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clscott Member
| Joined: | Mon Apr 28th, 2008 |
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Posted: Fri Oct 31st, 2008 14:11 |
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I have been researching the MP sites on and off for several years. I am making the call today to get an appointment for the blood work. For about 15 years I took Prozac for Post Tramatic Stress Disorder. A year ago I found myself slowly backing off the medication to the point of no medication. For a while I was fine. However the medication was not out of my system yet and I did continue to benefit from it's effects.
After several months off I started back onto it again but found I could not tolorate the once taken dosage. After several weeks I had pain in my head, which I had previously to a lesser degree and tolorated because life was better. I also became a bit manic. The Phyc. said that the pain was not a usual complaint and suggested that I get tested for Lyme. I did and it was negative.
The medication has been out of my system for several months. I have been careful of diet , drank a lot of water and walked 2 miles a day for the summer. I wonder if the change in weather and a change in routine as well as diet and the active symptoms of peri-menopause have pronounced the anxiety and concern of panic attacks.
Anyway, off the the Dr. I went. He discussed again the possibility of Lyme... and the affects that the taking of medication could cause to a wounded brain. I did begin Zoloft at a low dose 12.5mg daily for a week then 25mg for a 5 days of this week. Yesterday I began to feel spacy and a twinge of the pain. The brakes went on and a call to the Dr. He suggested strongly that I not wait but get tested for Lyme. Exercise, fresh fruits and vegetables, and a lot of water he also suggested.
I am realizing that I am faced with that I didn't want to do but wanted to do. I am afraid. The Dr. talks Lyme. I think in terms of the MP and CWD. I want very much to know that there is a community around me. I want friendship and companionship. I cry a lot. I work with an early MPer and have her enouragement. She is an extraordinary woman. I will get strenth from her. My husband is supportave and loving. I am scared. My mother was in a mental instituion from my age of 7 until she died in the 1980's.
I wrote in the spring about other physical problems. Some seemed to subside or leave after the Prozac was discontinued. I am a human. Why would I not be entitled to my own pea soup? If I can't tolorate the Zoloft how will I deal with the anxiety, panic and depression? I will need your friendship and companionship. I will go to the doctor of my friend.
clscott
[white space added for readability - mod]
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Julia Advocate (on leave)

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Posted: Fri Oct 31st, 2008 14:41 |
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Hi CL,
If you keep letting your fears stop you taking the plunge and doing the MP, things are going to get worse, because your fears are a part of your disease. You have watched your friend get better, she is there to support you, you have a supportive husband, and here in your own personal thread you have so far met seven advocates and members who were concerned enough to respond to you. How's that for friendship and companionship? You are not alone  
But you absolutely must not undertake the MP without some sort of help for your anxiety. Please review How can I control my anxiety and depression? and discuss it with your doctor.
When you start, we will move this thread to our new forum Non-medical support for those on MP. All the best for your doctor visit 
____________________ Always consult a physician
Essential Info; FAQ; Julia's story
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clscott Member
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Posted: Sat Nov 1st, 2008 14:05 |
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Thank you Julia, thank you. I just wanted to be reassured. I've come to the end of the time. The fear, anxiety and deppression are symptoms like the other symptoms that are so much easier to live with. Bless you all, Trevor, Research Staff, Monitors, Mper's, bless you all.
A few real questions.
Q: How does the disease process affect the natural peri-menopausal phase?
I am taking black cohash and drinking an herbal tea that contains wild yam root and rhizome, dong quai root, foti tuber, angelica root, orange peel, ginger rhizome, cinnamon, clove flower bud. I am using a bit of the "natural" suggested help. All this will go when I begin the MP.
I take an enzyme capsule at meals for digestion of foods. For years it has been a real help against the digestive issues. This too will end since it contains Bromelain.
Q: How does one cope with the gas, cramping, diarrhea?
clscott
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clscott Member
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Posted: Tue Nov 4th, 2008 12:22 |
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Are peri- menopausal symtoms increased in intensity where TH1 is present?
Thank you for your help.
clscott
I begin the blood tests on Friday.
I want to add a bit more and ask a question. My symptoms have been with me a long time. I have functioned quite well. It is now that I am finding life difficult. Peri-menopausal has hit with a bit of intensity or is it the TH1 disease process? I have controlled the bowel/food issue seemingly well with enzymes, the insulin resistance is being treated with glucophage. I was trying to manage the mental isues, anxiety, depression, panic with medication but having stopped the 15 year course I am unable to take it with out having side effects of brain fog, pains in my head, balance problems. Right now I am in a phase of backing off or out of Zoloft. I suppose it is still in my system since it has been stopped for a week but was taken for only two weeks at a low dose. I have carpel tunnel which I supposed was from knitting, hand tremor, feelings of bladder infection with negative urinalysis.
I do think the MP is the only game in town. Though I am not visibly ill as are so many other people I find my life being limited by the physical problems. The brain slowness is frightening. I have written much of this in an earlier post last spring. At that time I I was having the first bad reaction to Prozac. Zoloft seemed to be headed in the same direction after a 2 weeks. That is what is making me really sit up and take notice again.
Am I in denial? I want to come out of denial but I think that the doctors will think I am nuts. I am going to a doctor that has done and is doing the MP for Lyme. The Phyc. thinks the pains brought about by the Prozac and Zoloft are a result of neuro. damage. Jumping in and getting checked is the right thing. Yes? here I go with the reasurrance thing again. Focus and don't doubt or second guess myself and move ahead. Yes?
clscott
Last edited on Tue Nov 4th, 2008 12:50 by clscott
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Chris Advocate
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
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Posted: Wed Nov 5th, 2008 16:25 |
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ciscott,
Am I in denial?
Denial of what? You've listed a long set of troubles, acknowledged that you are going downhill, and are taking some serious pharmaceuticals for your problems. And these palliatives aren't working. And the early symptoms of arthritis or parkinsons (tremors etc) would get me scared.
I'm not trying to be flip here, I'm just not sure what you might be denying? If it's that you are sick and the drugs don't work, well the doctors know you are sick, and know the drugs don't work for a lot of folks, so I'm also not clear why they'd think you were nuts.
It's just a layman's thought, but I'm not sure that denial is the right term. All the troubles you have might be ignored as just aging (well, not PTSD), but you aren't doing that. You've already done some study on the MP, asked relevant questions, are wondering how it will impact current symptoms. It seems like you are facing facts pretty directly.
The question seems to be whether or not you are sick enough for the MP to be the only answer, and a badly needed answer. My response would be to not let it get that far. Been there, done that, lost too much time.
Get tested. Doctors like tests, they get reassured by them. So might you. Trial runs are called 'therapeutic probes'. Find out if it works, and if you are willing to suffer through it.
Final thought, maybe the denial part is denying that it really takes something as daunting as the MP. Well, it works. And the MP is less daunting than the diseases it cures. But you'll have to come to your own decision.
Keep reading,
Chris
____________________ sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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