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Odette's questions & ponderings too
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markt9452
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 Posted: Thu May 8th, 2008 23:43

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I'm not sure if theres anything Organic about adding "Sheep Grease" to milk.  Maybe if they are "Free Range" sheep?


expate
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 Posted: Fri May 9th, 2008 05:15

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?????



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
expate
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 Posted: Fri May 9th, 2008 05:29

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As I read through more and more "Benicar Only" and "Benicar and Mino" personal threads, I see a pattern of how people settle in to reading their individual response to the MP and begin to make progress.  It's like they don't believe you have to take light precautions or that specific foods affect them and then, through trial and trial and trial again, then... they get it.  [I expect I'll be just the same :?].

But it makes me wonder about those who stick with it vs. those who don't.  There are clearly a lot of issues in each of us. 

I guess one thing I'm trying to say is that the MP, in the same way that the treatment is self-limiting a la immunopathology, is a self-validating process.  So many of us have been seen as hypochondriacs or even worse, as people who have caused their own verifiable symptoms.  I see on this site, people who come to trust not the MP so much as their own bodies in light of objective reality.  I can't wait to begin my journey.

Odette



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
markt9452
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 Posted: Fri May 9th, 2008 05:43

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Odette  - you mentioned that Horizon Organics has started fortifying their WHOLE milk with vitamin D now!  :(

That is a picture of "Sheep Grease" being extracted from sheep

I always say a picture is worth a thousand words.

The grease - also known as Lanoline can be used to make all kinds of fun stuff including D3.

It is secreted from the sheeps sebaceous glands. 

I'm finding that the so-called organic products are quite often supplemented especially Dairy products.

If people knew more about the stuff in their food  - they might think twice  :shock:

expate
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 Posted: Fri May 9th, 2008 05:45

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Oh.  Given I'm not a farmer nor a rancher, I am just trying to make the best choices possible.

Odette



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
Knochen
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 Posted: Fri May 9th, 2008 13:09

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Odette,

Regular half&half is the most reliable dairy product out there. Pretty much every store has it, and it's usually not fortified (but check!).  You won't be consuming enough of it to worry about the extra fat content, so put that out of your mind.  Do NOT get "reduced fat" half&half, as it has all sorts of unknowns in it. There's no need to reinvent the wheel here.

The whole "natural" marketing thing is a real brier patch.  Mercury is "natural", but I don't want it in my food! The marketroids will try to sell you all sorts of things under the guise of "natural".  You'll have to do your homework and really know what's in foods.  Just keep it simple and don't let others do the formulating for you if at all possible.  Avoid anything that is supposed to "help the immune system" because it will likely interfere with the MP. The less processing the better.  Keep the carbs low and those you do include, keep to low glycemic index items. Plain, basic foods using simple ingredients. Meats, egg whites, and low carb veggies should be the mainstay of your diet.

A few zillion years of evolution have produced a body that "knows" a lot more about how to keep things in balance than you can ever know, so don't try to micromanage.  Feed your body the basic things it needs, eliminate the the Vit D disregulation by following the MP, and let it heal itself.  It's that simple.






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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
expate
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 Posted: Fri May 9th, 2008 13:58

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Thanks Knochen.  I generally am very good about reading labels, etc.  Yeah, I couldn't get my mind around some non-fat 1/2 and 1/2 my husband brought home once and refused to use it.  I have found a couple brands of organic whole milks that are not fortified.  It's just that the Horizon brand was most widely available.  I only have it with my cereal (unfortified) in the morning, and so have less than a cup a day.  If I have to switch to 1/2 and 1/2 or give it up, it's not the end of the world.

I make most things from scratch or am pretty careful about ingredients in general anyhow.  I just need to be careful about additional ingredients now.  :)

Odette

Last edited on Fri May 9th, 2008 16:11 by expate



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
expate
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 Posted: Fri May 9th, 2008 20:39

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My NoIR's arrived today!!!  They are actually kind of cool.  I'll use the lighter (10% and 40%) until I start the MP. 

I am surprised how well I can see indoors with the 10% ones.  Also, the 2%, when I tried them outdoors, were "interesting".  I felt a little like a character in "Eternal Sunshine of the Spotless Mind"!  Should be interesting.  :)  Or rather... :cool:

Odette



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
expate
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 Posted: Sat May 10th, 2008 03:53

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OK, I'm getting the idea that you guys know what you're talking about here.  I refilled my spaghetti canister tonight and found that "my" spaghetti has 25% of the daily requirements for folic acid, an MP no-no.  So I thought, I'll just make my own (I have a pasta machine from daughter's forays into Italian cooking).  Wait, the recipe we made was whole wheat flour and EGGS.  Then I read the ingredients listed on a box of Clearly Organic Penne Rigate and all that's listed is, "100% organic durum wheat semolina".  I know there's more in there.  And no mention of vitamin D content.  I'm beginning to feel snookered.  :(  And I thought I knew a thing or two about food.

*is very grateful for such knowledgable Advocates and Moderators*

And while I am impatient to start, I do feel I am making good use of my time on the front end.  So, I should be pretty compliant when I do start.

Odette

Last edited on Sat May 10th, 2008 03:54 by expate



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
markt9452
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 Posted: Sat May 10th, 2008 06:21

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I remember when I was first starting my modified D diet I had decided to go shopping and just eat healthy natural stuff.  I had thought that I had a reasonable idea about which foods to avoid. 

So I tried to choose healthy vegetables and raw unprocessed foods and avoid potatoes and seafood and stuff.

I had never liked eggplant in my life before but for whatever reason I was craving it - and I was eating it every day...sometimes two or three times a day.  I usually fried it up with some oil and parmesan reggiano cheese.  Yummy!!

I figured it out after my 25D went up at the next test.  Oooops..  :shock:

It took me another two weeks to figure out that eating apple sauce every day probably wasn't a good idea either. :X

I still have about 8 cans of my favorite organic black bean soup that I was eating for lunch every day ...It took me awhile to notice the "high oleic sunflower oil" in the ingredients.  :?

Just the other day I noticed the new shampoo that was working really nice for me had "Linoleamide DEA" in it.

It is now with the bean soup and apple sauce :)

clscott
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 Posted: Sat May 10th, 2008 11:31

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Odette,

I thought about the burka for Colorado, the land of, blue skies and bright sunshine most days.   My daughter lives there in the mountains.  It is my most favorite place to be.  A burka would sure solve the sun problem.  In talking to my daughter, we discussed the possibilities and problems. The biggest problem being he children would run away screaming, except for the youngest.  That dear granddaughter, Persephone, would come right up to me and say, "Grandma, you look like a monster".    I guess we really didn't think too much past the g'children because there are definite problems that would arise if I went into society.

cls

expate
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 Posted: Sat May 10th, 2008 13:13

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Gee, I've got to go look at all my toiletries too! 

I thought I did eat a pretty healthy diet.  But I can see I have some major adjustments to make.  Well, just new things to be aware of...  I'm thinking I'm going to have to give up coffee.  I have a cup and a half in the a.m. and the occasional cup at other times.  I've noticed that now I don't usually finish the first cup, that I feel kind of nauseous.  I've read about the chlorogenic acid in it and that some people tolerate it better than others.  I love my coffee.  :X

About the burqa, it realy would be so easy on the practical level, not so on the social :?.  I will be depending heavily on black cotton stretch pants (I never wore pants before moving to Oklahoma) that I get in the exercise section of Target.  There's one style that's really quite fashionable (boot cut?) and of a good solid weight.  And I have aquired a few caftans.  jpeterman.com has a couple on sale.

Progress report - I've got dark curtains up in two more rooms (bedroom and study).  I think that's it on the curtain front.  I have several rooms I can retreat to.

Odette


Last edited on Sat May 10th, 2008 13:18 by expate



____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
expate
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 Posted: Sat May 10th, 2008 18:48

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Boy, there's nothing like working the disability seating at my university's graduation exercises to make me grateful that I have found the MP and to motivate me to follow it.  It was so overwhelming.  We didn't have enough places in a center that holds 12,000 to park all the wheelchairs.  That doesn't even touch those with walkers, canes, crutches, oxygen, etc. 

I know not all those people are ill wilth Th1 diseases, but one woman pushing the wheelchair of another (so I assumed she was healthy) then asked to be seated once I had found a spot for the wheelchair.  She said she had lupus and needed to sit.

Anyhow, thanks to all who volunteer and participate.

Odette



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
JRFoutin
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 Posted: Sat May 10th, 2008 18:59

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Odette,
Keep reading. It's all good. 

You might find something to muse about at some point in time per "not all those people are ill wilth Th1 diseases."

There are days I wonder just how much trauma from accidental injury heals differently when the immune system is enabled.

Best to you Odette--Janet



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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
clscott
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 Posted: Sat May 10th, 2008 22:11

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Physicians will have to change the way they practice medicine so that the people, the masses will finally receive the healing from the MP.    I am heart sick when I see those I love listen as to humor me when I talk about the MP.  I will go ahead of them and perhaps they will listen as to gain knowledge and then take action.    Maybe there will be a day when the number of wheelchairs, walkers, canes, ect., will diminish.   

expate
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 Posted: Sat May 10th, 2008 23:41

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When I tell others about the MP (and my spiel has improved considerably as I continue to read and watch videos here and at bacteriality), I am amazed at the variety of reactions.  Two people today were very receptive, one skeptical.   And so it goes.   My impression is that it is about even between those who won't consider it and those who will.

So, I just keep talking and e-mailing.

I also plan to go to my GP to give him the opportunity to join me in this.  I have a doctor to supervise me already (he actually recommended the MP), but I want to help get others on board.  My GP is mildly open-minded, so we'll see.

Odette



____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
expate
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 Posted: Sun May 11th, 2008 19:08

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So, I think that I have been experiencing some mild IP just as a result of stopping vitamin supplements (including flax seed oil), cutting most D from my diet, and reducing (though not entirely covered up yet) exposure to light. 

Until yesterday, it was little things like pain behind my knees that woke me when there's nothing I've done physically to explain it, a piercing pain in one foot and in the other ankle that was only there for a short while (IDK, 1/2 an hour or so), anxiety that I think I can associate with increased light exposure.

But yesterday, I worked graduation which took place in a sports arena.  Up in the stands where I was working I was feeling a little sick, just yucky maybe verging on nausea.  Then when I went down on the main floor to watch, there were racks and racks of huge lights directly overhead.  I sat down to watch the ceremony and after just a very few minutes, I felt dizzy, faint, with waves of nausea pasing over me (it wasn't from anything I'd eaten because I hadn't had anything to eat since dinner the night before and this was at about 11:30 a.m.).  I got up and went back into the dimly lit passage way and felt better. 

I think an incident like this would have made me very uneasy before knowing about the MP, but since I have an explanation that I think is valid, I'm OK with it.  So, I think I'll be OK with IP when I start for real, and of course I keep reading others' experiences, especially on the "Benicar and Mino" thread, and see that people learn how to read their IP and adjust meds, diet and light exposure.  I can do this.  :)

Odette



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
Joe and Sheyla
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 Posted: Sun May 11th, 2008 20:27

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Hi my wife is been in prednisone for a while now and the side effects are swelling,rash and more we are from Puerto Rico and the sun here is everyday and hard Ibeen searching in your comments and  I learn thats a factor  and the vitamin D is the same plase help me learn some more I can not let this decease take over her  here I the Island  there not many doctors that know how to treat it. thankyou :)                          

 

                                       P.S. Desperate husband 

expate
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 Posted: Sun May 11th, 2008 20:49

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Hi Joe and Sheyla,

I am sorry but I am not well read enough about the Marshall Protocol to answer your specific questions.  I will refer you to a couple of places you should read in this site as well as another very informative site.

This URL takes you to "Essential Information About the Marshall Protocol"  http://marshallprotocol.com/forum2/

Another very good place to start reading is at http://bacteriality.com/about-the-mp/ .  This has a concise overview and might be the best place to start.

Perhaps by the time you get some reading done, an advocate from this site will be able to help you with your specific question.

Hang in there,
Odette



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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
expate
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 Posted: Mon May 12th, 2008 18:48

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I thought I’d make a list of what I expect to experience as immunopathology (I’ve got to do something to keep me focused while I wait to begin the medication).  As I continue to read and learn about others’ symptoms and IP, it reminds me of events from my past that may well pop up again.  I will be able to compare this list to what actually happens.  So…

Tinitus and lumps in/around ear, esp. right – Current.

Watery eyes – they water in the cold (my husband’s never do), when at the computer, and sometimes for no apparent reason.  Current.

Painful eyes – as above, but mild pain.  Current.

Runny nose – esp. in cold weather (again, I thought everyone does, but not my husband), but sometimes for no reason.  Current.

Headaches? – I don’t really get headaches, but have a tightness sometimes; my dentist and osteopath can’t believe I don’t get headaches!

Jaw ache – I have TMD and use a splint at night.  Occasional.

Toothache – I’ve had one root canal due to internal resorption.  Sometimes I have a tooth that gets a little achy.  I take scrupulous care of my teeth but must go to the periodontist every three months to keep things on even keel.  Occasional.

Neck pain – I went through a period of severe neck pain as a result of an auto accident 20 years ago.  I don’t really expect this to return, but you never know.  Periodic mild pain.

Problems swallowing – this has plagued me on and off for about 20 years, I have always attributed it to anxiety, but who knows…  Current.

Breathing – I sometimes have trouble getting a full breath.  My DO can usually fix this, so it may just be structural.  I had always attributed it to anxiety as well.  Periodic.

Heart – racing, possible skipped beats.  This happens occasionally, but at one period 8 or so years ago it was particularly noticeable so, I had a test that came out fine.  Occasional.

Shoulder and mid back-pain -- currently experiencing on left, but had frozen right shoulder 7 years ago.  Current.

Heartburn – I have gastritis (just finished my doses of protonix) and have had esophogitis.  I don't really notice it, but the endoscopy showed it.

Gallbladder pain – I have gall stones, so possibly.  Occasional.

Nausea – My stomach is not my weak area.  However, reading here about the possibility of anorexia being a Th1 disease brought to mind an experience I had about 7 years ago.  I suddenly didn’t have appetite/felt sick when I ate (though never acutely).  I have NEVER had problems with my appetite.  In fact, I have struggled with my weight throughout my life.  I love good food!  When I went through that period of a month and a half or so of no appetite, I was worried.  I wondered if that was how anorexics felt.  It was weird.  But it passed.  Current -- wondering if this is reaction to reduced D and light.

Uterine cramping – I’ve had 3 Uterine Fibroid Arterial Embolizations (UFAE’s).  Not in last 3 years - since last procedure.

Hip pain – I used to have sometimes unbearable pain in my hip joints.  I found a doctor who determined the right side of my body is almost 2 inches shorter than the left. I now use a heel lift and an ischial lift and have no pain.  So, it seems to be purely structural, but we’ll see.  Not in last 6 years.

Diarrhea/Constipation – I can expect either.  Periodic.

Tendonitis – I have a small lump on my right ankle that is terribly painful to the touch but not bad otherwise.  Current.

Numbness – periodically, in both feet, worse on right.  Also in both hands along with extreme weakness (I assume carpal tunnel).  Current.

Anxiety and panic attacks – I used to get panic attacks before anyone called them that 30 years ago in my 20’s.  I still can get little mini ones, but they pass pretty quickly – especially with a little wine.  ;)  Current.

Dizziness -- slight bouts of.  Less frequent in last several years.  Occasional.

But other than that, I feel great. :) :) :)

Odette

Oops, I forgot about fatigue, sleep apnea, disturbed sleep, and vivid dreams -- all symptoms others have mentioned that I have.  I am not using CPAP any longer because I just don't sleep well with it. 

Oh, and depression, something I've struggled with since childhood, but didn't medicate until 3 or 4 years ago.  I love my Wellbutrin.  It was like gray clouds parted within 3 days of starting it with no side effects I can identify (I'd tried Lexapro for 6 weeks just before and felt like a zombie).  I go off of the Wellbutrin for 2 months every summer just to give my body a break.  And when I start back on it, it's not necessarily that I feel down.  It's more just in case...  But I'm definitely going to prolong my breaks after I'm finished the MP and see how it goes.

PPS, ;) and hot flashes -- ongoing.  :(


Last edited on Mon May 12th, 2008 22:46 by expate



____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.

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