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xenaspower
Member
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Posted: Tue Nov 18th, 2008 04:50 |
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greetings,
I am not new to the mp,in fact I first got involved in 2005.I was on oxygen,stuck to a fifty-foot hose and in a wheelchair. My persona then was 2bonnie.The mp had only about 4,000 members. After only doing the mp for about 1 year,I had to quit due to personal reasons,moving about for the last 2 years I have settled down in the redding,ca area,finally finding a Dr. that would help me,I am healing from sarcoid. I say healing because I have been on beni now for a few months,living w/o sun,and watching my diet,but the most amazing thing is that my pulmonary Dr. got my med records from where I lived before and doing all of the function tests to see where I am,it was discovered that my lungs both looked better, actually improved.After so many Dr.'s turning me down,this Dr. agreed that this was the reason for my improvement and that the mp appeared to have very interesting concepts on the healing of the effects from the disease.So glad to be back and the better for it
xenaspower
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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Dr Trevor Marshall
Research Team
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Posted: Tue Nov 18th, 2008 05:01 |
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Great to hear from you again, Bonnie.
A lot has changed in the last few years. there is a lot of reading for you to catch up on 
A good place to start is Barb's ABCofMP
Also, the science is documented at my "Perspectives" forum
http://www.marshallprotocol.com/forum39/
To see the latest posts on the Boards use the "recent tab" thus:
http://www.marshallprotocol.com/recent.html
http://www.CureMyTh1.org/recent.html
http://MP-Lifestyles.org/recent.html
Welcome
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xenaspower
Member
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Posted: Wed Dec 3rd, 2008 21:19 |
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I am still unable to login and report on my story,tried to use the option of getting a new password from the site but my mouse pointer can't go into the yellow line to have the password reset,I would like to keep updated on my progress on the mystory just can't,I saw that one other person started a thread called monthly report should I just start one like that I haven,t gotten any replies from the other posts telling of the problems I am having posting.I can't even login in,I am still getting into the posts thru the threads from my email.Having cardiac herxing right now I am very concrened not having some kind of way to post my concrens,please help
thanx
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Fri Dec 5th, 2008 00:06 |
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well,
since I can't get logged in the system I thought that I would just do the my story updates here.I am at beni every 8 hrs and tolerating.The heavey cardiac herxing I was having seems to be subsiding for now.The beni @ 8 hrs is makuing me tired but the cardiavc herxing has virtually stopped ,it happens a little when it is about an hr from the dosage time.I kin of feel blind out here not hearing from anyone about the problems I am having and am afraid if I get into trouble I won't get a response.
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Fri Dec 5th, 2008 02:09 |
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hi all, After reading the benicar site,it is all coming back to me The main thing I am learning is that not all the reading is on this site So will make it a point to search hard before I ask q's that have been answered if I take a deep breath and look. I appreciate the mp so much. After the convo with Dr. t on the stopping post,I have decided that I won't be weaning off to move.Some folks from my church are going to come help my sis and I. After reading the beni dosing site I have decided to do 20 beni/4hrs,it is the same but from what I understand it is more logical for the beni to do what is doing.will then take the 40beni/6hrs for the sleep period,again thanx all.good healing ( still waiting for insur. approval for more beni dosage)
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Wed Dec 10th, 2008 04:50 |
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hi all,
I will be making this my progress site as I can't get the my story to let me login to report.Saw the doc today,got the beni approved for 120 to last 20 days so have enough to do 40/4hrs but am doing the 20/4hrs and 40 at midnight for sleep period.Got some mino today but not what is needed.Only got 30 to be taken once a day at 50 mg. I am in the process of moving and will soon be having everything switched to new address.I amm experiencing heavey muscle cramps in the rib section both sides and sharp pain in right shoulder from sleep.Lower back also.Toes are burning on the tips and is waking me up every other nite.But in the morning I am having a very productive cough.Any exertion causes me heavey sweating,noticed that aussie barb is using magnesium so I am thinking of trying that to relieve the middle of the nite leg cramps.I remember using the quinine before this when on the mp before wondering if that is still ok.Also will try to get valium.I tried the valerian tea and it isn't strong enough to do the job.I am also experiencing a problem in urinating feel as tho' must use pressure at times to squeeze the flow to get it going and keep it going.Cardiac herxing is subsiding nicely..........................good healing,bon
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Sat Dec 13th, 2008 00:50 |
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hi all,
well moving this weekend,and tired altready.See can't even spell ritght.Anyway finally got logged back in.Had major sun today.Amazzing how many times people want to see your face when it is covered up. Thought why even wear the mask.Went to pick up meds and they insisted on seeing my i.d and still had me show my face,what the hll was that for.Forgot how many ignorant people there are that absolutely never go outside of their box,glad I'm far from that.Or get the looks as if I am contagious.Went with my sister to an ice cream parlor(dont like it) and thought I'd just for a laugh"I'm an ice cream bandit and this is a stick up" we laughed.It's the kids that are more excepting than the adults.Oh well really tired,I am having my service transferred over the weekend to be back on the 16-wednes.good healing
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Thu Dec 18th, 2008 06:34 |
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hi all,
just got service back upI am now doing beni@6hrs,had lots of sun over the move.Really having anxiety alot but is happening when I lay down to rest at nite.I am wanting to start the mino.I am seeing my pulmonary doc tomorrow so will get ok to start mino.Will ask if mino is ok every other day to start.Really noticing that kidneys are aching,so I am laying partially down quite a bit.joint swelling prevalent.At times I have to push down to get productive urination.Eyes are getting very tired to.I am using intercom for the phone as I find it hard to hold it for more than a few minutes.I will login tomorrow after the doc apt tomorrow................good healing,bon
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Fri Dec 19th, 2008 20:23 |
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hi,
went to the pulmonary doc yesterday.He is very concerned about the cardiac herxing.He will be putting me thru a series of tests to make sure that it isn't something else.I told him that I had experienced this when I did this before but he wasn't sure.He doesn't believe that benicar would do cardiac herxing.I asked him to please read more of the mp so that ghe would be more aware of what is going on.I feared that he wouldn't help me with the mp anymore but we comprmised,I get the tests done and he gave me more mino.Now that I have stock piled both the beni and mino I will be starting the mnio soon.Sorry I am having confusion today with brain fog and runny nose.The way I'm feeling I am sure that I am herxing good,yeah mp,kill those boogers!!!!!
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Wed Dec 24th, 2008 06:37 |
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| having weird scary symptoms.I seem to not be handling smells well.Ended up in the hospital after I came home and got a lung full of home fires that were laying in the air.I live in n.ca and that's how we heat.Fortunately I am in an apt thats equipped with heater.The smoke was very thick and made me "catch" my breath,also the air had a good chill.The 2 together gave my lungs a shock.Right away my heart started palps.At the hospital my 02 was 80/mid 80's.It was 3hrs before my oxygen went back to the normal mid 90's. Wondering if this reaction is more often than not?
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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Dr Trevor Marshall
Research Team
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Posted: Wed Dec 24th, 2008 12:25 |
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MCS is the term given to "multiple chemical sensitivity." It is caused when the brain confuses relatively harmless nerve inputs to be harmful. Typically it is merely annoying, like inability to stay in the same room as somebody wearing perfume, but the brain can over-react to the point of cutting back involuntary body functions, such as breathing, and even produce shock in extreme cases.
MCS disappears as people recover with the MP, and the brain returns to 'normal' function. Search for that acronym and you will discover more about it.
http://www.google.com/cse?cx=015797121803109183392%3Apki9vca50hs&ie=UTF-8&q=MCS&sa=Search
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xenaspower
Member
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Posted: Wed Dec 31st, 2008 18:07 |
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hi all and happy new year!!!
I had to go to urgent care yesterday.About 5 days ago started getting a bad taste in the back of my throat.Two days later I had a runny nose,slight and coughing up that ucky stuff.Looked on the site and found that for upi's to take levaquin,so had doc give it for me.I am taking 750 mg for 5 days.Hope thats ok and will clear it up. I am a little reluctant though,as the last time I was on the mp I remember that the doc gave me an antibiotic that caused my breathing to get really bad.I am experiencing some flushng with this one,don't know if I will continue it I am a little afraid.What I read was that it doesn't work like the mp antibiotics so will trust and see.Wondering if there is something I should look out for as far as side effects go?Please let me know asap.thanx bon
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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Dr Trevor Marshall
Research Team
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Posted: Wed Dec 31st, 2008 18:16 |
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Bonnie,
You are going to need to start listening to the moderators more closely, and also reading the wealth of material we have accumulated since you were first on the MP.
There are so many misconceptions in your last post that I don't have time to address them one by one. Hopefully one of the advocates will help you work through them, and that next time you will ask for info before deciding on the appropriate action to take
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xenaspower
Member
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Posted: Sat Jan 3rd, 2009 02:14 |
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sorry,
I am very leary of letting respiratory things go on to long.It seems that what I read was that if it seemed like a cold that it may be herxing which is what I have had before and know the syptems.This was the kind of thing that I end up in the hospital over,usually with pnuemonia and more sick than I was when I went inthe hospital than when I come out.The last time I got that bad taste I ended up in the hospital for 3wks and my family came to visit because the doc's told them I might not make it.I feel as if I am flying blind out here,between the moderators answering q's at one time almost 2wks later and my own doc only reading about things when it is necessary.I have been reading as much as I can everyday,So I don't know what else I am expected to do.I have stayed on the levaquin,but have noticed that I now have tiny blisters on the tip of my tongue and 2 on the back of my throat.I have 2 more days of taking it and am still coughing up ucky stuff. I don't know anymore what to think.
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Mon Jan 5th, 2009 06:05 |
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ok,
maybe I just don't uderstand but the message I'm getting is that levaquin is one of the antibiotics that I take to get rid of a respiatory infection.I am very suseptable to these every winter and vitually hide in my apt. to keep anyone with colds or flu away from me. However the once a month doc visits can't be avoided,that is when I usually get sick.That was the case this time.My doc knows that waiting on treatment for me can literally mean life or death. So I read the site again and it seems to me that the way it is written that levaquin is of the family to use to help with respiratory infections.I was the only part of the site that I saw that even mentioned that it and the others were to be used.I haven't read anything else about it except to make sure that the sinuses aren't herxing.What I was experiencing was NOT in the nose. What I was experiencing was in the lungs.Starting with a bad infection tastse when I coughed followed by brown,yellow and then green sputum in which I coughred up untill it became clear in the middle of the day.My nose did not run untill after I started the levaquin about the 3rd day.I attribute this to the sun I got the day1/2 before I started the levaquin. It was the assumption of my doc that I also had significant air restriction on the right side of the lungs.I came home got on the site and the rest you know.PLEASE if there is a different antibiotic I should have taken tell me where to find that on the mp site thanx bon
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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xenaspower
Member
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Posted: Tue Jan 6th, 2009 20:41 |
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| just wanted to report that I had a little sun exposure 2 days ago and had the worst joint pain in a long time.It was mainly in the knees.The granulomas are growing inbetween the joints and are starting to become bigger causing the pain I have now.The ones in my hips are very painful and hard to find comfortable sleeping positions.Also feeling very out of it in mind,like I am doped up.very sleepy trying to keep my eyes open.I think I might have taken beni twice.So I will buy one of those pill dispensors to make sure that doesn't happen.going back to bed.Tomorrow I must drive to appt in sac at ucdavis and I want to be able to go.I have to drive myself,have no one to help.My pulmonary doc is wanting extensive pulmonary functions done to see where everything is in comparison to before I moved here,I explained that it may seem worse right now from the herxing and he understands.talk in few days,oh and the infection is slowly going away.wish one of the moderators trev was talking about would tell me what I did wrong that trev said I did...anyway,good healing
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sarcoid/1997 irretractable pain sarc nodes all body diabetic| oxycontin benicar ambiencr baclofen synthroid albuterol inhaler spiriva premarin singulair relafen prn metformin| MyStory| 25D soon|
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