| Author | Post |
|---|
nfera
Member
|
Posted: Thu May 22nd, 2008 20:45 |
|
nfera posting for "AJ" 8 Year Old Boy. Both Parents on MP. MarkT9452 and NFera
No D Tests - still trying to get tests approved
Symptoms/Diagnosis
ADHD,
Hyperactive. AJ's has always been very busy,but has never had behavioural issues. He is always happy and a gentleman.
Chronic Ear Infection
Constant Wax buildup in ears, Multiple Infections/Treatments, Hearing Loss
Other
High tolerance to pain , Limited Emotional Range (always happy), Very Sensitive to touch. Inability to concentrate.
General Health
AJ was Born 10 weeks premature during an Eclampsia event (2 pounds 10oz). Until AJ was 5 he was sick more often than not with cold symptoms and infections. His Tonsils and Adenoids were removed. Multiple series of drainage tubes have been installed in ears. The ear tubes have helped AJ's hearing.
Meds/ Supplements
Taking Ritalin for ADHD
Pedia Sure (Contains D3 and Folate) as recommended by Doc to gain weight lost due to Ritalin. http://www.pediasure.com
The recent Ritalin has made a Huge Difference in AJ's Marks at School and he is also more sensitive to pain now.
AJ has started losing weight since being put on Ritalin. He has no appetite and has gone from 46 pounds to 40 since ritalin. AJ's doctor says this will improve and he is supplementing with Pedia Sure to help.
Minimal D and sunlight avoidance.
AJ appears to have exactly the same ear symptoms and recurring ear infections that his father MarkT9452 (MP phase II) has had his whole life.
We are greatly concerned that he has a chronic persistant biofilm infection of the Ears. Antibiotic treatments have not stopped reoccurance of the ear infections.
He clears his throat alot, almost like a tick.( This only appears sometimes)
We are seeking help that the MP is the appropriate treatment based on AJ's symptoms, personal medical history and family medical history.
Nfera is concerned if putting an 8 year old child, who is still growing an auto immune system Boost.Can it effect him at a later date. I see him suffering but is always so positive. I want him to be a healthy happy kid , who loves Opera and computer Role Playing Games. He's a very special boy an he deserves to be healthy. I just want to make sure I make the right desicion.
Any Comments, Suggestions Welcome
Thank You MP Research Team
Mark
Nancy
Last edited on Thu May 22nd, 2008 20:55 by nfera
|
JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
| Status: |
Offline
|
|
Posted: Fri May 23rd, 2008 00:25 |
|
Mark & Nancy (for AJ),
Welcome. I'm so glad you are here. When I read this post I thought immediately of several in my family. You could have written the same for one of my sons.
I have close relatives (not on the MP) who are on medications to help them process thought, and once robust young men, they are now thin, having no appetite until the hour or so late in the day that ravenous eating occurs.
You are correct that pediasure contains ingredients that are not allowed on the MP (soy, and other foods suspected to contain D besides the D that is added intentionally). Some options may come to you after reading these links:
The Importance of Avoiding Vitamin D and Folic Acid
Tube feeding supplement without vitamin D
I'm losing weight. What should I do?
What is neurological immunopathology?
Repetitive sounds, movements or "tics" have been reported by members of the study, and that they resolve.
Robyn Russell (mother of 15 yo w/Lyme, myoclonus)
Matt
Since AJ is taking some pretty dominant medications already, you would be wise to pull your health care team together closely to determine the best path. As you have members in your family already, I'll just put this link as a reminder:
Children on MP
This is a Read-Only forum for Parents researching the Marshall Protocol for their Children. As you may already know, a new application process is the first step now for those who would like to be a member of the study site. All information is in this link: MP Memberships Temporarily Closed.
This is the place to post questions for AJ. I look forward to reading more.
Best to you and yours--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
|
nfera
Member
|
Posted: Fri May 30th, 2008 17:13 |
|
AJ 's blood work and uranalasis came back with no anomolies althought vit d and 1,d were not taken. Have him on Pediasure since May 12 because of weight loss on Ritilan.He has gained 2lbs,will keep him on it until he has reached his original weight,maybe another month. He had very bad ear infection in both ears with weeping. Seen specialist both tubes are out and they are trying to get him in by the end of summer or early fall for new tubes.(Welcom to Sault Ste. Marie where they actually feel like you are lucky you only have to wait 4-6 months. He has missed 7 out of the last 12 weeks of school because of ear infections, colds, and flues but has still kept him marks up due to the ritilan. I am still not sure wheather to try to start any treatment now or wait.
Nancy
Last edited on Sat May 31st, 2008 03:16 by nfera
|
Dr Trevor Marshall
Research Team
|
Posted: Fri May 30th, 2008 19:35 |
|
Pediasure contains Vitamin D, and this will make the illness much worse by suppressing the immune system.
|
nfera
Member
|
Posted: Fri May 30th, 2008 23:01 |
|
HI and thanks for the reply.
I will keep him on the pediasure for the next month to ensure he gains the weight he has loss. He was 46lbs went down to 40 lbs and is now at 42lbs. He is extremely thin as he never stops moving as it is. I have requested that the teachers keep in him at recess to limit his light exposure and help him catch up on missed work. He will be going to his Grandma's for the summer. I will discontinue the pediasure providing his weight has increased and we will begin to limit his sun exposure and monitor his diet. I am concerned about the benicar ( although I would love to see a boost in his immune system) because my blood pressure went from 125/90 to 80/60. Now I am not concerned about myself as I was 95lbs from 17 to 37 and my normal blood pressure was 90/60. I am on the other hand concerned about him. I am considering putting him on pulsed zith but I would have to have the proper Dr. to monitor him. As you know the MP is closed for now, maybe it's a sign to wait a little longer.
Nancy
Last edited on Fri May 30th, 2008 23:45 by nfera
|
Dr Trevor Marshall
Research Team
|
Posted: Fri May 30th, 2008 23:30 |
|
Nancy,
Pediasure contains Vitamin D, and this will make the illness much worse by suppressing the immune system.
At some point he will become too ill to be treated with the MP, because at some point he will become sufficiently ill that his Doctor will inisist on treating him exactly the way that Doc normally treats "kids like this."
Doc has already refused to measure the D metabolites. You need to understand that the MP will never be an option for your son unless you take a stand right now to make it so.
|
Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 134 |
| Status: |
Offline
|
|
Posted: Fri May 30th, 2008 23:46 |
|
Janet gave you the link to Children on the MP which includes information for parents who have questions about using the Marshall Protocol with their children.
* CHILDREN & MP - information and links - includes advice on dosing of Benicar and minocycline.
* Can children be treated with the Marshall Protocol?
* Children getting on MP - persuading your doctor.
Doing this reading will stand you in good stead to discuss the Information with your Dr.
all best, Barb ...
|
markt9452
Member
|
Posted: Sat Jun 14th, 2008 05:11 |
|
Hi I'm Mark - A.J's Father. Thank You so much for the information Trevor, Barb and Janet.
We are working together on A J's MP application now.
I am concerned about Minocycline staining A J's teeth. He has a great set of choppers and a beautiful smile.
I'm not finding much information about this in my research. Can anyone point me in the right direction or offer some advice?
Is the staining permanent? Is there any way to prevent it? How common is it? Is there any way to tell in advance if staining will/will not occur?
Thank You MP Research Team
Mark
|
nfera
Member
|
Posted: Sat Jun 14th, 2008 05:55 |
|
HI,
This is Nancy AJ's mother. I have discontinued the pedisure. I have purchased noirs for him and a hat that has a nice long brim and a flap at the back so his neck protected, it is aslo waterproof. I have also purchased a one piece thermo bathing suit that pretty much covers his whole body.The doctor that is treating both myself and his father has agreed to look at Aj as his Dr. totally refuses. I have been watching his diet. We will be visiting the dr. on June 30 and he will be staying at his grandmothers for the summer which is quite close to the dr. At least I know the blood work that needs to be done will be done there.If you have any more suggestions please let me know. Can you give me an estimate on how long an eight year old might have to be on the MP.
Thanks, Nancy
|
Admin
Administrator
| Joined: | Fri Oct 12th, 2007 |
| Location: | |
| Posts: | 14 |
| Status: |
Offline
|
|
Posted: Sat Jun 14th, 2008 09:19 |
|
Mark,
Teeth can be easily polished or veneered. You can't recover your health, or your lost years.
In any case, this has not been a problem with the kids on the protocol. Only a few adults have reported problems, Guss Wilkinson being one of them that I recall.
|
markt9452
Member
|
Posted: Thu Jul 3rd, 2008 02:45 |
|
We went to the lab today to get AJ's 1,25D and D25 tests done today.
I will post them as soon as they are back from the lab.
AJ had quite a bit of fluid coming out of his ears on his airplane flight down to the lab and his doctor has ordered zithromicin to reduce the infection.
He never complains about the ear infections - except for the one time - when his eardrum ruptured from the fluid pressure. He only mentioned this after the singing competition in which he won with a perforated eardrum.
The doctor also ordered some omega 3 and 6 fatty acid supplements but I'm not sure if we will be giving them to him until I do some more investigation. I am inclined not to give them to him as they may contain D2 or D3.
We have him wearing NOIRS when he is outside and covered up as much as possible.
We have not modified his diet except to exclude supplemented foods.
I'm hoping that I am doing the right things for him in advance of treatment on the MP.
Thanks for all your help.
Mark
|
nfera
Member
|
Posted: Fri Jul 4th, 2008 03:26 |
|
Hi
nfera AJ's mom here. One correction, the doctor did not order Omega 3/6 for AJ but for me. I will report on my website tommorow.
Nancy
|
Dave m.
Member
| Joined: | Wed Mar 5th, 2008 |
| Location: | |
| Posts: | 2 |
| Status: |
Offline
|
|
Posted: Sat Jul 5th, 2008 20:05 |
|
You all need to be ... snip ...
This forum is for questions about the Marshall Protocol, and not for random medical advice. -- Chris
Should I take probiotics? - Marshall Protocol FAQs (Required Reading)
Last edited on Sun Jul 6th, 2008 14:24 by
|
Dr Trevor Marshall
Research Team
|
Posted: Sun Jul 6th, 2008 19:53 |
|
Nancy,
Be very careful of Omega supplements. Many are obtained from sources which also contain a high level of Vitamin D. You need to be extra diligent.
A lot of the benefit touted for Omega supplements is due to the (immunosuppressive) Vitamin D which their test supplements contained, and which was totally ignored by those testing the efficacy of the Omegas.
|
nfera
Member
|
Posted: Sun Jul 6th, 2008 21:22 |
|
THanks Doc,
I had no intention of filling that perscription as you can see on my thread nfera in phase 2.
Nancy
|
nfera
Member
|
Posted: Tue Jul 8th, 2008 02:12 |
|
| We had AJ's d25 and 1,d25 done on July 2 and are hoping to have the results by the end of this week. I have his benecar on order and his mino in hand, as well as a second pain of noirs(just in case). We are looking forward to getting all information in your hand. Sincerely nfera
|
nfera
Member
|
Posted: Thu Jul 10th, 2008 20:31 |
|
To Dr. Marshall and all the wonderfull people who have been supportive with AJ.
I am nfera AJ's mother and would like to first state that AJ's father mart1452 does not agree with want I want to do. I am moving to the windsor area next year. At present his grandmother and aunt have him for the summer in kingsville just outside of windsor. This was one of the main reasons that I agreed to put AJ on the protocol as his Dr. resides in Windsor. What has happened is that it has been difficult for his grandmother and aunt to understand and keep him on the vitiman Dless diet. They do not have a computer or the hours it takes to try to understand what we are trying to accomplish with AJ. My husband and I have decided to wait until we move down next year to start the protocol as we feel more comfortable with his Dr. being right there should any problems arise. AJ is now 8 and will be 9 on Oct 22. We believe the extra year is worth knowing that the protocol will be followed correctly and to the letter. As I am in stage 2 right now, it will also give me a little clearer mind to help him in the transition. I would appreciate your input to know if I am making the right decision or is his biological father correct on starting him now.
Sincerely, Nancy
|
Dave m.
Member
| Joined: | Wed Mar 5th, 2008 |
| Location: | |
| Posts: | 2 |
| Status: |
Offline
|
|
Posted: Sat Jul 12th, 2008 16:02 |
|
If you would please stop, any of these post that are for this Mark & Nancy from going to My E-mail, if Someone is trying to get a point across it needs to stop! For those that do not know me I was on the M.P. For 2 years I have Neuro. Sarcoid. And was very sick for the better part of 10 years. I have met Dr. Marshall and the rest of the Staff . I am not a Jerk and I am Quite Versed on the program. I have a lot of Respect for the M.P. It has open a lot of doors for me. I am very greatfull for these people and what they are doing. My Wife and I have had some very good success on taking Natural Supplements it works for us I and thats where I`m at . I do alot of research And I get help from both sides of the Medical world Both Conventional and Natural Because I am Going to do Whats best for Me and those Around me. There are lot of good drugs out there and there is a lot of junk. Those of us as Patients need to take Ownership of our Bodies and Know the Difference . I am doing very well, for those of you who know me.
" May God Bless"
Your Friend Dave M.
|
Dr Trevor Marshall
Research Team
|
Posted: Sat Jul 12th, 2008 17:03 |
|
Dave,
You received the email because you subscribed to receive posts in this thread when you posted (there is a checkbox alongside the 'Send' button).
You can to keep your account up-to-date by logging in, clicking on the "My Account" button, and you will see a list of the topics you subscribed to when you posted in them.
Click the checkbox next to the threads you don't want updates any more, and click the "Remove Selected" button.
Sorry that this caused you any inconvenience.
Trevor
|
Current time is 21:34 | |
|
