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leannemaready
Member
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Posted: Mon Apr 7th, 2008 01:43 |
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Hi there,
Don't mean to be redundant but I am in Raleigh, NC, and looking for a doctor to start the MP. I am going to take the info. to a GP that a neighbor of mine likes, and see how it goes. I am a little nervous, but feel I have been very thorough, in ruling out everything possible. I have all the lab/ test results I wag along to every new doctor and can't think of anything else he could offer. I just hope he will give me his "full 15 minutes" per usual, and give it a chance. I am ready to dive in. I have to say thank you, already to everyone at this site, for all the hope and encouragement you offer. I am so excited to find the girl that left 15 years ago. I am now 30, married, with a four year old son, and feel like I am 85. I am ready to live life to the fullest and will walk through fire to regain my health. At 15 I was diagnosed with Crohn's, and at 28, bitten by a deer tick...now showing signs of Lyme. I am confident in a full recovery. Come on, you all know "blue blockers" are sexy!
LeAnne in NC
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Mon Apr 7th, 2008 02:35 |
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leannemaready,
Welcome! It looks like you have been doing your homework. I hope the Marshall Protocol Phase 1 Guidelines are considered the primary document you will want to ask a Physician to spend time on. Some are quite busy and that one document was designed for the busy Physician, as well as for those who are just learning about the Marshall Protocol for their own health.
You may want to review what others have learned when they were looking for a physician:
SUGGESTIONS TO GET YOUR DOCTOR ON BOARD WITH THE MP
Letter of introduction for your MP supportive doctor
New DVD designed for your Healthcare Providers
'The Science' DVD contains AAEM, Bio21 and FDA presentations
Downloadable MP Documents FORMATTED FOR DESKTOP PRINTING
My experience is to respect the physician for his/her training and ability to think. Handle yourself professionally in every way, with kindness guiding your persistence. These human beings have a tough job. They see so much suffering that can't be helped by modern palliations that they might not be prepared to recognize the real deal at first glance  .
You might also make appointments with many different doctors over the space of several weeks rather than putting all your hope and pressure into one visit at a time. If you should find a doctor that will work with you, then be courteous and cancel the other appointments well in advance.
Best to you leannemaready--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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leannemaready
Member
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Posted: Mon Apr 7th, 2008 13:01 |
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Thank you! Thank you! 
LeAnne
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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leannemaready
Member
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Posted: Sat Apr 12th, 2008 00:04 |
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Hi there,
I've read about taking Cholestyramine with other protocols to "bind" neurotoxins. Does Benicar do this? Is that how it protects your tissues?
Also, I am concerned about things "lingering" in my brain. When ever I take a medicine, it seems to linger for 36-48 hours. Is there any danger in lingering die-off in my brain. Are you sure it can get out?
LeAnne
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Sat Apr 12th, 2008 03:36 |
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LeAnne,
This is your discussion thread to ask questions. You will find it helpful to post all your questions in your own post so you don't lose any ( ). You should avoid starting a new thread for every new question. Just come to this page every time you want to post and hit "Reply." It is that simple.
BENICAR-Basic Information (click here) --
because this information on the study site is the point of reference that will give you the a place to begin understanding how the MP works. And no, Benicar isn't trying to bind with neurotoxins. Please look for the part of the discussion about the innate immune system -- the VDR.
The Marshall Protocol -- simple explanations
Has helped others begin to understand, please read it.
The experience you have had with palliative medications of the past should not be expected for the MP. Instead, what is typical to expect is your immune system going now to conquer in a new battle what it couldn't fight effectively in the past.
What degree of healing is possible using the Marshall Protocol?
Best to you LeAnne--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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leannemaready
Member
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Posted: Sat Apr 12th, 2008 15:59 |
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Hi there,
I'm trying to reply for the third time. Let's try this again.
I am realy freaked out and full of anxiety today. Here are some things I am worried about:
1) I am afraid my immune system has COMPLETELY shut down. I haven't really had any immune "expression" in two years other than severe anxiety (checking myself in the ER because I thought I was dying (again)), fatigue, numbness, tingling and sever brain fog., and and don't forget depression. I haven't thrown up in 20 years (since I was 10), I don't sneeze, cough...I even have Crohn's and only have diarrhea maybe once a month. I have touble going to the bathroom, like my muscles don't work, even though the contents are always very soft.
2)I am having trouble breathing, again like my muscles aren't working. I feel like I am having the air squeezed out of me, and my diaphram isn't working. I get short of breath and sometimes have heart palpations.
3) No pollen allergy response in two years.
4)Haven't started the MP yet, still looking for a doctor (two appts. this week). I feel like the MP is my only last hope, yet I am terrified about cardiac arrest or respiratory issues when herxing.
5) Still don't understand how the Benicar protects me through the herxing.
6) Afraid I might have peritonitis again. Had in 1999, had to have emergency surgery and bowel resection, and in hospital for two weeks. Now I have a little boy and do not want to go there again. Also, I am afraid of what meds they would give me.
All I can do is keep reading about the health I can have and the success stories. I am PRAYING TO GOD that I will be one of them. I can't keep living like this.
LeAnne
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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leannemaready
Member
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Posted: Sun Apr 13th, 2008 02:32 |
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two more questions...
How does the MP deal with other forms of bacteria (spirochetes, cysts, and those wiht a cell wall? What about things like sinusitis or the much more serious peritonitis? Should those kinds of things be treated first?
Also, I was reading about neuropathy, nerve damage, etc. but mostly only about the nerves not in the central nervous system. For me, my most alarming symptoms are tingling in what feel to be the lining of my brain, and the lining of my spinal cord. Is there concern on further damage to these? Can a myelin sheath repair itself?
LeAnne
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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mindymplol
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| Joined: | Sat Oct 20th, 2007 |
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Posted: Sun Apr 13th, 2008 02:35 |
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Please don't lose hope LeAnne. I know there are docs in NC who will do this protocol. I am in the Charlotte area but drive to Asheville. My doc does a lot of teleconferences with us then I have my family doc put a stethoscope on my daughter and do our bloodwork so that my insurance will pay for it. (My MP doc is not part of my health plan).
The symptoms you are describing are so common in TH1 disease. I have seen all of them with my daughter. Be prepared. They will probably visit you as herxes as you continue through the protocol. But I must say it is so comforting to know what they are. It sure takes the sting out of an anxiety attack to know it is coming from your immune system from killing those bugs! One note, what they say about Valium is absolutely 100% true. My daughter was hesitant to try it because we had had such bad reactions with other antianxiety meds, but it has proven so helpful with these types of symptoms.
If you are worried about the functionality of your immune system remember the MP is the only protocol which helps bring your immune function back to normal. It will take a while but it works. Good luck finding your MD.
Mindy
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Mindy (preMP) mom of Caitiegirl on MP since 10/07
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Sun Apr 13th, 2008 03:05 |
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LeAnne,
The Marshall Protocol -- simple explanations
Has helped others begin to understand, please read it. It will describe what Benicar does.
Unusual concerns about health, even anxiety about it, is part of the disease process. Required reading will help you replace fear with an understanding of what is happening so you can take control.
Please click the links and read the whole page when you are given a link.
When you start the MP, and have your D tests submitted, Nurse Moderators on the study site will be able to help you specifically with your symptoms. They will also give you links to read. Most of the links I gave you were to required reading about Benicar and the MP, and not member success stories.
Reading provided links is required. A doctor is required too. You need both a doctor and the ability to read the required reading to succeed. It may take some time to find a doctor, but you can use the time to read links that will answer your questions right now.
Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol
Your symptoms at this time will simply reflect where you are in the disease cycle. If you are like most of us, we were quite "broken" when we came to the MP. We understand that. Your symptoms will help your doctor see you are ill. But you won't get the MP from your doctor unless you understand the information so you can discuss it.
The expectation with the MP is that one's immune system will be able to start working correctly over time. Please read the Phase 1 Guidelines.
Please be patient, read the links given, and keep working to find a doctor right away.
I was quite anxious about starting the MP and had to wait over 5 months until I could get a doctor. I thought I wasn't going to make it, but I did. You can do this! Hang in there!
With all comfort and kindess--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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leannemaready
Member
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Posted: Sun Apr 13th, 2008 03:09 |
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Thank you so much. That is comforting you have seen all those symptoms.
I have an appointment with my current "integrative" doctor this week and I am pretty sure he will be into the MP. (He does all sorts of chelation, vitamin IVs, hyperbaric, etc.). I have been seeing him for two years, but wish we had known about the MP two years ago! The only thing is of course he is not covered by our insurance, and he will not take the role of a "primary care provider." This makes me nervous in the event we go to the ER or something with severe herxing. I want a doctor who will take full responsibility and vauch for me. But I may have no choice but to go through the MP with him (assuming he'll do it). I have an appt. with another GP this week, who takes BCBS to see what he thinks.
It seems there are quite a few people in Charlotte on the protocol. I was getting ready to email some of them to see who their doctor is. I have a sister in Concord/ Mt.Pleasant, that I try to see often. I thought if there was a good doctor in Charlotte, that would be the next best thing to Raleigh. Also, there is a Bulgarian doctor in Wilmington that I may try. Apparently, he has a similar view of inflammation and LOVES to prescribe Benicar. Hopefully one of these will embrace the MP and realize its magnitude. It seems like any doctor willing to do this could become a rock star over night by really helping people get well. : )
Thanks again,
LeAnne
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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leannemaready
Member
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Posted: Sun Apr 13th, 2008 03:19 |
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Thank you so much Janet.
I think I am on my way to getting a doctor.
The one here in town will not take the role as "priamry care physician", so I may have to drive a little, but I have a couple good possibilities.
Thanks again for recognizing my anxiety and "brokenness." That in itself is so comforting.
LeAnne
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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leannemaready
Member
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Posted: Sun Apr 13th, 2008 03:24 |
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Just checking Avatar
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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leannemaready
Member
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Posted: Mon Apr 14th, 2008 03:35 |
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Hi Janet,
Me AGAIN.
I was reading in "What degree of healing is possible...." and saw this statement from Trevor:
Eventually the immune system will get rid of all pathogens, and most immunoglobulin activity will cease. That will take a few years, though. They say it takes 5 years to clear TB out of a body, which is a similar persistent intracellular pathogen.
The TB he's talking about- is that the paratuberculosis that causes Crohn's? When he says "similar intracellular pathogen," similar to what? Is it still classified as a Th1 disease? Will the MP still get rid of it?
OK...confession. Here's something I'm really trying to let go of. I keeping hoping that maybe I will be able to have another child in the future. I'm constantly on the fence, and hoping, calculating years, holding my breath, and wishing, that I'll have a sibling for my son some day. I NEVER thought I would have an only child, as I have three siblings. I'm 30 now, and keep seeing 18months to two years, and think, OK, that's plenty of time to get well and have another baby. But, then I just saw the "five years to get rid of TB" and it busted my bubble again. However, I should just get over the whole thing and just be so thankful and happy that I will be a better mommy and wife to my incredible son and husband. What I hope to be able to attain through the MP is a thousand times better than being sick, having another baby, and then, well, probably dying. Huh. OK, let me just shut up about another baby, and focus on the health that is to come and enjoying what I have.
LeAnne
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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Julia
Advocate (on leave)
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Posted: Mon Apr 14th, 2008 09:56 |
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Hi LeAnne,
I know when you're 30 you think 40 is absolutely ancient, but I had my last baby when I was 42, and no problems at all, other than a little extra tiredness with the broken nights at first. You've plenty of time to get well and then have a healthy baby, with no fear of passing all your pathogens on
Julia 
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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leannemaready
Member
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Posted: Mon Apr 14th, 2008 13:28 |
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Julia,
Thank you so much for the encouragement. That helps so much and really lightens the stress load I put on myself. I will just need to take it a day at the time and let the future take care of itself for now. : ) Now that I think of it, my sister just had a baby at 38, and my neighbor had her baby at 41. I'll look at it like this: when I'm 41, my son will be 16...the perfect age for babysitting, ha, ha, ha. I actually don't have any "baby fever" at all, as we had quite a horrible experience with my son as an infant. But now he is so sweet, generous, sensitive, and caring, I think he would be a fantastic big brother. He asks at least twice a week when he can have a baby brother or sister. I want a baby for him, much more than I want one for myself. Also, I don't know what I would do without MY two sisters and brother and just want him to have a sibling to grow old with. But let me say, I would be even MORE lost without my mom. She is the ROCK in our family. So for now, I will concentrate on that part of MY family being restored. : )
Thank you again,
LeAnne
Last edited on Mon Apr 14th, 2008 13:28 by leannemaready
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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leannemaready
Member
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Posted: Mon Apr 14th, 2008 22:12 |
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I have not started the MP yet, still looking for a doctor. However, I am thinking I may have Cirrhosis of the Liver. I am pooping yellow liquid, my ab muscles are shutting down, I feel drunk most of the time, very fatigued, etc. I am trying to get an appt. with my GI. I am terrified. I had been so excited that finally I found an answer to my health problems, (Crohn's and possible Lyme) but now I am afraid I might have Cirrhosis.
Can you still do the MP is you have Cirrhosis of the Liver? Any advice?
LeAnne
Last edited on Mon Apr 14th, 2008 22:37 by leannemaready
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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leannemaready
Member
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Posted: Tue Apr 15th, 2008 15:45 |
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Hi Mindy,
I am in an urgent situation and am waiting for a reply from a moderator. But basically, I am hoping you can give my the names of your doctors in Charlotte and Asheville, so I can give them to my family. I am about to go through a crisis and don't know if I will come through, so I wanted your doctor's names to give to my family, esp. in the event my son starts showing signs in the future.
Thank you,
LeAnne Maready in Raleigh
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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mindymplol
Member
| Joined: | Sat Oct 20th, 2007 |
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| Posts: | 17 |
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Posted: Tue Apr 15th, 2008 17:19 |
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Leanne,
Have you asked for the doctor's list for NC? http://curemyth1.org/forum2/
You can PM me if you need more info. I will be gone for the rest of the day so it may be tomorrow before I can get back to you.
Mindy
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Mindy (preMP) mom of Caitiegirl on MP since 10/07
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Julia
Advocate (on leave)
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Posted: Tue Apr 15th, 2008 17:22 |
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LeAnne,
If you're in an urgent medical crisis, you need to see a doctor urgently, or get yourself to hospital. We're not doctors, and can only advise about how to do the MP.
I don't know of any reason why you shouldn't be able to do the MP with liver cirrhosis, if indeed that's what you have. The CWD bacteria can affect any organ in your body.
Julia
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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leannemaready
Member
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Posted: Thu Apr 24th, 2008 14:34 |
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Gi tract has shut down...any insight? Is the cause the bacteria or nerve damage?
Hi,
I have had Crohn's 15 years, of course with diarrhea, and controlled with Sulfasalazine, and then Mesalazine. Then 3 years ago, tick bite...(Lyme???), and then slowing of bowel function, and now to the point that I have barely any motility (or peristalsis) and have to use many "methods" to keep my food moving through, even enough so that I can eat enough calories to maintain weight. But my main, and most worrisome symptom is the tingling in what feels to be the lining of the brain, and the lining of my spinal cord, and other MS like episodes. Has anyone had any of this? Is it from the bacteria or nerve damage? I also sometimes feel like my neck muscles are week and it is hard to hold up my head. Are these things that can resolve? CNS damage?
LeAnne in NC
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Crohn's, Lyme/etc., Anxiety, Fatigue, Cognitive, CNS, neuropathy, heart palpitations, shortness of breath, gallbladder, "GI Palsy," ADD,(August08: 25D:31 1,25D:71)
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