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zacdesai
Member
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Posted: Thu Jun 12th, 2008 16:37 |
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HI,
I got to this site some time around Sept last year. I tried to soak in whatever I could and printed some material for my Doc here in South Africa. Ive had this condition since 2005, done basic Rheumatic condition tests but so far everythng negative.
Anyway, I still havnt done D-Metabolite tests.Saving some money to have it done.And to throw a curve-ball theres no Benicar here in South Africa,& only cheap generics of Minocycline.
I pursuaded my doc to start me on Valsarten, which I did in March 08. I was on Mino since 2 yrs ago. No sooner did I start Valsarten,did the light sensitivity start. I took this as an indication of TH1 inflammation- Im hoping somebody here could confirm this? So.. 3 months has passed. Im on 40 mg Valsarten every 8 hrs.Mino 100 mg.No more herxing. Can somebody enlighten me on where to from now.
Thanks for all your guys help.
Zakaria
Moderator Note: white space edited in for clarity. thank you.
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Undiagnosed connective tissue condition 03/05|On Valsarten 40mg every 8H since 03/08|Mino 100mg every 2 days since 09/05|Joint pains|Muscle & Joint Stiffness|
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wytnez
Advocate
| Joined: | Sun Jan 20th, 2008 |
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| Posts: | 16 |
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Posted: Fri Jun 13th, 2008 01:08 |
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Hello Zakaria,
Do you have your Noirs? You really should have your Noirs before you start the Benicar. The symptoms you are experiencing are mostly likely due to hormonal fluctuations. Please read the information below.
Light Sensitivity-basic information
Protecting Your Eyes
Photosensitivity During Recovery from Th1 Inflammatory Disease
How to Avoid Sunlight and Bright Lights
Saj
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natalie17
Advocate
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Posted: Fri Jun 13th, 2008 03:39 |
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Hi Zakaria,
Please note that Benicar/Olmesartan Medoximil is the only ARB recommended for use on the Marshall Protocol. There is NO substitute. ie subsititutes mean it is NOT MP. Important Safety Warnings About the MP
Please see Benicar is not available in my country. I cannot afford Benicar.
Also, BENICAR: Where to purchase Benicar for self-pay members
Includes information about countries where Benicar not sold. You may be able to order it from overseas.
Encourage your Dr. to join the private section for health professionals to discuss your situation.
See; How to participate in the Private Section for Health Professionals
Also, there is a Doctor from South Africa on our Doctor's list. Your Doctor may be interested in contacting them for guidance. You can request Doctor's lists here;
REQUEST FOR DOCTORS LIST
Regards,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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Admin
Administrator
| Joined: | Fri Oct 12th, 2007 |
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Posted: Fri Jun 13th, 2008 03:53 |
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Valsartan doesn't help you recover. The only sartan which activates the VDR is Olmesartan.
Valsartan is palliative, so it makes you feel better. You might think it is working, but you will continue to slip downhill. Please don't listen to those people who are emailing trash around trying to suggest that anything other than Olmesartan "will work with the MP."
Try to focus more on the pathogenesis, on the science, and forget the protocol, forget the emphasis on the drugs. Focus on the actions and how they affect your biology. The VDR is the key.
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ChrisW
Member
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Posted: Fri Jun 13th, 2008 07:02 |
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Hi Zakaria,
If you want to benefit from the Marshall Protocol you will need to obtain an ongoing supply of Benicar/Olmesartan.
I'm living in Richards Bay, South Africa and import my Olmesartan from Australia (as I'm an Australian citizen). However, I'm aware of others in South Africa who import their supply from Germany. Details can be found here:
http://www.marshallprotocol.com/forum2/233.html
Please feel free to contact me, I'm happy to help.
Cheers,
Chris.
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zacdesai
Member
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Posted: Fri Jun 13th, 2008 13:29 |
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Hi again,
Thanks for the replies. I understand that only Benicar is prescribed. I was desperate. using it as a temporary measure for now. My goal is to get the D-metabolite tests done and find a doctor who will prescribe the Benicar so I can import it, right now thats a challenge.
Thanks
Zakaria
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Undiagnosed connective tissue condition 03/05|On Valsarten 40mg every 8H since 03/08|Mino 100mg every 2 days since 09/05|Joint pains|Muscle & Joint Stiffness|
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CFS South Africa
Member
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Posted: Mon Jun 16th, 2008 17:40 |
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Hi Zakaria
I'm livig in Joburg, SA and have been on MP for almost a month now. I import benicar from Germany: kerstin.hinck@pharmacy-international.de - You'll need to post them an original script for benicar (votum) to and they'll send it through to you.
Please let me know if you have any questions.
Ross
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CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 54.1 ng/mL - 1.25 52.4 pg/mL
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kikkie2004
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| Joined: | Fri Aug 29th, 2008 |
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Posted: Fri Aug 29th, 2008 12:45 |
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Hi Chris and Ross
I am a South African looking to do the Marshall protocol and want to import it. My question is whether it comes through customs without any problems, as I've had vitamins supplements confiscated by them before.
Thanks
Kirsty
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ChrisW
Member
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Posted: Fri Aug 29th, 2008 14:41 |
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Hi Kirsty,
I get mine shipped in from Australia via DHL and haven't had any problems with customs. Officially I believe a fairly low cost permit is required from some government department but I haven't found this is necessary.
Best of luck,
Chris.
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kikkie2004
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Posted: Fri Aug 29th, 2008 14:55 |
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Hi Chris
Many thanks for your answer.
Could you possibly email me the Australian company's name, my private email address is kirsty.weight@gmail.com.
Thanks again
Kirsty
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ChrisW
Member
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Posted: Fri Aug 29th, 2008 15:18 |
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Hi Kirsty,
Your email address didn't work...
I'm an Australia citizen, have an Australian doctor and purchase the Olmesartan through a chemist in Australia. I don't believe this will be an option for you (unless you're also an Ozy) as the government subsidises the costs.
I believe the best source for South African citizens is Germany.
Let me know if I can help any further.
Kind regards,
Chris.
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kikkie2004
Member
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Posted: Fri Aug 29th, 2008 15:40 |
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Hi Chris
Thanks again.
OK, I'll have a look at the Germany route.
So has the protocol been working for you?
Kind regards
Kirsty
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ChrisW
Member
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Posted: Fri Aug 29th, 2008 16:08 |
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You can see some of my progress reports here: http://marshallprotocol.com/forum30/10616.html
Unfortunately I've had a very difficult time getting and keeping my vitamin D levels low, which has slowed my progress. However, there certainly has been some progress which is far better than other treatments I've experienced.
Chris 
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kikkie2004
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Posted: Fri Aug 29th, 2008 17:01 |
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Hi Chris
Thanks again.
Sorry for all the questions, but: which vitamin D do you test and where?
I've had 25-Hydroxyvitamin D3 tested last year through Ampath,the levels were 27.1 (range 20.0 - 46.4 ng/ml).
I didn't have this tested for the Marshall protocol at the time, just to check for general vitamin d status.
Kirsty
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ChrisW
Member
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Posted: Fri Aug 29th, 2008 17:13 |
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Hi Kirsty,
Below is some information on vitamin D testing (in South Africa). I suggest reading through all the information at MarshallProtocol.com so that you fully understand the treatment as it's much longer and more complicated than a "standard" trip to the doctor.
25OH Vit D can be tested accurately by just about anyone, anywhere as this is a much more common test than 1,25 Vit D and the handling requirements are not as demanding. I've had mine tested accurately by Dr Bouwers & Partners Inc. in Richards Bay, South Africa.
Unfortunately the only lab in Africa that tests 1,25 Vit D is the National Health Laboratory Services (NHLS) run by the government in South Africa. They dont handle samples correctly and in my case I received an inaccurate low reading. I had mine done in Australia. I believe that the only way you would be able to get an accurate 1,25 Vit D test is by traveling overseas.
It's necessary to have both 25OH Vit D and 1,25 Vit D tested accurately to be of use in diagnosing TH1 type disease.
It's not critical that you have have these test done if you can try an investigative probe, there's more information on this at MarshallProtocol.com.
All the best,
Chris
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kikkie2004
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Posted: Fri Aug 29th, 2008 17:19 |
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Hi Chris
I've been reading up about it and it seems they're saying that any 25D levels above 20 are indicative of problems. So I think it would be best to give the therapy a go and see if it helps.
I hope you continue to get better.
Thanks for all your help, I much appreciate it.
Kirsty
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ChrisW
Member
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Posted: Fri Aug 29th, 2008 18:33 |
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I've been reading up about it and it seems they're saying that any 25D levels above 20 are indicative of problems.
25D acts as a dial for our immune system, when it's high our immune system is retarded, when low our immune system can function properly. It does not necessarily indicate TH1 disease.
1,25D and the ratio between 25D & 1,25D are useful indicators of TH1 disease.
So I think it would be best to give the therapy a go and see if it helps.
Expect to spend at least 1 year, probably longer before experiencing lasting benefits from the Marshall Protocol. If you're unwell expect the treatment to be difficult and restrict your lifestyle.
To give yourself the best chance of success I suggest researching the treatment thoroughly before commencing.
All the best,
Chris
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Julia
Advocate (on leave)
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Posted: Fri Aug 29th, 2008 21:01 |
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Kirsty,
Although you may or may not experience lasting benefits from the MP in your first year, you can do a much shorter therapeutic probe to indicate if the MP is going to work for you.
The info on D testing is here: D-Metabolites. If you can't get the 1,25-D done, it still greatly helps to know your current 25-D level.
Is the MP an Applicable Treatment for my Disease?
Which diagnostic tests do I need?
If you have further questions, please start a new topic and call it 'Kirsty's questions' 
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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