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jacs
Member
| Joined: | Wed Feb 6th, 2008 |
| Location: | Anson, Maine USA |
| Posts: | 2 |
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Posted: Thu Feb 7th, 2008 23:06 |
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I have had diagnosed systemic sarcoid for over 35 years and doctors believe that, 1, it may be neurological at this point, and 2 that I may be one of the longest living prisoners of this disease. How will this regimen of treatment make me any weller than I already am. I already have to avoid sunlight (I am the lightest Native American that you will ever see), I own blackout glasses and blackout me car's windows in the summer time. And I have read no postings that talk about doing this on your own....I live alone with 4 wolves that all in some way are my service dogs. I will check in tomorrow, because if I am going to do this, I want to live longer and might as well get the worst over with as soon as possible My doctor has already done much the same protocol and tells me this is my decision. Thanks to any feedback provided Jacs
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Dr Trevor Marshall
Research Team
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Posted: Thu Feb 7th, 2008 23:21 |
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My doctor has already done much the same protocol
Please understand that there is no such thing as "much the same protocol." Each element of the MP is ESSENTIAL, including the knowledge of the cause of the disease, if one is to recover.
There is just no other way to kill off the pathogens. Sorry to be so dogmatic, but nobody has ever been able to demonstrate otherwise. I would love to be proven wrong, as recovery with the MP is not a cakewalk...
I may be one of the longest living prisoners of this disease
Hmm. That is a lack of knowledge and inquiry on the part of your doctors, I am afraid. A quick look at the histories here will show several folk who were diagnosed many moons ago. I myself had chest xray shadows in 1967, and was given 18 months to live (stage 4) in 1978.
http://sarcinfo.com/xrays
As to what recovery is possible - full recovery. I am sure the moderators can point you to some FAQs which discuss that issue. I will just describe it as 'a state of health you have never known'. 
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jacs
Member
| Joined: | Wed Feb 6th, 2008 |
| Location: | Anson, Maine USA |
| Posts: | 2 |
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Posted: Thu Feb 7th, 2008 23:53 |
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Well, I guess if a doctor can do it, so can I, though I think I need help gettiong around this site as I haven't been on th internet for many years and many things have changed. Thanks again! Jacs
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Fri Feb 8th, 2008 08:22 |
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Hello, Jacs,
Welcome! to the MP.
It is the Advocates job to help people learn the ropes of getting around the 'study' site. It does sound as though you are doing a part of the MP protocol with avoiding light already, which is excellent.
I perceive that your biggest immediate question is "How well can I get?" Do read the articles at http://www.bacteriality.com [just click on the bold lettering] and the links to more articles in the right hand column, with Interviews at the bottom. [Just click on each link to take you to that article.] Perhaps, you may want to read the Interviews first, then go back to the beginning. This information is in prose style of writing, which may be easier than the forum style, which is a living entity. This alternate site will be a very good foundation for studying the 'study site'. This is all written by a very gifted young writer who has been/is doing the MP protocol.
You might as well Register at the 'study' site, too, as you will be needing to be registered there when you have your D-tests interpreted, and as you post your Progress Reports. Attempt to use the same name as you are using on this forum, for continuity sake. Once you actually start the MP protocol, you will be posting and asking for medical suggestions over there, not here. But you can still ask questions here for getting around the 'study' site for general learning purposes.
This will get you started with the important material that you will need... ESSENTIAL INFORMATION ABOUT THE MP (Required Reading) and MARSHALL PROTOCOL FAQs (Required Reading)
This is a very handy link for finding material... MARSHALL PROTOCOL FAQs Easy Finder & the ABC of MP
You can request an interpretation of your D-tests here... Preliminary test results (for Comment)
When you start with only Benicar, you can post here... Benicar only Forum
Then, 'graduate' to posting here... Benicar and Minocycline Forum
May we ask that you ask all of your questions in one thread here at this site for continuity. You should ask all of your medical questions on your personal thread on the other site, once your start the MP protocol.
You start each thread by clicking on the wording "New Topic" in the upper right corner. You make a new post to a thread by clicking on the word "Reply" in the right side of the last post.
And when all else fails as to how to navigate around the site, use Help in the upper right corner. Oftentimes there are more pages to a thread. You can find these by clicking on the little numbers in the lower right hand corner. And the Search feature, at the top of each page, oftentimes will take you quicker to some subject.
We are here to answer questions. However, we really encourage each individual to learn as much as he/she can, which means lots of reading. The med docs have not had the chance to learn this MP protocol yet, so you may be teaching your doc how to do it, with his assistance. Sometimes, this can be a tight rope walk. But a do-able!
And remember, the med docs use many, many labels [names] but it is all caused by the one thing, for chronic illnesses of unknown cause... Th1 inflammation caused by a soup or stew of pleomorphic bacterial L-forms causing a soup or stew of symptoms. It is how each med doc interprets the symptoms or sets of symptoms that cause them to give such and such name to each set.
Wow! living with four wolves!!!! I find that most interesting!!!! I probably could listen to you all day telling about them.
My wife and I live with three African grey parrots; actually, I am the parrot lover. And our little doggie just gave birth to five pups this past weekend. We also have a half dozen So. Am llamas. Had forty-six of them until we became too sick to care for that many. We love animals!
Wishing you, and all, wellness!!!
Dark Vader...aka, George
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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