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fix22
Member
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Posted: Thu Feb 21st, 2008 16:57 |
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Hi, Have had cfs for over 17 years, am positive to many infections, viral and bacterial (tick too) am housebound with three kids no other support. Main problem is frightening cardiac rhythms which have been controlled to a large extent for many years with supplements, till 2 days ago. Came off vit d supplements and food containing vit d 2 days ago, since then have missed beats, elongated beats, fast heart rate, extra slow heart rate and am not sleeping well either, muscles and joints painful, but bearable so far.
My D25 level is low and has been like this for at least 2years. I havent had my D1,25 measured yet, but will do so asap. Am taking magnesium, vit c, zinc, co q10, glutathione and l-carnitine, have mirena coil (progesterone), which i'm about to have removed.
Worried about starting this programme due to lack of support generally, drs in uk are not familiar with mp and think it is unnecessary and dangerous (havent found one that will prescribe it yet), no help at home should i get very sick and fear that i wont be able to control the herxs/inflammation. Regime sounds complicated and although the science seems sound to me (i was a nurse in healthier times) i fear how i will react to it all. Your emergency information sounds frightening. Can anyone predict how ill a person may get on this regime? I am presuming the longer a person has been ill the worse the symptoms on mp will be. Is this right? Can the mp be applied any more gradually?
How quickly can a person expect to get better? Are phases 2 and 3 any easier on the body? How can I tell if it will work for me or if i'm already too sick for it?
Thank you for taking the time to read this. Best wishes.
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cfs since 1991 cardiac rhythm probs + chest pain, balance,fatigue, multiple active bacterial/viral infections, lyme. No Ds in diet,darkened house,rarely leave house. 10/08 D25 4.8
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Fri Feb 22nd, 2008 04:29 |
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Hello,
Welcome!!! to the MP sites. My heart is really feeling for you.
I hate to be the one to say that you will have a challenge to do the MP, and is probably why no one is jumping in real fast to answer your questions. Long time sick, three children, no other support, serious heart problems, and no willing doctor to assist with the MP. I think that you know what wall you are up against. But the Lord gives strength of character that defies explanation at times. You will have to draw from within yourself, and Him. Only YOU can know the answers for some of your questions. Maybe, it boils down to how strong do you want to see your grandchildren? Do you have the strength of will?
This site is staffed by non-medical volunteers, who are more like tour directors answering people's general questions about finding information. Some of your questions have no fast and easy answers, such as how long will it take. It is believed that the length of time will depend upon the quantity of bacterial L-forms within one's body. Can a person be too far gone? Only the Lord will know that answer, and perhaps the person, too. As I have told numerous persons coming to this MP thinking.... it will be up to you to advocate for yourself; to read, and read, then read some more. To learn LOTS about the MP thinking. This is new 21st Century medical thinking that has only been in the public forum since the Summer of 2002.
Yes, I believe that it can be done in a slower fashion according to one's needs. There are people who are having to work while doing the MP. They make adjustments. But one must remember that it has to done in a fashion to get ahead of the bacterial proliferation, which is slow, thankfully. No one really knows just how slow one can go, or how fast one must go. That is one reason why one must be their own advocate, IMO. It seems that most people reach a level of feeling better, and can lead a more normal life, before the 'end' of doing the protocol.
Also, remember that one does not need to learn all of this in one week. I took two and a half months of studying... reading and re-reading... to prepare myself. The rate of learning must be on an individual basis, too. Some reading every day should be done.
Two things that you can do to find a med doc to assist, is to read and post your request here REQUEST FOR DOCTORS LIST (click here) This is now part of this CureMYTh1 site, as to previously being on the other 'study' site. It is the very first TOPIC to this site. Another, is that after you have Registered [please try to use the same name as you use on this site for continuity] at the 'study' site, also, you can visit the Members Profile and research who lives in your region. Then, send them a PM [private message] via the 'study' site asking questions about their doctors. And, of course, if you are lucky, perhaps a MP member will read this, and get in touch with you with a name, etc. General Practioners are usually more open-minded to assisting.... maybe, because they look at the 'whole body' as this thinking really applies to instead of just this part or that part.
You will need to study these TOPICS in the very least....
ESSENTIAL INFORMATION ABOUT THE MP (Required Reading) and,
MARSHALL PROTOCOL FAQs (Required Reading)
This MARSHALL PROTOCOL FAQs Easy Finder & the ABC of MP will help you locate some individual subject matter. And don't forget the Search feature at the top of each page.
When you get BOTH your 125D hormone and 25D tested, please read and make a request at Preliminary test results (for Comment)
Once you start the taking of Benicar, the Benicar will help you in a palliative way, too, and you can then start asking for medical suggestions from within your thread on the 'study' site, or if necessary, and within the TOPIC URGENT PROBLEMS ONLY
This MP protocol is used to get the innate immune system functioning again, which will get rid of the cause of most, if not all, of our chronic illnessess of unknown cause. The orthodox medical community has nothing like this. If you decide that this is for you, you will have to be your doctor's teacher, in most cases.
You might read the Interviews at the Bacteriality site... in the right hand column of that site, which is written by a very knowledgeable MP member.
The decision is really in your hands!
Wishing you, and all, wellness!!! 
Dark Vader...aka, George
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Julia
Advocate (on leave)
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Posted: Fri Feb 22nd, 2008 19:46 |
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Hi fix22, from a fellow-Brit
I agree with George that you're in a tough situation, but there is hope. There are some of us in the UK on the MP, so it's not impossible. Have you tried your own GP, and others in the practice? Some members have had to change practice. Very few have found specialists open to new ideas.
See Suggestions To Get Your Doctor On Board With the MP.
As you have cardiac involvement, you need to take great care. It may be you were a bit too hasty in dropping all vit D so suddenly, and that's why you had a cardiac reaction. Vitamin D acts as a steroid to suppress the immune system, and weaning off it should probably be done slowly if there's a history of cardiac involvement. Once you start the MP the Benicar (called Olmetec here) helps with the weaning process.
Please see Should I wear NoIRs, avoid natural light exposure and eliminate vitamin D before starting Benicar? which says in part,
Reducing all sources of ingested Vitamin D may reduce 25-D enough to allow the immune system to begin functioning and killing bacteria, thus provoking an immune system reaction. This will cause an increase in symptoms (perhaps intolerable) and possibly an increase in inflammation to joints and organs not yet protected by Benicar.
The aim of the MP is to keep the immune response tolerable at all times, and the meds can be adjusted to this end. An intolerable level of immunopathology not only makes life miserable, but also could be causing unseen damage to organs.
You're never alone on the MP! It's essential to post regularly and follow the advice of the medical moderators. Even if you find a doctor who has prescribed the MP before, s/he is not going to have the experience of it that the MP staff have.
1,25-D is very difficult to get tested in the UK unless you go private and pay the earth. The assay centre that does it is in Manchester, and the sample needs to be frozen for transport. I never managed to get it done. Don't let that hold you back.
Very best wishes,
Julia 
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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fix22
Member
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Posted: Sun Feb 24th, 2008 20:01 |
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Hi George and Julia,
Thank you very much for replying so promptly to my post and for your advice, kind and supportive words and patience.
Thanks to your drs list i have managed to find two prospective drs who may be able to prescribe the mp for me and keep an eye on my progress here in England uk. I may even have a choice  . Is there an advantage to the dr being close by? How much contact will there be with the prescribing dr?
Having stopped taking my fish/flax oils abruptly and within a day or two getting aching joints, muscles, chest pains and terrible irregular heart rhythms I have taken your advice and have restarted my fish/flax oils at the previous dose of 3,000mg/day. Already my condition has stabilised although not quite returned to its usual state, i still have a tight chest and some runs of odd rhythm. I was shocked and frightened at how quickly i deteriorated!! I guess i was overexcited and too eager and didn't realise i was so sensitive. I will wait till i'm on benicar before performing any more stunts like this  . When on the benicar, do i need to wean off the oils gradually or will the benicar protect me from a sudden withdrawal?
I also have a mirena coil in my uterus which acted as a contraceptive and infuses that area with progesterone to protect it from cancer (as i was on oestrogen therapy too, but managed to wean off over six months and have been free of it for eight months or so). I know now that progesterone is an immune dampener/steroid and was wandering if i could have the coil removed now or if it would evoke a similar response to that of the sudden loss of my omega oils? Would benicar help in this situation? should i wait till i'm on benicar to have the coil removed?
I am keen to start on the mp as i know that the only way for me is down  and has been for a very long time now. I only pray that i do not suffer any serious or life-threatening reactions as my kids still need me. They've never met the healthy, energetic real me! I would love to introduce myself to them, they would be surprised!!
I am ordering s/glasses, preparing the home and the kids, choosing a dr, having my D's tested and other necessary/helpful bloods and will post them for analysis asap. Also reading as much as i can on your site so that i am well prepared.
Thank you for taking the time to read and answer all of my questions and for all your advice to date. I really appreciate it very much. Best wishes .
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cfs since 1991 cardiac rhythm probs + chest pain, balance,fatigue, multiple active bacterial/viral infections, lyme. No Ds in diet,darkened house,rarely leave house. 10/08 D25 4.8
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Sun Feb 24th, 2008 21:09 |
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Fix22,
You've certainly had a go of it. Glad you found two physicians to choose from. Distance is relative. That means if you have a better relationship and they are more likely to stay the course of the MP with you, then distance isn't so much a consideration. However, if you can choose a doctor close by, then you have easier access for questions and subsequent follow up with your physician.
You may also want to read:
Vitamin D Tutorial Calciferol and Calcitriol
Birth Control and HRT
Taking Hormone supplements?
Why should I avoid hormone supplementation?
You seem to understand the hormone problem set somewhat, so you might look to start the MP with your Dr getting your D metabolites tested, and then get registered on the study site so you can benefit from Nurse Moderator insights to specifics of your medications.
Best to you Fix22--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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appledrummer
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| Joined: | Sat Jan 12th, 2008 |
| Location: | United Kingdom |
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Posted: Mon Feb 25th, 2008 12:02 |
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fix22 wrote:
I also have a mirena coil in my uterus which acted as a contraceptive and infuses that area with progesterone to protect it from cancer (as i was on oestrogen therapy too, but managed to wean off over six months and have been free of it for eight months or so). I know now that progesterone is an immune dampener/steroid and was wandering if i could have the coil removed now or if it would evoke a similar response to that of the sudden loss of my omega oils? Would benicar help in this situation? should i wait till i'm on benicar to have the coil removed?
Hi
I'm also v interested in the question about the mirena. I have one fitted, but, when I questioned it with my v experienced family planning doc last year when I was being investigated for lupus, she said that the progesterone was only providing a v localised amount to the womb that was not enough to affect the rest of the body.
Any advice, anyone?
Also, Fix22 I have had dramatic effects from cutting down on D in my diet. I am getting constant pain in my chest/diaphragm area now - even tho I am trying to take in a small amount. I have only had mild symptoms, breathlessness or heart racing just temporarily before I cut down. I am in a similar position to you as I am at home with two kids, one autistic. My husband is running around in circles and we are going to have to ask everyone we know for help - it's really awkward to ask an and takes time and effort to call and sort everything out but we have to do it.
All the best to you
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JRFoutin
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| Location: | Oregon USA |
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Posted: Mon Feb 25th, 2008 13:52 |
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AppleDrummer and Fix22,
Per mirena, you may want to read:
Why do women have more autoimmune disease?
Best to you both--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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appledrummer
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Posted: Mon Feb 25th, 2008 20:14 |
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| Thanks for that Janet
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fix22
Member
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Posted: Mon Feb 25th, 2008 20:20 |
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Hi Janet and appledrummer,
I really appreciate you both replying to my post.
appledrummer, you are quite right we have an awful lot in common both personally and health-wise. Maybe we can get through this treatment with each others support.
I continue to be concerned about the mirena coil, firstly because the progesterone is synthetic and not a naturally occuring one, which seems to make a big difference and secondly because within two months of having had it fitted I went from a cfs person who was able to do 50% of a normal persons activity to a cfs person who could barely stand up let alone walk for any distance, mainly due to vastly increased fatigue and exacerbated cardiac stmptoms/breathlessness (this may have been a coincidence). I had it fitted in november '04 and it is due to be removed in November '09. I presume that it is still dispensing the progesterone as my periods are almost non-existant (the best bit about it). I hope that i haven't reached the menopause yet!
My gynaecologist informs me that i should have it removed urgently, as many of her healthy patients (non cfs or obvious illness) have been complaining of crippling fatigue since having them fitted.
Having read most of the material posted to me by you Janet (thank you) it seems that ideally natural/bio-identical progesterone may be the way to go with menstrual problems if desperately required. Otherwise no supplementation of progesterone on the mp if possible to give it a chance to work more efficiently.
I wonder how long it will clear from my system. Maybe it doesn't have as local an effect as we thought!
I thought maybe that i could have it removed and supplement with a natural progesterone cream to stop feeling any worsening of symptoms before i begin the benicar, but am a bit scared as had a fright when coming of the fish oils and have restarted them! As my reaction to the coil being put in (progesterone)was so dramatic i wonder if its removal will be equally bad (removal of progesterone). Will starting the benicar first, help with the withdrawal symptoms? Should i just leave it in and wait for the experts in phase 1 of mp to guide me? Would this delay my treatment or make it ineffective for a while?
Sorry if i'm repeating myself with some of the questions, but i would like to be clear as to what to do so that i am prepared as safely as possible.
One of the dr's on the uk list that i have spoken to today was not prepared to put me on the mp, but says that she does over-see a patient on the mp who is self medicating (got drug regime off internet). The dr has made it clear that she doesn't believe in the mp. It was difficult for me to convince her otherwise, but thankfully she will be doing my D levels for me and has agreed to re-assess my/her situation to the mp, if my 1,25D is raised significantly! (as at the moment she believes that i need increased supplementation with vit D, as i havent responded to her treatment so far ( for 2 years)) My 25D is low.
I did explain about coming off the fish oils and the reaction that i had had, but she was not at all convinced and denied that 3 fish oil capsules could have had that effect on me. Tomorrow i will be phoning 2 other dr's who are on theuk list as mp prescribers....fingers crossed!!!!!
Thank you for listening and best wishes
Hang on in there appledrummer
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cfs since 1991 cardiac rhythm probs + chest pain, balance,fatigue, multiple active bacterial/viral infections, lyme. No Ds in diet,darkened house,rarely leave house. 10/08 D25 4.8
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appledrummer
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Posted: Tue Feb 26th, 2008 11:11 |
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Thanks Fix22
We really are up against it when everyone is arguing the opposite to the science we have read and understood! So frustrating dealing with British docs in the current NHS when they are all watching their backs and are being monitored for every drug they prescribe!
I really feel caught in a dilemma over the mirena - I did have some doubts and did ask about it. But the reason for having it was because I was so ill after multiple miscarriages despite precautions! If I don't protect myself enough then I will be worrying the whole time about the effect of minocycline on any future babies that I usually don't know about until it's too late.
Am I going to have to make a decision about this before I get a doc to start prescribing...?I don't know right now - I have too many other things to deal with.
Hope you have a good (better!) week anyway
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fix22
Member
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Posted: Thu May 8th, 2008 13:54 |
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Hi, i'm back again, hopefully not to try your patience too much!
I have been trying very hard to get onto the MP, but have not got very far and am getting rather impatient and very frustrated . My cfs/fatigue specialist (I have seen him/spoken to him over the phone for 15 years now) is dragging his feet about putting me on the MP. He does have patients on the MP. He is worried about the suffering that I would probably endure during the treatment as I suffer from chest pain and rhythm problems etc and have been sick a long time. He is aware that this is the only cure and understands the process. I know that he knows Prof. Marshall and admires his research/work to date. I have tested positive for a parasitic worm called Cryptostrongulus (?right spelling) and am being treated with Ivermectin over a six month period, as well as Samento (I have lyme, erlichia, babesia, clamydia pneumonea, plus other bacterial and viral infections). I cannot tolerate any antibiotics, as they exacerbate my heart symptoms. I know that he is trying to lessen my bacterial, viral and parasitic load before he prescribes the MP for me. I don't know much about Samento, but it has induced some nasty herxs (flu like symptoms, sleepiness, chest pain and rhythm disturbances) as i've tried to increase the dose (very slowly). I am worried that even after all of this treatment he may stall the MP for me again. Is there anything that I can say that may move him along or is he right to try and lessen the load first? I am determined to start the MP in October '08, but need his approval/prescription/expertise.
Can anyone give me any advise on purchasing Noirs from the UK? I have found one site, but it is very basic and doesn't offer much of a range of sizes or styles. The US site is wonderful, with many styles to choose from, but it would be easier for me to buy what I need from the uk. Are styles #35 and #200 suitable for the whole of the MP in amber 2%, 10% and 40% or are they too flimsy when very photosensitive? I don't need fitovers as my vision is ok. Do the Bolles come with amber lenses in the percentages needed for the MP. Are there any shops/online in the uk that sell these. Are there any other makes of sunglasses that are suitable for this purpose?
Thank you very much for your time and attention, I really appreciate it .
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cfs since 1991 cardiac rhythm probs + chest pain, balance,fatigue, multiple active bacterial/viral infections, lyme. No Ds in diet,darkened house,rarely leave house. 10/08 D25 4.8
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Julia
Advocate (on leave)
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Posted: Thu May 8th, 2008 16:08 |
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Hi Fix, welcome back!
I'm sorry (but not surprised) to hear you've had so little success trying to find a doctor. The one who is treating you with other things 'before' doing the MP clearly has no understanding of the essential nature of Olmetec in activating the immune system and protecting your organs (including heart) from damage. When your immune system is healthy again, it can deal with any co-infections and parasites.
NoIRs are available from Optima Low Vision Service (Tel 01803 864218) - type 'noir' into their search box.
If you're consulting this doctor privately, he could be making a lot of money out of you before you ever get to the MP. Meanwhile the bugs are happily partying . Perhaps you could be very firm that it's the MP and only the MP that you want?
Julia 
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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fix22
Member
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Posted: Thu May 8th, 2008 18:57 |
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Thank you so much Julia. I know that what you say is spot on. I'll keep preparing myself for the MP and will tell my specialist that I want to start the MP before October at the very, very latest. I have tried every treatment going, so fingers crossed that he complies with my wishes this time .
Will also check out the Noirs retailer that you suggest  .
Can't wait to get started. Thank you once again for all your help.
Best Wishes fix22
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cfs since 1991 cardiac rhythm probs + chest pain, balance,fatigue, multiple active bacterial/viral infections, lyme. No Ds in diet,darkened house,rarely leave house. 10/08 D25 4.8
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fix22
Member
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Posted: Tue Jul 1st, 2008 23:09 |
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CFS, heart rhythms, cardiac probs, chest pains, muscle and joint pains, multiple viral and bacterial infections, lyme, memory probs
-The date the blood was drawn - Thursday 19th June
-Which lab did the tests? - Doctors laboratory, Wimpole street, London, UK
-Was the 1,25-D sample was frozen for shipment? - Yes (as far as we know)
-How long have you been avoiding foods with vitamin D in them? - avoiding obvious vit D foods (e.g. fish, eggs, mushrooms etc)
-How long have you been avoiding sun/lights? - housebound over last 2 years, did occasionally go out uncovered
-List all meds, supplements (both prescription and OTC) you have been taking and why. - samento and cumanda(antimicrobials) for infections lyme, detox herbs; pinella, amantilla, burbur, parsley. Gaba for mind relaxation, Co Q10 and Mg for cardiac probs
-When and for how long have you taken prednisone or any other immunosuppressant in any form? - Hrt for 9 years till 2007, progesterone coil for 4 years still in situ, DHEA for 8 yrs on and off for high cortosol levels till 2006
-When and for how long did you take Vitamin D supplements (including any vitamin-mineral supplements), omega-3 supplements and/or any kind of fish oil? - High dose fish oils 5000mg capsules for 2 yrs, vit D prescribed supplements for 2 yrs on and off, vit E vit C and zinc but am no longer on these last 3.
-Were you taking Benicar when the sample was drawn? - no
-Were you taking an ARB or or an ACE inhibitor when the sample was drawn? - no
cfs diagnosed 1991, housebound now 2 years. probs with cardiac rhythm and chest pain, balance,fatigue,intolerances,occ. photosensitivity.
Take gaba, Q10. Have mirena coil.off fish oils/no light limit
English/metric
D25:14nmol/l
D125:96pmol/l
American
D25:5.6ng/ml
D125:40pg/ml
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cfs since 1991 cardiac rhythm probs + chest pain, balance,fatigue, multiple active bacterial/viral infections, lyme. No Ds in diet,darkened house,rarely leave house. 10/08 D25 4.8
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Wed Jul 2nd, 2008 01:59 |
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Fix22,
Suggest posting this information in the topic for that detail:
Help with Understanding D-metabolite tests
Moderators will help you understand the values returned from lab tests in this forum
Best to you Fix22--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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fix22
Member
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Posted: Thu Jul 3rd, 2008 19:19 |
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Sorry Janet! Have now posted D's in correct place and have recieved the results, thank you.
My D25 is low at 5.6ng/ml and my D125 is 40g/ml (apparently the lab probably mishandled my D125 blood sample, as according to my long medical history of CFS and many years of D supplementation this level is way too low to be accurately representative of my condition ), but nevertheless I have been told by the experts that I most definitely have th1 disease and that I am suitable for the MP .
If my D25 is as low as it is, then has my immune system been properly activated? Does the D125 have to drop to a certain level to activate my immune system more? Without Benicar, how long approximately would I need to avoid natural light and D foods etc. before my D125 drops to a healthy level? How long would the D125 take to drop when on the MP? Once the D25 and D125 are at their optimum levels for the immune system to function at its strongest, would the immune system then be able to kill all of the bacteria by itself and keep itself healthy? Does the D125 only go down as the bugs are killed off and the inflammation subsides?
Sorry, I can't quite get my head around this!
I'm still looking for a UK Dr to prescribe the MP, but am getting very angry and frustrated with their attitude . My children are all th1 as is my brother, but if I can't get on the MP then I don't hold out much hope for my kids getting on it in the near future either .
Thank you for your time and attention. Best wishes fix22
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cfs since 1991 cardiac rhythm probs + chest pain, balance,fatigue, multiple active bacterial/viral infections, lyme. No Ds in diet,darkened house,rarely leave house. 10/08 D25 4.8
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fix22
Member
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Posted: Thu Jul 3rd, 2008 19:53 |
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Just found a brilliant link to an explanation of the D's, so now understand them properly . Sorry to bother you. This site is so vast that I can't always find what i'm looking for and if I find some detail one time I usually can't find it the second time!
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cfs since 1991 cardiac rhythm probs + chest pain, balance,fatigue, multiple active bacterial/viral infections, lyme. No Ds in diet,darkened house,rarely leave house. 10/08 D25 4.8
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
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Posted: Thu Jul 3rd, 2008 20:44 |
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fix22,
Glad you found the links... good for you to keep looking!
In time it will make more sense as you get to understand how to use the http://www.marshallprotocol.com site as well as FAQ and search feature (try google site: search too).
As more people in many different countries are discovering the truth about evidence presented with the Marshall Pathogenesis and Protocol, and as more get well, action can be taken per different social/political/business structures per country to move the truth forward.
That will take some time and you need to get well first. In the mean time, one can focus on getting well using all the strategy they can muster to work with their doctor.
Best to you fix22--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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JanEE
Member
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Posted: Thu Jul 3rd, 2008 22:27 |
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Hi fix22,
I understand how you feel about finding things on this vast site. I used to lose subjects that I was interested in, or wanted to read over again, also. Sometimes I would find them again and sometimes not. I finally found this way to find them easily when I wanted to.
I copy the link address at the top of the screen and paste it into an email to myself with a short description of what it is about. For instance, this would be the address for this page-
http://curemyth1.org/view_topic.php?id=359&forum_id=2
It could also be pasted into a Word document that would end up being like your own personal file of MP subjects. I have a whole file of various things from "inspiring quotes" to "information on sunlight and glasses" and "contraindicated meds". I found this method to be very helpful and time-saving---for me anyway. Even my doctor said it was a great idea. You might want to try it.
Jan
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Ph1=5/05; cfs/fibro/GI/insomnia; 125D=69/ 25D=38; beni+mino; NoIRs; cutD.
Ph2=9/06; 125D=21 / 25D=31; beni+demeclo.
Ph3=8/07; 25D=11; BeniQ6H; demeclocycline+2; (all 3 Ph.=magnesium, Arm.thyroid. Promethazine ad lib)
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Julia
Advocate (on leave)
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Posted: Fri Jul 4th, 2008 00:42 |
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| I think that's a great idea, Janee. Also, you can save any page you want to find again to your Favourites, calling it by any name you choose to remind you what it's about. You can 'organise favourites' into folders as your 'library' grows
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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