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chrisneedshelp
Member
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Posted: Tue Jan 8th, 2008 23:55 |
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A friend of mine from another site (PlateletGal) who is on the MP said I should post this and see what you guys think Ok its like this about 22 months ago i got real sick (could not get out of bed sick) I even had to sell my business. I had sever fatigue,low testosterone, low b-12,psoriasis, peeling hands,loss of control of left leg, oral thrush, new moles and freckles, lost about 10 lbs, night sweats,fungal rash, periodontal cavities, white sores on side of tung,sores in mouth,and on top of head, went to doctors they suggested i get an hiv test so i did results where neg.
after about a month to month and a half i felt somewhat better but still had oral thrush that would not respond to treatment (even I.V. treatment) I also had a lymphocyte transformation to antigens test which said my white blood cells are no longer able to fight candida (a condition usualy seen in HIV paitent according to my DR) and early on my eosiniphicals (spelling?) where twice what they sould be along with my constantly elevated WBC (11.5) also my Blood calcium was high. when i received my labs i had a high white cell count that was about it. i have had every test known to man borderline diabetic and have continued high white count
over the last 15 months i have had about 9 antibody test 2 viral load test ( one at about 7 months and one about 15 months) and a (NAT)at about a year also just had another negative elisa at 22 months test all of which are neg. I still have the oral thrush and have been gaining weight over the last year (which i know is not a sign of hiv) but none of the doctors seem to have a clue I have tested for CMV, HTLV 1 and 2 hep,Lyme,autoimmune, hiv, ebstienbar(witch one doctor said i had but another said no way )but my EBV titers have doubled since then also, and lupus. my cd4s where 1560 at 6 months and 1530 at about a year.and 1230 at about 21 months
i am wondering if any of these symptoms could be cfids
oh i have reoccurring middle ear infections to yea. My children and wife a affected to wife got hpv so bad in 1 years time required surgery to remove (bad surgery cut her up BAD) and my 2 year old is slow to develop small for age has reoccurring ear infections sick allot and has new strange rash on butt(not typical diaper rash), and 8 month old is same 2 year old got hiv tests at 7 months and 1 year (antibody only) wife got a couple hiv tests too
I am so freaked out If anybody knows any thing this could be please help
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My family and I are suffering from a unknown illness
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Julia
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Posted: Wed Jan 9th, 2008 13:47 |
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Hi Chris,
Welcome to our Marshall Protocol questions board. Your friend has sent you to the right place! Your story of endless testing and no proper diagnosis will be all too familiar to many of our members.
You don't need a full diagnosis to know if the MP is right for you. All the 'autoimmune' diseases are linked by many symptoms in common anyway. All you need is to get your D-metabolites tested - click on this link for instructions: D-metabolites tests.
We now know that these diseases are caused by Cell Wall Deficient (CWD) bacteria, which have learned to live within the very cells of the immune system that are supposed to kill them. The MP is the only treatment currently in use that can help your immune system to kill the CWD bacteria. The standard treatments such as Prednisone will only allow the bacteria to flourish and multiply.
If you do some reading here or on our main study site http://www.MarshallProtocol.com, you'll meet a group of people with various 'autoimmune' diseases being treated with the MP, and a high percentage of us have got our lives back. It's well worth investigating! No-one is trying to sell you anything - we have to get a doctor to prescribe the medications, and just ask the MP moderators for advice, which is given freely.
Click on these links to find out more:
"What is the Marshall Protocol?"
Simple Explanations
Hypervitaminosis-D Symptoms
Success Stories
Then you can come back and ask any further questions here at your own personal thread 
Julia 
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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chrisneedshelp
Member
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Posted: Wed Jan 9th, 2008 14:35 |
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So do you believe it is possible to pass these bacteria to my wife and children?
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My family and I are suffering from a unknown illness
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Julia
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Posted: Wed Jan 9th, 2008 16:20 |
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Chris,
Unfortunately, it's possible they already have Th1 symptoms, as you've noticed, but they may or may not have come from you. The bacteria are everywhere, but 'healthy' people manage to live most of their lives without succumbing to chronic disease, because their immune system wins the battle. Also, you and your family are exposed to roughly the same environment and the same diet.
The best thing you can do for your family is to get well yourself first. As you will need to reduce light exposure and cut out foods that have vitamin D, if the family join you in this, they may start to feel better too.
Please see Am I contagious?
Julia
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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PlateletGal
Member
| Joined: | Wed Oct 31st, 2007 |
| Location: | USA |
| Posts: | 16 |
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Offline
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Posted: Wed Jan 9th, 2008 17:01 |
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Hi Chris,
I just wanted to say hi. It is good to see you posting in here. I know you and your family have been through a lot.
I sent you a PM on the other site with some links to articles from bacteriality.com. One of the links is to an article on bacteria vs. genetic predisposition: the spread of chronic disease in families. I know my mother has Sjogren's syndrome and like me, she also has a positive ANA titer. Her physician wasn't surprised to hear that I also have a positive ANA titer and health problems as well. My mom is thinking about starting the MP and has already communicated with a woman on the MP who has Sjogren's and who is doing better on this protocol.
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DX: CFIDS, MCS, POTS, endocrine imbalance, osteopenia
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chrisneedshelp
Member
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Posted: Wed Jan 9th, 2008 17:54 |
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Thanks I was going over that link it does make sense I am going to try to get my DR on board and see if I can stat the MP I hope my insurance will cover it (I will take l form bacteria over HIV any day)
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My family and I are suffering from a unknown illness
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chrisneedshelp
Member
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Posted: Wed Jan 9th, 2008 19:10 |
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Ok I have a apointment with my Dr tomorow and I was wondering if there was anything I could do to help get my DR onboard for the MP any ideas or sugestions
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My family and I are suffering from a unknown illness
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PlateletGal
Member
| Joined: | Wed Oct 31st, 2007 |
| Location: | USA |
| Posts: | 16 |
| Status: |
Offline
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Posted: Wed Jan 9th, 2008 20:09 |
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Letter of introduction for your MP supportive doctor
PAPERS AND PRESENTATIONS FOR PHYSICIANS
Links to Dr. Marshall's papers & presentations, research team papers, FDA applications, Conference DVDs
Dr. Marshall's DVD presentations
My doctor wants to read about the MP in published medical journals. Where can I find them?
Why won't my doctor consider the Marshall Protocol?
Why is the Marshall Protocol not being discussed & used by doctors around the world?
First report from ATS, San Diego
SUGGESTIONS TO GET YOUR DOCTOR ON BOARD WITH THE MP
you may wish to invite your Dr to join the
PRIVATE SECTION FOR HEALTH PROFESSIONALS
D-METABOLITES TESTS
Basic blood tests for the Marshall Protocol
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DX: CFIDS, MCS, POTS, endocrine imbalance, osteopenia
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chrisneedshelp
Member
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Posted: Fri Jan 11th, 2008 19:34 |
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ANYONE ANY THOUGHTS WOULD BE APRECIATED
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My family and I are suffering from a unknown illness
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Knochen
Moderator
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 469 |
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Offline
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Posted: Fri Jan 11th, 2008 19:47 |
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| Did you see the doc yesterday?
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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chrisneedshelp
Member
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Posted: Fri Jan 11th, 2008 20:35 |
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Yes and I am now looking for a new DR my old one just treats me like a nut case
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My family and I are suffering from a unknown illness
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Knochen
Moderator
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 469 |
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Offline
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Posted: Fri Jan 11th, 2008 23:35 |
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Sorry you didn't have any luck with the doctor. Your next step should probably be to sign on to the Marshall Protocol Study Site http://www.marshallprotocol.com/, look in the members section and sort by location. You can contact people in your area via private message to see if you can find a local doctor who is more familiar with the MP. You should also request the doctor list for your location in the "Commencing the Marshall Protocol" section.
In the meantime, you should keep reading and learning about the MP so you can better communicate with whatever doctor you finally find. You'll have more luck if you can come in with the attitude that you are the one who decides what treatment you get and the doctor is somebody who works for and with you and can order tests, write the Rx, etc and be more of a general advisor than the person making all the decisions. It's a fine line you have to walk. You can't be pushy, but you have to be calm and assertive. Having a solid knowledge of how and why the MP works is your best weapon. Appearing to be a reasonable person who can handle the responsibility will do wonders.
This may take some time, don't get too frustrated. Th1 disease moves pretty slowly, so there's no need to hurry here. Read and plan.
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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chrisneedshelp
Member
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Posted: Sat Jan 12th, 2008 14:59 |
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So I guess you guys think the MP could help my situation then "Right?"
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My family and I are suffering from a unknown illness
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Julia
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Posted: Sat Jan 12th, 2008 15:39 |
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Chris,
We're not doctors! The way to tell for sure is to get your D-metabolites tests done. Post the exact results (don't accept 'normal') in the Preliminary test results forum for analysis. See What to include in your preliminary test results report.
The MP moderators will be able to assess whether they think the MP will help you. It certainly sounds like it to me!
Julia
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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moonshadow
Member
| Joined: | Fri Jan 11th, 2008 |
| Location: | |
| Posts: | 1 |
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Offline
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Posted: Sat Jan 12th, 2008 15:44 |
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Hi Chris,
If you want to read about people's progress and improvements from the MP you can look at Success Stories and the Phase 1 Alumni Forum for inspiration. You can see some of my progress under Pam's Progress.
Best to you and your family,
Pam
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Reenie
Member
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Posted: Sat Jan 12th, 2008 16:48 |
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Hi Chris,
One thing you can do to increase help in finding a Dr or Drs would be to add your location to your profile which will show others reading your posts where you live. Someone might not want to publicly post but they may send you a pm (private message) offering you some Drs that regulary see chronically ill patients even if they aren't yet using the MP.
This might be a start so that you feel validated and have some confirmation of your symptoms and illness. It's a start sometimes, just to get a Dr that is willing to do some lab work and follow ups for you and you may feel less frustrated. I know it was really important to me first just to find a GP that didn't want me to go see a psychiatrist every time I had a complaint about my failing health! 
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chrisneedshelp
Member
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Posted: Sat Jan 12th, 2008 18:16 |
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O k I posted my info and so if anyone wants to know I live in Cearwater FL I am going to ask one of the moderators here for a list of DRs in my area and what about my existing problems with candida will that disclude me from doing the MP because of the corolation between antibiotics and candida any sugestions welcome
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My family and I are suffering from a unknown illness
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Reenie
Member
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Posted: Sat Jan 12th, 2008 18:25 |
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I too, had candida issues pre-MP along with IBS. They did resolve in time.
I took probiotics in the early days, "just in case" but I stopped long ago and have never noticed any benefit or need for them. The antibiotics just don't really seem to do any damage to the intestinal flora in the pulsed low doses, but you can take probiotics if you'd like or if you think it helps with your symptoms while on the MP.
You can read my interview on Amy's site along with others which will give you a better idea as to what to "expect" along the way and what will improve for you.
Interview with Reenie Gentile (CFS, fibromyalgia, psoriasis)
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chrisneedshelp
Member
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Posted: Sat Jan 12th, 2008 21:53 |
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does anyone know anything about lmphocyte transformation to antigens and why my white cells would no longer fight candida anyway
____________________
My family and I are suffering from a unknown illness
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Reenie
Member
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Posted: Sat Jan 12th, 2008 23:11 |
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Here are several FAQs that provide info about Candida when I did a search on MP.com regarding candida:
Will the Marshall Protocol treat co-infections?
Won't I develop a yeast infection if I'm on antibiotics long-term?
I have a yeast infection. What should I do?
What do my lab tests mean? (low white cell count)
You can search the FAQs for additional questions you may have using this link:
MARSHALL PROTOCOL FAQs Easy Finder & the ABC of MP
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