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AMMC's Journey

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Cynthia Schnitz
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Posted: Wed Nov 25th, 2009 17:03

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My joint problem was interesting because it was a sleeper. All I knew is that I would get lame once in a while and I was told by one doctor that the ball in my right hip had popped out of place and she told me how to get it back into place if it happened again. But I still did not connect the dots about hip joint inflammation until the MP fixed the nerves in that joint that apparently were totally non-functional. Shortly after starting the MP, I had plenty of pain in that joint, tho at no time was it bad enough that Beni couldn't fix it up. I soon realized that the lack of range of motion in both hip joints were being caused by inflammation in the joints, where I had previously thought it had something to do with my back, as that is where I got pain if I tried to pull my knees up.

Now I am having pain in my left knee joint, after a year on MP, where I had orthoscopic surgery 26 years ago to clean up a pinched synovial tag. I guess we will all get to the point where our immune systems clean up everything in our bodies. Cynthia

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Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory

ammc
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Posted: Mon Nov 30th, 2009 14:18

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Olmetec Q6 Day 41 Mino 75mg third dose

Hello just posting to say I am having what might be my first set of issues since starting. I am ITCHY I am mean ITCHY I have severe dry skin so usually suffer from itchiness in the winter prior to this but I am itchy in odd places. Like my upper eye lids, inside my ears and EVERYWHERE else.

I skipped a mino dose and it didn't make a differance. I am trying extra benciar today to see if it helps. I am worried though that the itching I have could also be yeast as it's female itching and burning combined which I had earlier this year prior to starting and went away with diflucan. I did test negative on a recent test for yeast but I know it dosn't always show up.

I have a history in the past with itching so this could be a replay of it. I am hoping this is IP and not Candida as I have a bad and long history with that as well. Other then the above nothing else is really happening.

Last edited on Mon Nov 30th, 2009 14:19 by ammc

____________________
Sicca Symptoms since Jan 2007/ 37 years old /dry eyes/mouth/foot pain in arch|work full-time/exercise daily am highly functional/ 25-D positive Ricketssia/Olemetec Q6 10/20/09 mino q48 11/1/09

ammc
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Posted: Fri Dec 4th, 2009 21:44

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Thanks to everyone who sent me pm's regarding my itching issue it appears to be on a break now and I feel pretty fantastic physically this week. I am on 100 mg of mino starting today and per Dr Blaney will be at this dose of mino till mid Jan then we will look next abx which I am thinking will have to be C as crappy news is I got my D test results back and while my GP was correct my D is very low it's only the 25D2 which is less then 10ng untraceable. My 25D3 is actually 26.2ng not very happy about that. Likely as I was on a diet earlier this summer ( prior to starting) and was eating salmon about 4 times a week. So now my goal is too get that down.

I assume this is why I am not herxing hardly at all that I notice since starting other then the itching. Although I have been reading lot's of posts with people with 25D higher who were herxing so I guess we are all different.

Last edited on Fri Dec 4th, 2009 22:30 by ammc

Cynthia Schnitz
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Posted: Sat Dec 5th, 2009 02:41

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Well, you should look at how sick these people who are having IP with high D, and how long they have been sick. I had very light IP in the early Phases. Had tried to stimulate some extra without upping the Zith (exercise & hot baths/showers), and finally succeeded, only to find the increase was because I went under the magic 12 ng/ml. Patience ammc. Cynthia

____________________
Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory

ammc
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Posted: Sat Dec 5th, 2009 12:07

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Thanks Cynthia, I know I need to just be patient when it comes to this and concentrate and what I eat now to get my D down. I feel awesome so I am just going to go with that for now and see what happens.

matthew.gatenby
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Posted: Tue Feb 2nd, 2010 12:39

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Hey , just read through your posts hope your doing well , it all sounds positives .. take care.

Matt

ammc
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Posted: Tue Feb 2nd, 2010 13:52

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Hey Matt, you are still out there....

I am doing good actually just about to start level two of Z. I have this weird bruise thing going on where I am covered in blue/green bruises that will not go away. But other then that life is pretty much normal at this point. My D is still 20 so likely why. I am posting on the study site now.

Hope you are doing well too. I saw you had a nice holiday good for you!

matthew.gatenby
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Posted: Tue Feb 2nd, 2010 21:44

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Hi,

yeah i been a bit quiet not feeling the best and having family issues .

hey i am concerned about your bruising , i have only seen bruising like dark blue/black

with green once and it was a friend who has a blood clot .

if these are mainly on your legs id go and see a doctor .. well to be honest i think you should go and see your doctor anyhow , and perhaps get ultrasound of area along with a blood test to check for clotting mechanisims

brusises should heal and if deep be yeallow after several days .. green is not good ..
i really want you to go see a doc.

ammc
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Posted: Tue Feb 2nd, 2010 22:19

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Sending you an email.

Sallie Q
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Posted: Thu Feb 4th, 2010 01:24

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are those bruises still a worry?

ammc
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Posted: Thu Feb 4th, 2010 01:34

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Sallie,

Actually they are I have been feeling really great and have been having a good ride on MP thus far but am considering stopping as I am just at my wits end and they keep getting more and more every week because of these bruises here is what I posted on the study site:

I am looking for a little advice. I am considering stopping MP even though I am feeling boat loads better. Reason being is this bruising I have while the 5 main large ones I have had for more then 10 months are reduced in color after using the vitamin K bruise cream. I now have large blue patches of more then 2" all over my legs. My veins are very bright blue and predominant ( not varicose not bulging) I look like a newborn with thin skin when you can see all their veins. I can actually see the vein run all through my leg and then it's like a portion of it bursts and I can see a bruise type blotch forming.

I keep telling myself this is just a herx but I am becoming more and more doubtful daily especially when NO ONE else has this issue. I have read bruising is a side effect of both Olmesarten and Minocin and have talked to several people who have it from Minocin. So I am unsure at this point what to do but it is getting progressively worse and is making me scared.

I am not normally a person who jumps to reactions or who overreacts in fact I usually ignore things longer then I should. I am sure I am driving poor Dr Blaney nuts on this topic as it's hard with me being so far away he can't see me. My GP is freaking out as he is not pro MP to begin with. He is testing me for vasculitis and clotting issues.

This all started when I was only on 200mg mino but escalated 10 fold once I started Olmesarten. If anyone has any thoughts I appreciate as if I can't find out what is wrong my only option is too stop Mp and lose my good benefits.

Thanks

Sallie Q
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Posted: Thu Feb 4th, 2010 02:07

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How much mino are you on now?

looks like you really hit the spot when you got your 25D below 13 ! and went to phase 2

You were taking Zith already, and it will take a few weeks to get that out of your system, so perhaps you will be one of those who proceeds well on Olmesartan and mino only for many months

and you thought your NoIRs were your big problem LOL
well it's no laughing matter how you are feeling so I should no tease

ammc
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Posted: Thu Feb 4th, 2010 02:16

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Sallie,

I am not sure what you were asking me but I don't have any IP at all other then some mild fatigue I am on Zith 25mgs and no my D25 is not 13. I am having no problems with Zith this all started long before it. I was on 100mg mino but have stopped taking it as of today's dose.

And I don't use the Noirs as I have no light sensitivity to date get by fine with my regular sunglasses outside

Last edited on Thu Feb 4th, 2010 02:19 by ammc

Sallie Q
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Posted: Thu Feb 4th, 2010 02:33

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thank you Angela
just trying to figure, as I am sure Dr Blaney is doing, what is helpful and what not.

Just because bruising is not a symptom of Sicca does not mean it can not be caused by systemic complex microbial infection

what was your last D25 measurement and when taken?
Your doctor knows all this, but the moderators do not know unless you make it clear to them (they are very overworked due to the number of new people benefitting from this research)

I get my worst and wierdest herxes when on a combo of 75mg Mino with anything else.
Sallie

Sallie Q
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Posted: Thu Feb 4th, 2010 05:30

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ammc wrote: I actually like the shape of the wrap around # 35's and I like the 200 series I just hate they are plastic and I hate the color of the lens that brown/orange color does not agree with "me". I love brown, it looks good on me

now I'm wondering if your skin tones help to make what on me could be a bluish bruise, look greeny blue ??

You did see Dr Blaney a few months ago, did he look at any of the bruises you had then?
these are rhetorical questions, no need to reply, I'm sure you are getting tired of this line of thought ;-)

wishing you well
Sallie

ammc
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Posted: Wed Feb 10th, 2010 02:33

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Hi everyone,

I am in phase 2 50mg Z with 100mg mino and Olmasartan. I am wondering if anyone can tell me if they have noticed that all their veins are more visible? I have been having an issue lately with every vein in my body being visible like my skin is almost translucent. I now have many varicose veins which I didn't have before and bulging veins in my hands. I am wondering if anyone else has noticed theirs veins as a herx?

Barney
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Posted: Wed Feb 10th, 2010 04:41

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Angela,

I sent you a PM but hope anyone w/same problem will respond to you.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY

k
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Posted: Wed Feb 10th, 2010 07:52

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I can't say I have noticed this, but I have always been as you describe. So maybe it is a Th1 thing?

You can always try increasing Benicar or lowering abx to see if it makes any difference to confirm if it is herx related.

regards, k

____________________
CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept 09=10 NoIRs cover-up low lux home lite exp r/t to work

fix22
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Posted: Wed Feb 10th, 2010 17:57

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Hi ammc,

YES! I have noticed the exact same thing. My veins are most definitely more prominent on my arms, hands and lower legs. They are really unsightly, I try to ignore them otherwise I feel unhappy. Obviously they are more bulging when I feel hot. I have put it down to (rightly or wrongly) dramatic weight loss and aging, but hope that it is just some form of IP and that veins that maybe were becoming more damaged due to the disease process will actually slowly start to mend. Fingers crossed.

Maybe someone in a later phase/stage than us could comment on their experience.

Take care, fix22

____________________
cfs/lyme,multiple active bacterial/viral infections since 1991 cardiac rhythm probs/chest pain/balance/fatigue. No Ds in diet,darkened home,housebound. 10/08 D25 4.8 phase1 14/11/08, 01/09 D25 4.0 Mphase2 04/02/09 Re-start phse1 09/09

Joyful
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Posted: Thu Feb 11th, 2010 04:28

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Hi. I'm no expert, but I recall a discussion about IP leading to nitric oxide (from the immune response) signaling the blood vessels to relax. This makes them have a larger volume (hence, lowers BP and makes one vulnerable to dehydration symptoms).

Maybe this could be your explanation. Noticeably larger blood vessels could perhaps indicate higher IP that would need to be managed. (Managing Immunopathology.)

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