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jocelyn
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Posted: Mon Feb 8th, 2010 03:55 |
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Hi,
I am new to your site. I need any help that you can give. I have been suffering, like all of you at some point, from an undiagnosed case as of now. I have seen three rheumy in Florida and they think I am doing good. Imagine that???? I am miserable. I am going to Johns Hopkins Feb 14 for a diagnosis. I feel they can give me that. I don't want to use their protocol because I believe it does mask the disease.
I do have positive ANA, positive Sjorgr. SSA SSB. As of right now that's all I know other thank the horrible horribel symptoms. I believe I have CNS involvement.
Do you have any info on any doctors in South or Central Florida that can use this protocol> If I find a doctor open to treatment what is the protocol. I believe it may be on the site. I read through it briefly but had to jump right in and post this. I am very excited to get started.
Any info would be appreciated.
Thanks,
Jocelyn
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jocelyn
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Posted: Mon Feb 8th, 2010 04:13 |
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I forgot to ask ,,,I assume Sjorgens is on the list for Marshall Protocol??? Where do I find the exact place to tell about what it is exactly?
(editted to remove blanks - Chris)
Last edited on Mon Feb 8th, 2010 04:30 by
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Joyful
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| Joined: | Fri Oct 19th, 2007 |
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Posted: Mon Feb 8th, 2010 04:39 |
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Hello and welcome, Jocelyn. 
Here is a patient interview of someone with that condition:
http://bacteriality.com/2008/07/02/interview23/
Also, you can find answers to some questions by searching in the MP knowledge base at:
http://mpkb.org
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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jocelyn
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Posted: Tue Feb 9th, 2010 01:55 |
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I am still confused as to the exact protocol. I read over some of the material but I think because of how I feel I don't fully understand.
Does this work for Sjogrens? What is the exact protocol? There is so much jumping around and opening new links that I am not sure. Please help me. Benicar is the only thing used? Or are there other things?
Thanks,
Jocelyn
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Carole
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Posted: Tue Feb 9th, 2010 03:39 |
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Hello again, Jocelyn:
This introductory page may offer a quick overview, as well as the opportunity to review the Phase One Guideline.
http://mpkb.org/doku.php/home:patients:protocol_overview
While waiting for support from your own healthcare provider or as you seek a new physician, please study the following:
http://mpkb.org/doku.php/home:starting:prempchecklist
http://mpkb.org/doku.php/home:starting
Take your time to absorb the wealth of information on this site, as well as from the MP Knowledge Base, as Joyful has referenced.
If you have questions remaining, please inquire. Best regards! . . . Carole
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Carole's Story
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jocelyn
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Posted: Wed Feb 10th, 2010 01:51 |
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Does the MP work on Sjogrens or MS.? Right now I am an undiagnosed case, waiting for a trip to Johns Hopkins for a dianosis hopefully. After hearing stories of everyone I will probably skip the meds they will want to prescribe and go for this.. I am currently on plaquenil for 10 months and honestly it does nothing for me....I am getting worse by the week. How long do I need to quit this before starting the protocol?
Are you sure the doctors on the South Fl. list you gave me use this protocol because I called one of them and the receptionist knew nothing about what I was asking???? Replied by PM--Carole
Thanks,
Jocelyn
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Joyful
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Posted: Thu Feb 11th, 2010 05:38 |
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The MP is helpful for a number of diagnoses. Did you take a look at the links to Bacteriality I posted (above)?
Plaquenil is discussed in the MP knowledge base here: http://mpkb.org/doku.php/home:othertreatments:antibacterials:plaquenil
If you are serious about getting on the MP, you will need to learn how to research answers to your questions. You can click on the links (in my signature line) or the white "Google Custom Search" box in the upper right corner of the page to look for information.
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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Madhouse
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Posted: Mon Feb 15th, 2010 08:55 |
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jocelyn, do not get discouraged, at first the MP seems very confusing and intimidating.
You need to spend literally hundreds of hours studying and researching it to fully understand it. Find the videos of Drs Marshall, Blaney and Amy Proal, they are all great.
Sounds like the first thing they will prescribe is Prednisone, DON'T DO IT! it will just make thinks harder to deal with in the long run.
Just keep your head in the computer and you'll get it.
Here is a link on comorbidity of diseases, once Th1 takes over you'll get a whole hotchpotch of diseases and symptoms at which time it really doesn't matter what started it, you just need to get over it.
http://mpkb.org/doku.php/home:pathogenesis:th1spectrum
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15 Years IBS, 2 years RA.
Started MP June 16,09.
Phase III Oct 3,09.
25-D 10ng/ml.
Meds: Benicar 40mg Qid, Mino 100mg and Clindy 150mg every other day, Zith 125mg every 10 days.
Avoiding direct Sun, Using NOIRS.
Symptoms 70% resolved.
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Sallie Q
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| Location: | Hope, Australia |
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Posted: Wed Feb 17th, 2010 05:50 |
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welcome Jocelyn
when I was studying the site before starting, I got the impression that individual diagnosis is not a concern at all, the decision was to do with any sign that the 'vitamin' D metabolites were dysregulated, permanently out of balance. This included a set of out-of-balance symptoms that old style doctors (most of them) use as a justification for recommending adding 'vitamin' D as opposed to the Marshall Protocol for controlling it.
Although you will see many on the site had Lyme disease or Sarcoid or rheumatoid conditions, there are also many whose medical history contains many conditions different from those, often where doctors treatments have not helped and people kept adding new medical problems during conventional treament (scary stuff if you go through it).
I and quite a few others have Sjogrens. (I had never heard of it until my husband asked my MP doctor for a diagnosis to justify my desire to do MP).
I decided myself on looking back that I started in on post viral CFS about 60 years ago, and that has been implicated most of life's disappointments for me.
The MP has certainly shifted my Sjogrens, including a period when all those symptoms abated for many months. Now when I get an itchy eye or dry mouth it may be very noticeable but only lasts for a matter of hours instead of being a permanent background to liveing which a few years ago I did not recognise as an illness.
I also went for several decades regarding my declining health as normal aging.... wow have I changed my mind on that one.
I have noticed some others mention MS, do not remember who, but you will learn to use the search engine , also learn how to follow up previous posts by people whose medical history interests you
Happy healing
Sallie
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b.cancer1990 SjogrensCFS 60%dysreg.vD 25D13.2ng/mL Sep08ph1 Jan09modPh2 25D~19 May09ph3 NoIR lowLuxEtc 25D 5 ng/mL Jan2010
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