have not been eating due to food sensitivities I can reintroduce and just remove the D foods with no problems or should I keep my problematic items still aside.
Give yourself a while to adjust to the MP before you start testing problem foods! It may take a while before you can tolerate them.
Celiac Disease
- can I ask - has anyone died on MP? and get an answer?
Yes, a very small number have died (out of the thousands worldwide who are doing the MP), because they were extremely ill to start with, and/or because hospital doctors didn't permit them to continue Benicar when they were admitted with severe immunopathology. The number is tiny in comparison with the number who have died over the same period through following traditional treatments - steroids etc.
When should I be concerned about cardiac symptoms?
Julia
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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birz
Member
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Posted: Sun Jul 6th, 2008 01:37 |
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Thank you for your input.
I am not sure what are the paramiters?
symptoms are extremely debilitating or vital organs are severely compromised, it may be very difficult or even impossible to tolerate the immunopathology (IP) involved in the healing process
I have no idea IF what is ahead is more than I can handle and will have to insure all I do is top notch so I can regulate symptoms effectively as possible. Being stubborn will help as I do not easily "wimp" .
- I am hoping there will be an answer forth coming from my search for an MP doctor in my area who will work closely with my EI doctor as I sure would prefer to have someone knowlegeable in my corner who can check me out and be forthright in their answers by understanding all of my problems.
Until I gather all the info I need to feel more comfortable; I will continue asking questions and reading the vast collection info available on this site.
Needless to say I am still not comfortable within the small amount of knowledge I have collected so far. Hard slugging when one's brain is on holiday.
Interesting I do not have any idea what constitutes
vital organs are severely compromised
- as I mentioned previously I do have a history of two heart attacks which were followed up by the insertion of two of the newer style drug eluting stents.
With the Help of my EI doctor in Ottawa I am off all prescritptions including Plavix and am happily doing well on Serrapeptase instead of Asprin as an anti-inflamatory and Boluoke.
I can provide urls for further information on both these products if required.
Much to my tunnel visioned western medicine only Cardiologist's dismay even though my heart tests for my heart show no new problems for over 2 years.
I hope to remian on both of the products during the MP
Julia wrote earlier:
Going off supplements may not include those prescribed for your stent problems. A medical moderator should be able to guide; please be patient as they're very overworked at present.
I am hoping to have someone in the medical advisory area can check my info out thoroughly. As this will make a step forward in my comfort to keep using these two products.
I am hoping that my taking my time to understand - going slowly so my brain can pick up some of the info - will not be too negative on my illness - no idea if time is of essence to get started- hopefully that this time learning will not make the process worse.
At this point I am not sure what symptoms belong to what problem - but have decided it doesn't really matter as the bacteria all over - have to be dealt with.
Are there people who have successfully finished the MP and no longer require constant prescription drugs to maintain their lifestyle to the fullest?
I do not see nor have I found any "I am totally cured alumni "anywhere so far.
I have started gathering curtains and methods for hanging such curtains. Making myself an easily used reference list for important bits - Hopefully I can get a docotor and see where on the hierarchy of wellness I fall. I have been sick with MCS and other bits for so long - I have forgotten what the base line for "norm" is.
Slowly I plod - step by step and eventually I will win!
Thanks Sharon
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MCS, CFS, F, IBS, Celiac, 2 heart attacks 2006, drug eluding stents 2006, Lyme, Epstein Barr, Low thyroid, Low Lithium.
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P.Bear R.N.
Research Staff
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Posted: Sun Jul 6th, 2008 22:29 |
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Birz, In my opinion it is a good idea to be on anti-clot medication(s) after stent placement but I have no experience with the two alternative products you are on. We do require that those who are on any blood thinners to have frequent labs drawn at first while on the MP to make sure things are in the proper range. Is it safe to take anticoagulants while on the Marshall Protocol? "I have been absolutely clear from day one that unless the physician looking after the patient is prepared to take 100% responsibilty for adjusting the anticoagulant dosing then any patient on anticoagulants is precluded from starting the MP."
Dr. Marshall
Best, P.B.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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birz
Member
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Posted: Mon Jul 7th, 2008 03:23 |
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P.Bear R.N. wrote: Birz, In my opinion it is a good idea to be on anti-clot medication(s) after stent placement but I have no experience with the two alternative products you are on. We do require that those who are on any blood thinners to have frequent labs drawn at first while on the MP to make sure things are in the proper range.
Is it safe to take anticoagulants while on the Marshall Protocol? "I have been absolutely clear from day one that unless the physician looking after the patient is prepared to take 100% responsibilty for adjusting the anticoagulant dosing then any patient on anticoagulants is precluded from starting the MP."
Dr. Marshall
Hmmm wonder how I missed that statement of Dr. Marshall's - perhaps I just hadn't read that far yet..
- I know I wouldn't have searched the word anticoagulants - that word would have needed a working brain for me these days.. or perhaps I did read it and just don't remember - life gets to be too much sometimes.
I agree - the Boluke and Serrapeptase are sadly not known by many western doctors - in fact if I were not going to a very special EI doctor I probably wouldn't have even been able to go this route which I deem after much reading is much safer for many reasons.
In fact doctors of cardiac patients in Europe have been prescribing them for years with great success so it is not just China and Japan.
Too bad I couldn't magickally conjure up a European MP doctor who is into cardiology in Ontario who would be willing to work with my EI doctor...
So now I will patiently wait to see if there will be any Ontario MP doctors reccomended from this group and if he/she will discuss all this with my EI doctor.
If not - I can only hope an alternative thought idea will arrive that will make this journey doable..
Things and thoughts are not going too smoothly at the moment on many levels it seems.
Had a bad reaction yesterday to perfume which brings on a miriad of angst and anxiety
- thus I am having a really rough day so will re-look at all this tomorrow when hopefully I do not feel so negative and the information will make smoother sense.
I hate this magnified "me against the world feeling" I get after exposures.
Thanks for being there. There has to be answers for all this to work out.
I do not see any viable alternate thought available.
It just may take longer than I figured originally.
Birz
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MCS, CFS, F, IBS, Celiac, 2 heart attacks 2006, drug eluding stents 2006, Lyme, Epstein Barr, Low thyroid, Low Lithium.
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birz
Member
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Posted: Thu Jul 17th, 2008 22:20 |
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Update July 17th 2008
I have not disappeared - have been trying to read and digest the plethora of information available on this site. Not all is sticking easily into my memory so I have divised a growing set of bookmarks via topic as I know I will require them eventually and am hoping that this system will still make sense when I need them especially if I enter panic mode down the line.
My next appointment to see my doctor is in September and hopefully I can arrive with a list of questions and thoughts to firm up the MP in my head.
When all goes well and we can get the Benicar into Canada smoothly
(any answers for this as how others are handling it?)
I hope to start the MP in October or November (see how smoothly things fall in place)
- seems to be no way it will happen sooner
- besides the shorter days and winter will be condusive to smoother start - I hope - as it gets colder my hibernation instincts usually kick in.
How appropriate it will be this year as I will be needing a cave.
My next area to study and start to learn will be what foods have Vit. D.
Need to make a list which integrates easily and makes sense.
I can see that because I am already on a gluten free/celiac/dairy free/ mix of cooking from scratch some of the dietary thoughts will not be too difficult to handle.
Would/could someone list pertinent food pages and or forums for the -D thunks required. Would appreciate.
I continue to stack my deck with hopes that when I start my MP protocol I have all the information at my fingertips.
I will stop by with more questions as they arise.
I tirn 62 next Tuesday 
- who knows when I write that I turn 65 perhaps I will be starting to be a new me
Sharon
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MCS, CFS, F, IBS, Celiac, 2 heart attacks 2006, drug eluding stents 2006, Lyme, Epstein Barr, Low thyroid, Low Lithium.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Thu Jul 17th, 2008 23:13 |
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Sharon,
Phase One Guideline has the most condensed basic info set to get started, with links on the last page.
You can find many topics with links to answers already in the alphabetical FAQ. For example, these links on D and Benicar and MP basic info sets:
VITAMIN D Tutorial Calciferol and Calcitriol
Where to purchase Benicar for self-pay members
(has information for those in Canada)
What is the Marshall Protocol?
The Marshall Protocol -- simple explanations
The history of the Marshall Protocol
Like Rico suggested above, I also recommend you frequently read Amy Proal's http://www.Bacteriality.com site. A good place to start for a simple perspective is her recent presentation in vimeo (movie) format. Here is Amy's description and the link:
"In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 89 minutes."
http://bacteriality.com/2008/05/07/mpintro/
Best to you Birz--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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ndb4o
Member
| Joined: | Wed Aug 27th, 2008 |
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| Posts: | 1 |
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Posted: Thu Aug 28th, 2008 01:49 |
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Note from Admin: ---- ndb4o, we have a rule here that until you have had personal experience of the MP into (at least) phase 2, you do not pretend to offer advice to anybody.
This website is for information regarding the Marshall Protocol ONLY.
Please let the Advocates do their job without them having to additionally let you know where you are going wrong---
---- text edited out ---
ndb4o (new member)
Last edited on Aug 28th, 2008 by Admin
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