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alastair
Member
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Posted: Tue Nov 4th, 2008 13:26 |
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Hi,
Am a new arrival, attempting to understand everything about MP - which is a great deal.
As I trawl through the many pages on here and MarshallProtocol.com; there are a number of dead links and small bits of information that are incorrect.
It would be good to know who to contact and how to contact them in order to get things put right. I suspect it is easier for those within the study cohort to submit corrections; however I am one of a growing number waiting to join.
Away from illness; my work mostly involves setting up and managing web sites so I am a little more sensitive to these things than most.
Best regards
Alastair
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PVFS/ME/CFS since 85, just arrived in this parish.
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paulalbert
Advocate
| Joined: | Fri Oct 26th, 2007 |
| Location: | |
| Posts: | 20 |
| Status: |
Offline
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Posted: Tue Nov 4th, 2008 14:26 |
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Hi Alastair,
There's a group of us working to create a new knowledge base for all the reasons you mentioned. You can see the production version of the knowledge base here:
http://mpkb.mp-dev.com/
Here is where we discuss the project:
http://project.mp-dev.com/
This a huge project and if you want to help, please talk to me further.
Paul Albert
palbert1@gmail.com
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Cynthia Schnitz
Member
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Posted: Tue Nov 4th, 2008 17:41 |
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I am not finding "Spondylitis". Hope this will be included. Cynthia
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Phase1 10-27-08, Phase2 12-16-08, 125D:47, 25D:43;29;tbd, TriEst 1.25mgX2pd, Ca&Mg(as rqd), Calcium anomaly-gone in 3 wks of MP, Spondylitis, early Macular degeneration, early diverticulosis, Type II diabetes (unconfirmed), returning sense of smell
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paulalbert
Advocate
| Joined: | Fri Oct 26th, 2007 |
| Location: | |
| Posts: | 20 |
| Status: |
Offline
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Posted: Tue Nov 4th, 2008 18:36 |
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In truth, there are a lot of missing articles. In fact, the knowledge base is about 5% done right now. The only articles that are done-ish are the food articles and the presentations.
Frankly, it would be nice if more people would step forward and contribute to writing these articles. Right now, it is only me. 
Paul
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alastair
Member
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Posted: Tue Nov 4th, 2008 21:35 |
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Thank you for your reply.
To be honest I would be keen to help however I am at an exceptionally low ebb with CFS/ME and failing in my existing commitments. If things change I will get back to you.
Thank you for your efforts on behalf of the rest of us!
Regards
A
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PVFS/ME/CFS since 85, just arrived in this parish.
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Julia
Advocate (on leave)
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Posted: Wed Nov 5th, 2008 22:01 |
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Hi Alastair, from a fellow-Brit 
I just thought I'd give you a few introductory links to read, in case you haven't found them yet...
"What is the Marshall Protocol?"
Simple Explanations
Phase One Guideline
Papers for Physicians
D-metabolites tests
There aren't very many of us on the MP in the UK yet, due to the reluctance of doctors to prescribe something so relatively new. But it's worth fighting for... have a look at CFS success stories - members' testimonies of their improving health.
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Always consult a physician
Essential Info; FAQ; Julia's story
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alastair
Member
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Posted: Sun Nov 9th, 2008 17:04 |
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Hi Julia,
Thanks for the kind thought; but I got here after reading a LOT of the stuff hereabouts.
Have summarised much of it for the benefit of my GP, who I saw yesterday. Hopefully he will assist me in getting the D metabolite tests done and after that I live in hope of getting onto the MP with his co-operation.
There are few UK doctors and none too close to here so charming my GP seems the best route if I can manage it!
Thanks for taking the time to post
A
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PVFS/ME/CFS since 85, just arrived in this parish.
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dade1
Member
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Posted: Sun Nov 23rd, 2008 15:11 |
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Alastair,
I have been on the M.P. for almost 9 months now and I am into my second phase of the M.P. You and I have crossed paths on the ADR site several times. If you have some questions about the M.P.,I might be able to help you. ( Remember the Spitfire)
Sincerely, JF110 (dade1)
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alastair
Member
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Posted: Sun Nov 23rd, 2008 21:41 |
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Hi there,
It sounds like you are doing well with the MP which is good to hear and encouraging.
You seem like a 'good egg' however I doubt we have crossed paths until now. (I have no recollection of discussing the 'Spitfire' (the aircraft or the beer) online, ever, in 20+ years on line). As for the ADR site you refer to; I am unaware of it. My brain is fogged so I could be missing the obvious here.
Am just coming towards the end of my obsessive phase of reading everything about the MP. Have read loads on many sites but have left few if any remarks anywhere on MP or other CFS/ME topics; other, of course, than here.
In short, thanks for the kind offer - I think you have me confused with someone else.
Regards
A
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PVFS/ME/CFS since 85, just arrived in this parish.
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dade1
Member
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Posted: Thu Nov 27th, 2008 15:25 |
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Alastair,
Sorry for the confussion, There is another individual from your same location using Alastair for user I.D.
Thanks for the reply, Dade1
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alastair
Member
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Posted: Fri Dec 12th, 2008 21:46 |
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Hi again,
It could be that someone has beaten me to the 'alastair' name on MarshallProtocol.com; in which case apologies for creating confusion.
If necessary I can drop this name and take another - no problem!
Saw my GP again; he seems okay about letting me pay for a D125 test so that is being set up. If that shows some suitability for the MP then he may proceed. The NHS will pay for the D25 test. All that was the good news.
The not so good news was that he sought advice from two regional M.E. treatment centres concerning the MP; Cambridge have yet to get back to him and Oxford said 'NO' vehemently with no justification or clarification - even on request. As a mature GP, I doubt he was impressed with that sort of behavior, and may well go on to make his own mind up!
My current state of health is worse than I can recall so this is not a fun phase of life.
Hope things are going better for the rest of you folks
Alastair
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PVFS/ME/CFS since 85, just arrived in this parish.
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