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Dave L
Member
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Posted: Thu Mar 20th, 2008 15:21 |
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I'm not new to the MP as my wife has been on it for two and a half years now and is making solid progress. I've been watching carefully and supporting the best I can. My case is very different in that I am healthy, fit, and feel fine. Why am I on this site? Because my blood tests report the following:
"Blood tests show positive for inflammation with elevated creatinine kinase, and abnormal Vit. D metabolism:
- 25OHD 76 nmol/L or 30.4 ng/ml
- 125OHD 130 pmol/L or 54.2 pg/ml"
I asked for blood tests after reading MP literature in support of my wife's journey and reflecting that my mother has had RA for 35 years and my father died with Alzhiemers. I wondered if I had CWD bacteria and if so , should they be rooted out?
So now it appears that I have a good whack of them (?), and the question stands: what should I do about it? What are the implications of doing nothing? I am 54, and mercifully in good shape and absent of any overt symptoms. Are there examples of MP being used as a prophylaxis - is my case really a prophylaxis or am I a bona fide th1 infection that does not show outwardly?
thanks all! Dave Loeks, Whitehorse, Yukon
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Dave
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Knochen
Advocate
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 224 |
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Posted: Thu Mar 20th, 2008 16:32 |
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Hi Dave,
Well, the numbers are interesting, but I'll let the more medically qualified speak to those.
On the other hand, are you so certain that you are "fine"? At 54, you are probably showing signs of aging. It's been proposed that much of what we consider normal aging may in fact be due to Th1 activity, so you may have "symptoms" that you don't consider anything other than normal. Your family history and marriage to someone with Th1 would make me wonder about your situation as well; there's a lot of exposure there.
Have you thought of trying a therapeutic probe to see if you get a reaction? That is really the acid test for Th1, far better than the D numbers. If you are truly healthy, then nothing much should happen. If you herx, then there is probably something going on.
It seems like everyone on the MP right now started with some sort of recognizable health deficit, so you'd be paving some new ground by being as symptom free as you are. Of course, wrinkles, loss of muscle mass, poorer memory, poor eyesight, decreased stamina, etc. might be symptoms as well. 
Obviously it's a lot harder to commit to the MP when you feel like your life isn't going too badly at the moment, but if you think it might be worth it, there shouldn't be any harm in it. The probe wouldn't take very long, and then you could reassess.
It's certainly a new area for study. Who knows, getting started early could show real benefits. I know from experience that waiting until you are on the brink of total collapse is a poor choice, but the MP wasn't around back when I first started to wonder if I was sick with a chronic illness. see RobynR
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Thu Mar 20th, 2008 17:16 |
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Dave,
I am not medically trained either, just fairly well read. However, I agree with Knochen WHOLEHEARTEDLY!!!!!!!!!!! I really think the MP will come into its own when it is done as Preventative treatment rather than just a Curative treatment. I have suggested this to Trevor, but I suppose if one can prove it works for the worse cases, then it will be easier to show that it can be used for preventative use, or some such thinking.
According to the numbers, IMO, you do have the Th1 inflammation. However, the probe will really prove the case!
I passed many FAA and company flight physicals through 34 years. I thought that I was in good, if not great, health. Then at age 63, my right forearm started to hurt rather strongly. By the time that I was 64, I had to have a surgical operation to remove bone spurs in my cervical spine that was pinching a nerve to the forearm. I wound up with a partially fused neck, which makes it painful to try to do some things, like look up at the sky, or off to one side. I wind up moving my body to compensate so that I can look in the direction that I want.
My first clue, looking back, that I had the Th1 inflammation was that I would get very sensitive to sun. If fact, I had my first sun problem at age 23, when after being in the sun all day in only a swim suit, my body temperature went to 103.8 degrees, and I shivered like anything. Later, that was happening on a more regular basis as early as my 37th year. But I did not know then.
I also had osteopenia (on the way to having osteoporosis). I learned this in my 67th year before I knew anything about the MP thinking. Within a month of learning that I had osteopenia, I learned by a chest xray that I had granulomatious disease "as evidenced by the depositing of calcium" in the soft tissue of the chest area. IMO, when my 125D was fluctuating around the magical 42 pg/ml point, calcium was being pulled out of the bones, and when the 125D returned to a lower score, the calcium was put back onto the bones, but in a haphazard, or spurious, fashion... bone spurs. If you do any study on heart problems, you will understand that some part of the problem is the depositing of calcium in the heart and arteries. Luckily, I found out about the MP before I had heart problems.
I also had two other spine operations (upper lumbar) later becausing of spurious bone growth, called stenosis, constricting the area that the nerve bundle passes through in the spine.
If I had known at age 54, your age, that I was headed for those problems, I sure would have wanted to do the MP, and keep from those problems. A stitch in time is better than nine!!!
And that does not include the very high probably, IMO, of getting Alzheimers.
A probe for Th1 would be nothing compared to those operations on my spine. A little slip of the surgeons hand, and I would be in a wheel chair or worse today.
Wishing you, and all, wellness!!! 
Dark Vader...aka, George
Last edited on Thu Mar 20th, 2008 17:24 by
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Dave L
Member
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Posted: Thu Mar 20th, 2008 18:15 |
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Thanks, Knochen, thanks George, for your thoughts.
About the matter of being and feeling "fine", I am reminded of the old saw: "Compared to what?".
Of course I am not what I was 30. I am as strong as I was, but I am not as fast either afoot or skiing. In the past few years I don't feel like I have the same mental stamina in my work, which involves lots of writing and I have a tendency to procrastinate, which was never characteristic of me.
I do have a now chronic lower back pain from a ski injury 5 years ago which is not easily explained by X-Ray images, that and occasional deep in-the-shoulder aches (kept at bay with glucosamine) are my subjective take on my symptoms. My wife might offer a considerably expanded list on the behavioral side....
So I hear you clearly about the sleeping potential of the bacteria and about the merits of a therapeutic probe.
Perhaps people like me might be a window into a new research area for Trevor, as all the MP cases I've read of involve people arriving in obvious pain.
Dave
Last edited on Thu Mar 20th, 2008 18:16 by Dave L
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Dave
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Thu Mar 20th, 2008 20:45 |
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Go for it, Dave!!!!
A probe is such a small investment to know!!! I wish that I had had the opportunity!
Wishing you, and all, wellness!!!
Dark Vader...aka, George
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Dave L
Member
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Posted: Thu Mar 20th, 2008 21:12 |
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Wow, a wealth of information, advice and food for thought PDQ! I am prepared to committ to the MP, but I have a lot of physically hard outside work to do in the next six months. I am pondering whether I should delay starting until the end of Sept. and in the meantime wear Noirs, and limit my Vit. D food intake to get "primed" as it were. It has been suggested that a therapeutic probe may be superfluous as I can consider myself confirmed as having a Th1 inflammation and bug colony regardless of feeling good.
Sensible approach, or should I just get cracking on the Benicar and tough it out this summer?
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Dave
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JRFoutin
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| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Thu Mar 20th, 2008 21:38 |
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Dave,
You may find this link useful:
Should I wear NoIRs, avoid natural light exposure and eliminate vitamin D before starting Benicar?
Best to you Dave--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Thu Mar 20th, 2008 21:43 |
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Dave,
I am not the Lord and know all answers.
However, here is my take...
These L-forms are slow to proliferate, so you have some time. Six months should not cause any great problems for you.
The innate immune system is enabled at a 25D test score of 20 ng/ml Trevor says, and my experience seems to confirm that. You might actually have a quicker time getting to an end point from your starting date, and save some money on Benicar, etc, by waiting these short six months.
Controlling the D intake and light, should bring down your 25D, and might also help bring down the 125D, too, if you can cover up, too.
Get the necessary heavy outside work done, and start the MP in September.
Maybe, Knochen would like to put his ideas in, too???
Wishing you, and all, wellness!!!
Dark Vader...aka, George
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Dave L
Member
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Posted: Wed Apr 9th, 2008 15:57 |
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Well folks, I started Benicar this morning; I will be on the Benicar Only forum on the MP website now.
I had to be realistic: I know the CWD critturs are in there - despite the fact that I feel fine - so I am going in after them. Hate to be passive in the face of a known threat.
cheers, all.
thanks for your advice!
Dave
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Dave
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