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markt9452
Member
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Posted: Mon May 12th, 2008 20:41 |
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That's interesting Odette - I have some of the exact same symptoms.
Well except for the Uterine cramping  ...and my right side is only 1 inch shorter than my left.
My seamstress figured that one out for me.  Then she laughed at me 
I hardly ever got headaches before either. I get them now though with the herx.
I can hardly see when I am out in the cold because of the watery eyes. "Sometimes for no apparant reason..." Exactly!!
Sometimes when people were nice to me. This was very hard to understand.
Can you say ....hypervitaminosis D!! This has been resolved now- I won't be sure about the cold stuff until next winter.
My dentist thought it was weird that my wisdom teeth were all fused to my jaw and had to be removed in small pieces with a chisel - makes sense now though. Looks like they may have been reabsorbing back into the jaw.
"Tinnitus and lumps around the ear" Yep - left side with me. The lumps are gone now thanks to the MP. I had those stupid lumps for decades.
It's funny how all the weird little details start making sense...
Cheers
Mark
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expate
Member
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Posted: Mon May 12th, 2008 21:07 |
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Mark, it's nice to get some confirmation on those symptoms. I would never have linked them, but as I read around on individuals' threads, I just kept thinking, well I have/had that.
To make my list, I started at the top (head) and went right down to my feet.  When I put them all together, it sounds like a lot. I expect I'm sicker than I think - my D levels certainly say so.
On the positive side, I am fairly physically fit. I take a 2 hour ballet class with college students (18 - 20 years old) and keep up with them. And I exercise at the "Y". But my energy has been noticably diminishing. I can't wait until I'm well. I'm going to dance up a storm! 
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate (on leave)
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Posted: Mon May 12th, 2008 21:40 |
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Odette,
Like you, I made a list of symptoms early on. But I've had to keep adding to it, as more and more things have resolved that I never thought of as being part of my illness - they were just 'me'!! So I add them on, so that I can cross them off, add them on, and cross them off... wheeee!!
Julia 
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Offline
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Posted: Mon May 12th, 2008 21:48 |
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Odette,
Long symptom lists are something I would really recommend appear on the study site, as you will want to define your progress on the Marshall Protocol there.
One simply learns preliminary information the Marshall Pathogenesis and Protocol on this site, and asks general questions.
Per symptoms before and after starting the MP, I found this information set to be quite helpful:
How to Identify immunopathology
Best to you Odette--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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expate
Member
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Posted: Mon May 12th, 2008 22:45 |
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Hi Julia. I expect I will be adding on like you.
Janet, I'll copy my list over to the other site. I had said that I wouldn't post there until I started taking Benicar. I'm in this kind of purgatory  where I am reading, learning, observing, and generating questions about the MP and about things within my body and experiences in anticipation of beginning the MP and yet I have chosen not to begin the MP until July 16th when I will have completed two trips I have planned.
I just don't think I could be 100% compliant while traveling. Yet, I don't want to waste this time. So, I'm staying engaged so that when I do start, I will have a better grasp of the concepts, science, procedure/protocol and what to expect.
As always, thanks for your input.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Wed May 14th, 2008 04:27 |
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Goofy question though pertinent to me, and why reinvent the wheel... So, does anybody have experience with going to the cinema? Will I need to wear NoIR's at the movies? Perfectly willing to do so. But if not needed (dark environment with light source well away) so much the better. I'd rather not do trial and error if there's already an answer out there. My husband is a film professor.
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate (on leave)
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Posted: Wed May 14th, 2008 09:04 |
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Odette,
An essential pre-requisite to doing the MP is being able to find information for yourself if at all possible. If you put 'cinema' into the search box on the main site you will find your answer in various discussions, including one I started after one of my very rare cinema visits.
Of course we are pleased to help if you can't find something. There's an awful lot of material out there!
How To Use the Search Feature at MarshallProtocol.com
Happy hunting!
Julia
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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expate
Member
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Posted: Wed May 14th, 2008 17:11 |
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The following is a quote from me from May 5th.
expate wrote:
Thanks. I forgot about the search function.
Sorry, Julia. I keep promising I'll get the hang of this... and I will.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
| Status: |
Offline
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Posted: Wed May 14th, 2008 18:45 |
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Odette,
Great suggestion by Julia.
I just want to add that I find the alphebetical index in the FAQ to be extremely helpful. I use the search after that if I can't find a topic quickly in the FAQ. I use the FAQ just about every day as I still want to take advantage of the opportunity to layer content into my understanding of the MP.
By using the study site often and well, then your questions and answers on this site are improved and time is used wisely for all. Members on the study site are required to know how to gather information in a self-reliant fashion, and ask questions if the answer is not already in the study site content.
Be sure to include progress reports in the study site as part of your required reading.
That should help you prioritize too.
Best to you Odette--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Julia
Advocate (on leave)
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Posted: Wed May 14th, 2008 19:05 |
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That's okay, Odette. You have a great gift for communication, and as soon as you think of something your instinct is to talk about it - our problem is that we don't have the time to 'talk' to everyone! That's why, as Janet says, we need you to do your own research as much as possible.
I enjoy your posts with their humour and their little 'stage directions', and would love to experience your ballet classes - are they open to arthritic elephants by any chance?
Julia
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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expate
Member
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Posted: Wed May 14th, 2008 20:48 |
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Janet, thanks for the info and suggestions. Between the FAQ section and the search function, I should be set. I actually do quite a bit of reading on the study site and on bacteriality.com, but I realize that it is not in any organized fashion. I tend to follow link after link after link and, rather like Hansel and Gretel, before long I'm deep in the forest having no idea whence I began. I've been thinking I should really take notes. Writing is how I think best... next to talking. Obviously.
Julia, thanks for understanding as well. Well, since I see that you've taken in "The Curse of the Were-Rabbit", perhaps you've seen another animated movie, "Fantasia". It includes dancing elephants (hmmm, or was it hippos?), and they were very graceful!
*pirouettes off to study site to investigate why antibiotics relieve symptoms when dealing with regular bacterial infections vs. how antibiotics produce IP in Th1 diseases*
*types "cytokines" into search box* 
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate (on leave)
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Posted: Wed May 14th, 2008 23:52 |
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____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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expate
Member
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Posted: Sat May 17th, 2008 22:36 |
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Hi. I just thought I'd share a clothing issue I've solved. I was looking online for dickeys/dickies since I live in a hot climate and figured that would be a way to add sun protection without upping my body temperature as much.
I found a few things that were either inferior or too expensive. Then I went to Land's End, and found turtleneck tunics on sale. So, for $10, I can deconstruct the shirt to provide a dickey that stays put (by preserving the armholes), a pair of bankers sleeves (from removed sleeves), and a neck gaiter (from the torso/tunic) that will serve when my shirt covers my chest, but has no neck coverage (plus, I can make big enough that I can cover much of my face as well).
I'd been preparing to get some parts of a nun's habit ( http://www.gothicgarments.com/menu3/index.html ) in desperation.
Still avoiding D in diet and reduced light. Just waiting, waiting, waiting to start.
Question: I saw a reply in someone's thread about applying to this study if you haven't yet posted on the Benicar thread. I have (well my doctor started the thread) posted on the "Preliminary Test Results (for Comment)" thread and have had it marked "Noted" in response to accepting Phase II criteria. Does that mean I am already included in the study numbers or do I need to apply as well? [I did check the "Announcement" thread, but am not clear in my case.]
Thanks,
Odette
Last edited on Sat May 17th, 2008 22:44 by expate
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate (on leave)
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Posted: Sat May 17th, 2008 23:35 |
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Odette,
I think we'll be getting you to set up a shirt factory making bespoke MP garments
As you haven't yet started a Progress Report in the Benicar forum, under the new rules you'll need to apply to join the study. Send an email to tmmangin@charter.net with 'MP study application' in the subject line and you'll be sent an application form.
Julia
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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expate
Member
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Posted: Sat May 17th, 2008 23:51 |
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I know, y'all may have to start a third site for ordering MP goods, wares, clothing, foods.
Thanks for the speedy reply to my question! I'll take care of applying. If it doesn't work out for me to be in the study, at least I have a supportive doctor. (I'd rather hang out with you guys, though.)
* hopes the study needs a woman of my profile*
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Maureensew
Member
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Posted: Mon May 19th, 2008 07:25 |
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Odette, I just read through your posts. I laughed at your first comment about the Burqa. When I found out about the MP I told my best friend who has many health issues.
She said we should go on the MP and wear the Burgas. Where we live there are women who wear them. We wouldn't be out of place and we could be anonymous. It was good fun to talk about but I couldn't do it.
I too am hoping for a way to do this with some kind of fashion flare. So far all I have come up with is to add large, colourful necklaces to my dark outfit.
Maureen
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Maureen FM PH1 July08 125D75 25D33.6(Apr 08)25D28.4(Aug08) 25D20.4(Oct08) wellbutrin, omeprazole, amitriptyline, NOIRs, work 5 days/week r/t 30 min, covered up, low lux home
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expate
Member
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Posted: Thu May 22nd, 2008 03:36 |
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A little update...
I have already experienced benefits just from reducing D. It's working. I've had a major change in the menopausal symptom of hot flashes. There have been some other events as well (shoulder pain came on stronger and strange, then left). I posted on the other site under my test results.
Also, (and thanks for you lighting suggestions, Knocken) it's amazing how bright a 40 watt bulb is. I don't expect to have any trouble seeing what I need to see.
Cheers,
Odette
(still on target to begin MP in mid-July!)
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
| Status: |
Offline
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Posted: Thu May 22nd, 2008 04:41 |
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Odette,
You may want to read:
Should I wear NoIRs, avoid natural light exposure and eliminate vitamin D before starting Benicar?
Itty bitty immunopathology might not seem like a big problem now, but without starting the MP, one might not have so many options to avoid or control an all out battle. Not something you want to bring to a head during a vacation, eh?
Best to you Odette--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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expate
Member
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Posted: Thu May 22nd, 2008 15:06 |
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Thanks for the concern, Janet. I had read the section of the link you provided (and just read it again ). That is why I am not fully covered (I wear a hat but hands and toes still peeking out and no K cream), don't wear glasses inside, mostly use my regular sunglasses outside even though I already have my NoIR's, and still have some natural light coming into the house.
Early when I dropped all D from my diet and started feeling a little woozy, I had a nice filet of fish. This past week I made a file gumbo that, in addition to andouille, ham, and chicken, had some crawfish in it (they, with lobsters are on the low end of vitamin D levels).
But your point is well taken and I will carefully tread this line. My original goal was to not increase my D levels. I see that I have probably decreased them, so I need to be more careful about not cutting too much before I have Benicar in hand.
Thanks!
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
| Status: |
Offline
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Posted: Sat May 31st, 2008 00:46 |
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Odette,
Dr Marshall posted once:
Having all this detail available on the Internet is a dual-edged sword. While it empowers some, who, ...can recognize what they do not follow, it makes others think they know, when they really have missed the whole point.
There is one good text on Biology on the net, and there probably are biochemistry texts as well. I don't know about the latter because I had to study all this during my degree studies, and I only have to look up the really complex stuff these days. Anyway, the Biology link is
http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/
I've thought about that a while with regards to your question, too.
I would suggest spending some time at http://www.Bacteriality.com. Amy Proal has many articles that are ideal companions to the http://www.MarshallProtocol.com study site library of required reading. That means her detailed descriptions will not lead you on some wild goose chase or tempt you to focus on the outer limits of possibilities.
Those who are interested in the Marshall Protocol will want to understand key concepts without having to get an advanced degree to do so. Those key concepts along with the experience of others will help people navigate through the process of getting started and working through negotiations with their health care team.
Best to you Odette--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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