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clscott
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Posted: Thu May 8th, 2008 12:53 |
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I was introduced to the MP way back in 2004 by my mentor and favorite yarn shop owner who suffered from Lyme Disease. I wondered what was going to happen for her. She was being treated with what was and is still the treatment for Lyme by the doctors in the Lyme community. I observed that she was not getting better. Everyday a different symptom seemed to plague her. In March or April of 2004 she asked God to find her a cure or take her. I didn't know this until she came into the shop one morning very excited about the information she obtained on the MP website. "We have a cure!" she would exclaim. I observed. She began the protocol. I observed. She herxed. I observed. She read information from postings to me. I listened. This has gone on for four years. I have listened to the information from the MP site and Bacteriality and I believe. I have watched her receive health as she killed the bacteria. Of course there were many herxing times but not debilitating times any longer. She doesn't have the brain fog. She has energy. The physical symptoms that I observed from pre-MP days are gone. She is in the shop every day when pre-MP she had a a week of rough herxing and stayed at home. I have seen, I have listened and I believe.
For years before the MP I wondered why family members, my husbands family, would go to the doctor and nothing that was advised or prescribed made the people well. I definitly believe in chronic illness. That was in the days of me being "healthy as a horse" or so the saying goes. How healthy are horses? What is their bacteria load? Perhaps there is really truth in that statement but not as it was intended.
I have developed several conditions as I aged that have been tolerable to live with, some for which I take medication. From all I have learned I know them to be TH1 diseases. Insulin Resistance, IBS, IC, Arthritis seeming to have both RA and Osteo Arthritis, and Interstitial Cystitis. The brain fog at times causes me wonder if I am going to be an early Alzheimer person. I don't think my husband believes that I am really speaking a true fear. People say that it is the aging process. Well at age 29 I wonder if that is true. Now at 55 yrs. I have more and more of the fogginess.
So why am I waiting? I would like a local doctor (stop laughing!!!). I just wonder if I will find resolution to the illness. I can't believe I am saying that! I hope for the cure and believe this is "the only game in town" as I have been. Having worn the Noirs for a few days, a cast off pair of my friend, I think I may have light sensitivity (are you chuckling again??). I hope to recover but fear the road to recovery. Shouldn't I fear the consequences of the illnesses? I also believe that I was lead to the shop to watch first hand the amazing return to life of a person with Lyme who has been on the MP for nearly four years.
The doctor I see currently and who has given the nice names to the symptoms with which I live in my body, does not want to do this "cutting edge" treatment, namely the MP. I gave her the Phase 1 information and the Bacteriality article on Heart Disease. Should I continue to try to work with her. She told me that the practice and she herself do not believe in PTLD. There is something about dusting off ones feet and moving on.
clscott
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Knochen
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Posted: Thu May 8th, 2008 14:50 |
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A doctor is no different than a plumber or a carpenter. You hire them to help you get well. If they are not up on the latest information, refuse to learn despite your needs, then fire them and find one that will work. You do NOT owe your current doctor any explanation - just get your records and walk. The days are long gone where you can just throw yourself onto the tender mercies of the medical community. Most practitioners are 20 years behind the times (my opinion).
What about the doctor your friend used? Any hope there?
Can't help you much on the spouse issue. The vast majority of humanity has, and always will, accept things "because that's the way it's always been". You come into this world alone, you die alone, and a lot of what you do in the interim you have to do alone as well. It's great if you can get your friends and family on board, but I've said it before and I'll say it again - Getting cured has nothing to do with a consensus; it's all about the bugs.
There was a time when anesthesia use during child birth was thought to be somehow immoral because birth had always been a painful thing and "who are we to change that"? Aging is perhaps just now beginning to be understood properly, and if we can avoid the ravages of old age, it's worth trying.
Insulin Resistance, IBS, IC, Arthritis seeming to have both RA and Osteo Arthritis, and Interstitial Cystitis.
That's normal aging? I seem to find them listed as diseases in my medical dictionary...
It sounds like you know what you have to do. The disease will grind you down and take more and more. Recovery is a long road too, but it's an uphill climb, and you'll break out of the clouds eventually.
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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expate
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Posted: Thu May 8th, 2008 15:59 |
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Knocken's advice sounds spot on.
It's great that you have actually seen the MP work firsthand. Your hesitance is probably just that you need to fully get your mind around how ill you are and the amount of comittment and time it will take to get well. Can you talk it out with your mentor?
Good luck with it.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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clscott
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Posted: Fri May 9th, 2008 11:04 |
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Knochen, yes the diseases will grind me to the ground. I am so glad that you said that fact. I feel limited in life by the presence of my physical and mental symptoms.
The doctor to whom my friend visits is 3 hours away. I know that is a short distance compared to what some, perhaps even you, travel. I ask myself what one does when one needs a local doctor. I ask myself why I would need that doctor. I wonder if the local doctor and the distant doctor would work together. What to do?
Thank you for the words of wisdom in your reply
clscott
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clscott
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Posted: Fri May 9th, 2008 11:17 |
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Odette,
Thanks for responding to me. The posting was the first I have done since initial question on the MP about clothing several years ago. I have not really considered myself sick. Yes, the MP really does work. Being included in something where people like oneself are involved is of great value.
clscott
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clscott
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Posted: Fri May 9th, 2008 12:43 |
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I take a digestive enzyme at meals that could cause problems. I will experience cramping and diarrhea after meals if not taken. Aside from avoiding the foods I know will cause a problem, is there something I can take or do? I know this product is not to be taken. I will not take it but, oh man.
clscott
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Knochen
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Posted: Fri May 9th, 2008 12:46 |
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The doctor to whom my friend visits is 3 hours away. I know that is a short distance compared to what some, perhaps even you, travel. I ask myself what one does when one needs a local doctor. I ask myself why I would need that doctor. I wonder if the local doctor and the distant doctor would work together. What to do?
And why does one need a local doctor? The MP doesn't require being in a doctor's office more than a few times a year. I see my doc about every 3 or 4 months. Prescriptions get called to my local pharmacy. I can have my blood drawn locally if the doc wants tests. There is simply no reason to paint yourself into a corner by limiting your options. If the difference between doing the MP and not doing the MP is a day of driving (or riding) 4 times a year, then it's a no-brainer.
You can certainly try to find a local doctor, but it's a tough road that's paved with frustration. The doc you've been seeing hasn't been able to help and doesn't want to investigate other options. So go where there is help. You need to set your priorities. You can't do anything else in life without your health, so it's worth some effort. You've got a serious disease and you need to give it the attention it deserves.
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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clscott
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Posted: Sat May 10th, 2008 00:09 |
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Knochen, you are "spot on", as Odette said in a previous post.
But what about the bacterial infections one may pick up along the way in life, like Strep. Will the pulsed antibiotics prevent or resolve the infection? I get hung up on Strep. The nasty Strep throat visited way to often when the children are at home. Now the grandchildren get the nasty affliction.
clscott
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Julia
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Posted: Sat May 10th, 2008 08:09 |
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CL,
Many members find their recurrent infections go away fairly soon on the MP. But if your doctor is convinced you need to treat an acute infection, please see I need to take a different antibiotic for awhile. What should I do?
For your stomach problems, there's a wealth of ideas in What should I do for my stomach and esophagus problem? A medical moderator answered another member concerning digestive enzymes, If it has been shown that you need the digestive enzymes, you may continue to take them. It is best if you try to do without ANY supplements, and allow your body to attempt to return to its normal balance.
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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clscott
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Posted: Sat May 10th, 2008 10:39 |
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Julia,
Thanks, for the direction. I have begun to read. I did read
cls
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Robertrr
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Posted: Sat May 10th, 2008 18:16 |
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Hi CLS,
Its really good that you've seen the "trials and tribulations" of a person on the MP. You know there are bad days...but at the end of the day (or a few years :-)), the good days really start becoming prevalent. I think that knowledge would help you handle the MP. I've been on the MP for 3 years and I have used a PCP who wasn't my MP doc (until recently, as I now have a PCP who is assisting me in the MP and which will mean I no longer have to travel). So, what you do is tell your PCP you're on the MP, you don't expect help from them for the MP but that you want them to know that you'll be coming to them for non-MP related items. But, while cognizant :-) be sure you have the list of non-mp meds printed out and ready for the time you may go in for something other than an MP IPR. Really, I could have done without a PCP during this time. I have not had the once a year bronchitis/sinusitus that I had pre-mp and I have used Doctor Blaney's thought process that "everything was an IPR until proven different". The brain fog you talk about was one of the first things to "go" (mostly gone within the first year for me) and I very very very seldom have that IPR anymore (can't remember the last time I had it).
Go get your life back!
Robert
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clscott
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Posted: Wed May 14th, 2008 12:10 |
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Robert, thank you for responding. I was thinking about the possibility of keeping the PCP and having a MP doctor. Knochen asked why I needed a doctor other than the MP doctor and gave me examples of how to manage. I have given that idea thinking also. I wonder what the PCP will do. She may tell me that she will not be a part of that plan. I will put that matter on the back burner to simmer for a wee bit and consciously tend to matters at hand, like living without disaster. The beauty of the simmer is that all the thoughts will blend and the course of action will be a clear and tasty. Yesterday at the shop, I put all the coin money into one partition. Nickles, dimes and quaters went into the dime partition. I separted all the coins by tender but put them all in one place. My friend laughed. I was and still am worried. The sad thing is that I approached the drawer wanting to make sure the money was correctly in place. I made sure all the bills were facing towards us in their proper day spot and then just did the silly thing with the coins. One must consiouly think in the fog so I will try to do the same when I remember. I better ditch the auto-pilot for a clearer day.
I do sincerely appreciate all the responses and support.
cls
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clscott
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Posted: Thu May 15th, 2008 12:09 |
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Is the th1 inflamation a response to bacteria and a th2 inflamation a response to virus, in simple terms?
Does the Benicar dock into the VDR so that D can not get in? That is the blockade, right?
I have read and read and am still reading. I have discussed these questions with my MP friend but I want to see it in writing. I want to bounce it off another person. I want to use those explainations for my brain and for people with whom I speak. I understand the MP in the thinking but I do believe I need to articulate also. I keep getting stuck on that vital information. I am just so afraid that I am not getting it correct.
cls.
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JRFoutin
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Posted: Thu May 15th, 2008 15:06 |
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CLS,
Question 1 about Th1/Th2. You will get a clearer picture of Th1 here:
What is the basic definition of Th1 inflammation?
It also contains this quote that helps you start to understand about the Vitamin D Receptors (VDR) and blocking processes:
"...The part which is not functioning is the VDR, or Vitamin D Receptor, which is responsible for transcribing between 1000 and 27,000 genes. The VDR is blocked by the intra-phagocytic bacteria, as they need to block it from producing the body's anti-microbial peptides, which kill invading organisms. When they block the VDR they also take out a stack of other important functions the VDR would normally perform."
..Trevor..
Does a defective gene cause Th1 inflammatory diseases?
Question 2 about the Benicar "blockade":
You might find it helpful to think of the body's VDR in a large group. If this large group were all healthy VDR, some would be occupied by 1,25D, and some by other natural ligands.
In Th1 chronic inflammatory diseases, pathogens create substances (eg, Capnine) to antagonize or "block" all the VDR so it cannot transcribe or trans-repress (trigger control mechanisms) to protect the body from unwanted pathogens.
In the diseased condition, the innate immune functions (body's police) are corrupted and poorly staffed, unable to effectively fight the pathogens or co-infections with control mechanisms. Left in this cycle of disease, widespread communities -- even ecosystems of pathogens with co-factors/co-infections -- take over the host.
(See Meg Mangin's Karolinska DMM2008 poster handout, page 1, lower left diagram to see the cycle of disease. Use the little magnifying glass to enlarge for easy viewing.)
At MP dosages --key here, as MP dosages are required-- Benicar displaces a proportion of the Capnine from the blocked receptors to activate the innate immune system, while a proportion of the receptors are still blocked and non-functional.
Over time, Benicar at MP doses slowly enables more and more of the innate immune system to remove pathogens, displace Capnine, and activate even more VDR -- thus breaking the cycle of disease so the host can get well. That is why the MP is considered a curative solution. It doesn't try to make someone feel better in a short period of time by masking the problem. It FIXES the problem instead.
Benicar's blocking action also keeps the process controlled (without killing the host), so at a rational pace, the body's police system (VDR/innate immune functions) sheds corruption and disease and again begins to protect the body from pathogens -- instead of allowing the disease process to continue.
Best to you clscott--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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clscott
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Posted: Fri May 16th, 2008 00:36 |
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Janet, thank you for all the information. Your explaination of the Benicar and the VDR illuminated the subject. I am still chewing on the TH1 inflamitory disease. I have made a list of words that I need to define for that " illuminated" understanding. I will keep reading.
cls.
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clscott
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Posted: Fri May 30th, 2008 11:36 |
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If antibiotics need to be used for an acute infection one is to stop the MP antibiotics. How long does one stop the MP antiobiotics before taking the antibiotics prescribed for the acute infection?
cls
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Dr Trevor Marshall
Research Team
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Posted: Fri May 30th, 2008 12:40 |
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One checks, and double-checks the basis for the diagnosis of "acute infection." More often than not, the physician has confused the symptoms of immunopathology for what he/she customarily diagnoses as an 'acute infection.'
Once there is positive culture confirmation then one seeks specific and personal assistance from the study-site nurse-moderators.
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clscott
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Posted: Fri May 30th, 2008 22:57 |
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Thank you very much Dr. Marshall!
cls
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clscott
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Posted: Sat Sep 20th, 2008 02:34 |
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Is there a need for pain medications during recovery on the MP?
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Jeannine R.N.
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Posted: Sat Sep 20th, 2008 06:16 |
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It depends on the individual. Please see this link PAIN CONTROL
There is about Pain medications at http://www.mp-lifestyles.org
Take care, Jeannine
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CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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