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Kainer Member

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Posted: Fri Feb 15th, 2008 16:54 |
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OK. That table didn't post as I had hoped. Let me try something else.
JGK
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Kainer Member

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Posted: Fri Feb 15th, 2008 17:12 |
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Hopefully this more legible. The abnormal results are in bold. Two tests, sACE and Thyroid, have been repeated.
Test Range
Cholesterol 152
Triglycerides 109
HDL 53
LDL 77
WBC 4-11 THO/uL 3.6 (L)
RBC 4.3-5.8 MIL/uL 5.58
Hemoglobin 13.5-17.5 g/dL 14.9
Hematocrit 40-52% 44
MCV 80-100 fL 79 (L)
MCH 27-33 pg 27
MCHC 31-36% 34
Platelet Count 150-400 THO/uL 209
Red Cell Distribution 12.2-15.2% 13.3
Sedimentation Rate 0-15 mm/h 2
Prothrombin Time 10.8-12.9 s 10.8
aPTT 21.6-32.5 s 25
Urine Epinepherine 0-25 ug/d 9
Urine Norepinepherine 0-100 ug/d 101 (H)
Lysozyme 9-17 ug/ml 32
10/31/07 11/19/07 01/17/08
Angiotensin Conv. Enz 9-67 U/L 93 (H) 93 (H) 47
Aspartate Aminotransf 17-59 U/L 70 (H)
Alkaline Phosphatase 35-125 U/L 91
Bilirubin 0-1.2 mg/dL 0.4
Alanine Aminotransf 21-72 U/L 57
Thyroxine 4.5-12.5 ug/dL 7.6
T3 Uptake 0.77-1.17 1.34 (H)
Free Thyroxine Index 3.5-14.6 10.2
09/27/07 11/19/07
Thyroid Stim. Hormone 0.4-4 ulU/mL 0.89 1.74
C-ANCA Abnormal
PR3-ANCA 0-20 U 2
MPO-ANCA 0-20 U 2
Follicle Stim. Hormone 0.7-11.1 mlU/mL 6.1
Luteinizing Hormone 0.8-7.6 mlU/mL 3
Prolactin 2.5-17 ng/mL 10
Testosterone 262-1593 ng/dL 472
Thanks as always.
JGK
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GeorgeinRollaMO Advocate

| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
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Posted: Fri Feb 15th, 2008 19:15 |
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Kainer,
What all of those lab results mostly tell me is that you are still alive. 
Actually, what is needed are the D-tests by Quest Diagnostic Labs, and the ACE (angiotensin converting enzyme) from this group of test scores. Quest is proven to be the reliable lab for these tests....not the other guys.
When you get the D-tests results, post them at Preliminary test results (for Comment) after reading the directions there. This is over at the 'study' site, so you will need to be REGISTERED there also.
I can see from your cholesterol test scores that you have been working on that depatment. However, you might want to read Cholesterol Test Not Cracked Up to What the Medical Community Wants You to Believe says a very respected Swedish doctor. Be sure to read the 'About the Author' at the bottom of the article.
Wishing you, and all, wellness!!! 
Dark Vader...aka, George
____________________ Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Kainer Member

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Posted: Tue Feb 19th, 2008 17:11 |
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I have begun tapering my prednisone against my ophthamologist's wishes (and without his knowledge) in preperation for the MP. But I won't be completely off of the prednisone until July, which is too long to wait. Just how little prednisone can I be on when starting the MP?
I'm at 15mg daily right now and tapring at 2.5mg per week until I hit 5mg, then 1mg per month until 0mg.
My quandary is my right eye. Without the palliative effect of the prednisone, the inflammation is likely to return and do severe damage if I must wait until July. The only other alternative is to remain on the prednisone until the eye inflammation subsides and then taper, but I could be delaying the MP by possibly six months.
I have made an appointment with a DO who is currently treating a member. The appointment is for 03/31/08 and I will be down to 5mg by the week of 03/16/08.
Thanks as always.
JGK
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GeorgeinRollaMO Advocate

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Posted: Tue Feb 19th, 2008 17:54 |
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Kainer,
Would you please report your use of Prednisone and weaning on this forum,
Weaning From Steroids Forum which is part of the 'study' site, found from the Home page. There are medically trained staff there to help you with this stuation.
Thanks!
Wishing you, and all, wellness!!! 
Dark Vader...aka, George
____________________ Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Kainer Member

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Posted: Tue Feb 19th, 2008 21:36 |
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| After reading the Weaning from Prednisone page, I think I will hold at 15mg until I can begin the Benicar. As I indicated above, I have an eye to protect, so cutting back too much may not be in my best interest.
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GeorgeinRollaMO Advocate

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Posted: Tue Feb 19th, 2008 22:13 |
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Kainer,
Do NOT report what you are going to do with the steroids on THIS site!!!!!!!! We are not medically qualified to assist you with those questions.
Please use the address link given previously to establish your own thread there for that purpose!!!
Thank you!!! 
Wishing you, and all, wellness!!!
Dark Vader...aka, George
____________________ Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Kainer Member

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Posted: Wed May 14th, 2008 19:02 |
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D-tests (and others) have been drawn and I am awaiting the results.
Here is the bad news:
My prescription insurer, Caremark, refuses to pay for the Benicar at the MP doses. They will only pay for one 40mg daily. The doctor is appealing and I am providing him materials from the MP site to help. It does not look promising, though.
JGK
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Julia Advocate (on leave)

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Posted: Wed May 14th, 2008 23:28 |
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Kainer,
Please see How To Obtain Insurance Benefit for Full Dose of Benicar, and also this discussion.
Julia 
____________________ Always consult a physician
Essential Info; FAQ; Julia's story
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Kainer Member

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Posted: Fri May 16th, 2008 01:46 |
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Thanks for the links. I am noticing from reading where to buy Benicar for self-pay that generic olmesartan is mentioned. For the MP, is brand name Benicar called for, or will a substitute of generic olmesartan work just as well? (Definitely, I would not use other ARB's or the HCTZ combo.) This may help with getting my insurer to pay, or at least lessen by bill if I must self-pay.
Thanks as always.
JGK
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Julia Advocate (on leave)

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Posted: Fri May 16th, 2008 11:28 |
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Kainer,
See this paragraph on generic Benicar, where it says
Efficacy of generic Benicar
-Have been using the generic from India for over two months now, and it is still doing the job. I've used both the 20mg (which was yellow) when the 40mg tabs were not available, and I am now using the 40mg tabs. ~eClaire
-Alternating 40mg olmecip tablets with 40mg Benicar. No difference noticed in the reactions between the two. ~Grey Fox
So generic is fine. I hope that helps with the insurance.
Julia 
____________________ Always consult a physician
Essential Info; FAQ; Julia's story
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Kainer Member

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Posted: Wed May 21st, 2008 16:05 |
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The doctor who will be prescribing the Benicar is asking questions about the dosage levels. I'll need to provide him with the materials (he does not have internet access). He is concerned about 2 things:
1.) Why are the MP levels of Benicar necessary (he not so sure they are)?
2.) What are the dangers of that level?
I'll need some back up for any answer so he can review. He's an endocrinologist, so he'll be looking at it thoroughly.
Thanks as always.
JGK
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expate Member

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Posted: Wed May 21st, 2008 16:45 |
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You could start reading here:
http://www.marshallprotocol.com/forum2/11.html
Odette
____________________ Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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JRFoutin Advocate

| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
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Posted: Wed May 21st, 2008 17:27 |
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Kainer,
You might invite your doctor to become a member of the:
Private Section for Health Professionals, this is an excellent place for doctors to ask questions directly for their patients.
The title of the link Odette gave you is "Benicar-Basic Information" and it is found in:
ESSENTIAL INFORMATION ABOUT THE MP (Required Reading)
I have found that understanding Benicar is important toward a prescription for Benicar, but a single focus on Benicar alone may not provide an adequate foundation for your case to get well.
Please consider how important it is to be fully conversant with aspects of the Marshall Pathogenesis and Marshall Protocol so you can discuss all issues with your doctor in a timely and professional manner. Preparation and study is required.
May I recommend the FAQ, too, as it sorts the topics of required reading alphabetically so you can find them easily. After that, you might also use the search on the http://www.MarshallProtocol.com study site, or a google site: search.
I also recommend you frequently read Amy Proal's http://www.Bacteriality.com site. A good place to start is her recent presentation in vimeo (movie) format. Here is Amy's description and the link:
"In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 89 minutes."
http://bacteriality.com/2008/05/07/mpintro/
Best to you Kainer--Janet
____________________ 12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Kainer Member

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Posted: Wed May 21st, 2008 17:51 |
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Thanks for your quick reply.
I can see from the journals and the NDA that Benicar is safe at the MP dosages. That leaves open why 120 -160mg is best. In a nutshell, my doctor is curious why 40mg daily wouldn't work just as well. What papers or studies can we give him that will show him why 120mg+ is needed for the MP to work?
Thanks again.
JGK
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JRFoutin Advocate

| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
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Posted: Wed May 21st, 2008 17:56 |
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Kainer,
In the link that both Odette and I gave you, you will find this post:
[filelink]
Frequently Asked Questions About Benicar
Please read the links.
Best to you Kainer--Janet
____________________ 12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Kainer Member

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Posted: Wed May 21st, 2008 18:14 |
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Janet -
Thanks for the links. My doctor is not an internet user nor is there a computer in his office. So refering him to a video or a message board won't work.
This doctor is part of a team watching my condition. When I began explaining the concept of the MP to him, he asked if we should test my D levels before I had even mentioned vitamin D. If fact, his exacts words were that he was "...hip to it." As endocronologist he understands the mechanisms at work.
So as you might imagine given these two points above, he's asking questions and I have to be the go-between from the MP site to him. He has questioned whether I might be get by at 40mg daily. I've gone through the Benicar message boards and can find much on the safety and reasons for the high dosages. The safety data is there is droves and in articles and journals that cite the statistics. But so far I have not seen anything (that I can identify with my own layman's eyes, anyway) that describes the mechanisms with for the high dosage. For this reason, anything I give him needs to describe the science behind the high doses and convince him of the need.
Hopefully this explains what I'm looking for.
Thanks,
JGK
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JRFoutin Advocate

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Posted: Wed May 21st, 2008 19:28 |
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Kainer,
The links provide your answer.
Amy's video page also includes an RTF file that can be printed.
I hope you will continue reading the information here to help you understand the cause of Th1 inflammation and how to treat it safely and successfully. For background information, see What is the Marshall Protocol? The science is detailed here and simple explanations provides less technical descriptions.
Be sure to click on all the links in our responses to you. Take your time to absorb all the information. You may be eager to start but it's important to be thoroughly prepared before you begin.
The study site is the only source that is certain to have reliable information about the MP. Do not assume your doctor knows all about the MP or is willing to study it. You must educate yourself, using the study site, to ensure the MP is followed correctly. Please note:
-It is the patient's responsibility to see that the prescribing doctor is following the MP correctly.
-It is the patient's responsibility to see that the prescribing doctor understands the effectiveness of the MP and the dangers inherent in deviation from the guidelines.
-Combining other protocols with the MP will not work and can lead to dangerous immunopathology.
Kainer, choose well, get well--Janet
____________________ 12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Kainer Member

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Posted: Wed May 28th, 2008 15:43 |
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I provided the doctor with materials from this site explaining the MP, as well as the saftey and need for the Benicar. After reading up, he switched his opinion from being hip to it to not wanting to proceed. His conclusion is that it is too "fringy."
Thanks.
JGK
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JRFoutin Advocate

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Posted: Wed May 28th, 2008 16:27 |
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Kainer,
The important question to ask: Have your health goals for you changed?
Best to you Kainer--Janet
____________________ 12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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