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Samantha
Member
| Joined: | Sat Jun 21st, 2008 |
| Location: | New Zealand |
| Posts: | 13 |
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Offline
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Posted: Fri Nov 21st, 2008 21:09 |
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I need help, I am stuck in a very ill state. Tried to go off the Benicar as I got so very ill, but when I went off I got even worse, to the point of feeling like I was close to dying and my pain was even worse. Many, many symptoms. I hate posting - its very hard for me to even get onto the computer as I cannot sit for long. So now I am back on the Benicar for nearly a week now, but so incredibly sick, I thought I would improve getting back on it, but very little, still v bad state with severe pain. I don't know what to do.
Could Dr Marshall please help me? If you can, can you please do a private email. If you could read my previous posts please as I just cannot explain it all now. I've been on the MP for five months, very ill to begin with, but have had breaks from the AB's, had to, and last on the ab's over two weeks ago. Only got up to 75mg this time before needing another break. But then just kept getting worse, as above.
Thank you,
Samantha.
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CFIDS/FMS over 25 yrs, mainly bedridden last 10 yrs. Very ill. Hyper-sensitive/allergic system. Adrenal exhaustion.
Started MP June 2008.
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Dr Trevor Marshall
Research Team
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Posted: Fri Nov 21st, 2008 21:13 |
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Samantha, please ask your Doctor to call me at (805)492-3693 and I will be able to help him help you.
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Samantha
Member
| Joined: | Sat Jun 21st, 2008 |
| Location: | New Zealand |
| Posts: | 13 |
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Offline
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Posted: Fri Nov 21st, 2008 21:27 |
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Thankyou for your reply. I will have to wait until Mon or Tues as its Saturday here. She does not know much of what has been going on tho as I've been too ill to visit her. Dr Marshall, do you have the time to read my earlier posts please. Are you able to briefly email me privately?
Thank you very much.
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CFIDS/FMS over 25 yrs, mainly bedridden last 10 yrs. Very ill. Hyper-sensitive/allergic system. Adrenal exhaustion.
Started MP June 2008.
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Dr Trevor Marshall
Research Team
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Posted: Fri Nov 21st, 2008 21:32 |
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The immune system is not something you can just switch on and off the way you have been trying to do. It had taken your whole life to get to the state it was when you first challenged it with Benicar. By stopping Benicar you remove the organ-protective capabilities of Benicar yet you leave the immune system re-activated and generating IP.
Although we say to "take breaks" in our guidance, we mean every few years, not every few months.
There is a drug which Doc can prescribe which may help you to wean, and I can discuss that possibility with her.
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Samantha
Member
| Joined: | Sat Jun 21st, 2008 |
| Location: | New Zealand |
| Posts: | 13 |
| Status: |
Offline
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Posted: Fri Nov 21st, 2008 21:41 |
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| I felt I had no choice but to go off the ab's. I had read others having breaks frequently. I can see I should not have gone off the Benicar, but I was desperate and none of things suggested to me had helped. I don't actually want to discontinue the program as it was my last hope.
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CFIDS/FMS over 25 yrs, mainly bedridden last 10 yrs. Very ill. Hyper-sensitive/allergic system. Adrenal exhaustion.
Started MP June 2008.
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Dr Trevor Marshall
Research Team
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Posted: Fri Nov 21st, 2008 21:46 |
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The ABCofMP has the guidance you needed. Look under "Benicar." It is very important to familiarize yourself with all the educational material we have produced 
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Sheila-Fl
Member
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Posted: Sun Nov 23rd, 2008 01:15 |
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Hi Samantha,
Maybe things are different in New Zeland, but usually doc's have emergency coverage. How about trying to call her. It's been a couple of days and I am not trying to be hard on you but you told me how sick you were. You need to call doc if you are feeling that awful. The sooner you start to turn this around the sooner you will feel better.
Sheila
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Dr Trevor Marshall
Research Team
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Posted: Sun Nov 23rd, 2008 02:04 |
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Samantha, Doc can email me via the link on my homepage at http://TrevorMarshall.com
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