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expate
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Posted: Sat Apr 19th, 2008 16:33 |
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I first posted these first three entries on the other board where I got my results. I learned that wasn't the place for this kind of post, that it is reserved for medical questions (oops  ). So, I thought I would copy the posts here to give people an idea of who and where I am in this process. I do have some questions, which I will soon get to. So, my initial reactions follow:
Well, I'm reading, digesting, getting a bit overwhelmed, but should have a handle on my questions when next I see my doctor.
My "gut" impression is that this is valid and will help me. My sur"face" impression is that the MP will deprive me of just about all the things in life I DO look forward to: dancing (ballet) in the big, new studio that has a wall of windows, eating good food (I'm from New Orleans and basically eat healthily, but love seafood), pursuing my newfound talent in painting, gardening, um, spending time in Greece at the beach, hiking, etc., and trying to not seem too crazy to my children (ages 23 and 18, and following the MP will put me right over the edge in that department).
I wonder how I will survive a darkened life when my life right now seems dark but for those things listed above. Of course, reason tells me to get over it, grow up, get my priorities straight. I suppose I have the luxury of feeling like that because I am not entirely dibilitated by this. But my energy is at a near all time low, depression has set in in spite of my best efforts to keep it at bay (medication, exercise, therapy), and different parts of my body shout out at me for no apparent reason.
So, I'm thinking about it all, reading and trying to adjust. Just an FYI to let you know I'm reading."
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
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Posted: Sat Apr 19th, 2008 16:37 |
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My second post...
My thought for today is that maybe I could team up with one of the professors at the university where I work to do a sociological study on the impact of a non-muslim woman (me) wearing a burqa on self-image/social life/social acceptance/job performance, etc. Then I could publish a memior once I finish the protocol on my experiences. 
Trying to keep a sense of humor. But seriously, a burqa would be a really easy solution to the skin exposure problem. 
Reading more on the science behind this. Unfortunately, it's making more and more sense. 
Oh, I have ordered a hat and gloves, but the sunglasses, well it's a bit confusing to me and there are so many decisions to make. I wear contacts daily, glasses over contacts sometimes, and only glasses others. Arrg. I'll just have to figure it out.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
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Posted: Sat Apr 19th, 2008 16:38 |
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And finally...
Actually, seriously, I wonder if a descriptive study/analysis comparing 25-D and 1,25-D (I may not be remembering those just right) levels in women who wear burqas with those who do not wear burqas (from the same area, etc.) would yield any interesting findings.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Sat Apr 19th, 2008 16:56 |
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As I read more, I am trying to see how all the conditions of treatment can be solved before I begin.
On the 'foods to avoid' faq, it specifies "all cereals". I love my morning cereal but will forgo it if need be. However, I found a cereal at the health food store, Nature's Path Organic Heritage Heirloom Whole Grains (product of Canada). The ingredient list is: Kamut wheat flour, wheat bran, evaporated cane juice, spelt flour, whole oat flour, whole wheat meal, barley flour, whole millet, barley malt extract, quinoa, sea salt, honey [all ingredients are organic].
The Nutrition Facts per serving are:
120 cal (10 from fat)
130mg sodium
Total fat 1g, sat fat 0%, trans fat 0%
Total carbohydrate 24 g, dietary fiber 6g, sugars 4g
Protein 4g
Vitamin A 0%, Vit. C 0%, Calcium 0%, Iron 8%
That's all that is listed. It seems like it would be fine, perhaps with the exception that it is not low carb. However, this diet does not have to be no carb.
The same store also has milk (whole, unfortunately) that has 4 % Vitamin A with no Vitamin D listed. I do think I read in the many threads I've gone to, that that is OK.
So, opinions? Is this OK?
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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markt9452
Member
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Posted: Sat Apr 19th, 2008 17:01 |
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My thought for today is that maybe I could team up with one of the professors at the university where I work to do a sociological study on the impact of a non-muslim woman (me) wearing a burqa on self-image/social life/social acceptance/job performance, etc. Then I could publish a memior once I finish the protocol on my experiences
That's funny.
I went through a similar thought process and came up with the idea that I could be a bee-keeper because of the head to toe white suits they wear.
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expate
Member
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Posted: Sat Apr 19th, 2008 17:30 |
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Nice to find someone else with a sense of humor. Ths is all so overwhelming and serious and technical and specific and detail oriented. Needless to say, I am not so serious, technical, or detail oriented. That makes this even more of a challenge for me. Yet, I understand the need to try to get my mind around the particulars of this, the science, etc. Yuck! I guess I'm going to have to take my medicine. 
Odette
also, previously posted at the other site:
In my reading on the site (supplemented by some googling), I think I understand that the immunopathology experienced by patients specifically relates to the disease they have. Since an exact diagnosis is not as important as the blood test markers (levels of 25-D, 1,25-D, etc) in determining whether the MP will likely be helpful, I don't know that I have any specific disease, or at least which specific disease it would be.
So, here's my concern and my question. I've read some patients accounts of Herx reactions of difficulty breathing and needing oxygen. They seem to be patients with sarcoidosis. I looked that up and it says that it often affects the lungs. So I'm guessing that these patients would have had those kinds of complaints before treatment at some time.
I guess my question is, I should expect Herx reactions only in areas that I've had symptoms? The difficulty breathing/needing oxygen is scary to me. I've never had asthma. I haven't particulary had trouble breathing, but I do periodically have trouble breathing deeply, like I can't take a full, deep breath. I had, before seeing my current doctor, thought it was an anxiety issue. But my doctor said not and can always fix it by some sort of manipulation.
Do you expect I'll have Herx reactions that include trouble breathing?
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate (on leave)
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Posted: Sat Apr 19th, 2008 19:59 |
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Hi Odette,
Your sense of humour will be much needed, and should help to carry you through the rough times in your MP journey 
On the study site you asked I should expect Herx reactions only in areas that I've had symptoms? The answer, I'm afraid, is no. You have a systemic disease and those pesky bacteria could be anywhere. The MP will enable your immune system to find them and deal with them, but that means they will release their toxins as they sing their swan song (couldn't resist that, with your name being the heroine of Swan Lake  ).
Of course, if you didn't do the MP, the bugs would still be multiplying, and you would soon develop symptoms in those new places anyway. The MP can't invent bugs where no bugs were before.
However, I think your fears about oxygen are probably unfounded, as the members who need oxygen on the MP are the ones who have had more severe lung problems than yours to start with.
Keep reading!! Ask all your questions here until you start Benicar - if you ask us medical questions we can ask a medical moderator for advice. After you start the MP ask everything in your Progress Report if it's at all medical or about lifestyle. You can still come back here to ask non-medical questions, or just to get some support
Julia 
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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expate
Member
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Posted: Sat Apr 19th, 2008 20:37 |
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Thanks for your reply, Julia. With each answer, I'm getting a better understanding of how this system works. Sorry if I'm a bit clunky along the way.
My next topic/issue to tackle is the sunglasses. I want to have them on hand so I can start as soon as I have the rest sorted out.
And after that, it's tackling how to tell my husband just how "invasive" this will be in my life - and therefore his.  I've given a couple of clues, but ...
I always appreciate a good pun. Generally, I've a bit more o' the white swan in me, but occasionaly a touch of Odile will come out of hiding.
Off to read some more.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
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Posted: Sat Apr 19th, 2008 21:21 |
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Hi, Odette,
Welcome! from another seafood lover, having to starve himself, from New Orleans. I figure that if I don't get at least three meals a week with seafood, I am starving.
However, that helped set me up for an elevated 25D which has been very hard to reduce to below the magical level at which the innate immune system is enabled.... about 20 ng/ml. Of course, it wasn't all seafood that caused my trouble. It has taken me three years to get below that figure. But all the while killing bacteria according to the herxing (IP) that I have been doing. Maybe, it is good that my innate immune system did not kick in so fast, or I would not have liked things. Soon after breaking the sound barrier with the reduced 25D, I did get two of what I would call, "intolerable" herxings, and had to cut back on my abx to make them tolerable. It worked!
Good to read that you are doing LOTS of reading!!!! It is YOU that will need to be your best advocate for doing the MP. Perhaps, you will get to train/educate your doctor, as most of us have had to do. Then, your knowledge will be needed for sure.
Here are some sections of the 'study' forum that you will need to become familiar with, if you haven't already encountered them....
When you get you D's tested, report the results at... Preliminary test results (for Comment)
You will need.... ESSENTIAL INFORMATION ABOUT THE MP (Required Reading) and MARSHALL PROTOCOL FAQs (Required Reading) and if you want to look up something on a particular subject.... MARSHALL PROTOCOL FAQs Easy Finder & the ABC of MP
Pay close attention to... Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol This is a serious FDA Open Clinical Trial using FDA drugs.
When you actually start using Benicar, start posting here Benicar only Forum, then, transfer to Benicar and Minocycline Forum as you move up the ladder to include mino. Once you start Benicar, you should ask all of your medical questions on those forums, as Julia pointed out to you. The medical staff monitors those forums whereas they only visit here at CureMyTh1 when they have the time, or we ask them to give medical advice. This site is for general type of questions. The Advocates are studied in the MP thinking and have experienced it, but are not medical volunteers.
Carol at http://tinyurl.com/5fkq3r makes up our New Orleans cohort, and self, to my knowledge. So welcome! Maybe, when we are all at an end point, we can throw a shrimp boil to celebrate.
Oh! It seems that as one progresses the photosensitivity eases for some folks, so that one does not have to be quite so strict as in the beginning. But sun-bathing is still a NO-NO! Each experience is somewhat different as to this. You will be able to tell.
Wishing you, and all, wellness!!!
Dark Vader...aka, George
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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expate
Member
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Posted: Sun Apr 20th, 2008 00:57 |
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Thank you, George, for your reply and all the links to as yet unknown "adventures". I'm sure I will read it many more times to digest.
I've been reading a lot about light AND heat. Um, I live in Oklahoma, where the summer temps often go above 100. But I'm still trying to figure out the difference between radiant heat and just being hot -- which I will certainly be walking to work covered in black from head to toe! Though I do intend to use a parasol.
It strikes me how the things I most enjoy are the very things that are bad for me. Besides seafood, I love eggs and mushrooms, and my cereal and milk (though I think I have that solved).
I don't sunbathe a lot compared to most, but I love the feeling of the sun warming me to my core. And I like heat. I have a hard time in the winters of Oklahoma. I get cold very easily.
And I don't see well in the dark. I haven't since my mid -20's (I'm 50 now), when I had a marked change in night vision. So, I'm worried about living in darkness and being able to see what I need to.
Oh, and we have a house in Greece. I have tickets to go in May/June. I'm thinking maybe I'll cut my sun exposure and Vit D but wait to start the MP until I return.
I see my doctor next week and will discuss all with him.
But again, thanks for reading.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Sun Apr 20th, 2008 03:59 |
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Oh, and I am happy to report that it is my doctor who brought me to this. So, I expect we will work well together on this cure.
oh
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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GeorgeinRollaMO
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| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Sun Apr 20th, 2008 04:08 |
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Odette,
You said, "And I don't see well in the dark. I haven't since my mid -20's (I'm 50 now), when I had a marked change in night vision."
Have you had your eyes checked for cataracts?
I have them. My wife, who also has the Th1 inflammation, has them. So does my 43 year old son who has had his D's tested and found to be Positive for the Th1 inflammation.
IMO, cataracts are the body's natural defense against too much 125D hormone being produced in the eyes. They act as natural sunshades...like the NoIR's. The eyes are said to have a separate 125D hormone producing system than the skin.
I had my cataracts surgically removed just six months before learning of the MP. I wish now that I had not had them removed so soon. I would like to know if they would have dissolved with doing the MP. While I do have good vision, the plastic lens inserts to replace the lens do not give me quite the natural eyesight as did my own eyes.
Enjoy your vacation to Greece, but please do not overdo the sun. Should you do so, you will be extending your treatment period, I fear, and/or, making it harder on yourself. Some of the D that is produced in the skin, along with the 125D, is 25D which is stored in the fat of the body, along with what you might get from seafood, and supplementing. You will have to dissipate that to get below the innate immune system "enabling" test score of about 20 ng/ml. The half life of 25D is rather long....somewhere in the neighborhood of four to six months. It does vary from person to person.
You and your hubby might consider the article... Bacteria vs. genetic predisposition: the spread of chronic disease in families that is found at a sister site, http://www.bacteriality.com which link is in the right hand column of that site... along with many other very good, easy to read articles. They are written in prose style by a very talented your lady, Amy Proal, who has been doing the MP, and is accompanying Dr. Marshall to Sweden for a Conference right now, along with some other Staff.
My very first run-in with my Th1 inflammation was after an all day sailboating outing on Lake Pontchartrain, wearing only a swimsuit. My body temperature shot to 103.8 that night and I had chiles and shakes that would not stop. I thought that it was a sunstroke. I now know that it was too much 125D hormone produced too suddenly. Through the years, that reaction would happen, thankfully reduced, every time that I would go sailboating, expecially down in the Carribbean for a week or more at a time. I love the sun, too!!! But I desire my good health more so. Prior to starting the MP, I made up a list that was eighteen symptoms or sets of symptoms long. I have gotten rid of four of them, and improved five of them. I still have work to do. But I finally have gotten my 25D test figure down to the range of enabling my innate immune system. I expect to do great things now!
Wishing you, and all, wellness!!!
Dark Vader...aka, George
P.S. Our posts must have crossed in the cyberspace. You are a very fortunate person to have your med doc know about the MP, and be willing to assist you. It is a very young pathogenesis and protocol...only in the public forum since the Summer of 2002. Not many med docs know of it, and even less that are willing to assist. Science progresses on the number of coffins.
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Knochen
Advocate
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 221 |
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Posted: Sun Apr 20th, 2008 14:26 |
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And after that, it's tackling how to tell my husband just how "invasive" this will be in my life - and therefore his. I've given a couple of clues, but ...
Being sick will also be invasive. So you have a choice - years of declining health, watching your world contract, doing fewer and fewer things, the color of life turning gray, or you can take a short term break from your normal routine and then have a happy, healthy life for years to come. Remember, you aren't choosing to have the disease or not at this stage... you have it! The question is what to do about it.
George is right about being careful if you go to Greece. You must not be too ill yet if you are able to contemplate that sort of travel, so please be sure you don't tip everything over the edge by overdoing it. All the D you ingest will take months to work off.
If/when you do decide to pursue the MP, remember that it has to be a full commitment to the process or you are likely to fail. You can't pick and choose the parts you want to do and you can't know ahead of time how sensitive you will be to light. Some people are less so, but then again, some people also win the lottery. Chances are that you aren't one of them.
You may want to reconsider walking to work, unless it's a very short trip (like 5 minutes). You need to stay as cool and as out of the sun as you can. Consider it part of the medical treatment. Also, you'll probably need to save your energy for healing! Fatigue can be pretty intense on the MP and you don't want to strain your resources. You will feel worse before you feel better, trust me.
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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expate
Member
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Posted: Sun Apr 20th, 2008 15:53 |
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I don't know about cataracs, but I do get regular eye exams.
Regarding the trip to Greece, I intend to be careful about exposure. I'm already working on the diet, finding the right way of eating. Greece shouldn't be too much of an issue. We eat lots of fruit and veggies, some lamb and goat, I'll stay away from any seafood. The main problem will be the bread. It's baked in a wood burning oven, very tasty, and not whole grain. I don't know if the flour the baker uses is fortified, but I should assume it is.
I expect to have my NoIR's by then and use them. I will cover up, though perhaps as fully as when I actually start the MP. So, I will greatly limit my sun exposure. Light will be a bit more difficult. But I'm only there for two weeks.
Also, I think I remember reading somewhere on the site that you don't want to fully take anti-D, anti-light measures without starting on the Benicar.
No, I'm not too ill now, certainly not compared with many of the cases I've read on this site. Part of my lab results were 25-D = 38ng/mL 1,25-D = 52pg/mL . I am pretty active. I take 2 two hour ballet classes a week and work out 2 other days. I walk to work in good weather (10 - 12 minutes). I garden. I work half time (by choice, not neccessity -- yet ).
It's just that these activities used to be sort of supplemental to my life. Now they are my life. Hanging on to these things is all I can do, with no energy left over for reading or painting or writing or coming up with new ideas.
My official diagnosis is "fatigue, myalgia, gastresophageal reflux hypervitamniosis D, arthralgia, H. pylori (treated), post-treatment Lyme Disease Syndrome, depression, lymphodem, acquired, peptic ulcer disease."
I would add, after reading around here and recognizing some symptoms, that I have in the past - and they sometimes reappear - had panic attacks, anxiety, racing heart, seeming skipped beats (arrythmia?), ear problems that aren't infections, ringing and sometimes pain.
I noticed a marked change in my energy level after Hurricane Katrina. I'm from New Orleans and had several family member evacuate to me for 6 weeks after the storm. One of my brothers was behaving strangely and has since been diagnosed with Frontotemporal Dementia, has declined, and is currently in a nursing home. My daughter was diagnosed with epilepsy, but reading here (and because of her whole path with it), I definitely want to have her D levels tested. I attended my step-maother as she died, still displaced from Katrina. And there's more.
I guess what I'm trying to say is that I have been under a great deal of stress and feel that my physical health is succumbing to it even though I work hard (I am in therapy) to stay mentally and physically fit. I'm just tired.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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GeorgeinRollaMO
Advocate
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| Posts: | 331 |
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Posted: Sun Apr 20th, 2008 16:54 |
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Odette,
I see lots of what you are experiencing as my symptoms, too.... including my Mother's life being affected with Katrina. Her house is still lying on the ground on the outskirts of Slidell. She is 94. My brother and sister are staying with her in their FEMA loaned trailers. She would not come live with us.
Knochen is soooo correct on conserving your energy for getting better NOW. One never knows when the "boom will be lowered" with this Th1 problem. Then, enjoy life again, later. And he is sooo correct that the MP treatment is a 100% commitment. One cannot pick and choose.
I thought that I was in great health! I passed a FAA Class One flight physical twice a year and a Company physical once a year for about thirty-four years, then started to crash with my Th1 inflammation... with having great pain in the right forearm. I did not anticipate where that pain would lead me. I now know that my 125D was TOO high (57 pg/ml) as yours is TOO high (52 pg/ml). Did MP Staff mention to you what percentile you are in the population with that score when you posted your results for interpretation?
Please read my post on Martha's questions by Marber144 on this CureMyTh1 forum. It has some additional information that you might find interesting. It tells of my spine surgery that crept up on me.... one day at a time. I wish that I had known at age 50 what I needed to know. You are soooo lucky to know and have an aware doctor, too.
Unfortunately, you are correct to suspect other family members as having the Th1 inflammation, too. That article that I linked for you at bacteriality.com explains.
Your cheerfulness in the beginning of your thread has succumbed to reality, when you said, "I guess what I'm trying to say is that I have been under a great deal of stress and feel that my physical health is succumbing to it even though I work hard (I am in therapy) to stay mentally and physically fit. I'm just tired."
You are not just tired!!!! Your body is having to deal with a good case of Th1 inflammation. You are extremely lucky to have a doctor that is knowledgeable of the MP. If you had cancer, would your family understand that you had to take time out from what you have been doing? This is just as every bit as serious!!! In fact, Th1 may be involved in cancer. See CANCER found under Side Topics Related to the Marshall Protocol at the 'study' site.
And yes! do read jokes or anything else that makes you feel good even for a few seconds.
Wishing you, and all, wellness!!!
Dark Vader...aka, George
____________________
Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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expate
Member
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Posted: Sun Apr 20th, 2008 18:49 |
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Thanks George and Knochen. Again, I will consult the links you provided.
I know that following the MP is a 100% comittment. That is why I'm working through all this now and likely delaying the start until I return from Greece. I tend toward disaster/worst case scenario thnking. So, every time I read a post about herxing and heart palpitations and fainting, etc., I just know that's going to be me even though I'm still very high functioning. So, yes, I'm preparing myself to take the jump.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Sun Apr 20th, 2008 19:07 |
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On another topic...
I never realized how , hmmm, vain isn't quite the right word, but concious of my appearance. I realize I'll have no need for eye make-up for the next few years. Or jewelry. But I've been thinking about clothes. It's embarrassing to type that because I know some people have more advanced illness. But I need to fuction in society. I expect/hope to continue working 1/2 time. And I do have a bit of a social life. And I don't mind telling people that the way I dress is due to medical treatment. I guess it's for me.
So, I realize the burqa will not work. BUT, how about the caftan? I've ordered one in heavy black cotton with ornamental embroidery. It will require a dicky or scarf for neck/chest coverage, but otherwise, it should have great coverage.
My worry about wearing heavy black clothing close to the body is that I will overheat in the summer (not to mention I'm menopausal and already experiencing hot flashes ). Air will be able to circulate with a caftan.
While it has long sleeves, I'm thinking I might make a pair of bankers sleeves to wear with, depending on how far up the gloves I've ordered go, so no light sneaks up my sleeve.
Oh, and the keeping your feet covered... that may be my biggest challenge. I live in sandals, weather permitting.
Goofy post, but I needed to "lighten up".
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Sun Apr 20th, 2008 19:17 |
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George, I am so sorry about your mother. But it's good that shse has your brother and sister.
Yes, the report said my 1,25-D level is hougher than 99.2 % of the population. I was also interested to read in the report about the high levels stimulating bone osteoclasts. I have had mamograms that show some calcification. They retested and did some other test annd determined it's not cancer, but that I should get tested regularly.
It will be interesting to see if that resolves over time with the MP.
Off to read Martha's Questions. (I need a little jogging emoticon to insert as I fly around the site!)
oh
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Sun Apr 20th, 2008 22:28 |
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Odette,
Per that all important self image question, others have wondered the same thing. It's OK to ponder the universe from a rag trade perspective, I do it daily (wink).
I like to remember that apparel is there to serve --me-- and not the disease process, and if what I am wearing serves the disease process better than my getting well, then maybe it's time for a change of apparel.
Most of us find food and clothing choices are easier to work through the expected changes required to get well over time. Simple changes in what time of day one ventures out for errands, and throwing a pair of socks on over micro-zinc sunscreens isn't to big of a shift to make initially.
Here are some ideas that might be of value to you:
The Effect of Sunlight/daylight and Bright Lights
Should I wear NoIRs, avoid natural light exposure and eliminate vitamin D before starting Benicar?
Clothing
Sunscreen Overview -- Updated Feb. 24, 2008
Light Sensitivity-Basic Information
Best to you Odette--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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expate
Member
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Posted: Mon Apr 21st, 2008 02:50 |
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Thanks Janet. While I've got a woman here, um what about blow dryers for your hair... or is that just not going to be an issue because of hats and the like? I am remembering an entry about someone who had to go through heaters upon entering her office building and it causing a problem for her. I'm getting the feeling that I will be going au natural in some sense.
Oh, and I have been reading the various suggested links. Thanks to all for those. I start in one place and end up in an entirely different spot. What goes around comes around. I'm learning.
Last edited on Mon Apr 21st, 2008 02:55 by expate
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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