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sickofsarcoid
Member
| Joined: | Wed Nov 19th, 2008 |
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| Posts: | 6 |
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Posted: Thu Nov 20th, 2008 01:55 |
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Hi everyone,
I just happened upon this site and have never heard of MP Protocol. Where do I read about it? Is there a specific site? I suffer with Sarcoidosis and if there is a cure, I surely would like to know about it.
Thanks,
Maureen
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natalie17
Advocate
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Posted: Thu Nov 20th, 2008 03:07 |
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Hi Maureen,
Welcome - great user name! Why didn't I think of that? Also great news - there is a cure & you've found it  .
You can read about Success Stories here (click).
Also, Amy Proal's http://www.bacteriality.com has a lot of interviews with people who have been through the MP.
Well there's lots of reading, I'll start you off with some basics;
What is the Marshall Protocol?
The Marshall Protocol -- simple explanations
Is the Marshall Protocol an Applicable Treatment for my Disease?
My recommendation is to not get too concerned about a subcategory diagnostic titles like Sarc or whatever, if in fact you are interested in discovering if you have a Th1 Chronic inflammatory disease process. Other good information:
What is the basic definition of Th1 inflammation?
D-metabolites tests - help determine that the Marshall Protocol is the right treatment for you.
What is a therapeutic probe?
A therapeutic probe can also be used.
Some info specific to Sarcoidosis;
SARCOIDOSIS
Overview, treatment, diagnosis, symptoms, remission, PFTs, staging system, ACE, etiology, standard treatments
Simple Explanations for explanations that apply to all Th1 diseases, including sarcoidosis.
Weaning From Steroid Medications Essential guideline
If you want to begin the Marshall Protocol and don't have a supportive Doctor you can make a request for a Doctor in your area in;
REQUEST FOR DOCTORS LIST (click here)
I also recommend you frequently read Amy Proal's http://www.Bacteriality.com site. A good place to start is her recent presentation in vimeo (movie) format. Here is Amy's description and the link:
"In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 89 minutes."
http://bacteriality.com/2008/05/07/mpintro/
.... and if you still want to read more, or want to look up the answer to a specific question, you can browse through the ABC of the MP (FAQ Easy Finder).
Take care and happy reading,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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sickofsarcoid
Member
| Joined: | Wed Nov 19th, 2008 |
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| Posts: | 6 |
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Posted: Thu Nov 20th, 2008 03:40 |
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| Thank you so much. Yes, you're right. I do have a lot of reading to do.
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xenaspower
Member
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Posted: Thu Nov 20th, 2008 07:05 |
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hi there maureen,
I too have sarcoid.I am 46 now and was diagnosed in nov. of 1997.I found the mp in 2005. I was on oxygen and in a wheelchair because my breath was so low,my oxy level was 84,looow.Anyway I did the mp for just a year and got off the oxygen and sold that wheelchair Due to personal reasons I had to put the mp on hold but have found a Dr. in the area where I live and am looking forward to regaining my healing.Because you are new to the mp let me assure you this will change your life! In fact your life will be on reset! Yes you will get uncomfortable the first year or so but my dear that is the mp killing all of the nasty little buggers that want to hurt you I just cannot recommend this mp enough,believe me,I don't know to what extent sarcoid has come into your life,I have shared my experience,don't wait,being unable to do the simplist of things is such a blessing and it is a blessing that you came across this site,web md would have you believe this goes away,it doesn't. I can't advocate the mp enough this IS your LIFE,good luck,we are all here for you
xenaspower
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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sickofsarcoid
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| Joined: | Wed Nov 19th, 2008 |
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Posted: Thu Nov 20th, 2008 11:31 |
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Hi Xenaspower,
All I can say, is that Sarcoidosis has reeked havoc on my body and my life. No one in my family grasps the idea that I am sick because I look well on the outside. I think I must have every symptom possible. I don't know where to begin. I have the body aches, joint pain, lymph node pain (especially in my groin), chest pain, (in the front all the way through my back), fatigue, sleepness nights, weakness, brainfog, numbness in my hands and arms, (especially at night). I also have Mitro Valve Prolaspe in 2 valves, and bouts of Vertigo, IBS, trouble digesting my food, depression. My CT Scans show, scarring, enlarged lymph nodes and glands, clusters of nodules in my lungs. Lesions also showing in my abdomen, and liver and kidney's. I was diagnosed in Aug of 2002 by a lung biopsy. I also believe that it is in my nervous system. I have not been under a doctor's care now for 3 years as I don't have any medical insurance. Doesn't matter though, they didn't help me anyway. None of them seem to know anything about the disease and just don't recognize the seriousness of it. I was on Steroids for 2 years but took myself off back in 2004. The weirdest thing of all is, all my hormones are completely messed up. All this hit when I was 45. I was a size 6 my whole life and up to that point. Then, when it all started, I began gaining weight for no reason. It was as if everything I ate turned to fat, and it did! I became Insulin Resistant. Had I not gone on Metformin, I swear I'd still be gaining. In total, I gained 100 pounds in 2 years without overeating!! What is the corrulation between Sarcoidosis and Insulin Resistance? I'm so confused. That in itself was devasting. My family and friends didn't even recognize me. If anyone could shed light on that, I would be very interested. I am looking forward to learning more about the program and getting my life back.
Maureen
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JoshR
Advocate
| Joined: | Mon Aug 18th, 2008 |
| Location: | Sydney, Australia |
| Posts: | 215 |
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Posted: Thu Nov 20th, 2008 12:03 |
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| The connection is that Sarcoidosis and Type 2 Diabetes are both Th1 diseases. Slightly different mixtures of bacteria give people different mixtures of symptoms. It's quite common for people with one Th1 diagnosis to also have others.
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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sickofsarcoid
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Posted: Thu Nov 20th, 2008 16:14 |
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Thank you Josh.
Maureen
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Chris
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| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 200 |
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Posted: Sat Nov 22nd, 2008 16:52 |
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Maureen,
What is the corrulation between Sarcoidosis and Insulin Resistance?
To support Josh's point, let me add that they both went away for me with the MP.
Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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sickofsarcoid
Member
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Posted: Sat Nov 22nd, 2008 18:07 |
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Hi everyone,
Can someone direct met where I can find a doctor in my area that practices the MP?
Also, is there a site that will tell me exactly how to start it, with all the meds I need and the dosages in the different stages?
I also need to know if my heart will be safe going through this process because of the Mitro Valve Prolaspe that I have?
Thanks. Maureen
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Dr Trevor Marshall
Research Team
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Posted: Sat Nov 22nd, 2008 20:36 |
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I also need to know if my heart will be safe going through this process because of the Mitro Valve Prolaspe that I have?
Only your physician has examined you, and only hes/he can give an assurance like this. But you need to Ask Doc about the poor prognosis if you just stay as you are, without any curative therapy.
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JoshR
Advocate
| Joined: | Mon Aug 18th, 2008 |
| Location: | Sydney, Australia |
| Posts: | 215 |
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Posted: Sun Nov 23rd, 2008 08:07 |
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You can request a list of doctors in your area here: REQUEST FOR DOCTORS LIST
Full Phase 1 instructions are here: PHASE ONE of the Marshall Protocol
The Phase 2/3 guidelines must be obtained through your doctor when the time comes.
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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xenaspower
Member
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Posted: Tue Nov 25th, 2008 03:19 |
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s.o.s,
please read my progress report,it will astound you,and where are you,maybe we can help find you a dr.,with what you posted it seems to me that you are eligible for ssi,which comes with state and federal insurrance.that will get the ball rolling to get you to s specific dr,a pulmologist which is to expensive to go alone w/o insurrance.When you apply for ssi they also have you see a dr. that will determine the extent of your disability,but if you have been working you will need to firstly spend down your state disability first and in the mean time apply for ssi,I also recommend getting a ssi lawyer to help the process.They require no money down and get paid when you are paid a back pay check from ssi,you are paid from the time you apply untill they approve you.It seems to me that you are overdue on getting this started.When you apply for the state disability to get the ball rolling,they will help you to recieve state medicalinsurrance. I truly believe reading my progress report can help you.It is truly up to you,this is your life.You really must decide do you want to go living with illness and prognosis of death clearly a slow suffocating death or will you choose the miracles awaiting you at the end of three short years.Believe me I looked at my options being almost inthe same boat as you.The m.p. is a blessing to us a gift that allows us to remain in a world that needs those like us to be teachers to those who haven't walked in our shoes,bringing more compassion to this world,and hope.It was hard for me also but the question remains,.I also discovered in my deep depressions that A AHA moment happened when I realized truly that depression is just chemocals that have made your brain its home,the bgood news is you can make them go away.Your body is addicted to feeling bad,it is the same with pain.I realize that not all of us are strong enough to work on ourselves because of how hard it is,but this is your life and I am telling you,make the first step,make a diffence to yourself,by hook or by crook.......................live! and if I can offer any solice I am a few clicks away
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Tue Nov 25th, 2008 03:38 |
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sos,
I gained about 150 pds,but as soon as you start the diet and the benicar the pounds you gained from the prednisone use will melt off and it stays off.I to was about 145 when diagnosed w/sarc in 1997,by 2002 I was 360! PREDNISONE SUCKS,also it helps with becoming a diabetic.But I am happy to say my dear NOW, I am a slimmer 185 and losing,and my diabetes is controlled w/ diet.I'm telling you life IS good,but it is the deciscions you make that make it so,and so it is.Try not to overload yourself with worry you have chosen recovery,all things will work themselves out.Just rememeber worrying is detrimental to your health,keep only in mind that you and every action that you do whether it is reading or watching a tree sway,you are on the road to recovery. so congrads
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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