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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Mon Jan 21st, 2008 03:31 |
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Mamoe55,
George just gave another member of this site who is starting the protocol the details on the http://www.marshallprotocol.com site. You will likely appreciate that info too:
a.) You do need to post your symptoms, dosages, etc. in a thread on the Benicar and Minocycline Forum That is where you give your Progress Reports, and receive assistance from the MP Staff for talking over with your med doc. ...
b.) Now that you have actually started doing the MP protocol, you can ask your side questions on the **Commencing the Marshall Protocol** forum.
Backs and spouses seem to be a common theme at my house right now too. Here's a link that might help:
Some of my family members appear to have Th1 inflammatory symptoms. What should they do?
Best to you mamoe55--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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lady goDarker
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| Joined: | Thu Dec 6th, 2007 |
| Location: | USA |
| Posts: | 20 |
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Posted: Tue Jan 22nd, 2008 00:45 |
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Hi, I have started the protocol and,have posted in 'Benicar Only' but I still have questions that I do not know where to ask.
1. I have read in many places to be brief in postings but have read many helpful and interesting postings thay do not seem to me to be brief. I work my postings so as not to take up too much space and then leave something out, or feel as if I am going to be 'bad'. (My 'child' is out hereright now and I do want to feel safe.)
2. I started the MP today and have felt like crying all day. It seems for no one particular reason but am feeling quite emotional.
3. Can sunlight through closed glass or plastic window pump D into me. or does it have to be direct sunlight in open air.
4. I have some meds (not on the no-no med list) that have been prescribed for me that I only use on a as needed basis such as Ambien. I will only use once in a great while. How do I post these meds.
5. I have found from your material suggestions, magnesium oxide for constipation and have tried, with luck. There were no suggested amounts to take. Do you know of amounts and, also, how would I post this usage? Thank you, margaret moore
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Jeannine R.N.
Research Staff
| Joined: | Wed Oct 17th, 2007 |
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| Posts: | 50 |
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Posted: Tue Jan 22nd, 2008 04:57 |
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Hi, I have started the protocol and,have posted in 'Benicar Only' but I still have questions that I do not know where to ask.
Hi.. glad to know that you have started the MP. You can start a threat at http://www.marshallprotocol.com and start asking questions there. Or if you have lots of questions you can post them here but you do need to start a thread over at the other site so the moderators can monitor your progress. The format for that forum is
MP meds:
Other meds:
Exposure to light:
Symptoms:rate them on a scale of 1 to 10 (10 being I need to call 911)
Plan:
Comments:
1. I have read in many places to be brief in postings but have read many helpful and interesting postings thay do not seem to me to be brief. I work my postings so as not to take up too much space and then leave something out, or feel as if I am going to be 'bad'. (My 'child' is out hereright now and I do want to feel safe.)
We encourage post that convey the situation at hand. I think the format will help. Safety is always of the most importance. There is no reason to feel bad. We are all in the together!
2. I started the MP today and have felt like crying all day. It seems for no one particular reason but am feeling quite emotional.
This is not uncommon as hormones adjust. Benicar lowers 125D and this has a great effect on hormones so give it about two weeks for adjustment. Let us know how it goes.
3. Can sunlight through closed glass or plastic window pump D into me. or does it have to be direct sunlight in open air.
Yes sunlight can penatrate through closed glass or plastic. Completely avoid all daylight unless needing to get out to go to Dr. etc if at all possible. I will send you some links PLEASE REVIEW! I hope that you have your windows "blacked out" and that you cover complete when venturing outdoors. You wearing your noirs?
See Sunlght and Brightlights
Testimonials for the need to avoid light
Do windows, weather, and climate effect light exposure?
Incident Radiation
4. I have some meds (not on the no-no med list) that have been prescribed for me that I only use on a as needed basis such as Ambien. I will only use once in a great while. How do I post these meds.
Post these meds under other meds. Also see Medications to Avoid while on the MP
5. I have found from your material suggestions, magnesium oxide for constipation and have tried, with luck. There were no suggested amounts to take. Do you know of amounts and, also, how would I post this usage?
Look on the bottle. It should tell you there how many millgrams per what dose to take and this can help you when posting. As long as you take this as needed and not on a daily basis you can just say mg oxide and how often you are taking it. Usually I take it until I have a BM...usually 400mg at a time.
Thank you, margaret moore
Your welcome I hope this helps you! Please review the links. Let us know if you have any other questions.
Jeannine
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CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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Julia
Advocate (on leave)
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Posted: Tue Jan 22nd, 2008 14:20 |
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Margaret,
Congratulations on starting the MP! We wish you well on your journey.
In addition to what Jeannine has said...
I still have questions that I do not know where to ask.
You are still welcome to post here, if you have non-medical questions such as "how do folks cope with colleagues who don't understand?" or "did anyone else have this symptom?" or just to get a bit of sympathy when the going gets tough (it will  ). And as you've gathered, we're good at finding the information you're looking for in the labyrinth of the main site! But all medical and lifestyle questions are now part of your progress report.
I have read in many places to be brief in postings but have read many helpful and interesting postings that do not seem to me to be brief.
In the 'old days' posts used to get very long as we all shared just about anything and everything - it was more like a club than a clinical trial (to the despair of the moderators at times!), and many posts were just to give much-needed emotional support to each other. Also, we didn't have the feeling of being watched by The Powers That Be in the medical world.
Now the 'club' has expanded, the moderators are stretched to the limits, and have managed to persuade us that the trial needs to be conducted in a more scientific manner for the sake of the watching medical world. But anything that's relevant to medications or lifestyle is essential in your progress report. It's better to err on the side of mentioning it, so that the moderators get a complete picture.
Emotional support is given now by Private Message (PM) or by swapping emails. Or you can come back here and tell us how you're getting on 
Julia 
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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lady goDarker
Member
| Joined: | Thu Dec 6th, 2007 |
| Location: | USA |
| Posts: | 20 |
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Posted: Tue Jan 22nd, 2008 18:18 |
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Most of my house has windows with covers. The only two I could not access are skylights in the bedroom(not the best to have ucloaked, I'm sure). Is it the same if I wear my Noirs all the time in the house as having a house cloaked? Or can my uncovered skin soak up light that comes through windows? I do understand completely covering the body outside, hands and all, but in the room where there is more light, do I need to wear more that my Noirs? Thank you, mm
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Tue Jan 22nd, 2008 21:15 |
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Margaret,
You asked, "I do understand completely covering the body outside, hands and all, but in the room where there is more light, do I need to wear more that my Noirs? Thank you, mm"
Well, usually, it depends upon whether you are just with your husband or with company!!! 
Sorry! I just could not pass that opportunity for a smile.
On the serious side, always remember that all light, even some that we cannot see, such as infra-red, will cause the production of 125D hormone, and possibly 25D also, in the skin and eyes. If fact, as Dr. Marshall has indicated, it may be all energy striiking the skin and eyes, such as radiation from the sky. There are animals that never see light that are able to produce D within their bodies. Having those skylights allowing light to come into your rooms will hinder your ability to cut back on the D's. True! it is not as strong as going outside with the sun bearing down on you. But the more light that you can restrict from hitting your skin and eyes, the better off you will be.
There are people who are working in offices that are improving, just perhaps slower than if they could control all of their light. They take measures as best as they can to reduce the light striking their skin and eyes.
The decision will have to be up to you whether you should attempt to cover those sunlights, too.
If you wish to get real scientific about the amount of light, get a LUX meter to measure the amount of light that is in your room/area.
We could call you the "Lady Godiva of the MP", if you wish!!!
Wishing you, and all, wellness!!!
Dark Vader...aka, George
See Light avoidance simplified
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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lady goDarker
Member
| Joined: | Thu Dec 6th, 2007 |
| Location: | USA |
| Posts: | 20 |
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Posted: Sat Jan 26th, 2008 00:41 |
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Hi. does having had my gallbladder removed in any way impact my recovery on MP?
Will having passed kidney stones during my illness mean that I might have the same experience during recovery, because of recovery?
Right now I am imagining an unfolding spiral backwards erasing my illness bringing me through what I have gone through in illness out the other end toward recovery and health. Probably not, huh? Imagery works for me, any suggestions?
Thank you, lady goDarker aka Margaret
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Sat Jan 26th, 2008 02:49 |
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Mamoe55,
Kidney stones are seen with Th1. More likely you will see more of them if you don't do the MP.
It's always good to keep body parts and pieces when you can but if you already have your gallbladder removed, then you can do like others who have had them removed and are working the MP with what they have.
Is there a right pace for the most effective healing on the Marshall Protocol? has some pointers on how to work the MP with rational boundaries for pacing your recovery.
Most develop skill sets and different options or "toolkit" in Phase 1 to keep their responses tolerable during the long recovery process. It is a marathon and not a sprint. Tolerable pacing is the goal that most have achieved to get their life back.
Best to you Mamoe55--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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lady goDarker
Member
| Joined: | Thu Dec 6th, 2007 |
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| Posts: | 20 |
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Posted: Sat Jan 26th, 2008 22:50 |
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Hi, Could you guide me how to do a search on MP site using Google search engine? Thanks, lady goDarker/margaret
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Julia
Advocate (on leave)
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Posted: Sat Jan 26th, 2008 23:09 |
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Margaret,
Open the MP site and type your word(s) into the Google search box. If you have a Google toolbar you then click on the little icon that looks like a baby's rattle (I've never worked out what it's supposed to be!) which tells Google to search only on that site.
If you haven't got the toolbar you can use the drop-down list at the start of the Google search box and click on 'current site'.
If you can't find that, you'll have to type the whole thing into the search box like this (taking 'ramping minocycline' as an example):
ramping minocycline site:marshallprotocol.com
Note the spacing, and the position of the colon. Using this method you don't need to have the site open, so you can use it on the Google home page.
I find Google much better than the search facility on the site, because it gives you the results in order of priority instead of just in date order.
Hope this helps.
Julia
See How to use the search feature of this site in How to use the Study Site
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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lady goDarker
Member
| Joined: | Thu Dec 6th, 2007 |
| Location: | USA |
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Posted: Sat Feb 2nd, 2008 18:48 |
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I have a pain relieving medicated plaster, external analgesic, given to me by acupucnturist for application on trap muscle. Active ingredients:menthol and methyl salicylate. There are also chinese herbs in its make-up. I would not want to use ANYTHING that is contra-indicated and would love something to release this pain. Please let me know what you think. Thanks , Margaret
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Julia
Advocate (on leave)
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Posted: Sat Feb 2nd, 2008 19:43 |
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Margaret,
As this is really a medical question, it should be asked in your Progress Report. It's important for the moderators to know how much pain you're in, and the methods or drugs you're using to deal with it. Thanks
Julia
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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lady goDarker
Member
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Posted: Sun Feb 3rd, 2008 02:36 |
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Can Vit D transmit through water? I am wondering if I wore a large brimmed black hat with NoIRS could I go into the hot tub during the day as well as night. Thanks for your help, Margaret
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Julia
Advocate (on leave)
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Posted: Sun Feb 3rd, 2008 15:20 |
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Margaret,
It's not vit D transmitting through water that's the problem with daylight bathing, but the reflection of light off the water on to your skin. As the reflection is coming upwards from the water's surface, it's going to get under the hat 
Please see Incident Radiation Tutorial
The Effect of Sunlight/Daylight and Bright Lights
Julia
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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Chris
Advocate
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 200 |
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Posted: Sun Feb 3rd, 2008 18:32 |
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Margaret,
A hot tub, hot shower, sauna, too many blankets, all raise the body temperature and blood flow and can increase the penetration of the antibiotic and increase the herx. I've had mornings where I thought I'd be up and around for the day, until the shower wiped me out and canceled the day.
So, take care with the hot tub.
I also found this web page, from a UNICEF paper on using the sun to disinfect by UV. http://almashriq.hiof.no/lebanon/600/610/614/solar-water/unesco/29-34.html
with a note on UV transmission through water.
These facts show that UV (A) radiation will penetrate clear water to a depth of several metres before it is appreciably diminished in intensity.
The water in the hot tub isn't going to block much UV at all.
Chris
Last edited on Sun Feb 3rd, 2008 18:33 by Chris
____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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lady goDarker
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Posted: Sun Feb 3rd, 2008 19:18 |
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I love that i am getting more and more understanding and information about light, sunlight, heat and herx,(IP). Nothing like experiential learning!! Thanks folks! High regards, Margaret
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lady goDarker
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Posted: Sun Nov 23rd, 2008 05:57 |
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Hi, I am not too sure if I am following the directions of this site concerning posting and am hoping I will be corrected if I am not doing it right. I have been an active MP member since Jan '08 and I have question that might get answered here.
I have been challenged by being extremely sensitive to the different antibiotics, even though the amounts have been so incredibly and cautiously small. Over time I have developed challenged kidney functions and it has been recommended that I reduce the amounts of antibiotics and now, a recommendation of stopping the antibiotic. This is all done in the hopes of encouraging correcting my kidney functions. As I follow these recommendations I keep up with my weekly posting.
I am doing the benicar q4-6h. Would my inate immune system become active during this time? I am looking for a reason as to why I am feeling so lousy, lousy and my thought came to perhaps the inate immune system has become active therefor continuing killing the bugs creating IP. I do read the MP site, don't always have the brain power to understand what is being explained. Thanks for your attention. Much appreciation, Lady GoDarker/Margaret
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lady goDarker
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Posted: Mon Nov 24th, 2008 14:07 |
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I moved my last posting to questions section, which I hope is the right place. Thanks!
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Julia
Advocate (on leave)
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Posted: Tue Nov 25th, 2008 17:41 |
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Hi Margaret,
Sorry you're having such a rough ride at the moment. I don't think we know the answer to your question
I see in your progress report PB has made a suggestion for you to try if your doc agrees. I won't repeat it here, as it's an unusual one tailored to your individual needs, and not one that everyone would be encouraged to try. A small number of members have found it helpful.
I do hope you can find a more tolerable level of IP soon.
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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Dr Trevor Marshall
Research Team
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Posted: Tue Nov 25th, 2008 17:48 |
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Margaret, I have sent you a PM.
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