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lymeinohio
Member
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Posted: Sat Apr 18th, 2009 00:19 |
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I have heard that healing can have a sort of onion effect, that you heal in layers and old symptoms come back as you heal and then they go away. Maybe that was your 24 hour sleep. How wonderful it will be to heal completely!
Thanks for sending me the link. I actually tried to open that link earlier today and was unable. I tried again and all I get is my hour glass icon so something is not right with that link. Take care, Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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Sallie Q
Member
| Joined: | Sat Aug 9th, 2008 |
| Location: | Hope, Australia |
| Posts: | 334 |
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Offline
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Posted: Sat Apr 18th, 2009 01:30 |
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opened ok for me just now
are you sure it is not your Acrobat (Adobe Reader) malfunctioning
not that Acrobat Reader is about to malfunction per se, but could be a glitch on your machine
if other .pdf files you have do not open, then pursue above comment
good luck ( we have enuf bugs without computer bugs to contend with  )
PS i'll go along with the onion effect, have also heard that one 
____________________
Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 | http://mp-lifestyles.org/category1/ | for recipes, menus, clothing tips, discussion of various MP issues...
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Barney
Moderator
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Posted: Sat Apr 18th, 2009 02:52 |
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Jackie,
It opens for me too. Check out your adobe reader, maybe you will need to update it.
Let me try it again:http://AutoimmunityResearch.org/Phase1.pdf
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
Last edited on Sat Apr 18th, 2009 02:53 by Barney
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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lymeinohio
Member
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Posted: Sun Apr 19th, 2009 16:37 |
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Thank-you Barney, Sally, it was my computer. I was able to open the link on another computer. I will have my son fix the problem. What a great update! I especially liked the diagrams for the healing process/stages of healing. Lots of useful info!
I have to tell you that I am really struggling through this process. I finally got rid of the back spasm and can walk straight now but I hurt so much. Every day I feel like someone has beaten me with a bat for days on end.
It probably did not help that I had things to do yesterday and it was sunny. I covered up well but it may have affected me anyway.
Also last night I did not wake up for my benicar and so did not take it until 9 hours later.
I don't know if I locked myself up in a dark room and took the benicar every 6 hours if it would make a difference. Maybe this is the way IP is for me I don't know.
I am taking the half benicar at the 3 hour mark and trying to rest. I am very faint and dizzy if I get up too fast.
Especially if I sit while taking a shower and then stand up to get out of the shower. Also very faint and dizzy right after the shower while getting dressed.
I read that this is IP symptom and not necessarily a side effect of the benicar. I do hope it goes away.
I am quite shaky and just feel yuck! I guess I will just continue the mino at 25 mg every other day. Forgive my complaints, I feel so unsure and it makes me very anxious. Any advice is welcome. Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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Barney
Moderator
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Posted: Mon Apr 20th, 2009 00:32 |
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Jackie,
You may not want to thank me this time.
First, I hope you do no more furniture moving, it takes a while to recouperate from that.
Second, don't go past 6hrs for your benicar, cause you lose your coverage. See first (even tho you were covered), you got lots of sun and then you went past your Benicar time. When you get in that prediciment, you could try 40mg Benicar @ 4hrs until all IP calms down.
Yes, you could lock yourself up in the dark bedroom, go to bed for a nap and take Benicar either every 6 or 4 hrs.
To me, there are no side effects to Benicar, it is the side effects of the disease.
I hope you are taking lukewarm to cool showers so you do not get increased herx.
Your yuck might be trying to tell you to up your Mino to 50mg. Or if you need to, you can stay at 25mg Mino and take it daily to drop IPs.
Okay, so there you have it...more decisions.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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lymeinohio
Member
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Posted: Mon Apr 20th, 2009 01:12 |
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Barney,
OK, I guess I will have to find a way to wake up and take the benicar without waking my husband. Maybe I could set my cell phone to vibrate under my head...humm...
I was taking 25 mino every day and it did not seem to do much so I will take 50 mino tonight and find out how it goes.
Yeah, sounds like the shower was bringing on an IP.
I am doing well staying out of the sun as much as I can. Sometimes it's just not possible as I have three active kids. We all do what we can. Will try taking the extra benicar when I come in.
So, I've got a plan. I appreciate your quick and thoughtful response. I know you volunteer to help a lot of people. Maybe I can can pass it on to someone else some day. Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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Barney
Moderator
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Posted: Mon Apr 20th, 2009 01:42 |
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Jackie,
You will want to pulse the 25mg Mino @ 48hrs for a couple cycles before going to 50mg Mino.
Sometimes I hold my cell phone in my hand so that I can shut it off immediately before it wakes my husband. Don't know how sound your hubby sleeps.
I understand it must be hard to do MP with 3 kiddos and a hubby. I did MP 3 yrs before Ben and I got together and it really was easier when you did not have to worry about what kind of hours you kept and I always went to grocery at nite (well almost always).
I had a 36hr 'I died type sleep' and WOW...I hear nothing when that happens...Ben is good about bringing me pills and a glass of water when I am like that, but I scare him to death because I am a light breather and he has to keep looking to see if I am still alive. I sure wish he would stop worrying....after all I am on MP.
Hon, it will be a rough road somedays but it will all be worth it. Tell the kiddos, that Barney asked them to really look after Mom and do some extra things for her. Even a quiet nap, is a blessing.
Got to get some things done before I run out of energy....you know, the old kitchen awaits me.
I usually post to people when I need to sit down in the recliner and rest (I have a laptop).
HANG IN THERE, YOU WILL MAKE IT!!!BARNEY
Last edited on Mon Apr 20th, 2009 06:49 by Barney
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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lymeinohio
Member
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Posted: Tue Apr 21st, 2009 12:31 |
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I started the 50 mino Sunday night (April 19th) as I had been pulsing the 25 mino for about 3 weeks.
I set the alarm on my cell phone to vibrate in the night so I would take my benicar on time and that went fine.
The next day my right hip was really hurting along with the general body aches and a sick headache.
I decided to take the benicar every 5 hours and used some tylonol and that seemed to help.
It's my hope that all this discomfort is IP and not just the regular symptoms of the disease. I am envisioning the little bugs getting killed! Attitude is everything! Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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Sallie Q
Member
| Joined: | Sat Aug 9th, 2008 |
| Location: | Hope, Australia |
| Posts: | 334 |
| Status: |
Offline
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Posted: Wed Apr 22nd, 2009 03:54 |
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Jackie
IMHO regular symptoms of the disease ARE herx while we are on MP
I agree attitude is everything, mine needs work; and DH wavers between overwork supporting me physically and thinking I must be nuts and the doctor is incompetent 
here's to next (:) Easter Sallie
Last edited on Wed Apr 22nd, 2009 03:57 by Sallie Q
____________________
Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 | http://mp-lifestyles.org/category1/ | for recipes, menus, clothing tips, discussion of various MP issues...
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lymeinohio
Member
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Posted: Wed Apr 22nd, 2009 15:28 |
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Sallie, I think you are right about the herxing. The next day the pain in my hip was much less. Must have been IP. Took the 50 mino last night and other pains have appeared.
All three of my kids got a stomach bug last night and were throwing up! So I was up a good portion of the night.
They are doing much better today and were snuggling in my teen-age son's bed this morning. They smiled and said, "hey Mom we're having a barfing party!" It was very cute. Attitude is everything.
Yes, here's to next Easter. We just have to keep going after those bugs and the battle will be won! Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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lymeinohio
Member
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Posted: Tue Apr 28th, 2009 03:00 |
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Everything is going ok with the mino ramped up to 50 mg. It seems to me that regularly taking the benicar every 4 hours round the clock for now helps me to feel better.
Previously I was taking the benicar every 6 hours during the day and every 8 at night.
I think I really needed more benicar to help with the constant inflamation because after taking more over the last couple days I feel much better.
Feeling a little freaked about the swine flu and keeping my family healthy. I don't normally watch TV but I saw some stuff about it in my e-mail.
Well, what can I do? Tell my family to wash their hands and pray for the best. Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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Barney
Moderator
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Posted: Tue Apr 28th, 2009 04:53 |
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Hi Jackie,
So good to see you doing so well with the MP. You are correct about the Benicar. Trevor says "It is not about the abx, IT IS ABOUT THE BENICAR".
Here is a link to the Prague presentation that Trevor just got back from, lots of information to move on saying that the Benicar is more important than the abx.
During the recent Workshop on Clamydial Infection in Prague, Czech Republic, I gave an overview of the therapy which has become known as "The Marshall Protocol." An HD video of that presentation is available at:
http://vimeo.com/4293599
In Prague I also summarized the Science underlying that therapy. The HD video is at http://vimeo.com/4307469
This is a lot of wonderful information. Hope you enjoy it.
I think we are all a little concerned about the swine flu, but those of us on the MP are probably going to be better off because our immune systems have kicked in, but those with inactive immune systems maybe in for problems.
Don't worry....that is stress and good for you. Tell your family not to kiss anybody LOL ... seriously....wash hands often, drink lots of water, rest a lot and actually avoid anyone sick.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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lymeinohio
Member
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Posted: Sat May 2nd, 2009 00:06 |
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Thank-you Barney, I found the first video very infomative and helpful, the second was just over my head.
Things are still tolerable with the benicar every 4 hours. I find I have more energy to get stuff done in the morning and have actually been able to clean a bit. Of course I have to rest a lot afterwards.
New IP symptom; heart burn with oily foods.
Interestingly enough, I have had no attraction to coffee at all since starting the MP. If I have coffee it really makes my stomach feel crappy.
My husband says, "you must be really sick if you don't want coffee!" I think of it more as my body healing and knowing what is good for me and what is not.
I am realizing more and more what a slow process this is but I am fine with that and so is my family. Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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Barney
Moderator
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Posted: Sat May 2nd, 2009 01:27 |
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Jackie,
What a wonderful post...so glad you are doing so well with the MP...learning great.
Not to be a wise guy....don't eat oily food.
Lean meats, veggies (except mushrooms), some dairy (no D) (no seafood, egg yolks, no fish). I hate the last part but someday I will be able to eat some.
The thing about meals for a family is that you fix the meat, veggies etc. that you can eat and you can do potatoes and other things that they like for them...basically make sure you have food you can eat first and then add things for the rest of the family. That way it is not so trying to fix meals.
Take good care of you and say hello to hubby and kiddos.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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lymeinohio
Member
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Posted: Sat May 2nd, 2009 02:20 |
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Yeah, about the oily foods, in general I don't eat oily foods but occasionally when I indulge, my body says "what did you do that for?"
I find I am more sensitive than usual. I used to have this symptom much stronger a few years ago. At the time I did a month long vegetable juice fast and became a vegetarian.
I ate a lot more raw vegetables then. All the heartburn went away but it did not change my chronic fatigue or fibromyalgia. (Too bad I did not know it was TH1 then.)
I am finding that the indigestion is coming back. So either it is IP or my diet is not as good as it was a few years ago.
I think it is both. I have no trouble staying away from the things you mentioned. I just need to add more raw vegies and to stay away from the simple sugars and carbs. (not juiced vegies just simple salad type stuff.)
The boat steers off course and I have to steer it back again!
It is so exciting to be on the path to health! This is what I focus on. We will make it! Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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lymeinohio
Member
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Posted: Thu May 7th, 2009 00:08 |
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| Started Minocycline 75 mg. last night (may 3). Not too much to report, headache in the afternoon, all IP is not too bad. Yeah! Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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Barney
Moderator
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Posted: Thu May 7th, 2009 01:50 |
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GREAT....go slow....don't get into a big hurry.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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lymeinohio
Member
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Posted: Thu May 7th, 2009 12:25 |
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Are you kidding Barney! Let's NUKE those cell wall deficient bacteria!!!! Send them to the moon! NOW!!!
Just joking, yes, I will go slow...I'm sure you know how many people stop me and say, "so are you better yet?" "Are you STILL dealing with that?"
Then I say, "I am getting better but I can't really tell yet, it's a long process. When I'm better I'll shout it from the mountain top and then you'll know!" ***heavy sigh*** Love, Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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lymeinohio
Member
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Posted: Thu May 7th, 2009 19:41 |
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UGG! I just talked to my doc's office about my 25D test that I recently took. The doc. says the levels are not low enough to stop my thyroid supplement.
My levels are going down but SLOWLY. Ok, so I thought I was watching my dietary D intake enough but it seems not quite enough.
What do you all think about consuming raw, unpasturized milk? It comes straight from the cow and is not fortified with D.
But I was thinking that since it is raw it has all the enzymes in it that helps the body to absorb its nutrients better, including D.
I did discover that there are some things I eat in small quantities like crackers and salad dressing that have things like added folate and soybean oil.
I imagine that each little thing I consume adds up and keeps my Dlevels up.
It is frustrating news to hear. Jackie
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lyme,CFS, FM, thyroid issues, dental, gum issues. MP phase 1: 03/07/09. Mino 100 mg. since 12/7/09, benicar 4 hours, Trazodone 50 mg, glucophage 750 mg 3x a day, metanx 2 tabs per day, 9/07 D,25: 29 D,125: 78. 4/09 D,25: 25 D1,25: 80, 6/15 D25:21 1/10 D25
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marion villa
Member
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Posted: Thu May 7th, 2009 21:41 |
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Terrible thing about milk, right?
Remember that D is in the fat, and the milk is made out of fat, I have seen that light milk is enriched with d, because the industry doesn´t want to give you a " less nutritive milk"
so as far as I know , at least here in mexico , all milk is enriched, but the one a minute ago was inside of a cow, in a farm.
If you can have this natural milk, be very restrictive on youself, only take little amounts, in order to be happy, not to get full
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RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
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