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ninazhang
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| Joined: | Tue Jan 8th, 2008 |
| Location: | Sydney, Australia |
| Posts: | 7 |
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Posted: Tue Jan 8th, 2008 05:28 |
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1．Tick bite on the lower rear right side of the head at the end of the October, 2005
no lyme disease.
2．First enlarged lymph node on the right side of the neck in early November, 2005
3．Sore throat connected with right ear pain in the middle of the January, 2006. The pain continued for about 2 months
4．Many tiny enlarged lymph nodes appeared on both side of the neck.
5．On February 1st, Blood test EBV : positive
6．In February, right ear felt stuffy and right side of the neck pained, an enlarged lymph node appeared on the back of the right ear, stiff neck.
7．Bad cold happened to me with runny rose and sore throat from middle of February 2006 and continued for a long time. At the same time, with muscle pain.
8．At the end of February 2006, Blood test EBV: Negative.
9．In March, did MRI test and it showed many abnormal enlarged lymph nodes. Some enlarged lymph nodes appeared in groin and right side armpit.
10． In April, more enlarged lymph nodes appeared on the neck and Collarbone(clavicle) and felt neck pain. Stiff neck.
11． In May, went to see ENT specialist. The doctor checked my nasopharynx and he said it is fine.
12． In June, I can feel some lymph nodes on the right side of my neck and feel very pain.
13． In July, feel very uncomfortable on both sides and front of the neck; feel numb on the chin. Still, the most uncomfortable thing is blocking feeling on the right side of the ear and the left ear began to have blocking feeling.
14. In August, stiff neck and ear pain, blocking feeling and throat pain. Having nasopharynx CT scan and hearing test and they are both normal.
It seems like all the uncomfortable feeling came after the throat pain.
I feel very stuffy in the right ear and whenever I swallow something, I feel pain on the right throat connecting with my right ear.
I also had MRI done in 2007 for my neck and head and it is fine. But some lymph nodes are noted on the neck. And the doctor said it is fine.
Till now, I still have all these symptom and I begin to have muscle pain on the legs and arms since last month
Where can I find a doctor to help me with all these in Sydney.
please help , thanks a lot!!!
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Julia
Advocate (on leave)
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Posted: Tue Jan 8th, 2008 23:54 |
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Hi Nina,
Welcome to our Marshall Protocol questions board. It sounds like you've come to the right place! The Marshall Protocol, which was devised for sarcoidosis, is proving very successful in the treatment of CFS, Lyme and other chronic diseases. Many of our CFS members have got their lives back.
There's no charge for advice about the treatment, and all the medications are prescribed by your doctor - but therein lies the snag, because you have to find a doctor willing to stick his/her neck out and try this relatively new treatment. There are no expert MP doctors yet! To request a list of doctors in your area who might be willing to prescribe the MP, please register at our main study site http://www.MarshallProtocol.com, using the same name, and post at Request for Doctors List.
What Dr Trevor Marshall has discovered is that sarcoidosis, CFS and many other chronic diseases are caused by tiny bacteria that live right inside the cells of the immune system - the very cells that are meant to kill them.
I'll give you some links to have a look at, and you could maybe read a little each day. The bacteria are slow-growing, so you've time to learn enough about your disease to educate your doctors  . The Marshall Protocol is not a quick fix, but it's the only thing that tackles the cause of the disease.
"What is the Marshall Protocol?"
(filelink) CFS success stories Members' testimonies of their improving health
Simple Explanations
Essential Information About the Marshall Protocol
Marshall Protocol FAQs
Phase One Guideline
D-metabolites tests
Hypervitaminosis-D Symptoms
Please ask any further questions here at your own personal thread.
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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ninazhang
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| Joined: | Tue Jan 8th, 2008 |
| Location: | Sydney, Australia |
| Posts: | 7 |
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Posted: Thu Jan 10th, 2008 03:12 |
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hi, thanks a lot for your reply and help!!
My doctor said my CFS is caused by EBV. It is a kind of virus. I am not sure if it is this bacteria you mentioned about.
thanks and wait for your reply.
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Jeannine R.N.
Research Staff
| Joined: | Wed Oct 17th, 2007 |
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Posted: Thu Jan 10th, 2008 03:51 |
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Hi Nina,
EBV is indeed a virus. Epstein Barr Virus to be exact. However this is only a co infection which many with CWD bacteria/TH1 harbor.
I know there is a lot to read but once you start to get the big picture it will all make sense...Just keep reading all the links you are given, FAQs and Essential Reading on the http://www.marshallprotocol.com. Also keep asking your question here at your thread.
This link on co infections will help you understand about EBV and how it is only a coinfection http://www.marshallprotocol.com/forum32/3634.html
You are in the right place! Jeannine
____________________
CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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ninazhang
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Posted: Tue Jan 15th, 2008 02:59 |
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Hi, thanks a lot for all of your reply.
I want to know can I try some medition from MP right now and where can I buy it?
By the way, I like to stay in the light instead of in the room, since I feel warmer in the light.
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Jeannine R.N.
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Posted: Tue Jan 15th, 2008 07:15 |
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Hi Nina,
I am not sure if I understand your questions completely. However, I will try to answer what I think you have asked.
Are you asking where you can buy the medications used on the MP? First you have to have a doctor that is willing to prescribe them to you and follow you as a patient while on the MP.
Also light from the sun will keep you from safely embarking on the MP.
The questions you have asked allow me to think that you have not read any of the information supplied by Julia or myself. I suggest that you read the MP links provided and understand the science or you will not be able to follow the MP safely and successfully.
Jeannine
____________________
CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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ninazhang
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Posted: Wed Jan 16th, 2008 02:26 |
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Hi
I did read some about MP. I am waiting for my 1.25 and 25 hydroxy vitamin D test result. As mentioned in the website, I am not sure about the accuracy of the 1.25 D test result since I went to the medical centre near my place and they took my blood and they need to send the sample to the lab.
What I want to know is
1. can you recommand a doctor who knows MP or wants to prescirbe MP medicine in Sydney to me?
2. what is Benicar? is that a MP mecidine or other normal prescription medicine?
thanks a lot for you help
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Jeannine R.N.
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Posted: Wed Jan 16th, 2008 06:22 |
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Hi Nina,
It is great that you are reading! It takes sometime to read the information. However once you understand the science you will be amazed and excited.
I will answer your questions:
1. can you recommand a doctor who knows MP or wants to prescirbe MP medicine in Sydney to me?
Go to the http://www.marshallprotocol.com site I see that you have already registered at the site. There is a place to post requesting a list of doctors in your area. Commencing the MP is the spot you should post.
2. what is Benicar? is that a MP mecidine or other normal prescription medicine?
Benicar is a prescription medication. We now know, thanks to Dr. Marshall, that it unlocks the innate immune system. Please read and understand how Benicar works. This will very important to you as you recover.
All medications used on the MP are prescription medications.
See Benicar-essential information
Do you understand the light restrictions? Have you ordered your NOIR glasses? Do you understand the diet restrictions?
This link is like a telephone book for the MP....You can look up key words to find links that will answer your questions. MP EASY FINDER
I am glad that you are interested in the Marshall Protocol! It is certainly giving me my life back.
Jeannine
____________________
CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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ninazhang
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| Joined: | Tue Jan 8th, 2008 |
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Posted: Thu Jan 17th, 2008 01:27 |
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Hi,
I try to post my question of which MP doctor in sydney I can visit. But I cannot log in by using my username and password. The system said my account hasn't been activated yet. But I have already activated my account.
Please help me , Admin!!!!!
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Thu Jan 17th, 2008 01:39 |
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Hi, Nina,
Are you aware that you have to "Register" and be "Logged-in" for each of the two sites? In a lot of cases, one can use the same forum name and password for both sites. But in some cases, one has to come up with a different name that was taken earlier.
Just being "Registered" for this site is not enough! Sorry! There was a technical problem with having that ability of enrollment for both sites.
Wishing you, and all, wellness!!! 
Dark Vader...aka, George
____________________
Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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ninazhang
Member
| Joined: | Tue Jan 8th, 2008 |
| Location: | Sydney, Australia |
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Posted: Thu Jan 17th, 2008 22:08 |
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I registered again yesterday, but no email comes through to tell me to activate my account.
I have got my vit D 25 back, the report is 50nmol/L (normal range 48-144 in the test paper)
But according to MP, 20ng/ml something is the normal range for D 25.
So, I got confused about my result.
By the way, who can help me to find a MP supportive doctor in Sydney, the doctors I asked don't want to read it.
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Jeannine R.N.
Research Staff
| Joined: | Wed Oct 17th, 2007 |
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Posted: Fri Jan 18th, 2008 02:39 |
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Nina,
You will need to post your Vit D levels on http://www.marshallprotcol.com this site is also where you will need to post for a doctor.
Is http://www.marshallprotocol.com the site you have trouble registering with?
Have you checked your spam folder?
Let me know. We will work to fix the problem so you can get on at the sister site.
Thanks, Jeannine
____________________
CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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ninazhang
Member
| Joined: | Tue Jan 8th, 2008 |
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Posted: Fri Jan 18th, 2008 04:25 |
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Hi,
It still doesn't work, it said I haven't activate my account through my email.
my ninazhang account has already been activated.
And I created a new account nzhang, which has no email coming through, how can I activate it?
thanks for your help!!!
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Jeannine R.N.
Research Staff
| Joined: | Wed Oct 17th, 2007 |
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Posted: Sat Jan 19th, 2008 04:57 |
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| Nina I sent you two PMs. Jeannine
____________________
CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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