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Knochen
Advocate
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 221 |
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Posted: Sat May 3rd, 2008 21:47 |
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I heard something really interesting on the radio about this but in relation to economic psychology. It was something about how people make poor money decisions even when they know it's the worse of two options. I'll look to see if I can find an explain better because when I heard it, I thought how well it applied to people's actions re. their health.
In general, people are very bad at risk assessment. Here's an interesting blog posting on that subject (randomly grabbed from google - there's lots more if you are interested) http://www.schneier.com/blog/archives/2006/11/perceived_risk_2.html
People are complicated. 
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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Koorool
Member
| Joined: | Thu Mar 20th, 2008 |
| Location: | Bega, Australia |
| Posts: | 28 |
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Posted: Sun May 4th, 2008 00:46 |
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Odette, I'm going to start the MP late next week. My rural (Australia) Chemist has to order in the Olmesartan and I've got masses of stuff to do outside and around town before I retreat into my darkened home. Children, too, to organise (my youngest is 4 years old).
My husband's supportive, which makes the MP possible. I hope yours will be, too.
Would you be interested in an off-line email correspondence during the begiining of the MP? Perhaps it will help get us through any wobbly patches... or provide some scope for the (not too inhibited) exchange of thoughts etc.
All the best, Karen at Koorool
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sarcoidosis since 2000, extensive lymphadenopathy, paralysed vocal cord, dysphagia, fatigue
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expate
Member
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Posted: Sun May 4th, 2008 14:42 |
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Thanks Janet, the lists are very helpful. *is looking forward to shorter posts* 
And thanks Knochen, for the link. I have my reading and video viewing laid out for me today. I found the piece I'd heard. It was an interview with behavioral economist Dan Ariely about his new book, Predictably Irrational. Here's the link if you're interested:
http://www.npr.org/templates/story/story.php?storyId=19231906
Karen, sure we can do that. However, I won't start the MP until 7/16 and will be travelling quite a bit before that with limited or no internet access for much of that time. We can be in touch via pm about it all.
Cheers,
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Mon May 5th, 2008 03:29 |
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So I was thinking... 
I guess I should first ask the question that arose from my thinking and then report the musings behind it.
I had uterine fibroids for which I underwent three separate procedures to have their blood supply embolized. Should I expect any kind of problems in this area, IP or otherwise?
Now the musings...
-- I don't think anyone knows what really causes fibroids. But reading around here, I think of fibrosis (sarc, etc.) and wonder if there is a connection.
-- I am surprised, on reflection, at the lack of IP regarding the uterus, given that a huge amount of my pain and suffering centered around this organ (um, is it an organ?). I recall reading of someone who was diagnosed with endometriosis, but that's about it. When I read reports of herxes, I don't see any that deal with uterine cramping.
-- I'm pretty sure I'm menopausal (not peri-menopausal) as I've had no period in over a year.
-- Watching the video of Amy Proal presenting her poster at the Karolinska (sp?) conference on why women are more prone to auto-immune diseases, she mentions that the uterus is lined with (?) VDR's (I think), giving more opportunity for the immune system to be hijacked in women than in men.
-- "vitamin" D is a hormone and affects hormones and the systems they act on.
-- I had three Uterine Fibroid Arterial Embolizations (UFAE) in an attempt to keep my uterus (successful ), but could the lack of reports about "uterine herxes" be due to the fact that until very few years ago (and actually continuing on today), most women with uterine fibroids were given hysterectomies?
Any thoughts? Or links I should read that I have not yet stumbled upon?
Thanks,
Odette
Last edited on Mon May 5th, 2008 03:52 by expate
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate (on leave)
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Posted: Mon May 5th, 2008 07:27 |
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Odette,
Dr. Marshall has created a diagram summarising some of the key relationships between the body's hormones and 1,25-D.
I've been very conscious all my life of malfunctioning female hormones, and had many mild immunopathology symptoms such as uterine cramps. An annoying one is that sweats came back, after I thought I'd finished with them after menopause!
Many members have reported pre-MP fibroids, PolyCystic Ovary Syndrome, endometriosis, etc. And many come to the MP minus their uterus. I think you're right, fibroids usually mean hysterectomy.
If you Google 'fibroids' on the main site you get some interesting discussions.
Julia 
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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expate
Member
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Posted: Mon May 5th, 2008 14:52 |
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Thanks. I forgot about the search function. 
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Mon May 5th, 2008 15:00 |
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So, I'm reading... I found the following that Dr. Marshall said in his Perspectives section in a thread on parasitic co-infections,
Fibroids disappear from folk who are recovering from autoimmune disease by using the protocol we have developed. The liklihood is therefore that they share a common pathogenesis - intraphagocytic, persistent, antibiotic-resistant, biofilm-protected, bacteria.
I need to keep reading, but am wondering what that will mean for me since I have had my fibroids treated with UFAE (twice embospheres were used as the embolizing agent, and I can't remember what was used the other time. ).
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Mon May 5th, 2008 15:01 |
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Odette,
The entire study site is not immediately available for everyone to read. Only library reading and phase 1 sections are available for general view. Please review Meg Mangin's Karolinska poster handout, page 2 and see the analogy of the iceberg.
See: What degree of healing FAQ.. Can fibrosis be healed?
Fibriotic tissue does resolve eventually. It takes time.
In addition to Dr Marshall's Figure 1 seen on Amy's poster and the hormone chart reference Julia gave you, please look also on Meg Mangin's Karolinska 2008 poster to see the cycle diagram on page 1. Notice the disease cycle "systemic" and "mutagenic" descriptors.
Before there was an MP to choose, my first big "U-is-VERY-broken" clue was non-stop bleeding, volume escalating over time. When I finally worked through medical standard processes to arrive at an OB/GYN specialist, the typical expectation was to remove the organ if bleeding didn't respond to hormone therapy (mine didn't) and without organ removal, expect the problem to escalate into hemorrhage, risking bleeding to death (by that time I was already accepting that possibility). That came just before the sales pitch that introduced a nice new same-day surgery to remove the endometrium lining with a blast of heat.
Later that same year my joints, other organs, lungs and lymph nodes gave their notice. Nobody in the OB/GYN office or Sarc/Pulm dx team connected details. Prepared at the time with the standard societal understanding of medicine, I accepted the compartmentalized paradigm. Only until I got to the MP, many years later, was there finally a moment of "ah-ha" about the systemic nature of Th1.
Amy's poster does make connections in a very classy and accurate way for chronic inflammatory disease, even though it focuses more on cognitive outcomes.
But please remember those two little words from Meg's poster: "systemic" and "mutagenic." Pea soup pathogen biofilms can, and usually are, everywhere, and they shut down the VDR as part of their survival process (see cycle diagram again). Expect pathogen action per Amy's poster describing where pathogens can easily find a large proportion of VDR, per females.
Best to you Odette--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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expate
Member
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Posted: Mon May 5th, 2008 19:16 |
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Julia, I've attempted to understand that diagram many times now. I'm just not there yet.
*is thinking of getting private tutorial from local professor *
Janet, thanks for info and links. I'll be taking a closer look for sure (I'm 1/2 way through Dr. Aguzzi's presentation and my head is overloaded).
I too had uncontrolled bleeding preceded by years of increasingly heavy bleeding and cramps. I was in New Zealand when it happened. The doctor wanted to admit me to hospital then and there for a hysterectomy, but I persuaded her to let me try hormones until I could get back to my doctor in the States 3 months hence. They worked, but I had to take 60 mg of Provera to stop the bleeding! I weaned off the hormones and life was tolerable, but long story short, over the next 6 years, I had 3 Uterine Fibroid Arterial Embolizations (the 2nd didn't work).
My question, which no one may know the answer to is, if on the MP, my fibroids do resolve, are the embolizing agents (Embospheres) still there? Will they be released? Where will they go? IDK, I'm sure it's nothing I have to worry about immediately.
But just think if this works for uterine fibroids! I know it's not life-threatening for many, but in terms of quality of life, ability to bear and deliver children, this would be amazing. It's such a common condition. Wow.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
| Status: |
Offline
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Posted: Mon May 5th, 2008 20:10 |
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Hi, Odette,
You may want to knock me over the head for being a stickler  , but if you are going to stick around the MP forums, would you be more precise when you talk about one item, please. You would certainly insist that I would know the difference between a piroutte and a pirate, wouldn't you, even though those terms are close in pronounciation, and spelling, too?.....if I were to attempt to start talking in some of your circles. You wouldn't call Jean Lafitte a piroutte, would you?
You said, ""vitamin" D is a hormone and affects hormones and the systems they act on."
There are many "D's". If you have not studied this Vitamin D Tutorial IMHO, would you, please. I think that one needs to understand those terms. The medical doctors do not seem to understand them, and that is a huge part of our trouble. 
There is only the one D hormone...125D. And it is at the very center of control of all other hormones, as the chart that Julia referred you to, shows. That is a very important concept to understanding the MP. That is what Julia's chart is attempting to show. When the 125D leaves its proper range, either too low or too high, it causes us many of our symptoms.
Be careful of whom you get to be that professor, "*is thinking of getting private tutorial from local professor *" You might get one who is stuck in the old thinking. not current 21st Century Medical thinking. If he/she is not MP trained.
As to commenting on uterine cramps, etc, I will leave that to the lady Advocates. I never had the experience. But I did feel the affects at times!  OHhhhhh! did I!!!!
Wishing you, and all, wellness!!!
Dark Vader...aka, George
P.S. And if you have not read through this material whose basic information "Desert Marie" came across, you might want to....see, http://tinyurl.com/3udeyj
Then see for how it works.... http://tinyurl.com/4oqk7f Read very closely!
Make close notes on "Use Restrictions"
So, it doesn't kill one fast with only a little bitty-bit at a time for humans. But then, neither will arsenic, or lead, or mercury... but it is recognized that these will make you feel bad after a while and eventually kill you. We even have EPA protection against them in sooooo many products even in the tiniest amounts.
Hmmmmmmmm! Remember the movie, "Arsenic and Old Lace"????? Or, was that a generational thing???
To see that a lack of the product does not cause rickets, see http://tinyurl.com/6h28d2 and be sure to observe who sponsored the study.
PMID: 17332234 [PubMed - indexed for MEDLINE] article by Demay MB, Sabbagh Y, Carpenter TO. Endocrine Unit, Massachusetts General Hospital, Harvard Medical School, Boston, Massachusetts, USA. says that it is a lack of phosphorus and calcium that cause rickets.
One investigative writer's report about the promotion of the product for human consumption, http://tinyurl.com/2j69h6
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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expate
Member
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Posted: Mon May 5th, 2008 22:50 |
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I'd never knock you over the head, George. I did read the tutorial at least once, but it was early on and I suppose I took a very basic understanding of what I could. Obviously, I need to revisit it. Thanks for setting me in the right direction.
Plus, I don't want to make you .
*heads off to study*
Odette
P.S. Oh, that's just awful about the Quintox. Cholecalciferol leaches calcium from bones into bloodstream... heartfailure. Very scary.
P.P.S. I brought up the tutorial. I will master it, but... there's an 18 letter word in there!!! And it is in good companny with other slightly shorter, but equally daunting ones. However, as you point out, I learned a new vocabulary for ballet, I can do it for this.
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Mon May 5th, 2008 22:53 |
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I am not in the "Arsenic and Old Lace" generation, but my husband teaches film, so I know a few things.
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Tue May 6th, 2008 17:33 |
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Quick question. I see that grapefruit comes on the list of fruits between berries and melons as to sugar content. I eat grapefruit often. I did once have a warning on my bottle of valium (which I only take when flying - as to why I didn't put it on my list of meds) not to take with grapefruit or grapfruite juice. There is some synergistic effect. That is true with some medications as well.
Could someone more conversant in the pathways, drugs, etc. of the MP take a look at http://www.powernetdesign.com/grapefruit/ to see if grapefruit should be avoided while on the MP?
Thanks,
Odette
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Offline
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Posted: Tue May 6th, 2008 19:40 |
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Odette,
You are correct, CYP3A4 is a part of the D metabolism described by Dr Marshall.
From my limited perspective, if an activated VDR transcribes CYP3A4 (desired outcome), then the purported action of grapefruit to inactivate or inhibit CYP3A4 would be something I might avoid in massive quantities.
Moderation might be the safe middle ground until clarified further.
Best to you Odette--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Knochen
Advocate
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 221 |
| Status: |
Online
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Posted: Tue May 6th, 2008 20:25 |
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Besides the fact that you want to cut out the sugar contained in the grapefruit...
____________________
I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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expate
Member
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Posted: Tue May 6th, 2008 20:56 |
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Thanks.
The food tips thread said to stick to low sugar fruits like berries and melons.
Suggested sweet treats
Fruit eaten in moderation is fine, especially those that are lower in carbohydrates. Learn which fruits have high nutritional values in relation to their carbs (sugars)- such as peaches, plums and berries, and select those. A major challenge in our eating habits is eliminating the temptation to consume refined and added sugars that are everywhere and which we often crave. Most people are not tempted to overconsume real fruit. Fruit juice is high in natural sugars and fruit drinks have added sugar. Choose whole fruit instead.
See Fruits lowest in sugar
Grapefruit was between them on the list, so I thought it would be OK. But I will definitely go the moderation route. I realize I said that eat grapefruit a lot (as opposed to other fruits), but that is currently. I will curtail somewhat when I begin MP.
Odette
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Tue May 6th, 2008 21:31 |
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Gee, the more I read, the more I remember medical things I've been through that now all seem related. The latest?
I had a root canal in my 20's that the dentist said was caused by internal resorption. At the time I felt like I couldn't win for losing - I took care of my teeth and then they go and dissolve from the inside out! From what I'm reading about osteoporosis, etc., it looks like this maight be a Th1 issue too.
Odette
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate (on leave)
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Posted: Tue May 6th, 2008 22:35 |
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Odette,
If you Google grapefruit on the study site, you'll find
Grapefruit juice is okay when you're on the MP. Anyone interested in drug interactions with grapefruit juice will want to read this article in Pharmacy Times.
Don't take minocycline with Calcium tablets or antacids, or with Orange or Grapefruit Juice. Grapefruit interferes with digestive enzymes, and prevents some drugs from being absorbed properly. ......in general it is a good idea if you only eat/drink grapefruit either 2 hours before, or 2 hours after, you take any medications.
If you suffer from restless legs at all, you might find that medium/high-salicylate foods such as grapefruit make you worse 
Julia 
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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expate
Member
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Posted: Tue May 6th, 2008 22:44 |
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Arrrg. That darn search function again.
The upside of me asking questions now is that when I actually begin the MP, I will be uber-knowledgable.
Thanks, Julia.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Thu May 8th, 2008 18:35 |
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Just to note, it's interesting that when I dimmed my comoputer screen at work yesterday, my eyes stopped burning.
*expects to be quite photosensitive*
I went and bought dark curtains last night for a few rooms and will be busy the next days getting them up. NoIR's shipped out two days ago... finally.
Also, Horizon Organics has started fortifying their WHOLE milk with vitamin D now!
Odette
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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