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rchl60
Member
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Posted: Sun Apr 27th, 2008 16:30 |
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is this drug permitted in phase 1 . thanks charles
edit note: singulair
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rchl60
Member
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Posted: Sun Apr 27th, 2008 18:07 |
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| I understand why D in diet and supplements is bad but what about the general diet?is vegetarian diet better than any animal products.can we get reinfected by animal or other foods or inhibit the drugs from working?thanks,charlie
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Sun Apr 27th, 2008 20:12 |
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Charlie,
Welcome. I've merged your posts together so you will be able to easily find all your questions and answers in one place. This is your topic to ask all your questions now.
Phase 1 Guidelines
I hope you have printed out your copy of the Phase 1 Guidelines. I found it very helpful to refer back to that document as I learned about the MP and carefully ingested the information and links on the study site.
Advocate Julia recently answered a similar question on Singulair:
If you google 'singulair' on the study site, you find this discussion, which includes moderators' advice: Singulair. (Googling is more efficient than using the site search box, see How To Use the Search Feature.)
In another place Meg said,
The use of allergy medications such as Singulair tablets, which is a bronchodilator, preventive for allergic (Th2 immune system) responses and anti-inflammatory agent, are not so benign. They affect the immune system and may interfere with the MP meds so their use should be avoided unless you are sure that the source of your symptoms is a true allergic response. If your breathing feels okay without it, perhaps you do not need it. An short-acting, nonsteroid inhaler may be a better choice. See Is it an allergy or is it an immune system reaction?
Diet and Disease: Eating for Health and
The Importance of Reducing 25-D
This dietary information set that has helped the vast majority to eat correctly to support the MP process as they get well. So you are correct, there are some foods that inhibit immune function (hint, correcting corrupted immune functionality is what getting well is all about). Just don't let the world's fancy for food and current food fads and trends trick you.
You might also appreciate:
What is the Marshall Protocol?
The Marshall Protocol -- simple explanations
The history of the Marshall Protocol
Medications to Avoid While on the Marshall Protocol
Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol
Safety warning
Best to you Charlie--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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rchl60
Member
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Posted: Thu May 15th, 2008 03:29 |
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| got back d 1,25 as 34pg/ml with a quest range of 20-67.sinusitis and sob with excess mucos production are main problems now.stopped fish and fish oils and multi vits with d 3weeks ago.stopped singulair also.just using the albuterol as needed now.no steroids used in along time.have had these symptoms for about 4years.sinus cat scans were negative showing inflamation only.pulmonologist originally said it wasnt asthma but a inflamation in chest.nose doc said he couldnt help me.will report 25 d results after friday when ready.reading other peoples symptoms it seems Ifit right in also. thanks for all your work,Charlie
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Thu May 15th, 2008 05:08 |
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Charlie,
Please be sure to keep your questions in the same thread for continuity. It will help you to keep them all in the same place.
D-metabolites tests
D metabolite test results are not posted on CureMyTh1, and there is no nurse comment. You are correct, you do want to have both your 25D and 1,25D tests identified together.
Good for you! Please be sure to continue reading progress reports on the study site, and consider it required reading, too. You are correct that many things others are experiencing have value for you to learn.
MP Memberships Temporarily Closed
Dr Marshall describes an important change, please read.
You might tell your doctor s/he can request membership in the medical professional's forum for the Marshall Protocol at http://www.autoimmunityresearch.org by clicking "Medical Professional Login" in the upper right corner.
Please continue to read the library of required reading information freely available on the study site. You may appreciate the alphabetical FAQ that acts as a clickable table of contents, or use the search function.
After you read the required reading, you may have more questions and this is your thread to ask questions.
Charlie, thank you for reading the links!--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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rchl60
Member
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Posted: Fri May 16th, 2008 16:28 |
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| is vitc orquercetin contraindicated on mp ?.couldt find an answer.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Fri May 16th, 2008 17:50 |
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Charlie,
Supplements described in this link:
Why do I have to stop my alternative treatment and avoid most supplements?
My position is simple.
All supplements and drugs are likely to give rise to problems.
Focus on what is causing the illness, and use the bare minimum of intervention.
Ultimately the body will look after itself."
Dr. Trevor Marshall, Ph.D
Members on the study site can discuss possible palliation interventions with nurse moderators, based on their situation. The "bare minimum of intervention" goal seems to be to let go of palliations at the first reasonable point in time.
A well rounded diet with a variety of MP-OK foods is likely your best source of nutrients.
Best to you Charlie--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Chris
Advocate
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 171 |
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Posted: Sat May 17th, 2008 14:25 |
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Charlie,
Try a google search like this (only use '.' for '<dot>')
site:www<dot>marshallprotocol<dot>com quercetin
On one of the first pages returned from the search, Dr Marshall says this:
Quercetin is not an essentially safe drug, like Benicar, as Q has a dose-related effect on the body. It binds kinases, and has effects on the body's enzymes way beyond the suppression of NuclearFactor-kappaB that is its desirable effect.
I would actually suggest taking a lower dose of Quercetin than the stores recommend (200mg every 8 hours). You will have to fill your own capsules, however, nobody makes it this small.
If you feel you absolutely must use larger doses than on the Q labelling then you are in unchartered territory, I am afraid. I would always suggest Doc increase the Benicar frequency rather than increase Quercetin. IMO there is less risk that way, and the risk has been closely studied by the FDA.
Quercetin is one of the palliatives that can be used with the MP, but it has more cautions than most, as I read it.
Vitamin C is not suggested.
Google is your friend, and so are we, but we just can't have the same 24x7 availability.
Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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Chris
Advocate
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 171 |
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Posted: Sat May 17th, 2008 17:44 |
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Charlie,
The following was pointed out to me:
"We do not recommend using Quercetin in Phase One because most folks say it is not helpful then. Quercetin often reduces symptoms when you are farther along in the MP but it also reduces the amount of bacteria killed so it should be reserved for use when symptoms are intolerable.
Quercetin is purely palliative. It does not improve bug killing, it just makes some of the symptoms less acute."
A lot of reading is needed to get up to speed on the MP.
Chris
see the ABC of MP and look for QUERCETIN
see also Google Custom Search
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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rchl60
Member
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Posted: Mon May 19th, 2008 00:33 |
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| thanks Chris. never knew how quercetin worked exactly
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rchl60
Member
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Posted: Mon May 26th, 2008 01:16 |
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| the results on d25 were 34 and nurses said I had th1 inflamation along with 28 on d1,25.Started benicar 1 week ago friday and am at 160 mg a day now.notice that after a meal of meat or protein the mucus secretions are much worse.maybe I should just eat greens and have less problems? Also seems that grains aggrevate symptoms. Am planning to start mino 25mg probably thursday. wearing noirs and other than usual mucus am ok. Charlie
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Mon May 26th, 2008 01:29 |
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Charlie,
I'm glad you got your D tests results back and had nurses discuss that with you. Good for you!
Some may be confused where to put medications and progress reports after posting on this site, but you must be registered on the study site for that kind of dialog. It does not happen here. Continue to use this thread more for general questions that do not include medications or your responses.
As for foods that are OK for most diets on the MP, but seem to be different for you, then please refer to the FAQ, see this under "FOOD":
The correct diet to maximize health is a controversial topic. Beyond avoiding the foods we know to be a problem (FOODS TO AVOID), everyone should do their own research and decide for themselves what seems right to them.
Those who discuss these kind of things on their own progress report with Nurse Moderators on the study site may be able to make correct determinations.
Best to you Charlie--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 134 |
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Posted: Mon May 26th, 2008 01:31 |
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Charles
PB replied to you: "If you have not done so, please obtain an application. Send an email to tmmangin@charter.net with 'MP application' in the subject line. If accepted you would then post in the Benicar only Forum
We can not be responsible for giving you further advice until you are accepted into study. It is imperative to study and understand the basics of the MP."
Thank you, Barb ...
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rchl60
Member
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Posted: Sat May 31st, 2008 19:39 |
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| just wondering whether any members have been able to stop benicar after some point or is it a lifetime commitment?thanks
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Sat May 31st, 2008 20:19 |
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Charlie,
Of course, I might ask what exactly do you mean by lifetime? Dr Marshall will be presenting at the Methuselah Conference, and Amy Proal and Meg Mangin will be exhibiting their posters.
Understanding Aging - Conference at UCLA, June 27-29
Meg, Amy and Dr Marshall will be presenting, Public Welcome (on Friday 27)
You might also find some insights to your question here:
What degree of healing is possible using the Marshall Protocol?
Best to you Charlie--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Julia
Advocate (on leave)
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Posted: Sat May 31st, 2008 20:22 |
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Charlie,
The MP is only five or six years old, so there are no final answers to this question yet. There are some 'veterans' who have stopped the MP altogether, satisfied when they reach the level of healing where they can lead a normal life again.
But many of us who have been on it the longest find more and more things resolving - things that we didn't know had anything to do with our main illness - so we keep going on to see what happens next 
See more of my story in Four years on the MP: am I not cured yet?
Julia 
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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rchl60
Member
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Posted: Sat May 31st, 2008 21:24 |
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| thanks, read it .
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Current time is 21:57 | |
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