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Sheila-Fl
Member
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Posted: Mon Sep 15th, 2008 03:14 |
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Hello - I am lost here. Have been ill for 26 years and probably going to try protocol. Just wondering anyone out there with long standing instant onset Fibro/CFS/CfIDS. If so, how is the progress?  Sheila
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Julia
Advocate (on leave)
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Posted: Mon Sep 15th, 2008 09:00 |
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Hi Sheila, and welcome!
Here are some links to introductory reading about the Marshall Protocol. I hope we can make you more hopeful as you read of the good progress of many members with the same symptoms as you.
"What is the Marshall Protocol?"
Simple Explanations
(filelink) CFS success stories
Success Stories - inc. many fibromyalgia
D-metabolites tests
Hypervitaminosis-D Symptoms
How inflammation overpowers the immune system - Dr Marshall's comment on instant-onset chronic disease (if you can follow it  )
Bacteriality - a readable blog-style website by one of our members, with science-made-easy articles, an introductory 90-minute video, and interviews with recovering patients - an excellent introduction to the MP.
MP Memberships Temporarily Closed.
Please ask any further questions here at your own personal thread 
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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Sheila-Fl
Member
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Posted: Mon Sep 15th, 2008 12:29 |
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| Thank you Julia for your input. I have been to most of these but I still would like to hear from people that have had at least 20 years or more of illness and how ithe protocol is going.
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Julia
Advocate (on leave)
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Posted: Mon Sep 15th, 2008 15:23 |
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Did you see these links...?
Catlady: CFIDS 25+ yrs : getting my life back more and more, and my parents, both in their early 70s as well.
Moxie: CFS FM: "It is 25 years in October since I became ill and despite thousands of dollars of treatment, I have NEVER experienced the stamina and endurance and fast recovery that I have now."
Janicew: FM/ME: I am getting better!! After decades of declining health
Ken Faucher CFS 20 years: Fatigue/weakness – Incredibly improved. Muscle/joint pain – Gone gone gone!
Prugg21 Pam: MCS/CFS/FM 22+yrs: much more energy, 90% and way less weakness in muscles
Tom: CFS-18years: I am in a different place, a better place, another level
Sydney Chris: no more CFS... just over 20 years of CFS & just over 20 months of MP
ShrnHml / Sharon CFS MCS EBV MVP TMJ PCOS 28 yrs. Vast Improvements
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Always consult a physician
Essential Info; FAQ; Julia's story
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Sheila-Fl
Member
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Posted: Mon Sep 15th, 2008 15:41 |
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| Thank you soooooo much. I just made an appointment at the Tequesta Family Practice for next Tuesay. I am looking forward to getting started.
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Sheila-Fl
Member
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Posted: Tue Sep 16th, 2008 21:30 |
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Hello, I am new and was checking out recipes and saw many things tht contain hidden sources of MSG. Dr. Russell Blaylock can be found on line with the entire list and he refers to these as excitotoxins. I personally have a terrible reaction to these things as I am sure many of you do. For example some of the hidden sources are Malt, boulion cubes, Hydrolyzed vegetable protein, yeast extract, Sodium Casinnate. Splenda is not an MSG problem but it is in the same category and quite toxic for most of us, maybe all of us. I just felt that it was important to point this out becasue sometimes when we thin we are having a herx it could just be a reaction from any of the above. Sheila
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Julia
Advocate (on leave)
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Posted: Wed Sep 17th, 2008 11:58 |
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Our Foods Tips topic has a section on MSG and Splenda at this link. You'll see that Dr Marshall considers Splenda to be the safest of the artificial sweeteners.
Thank you for the warning that MSG can be in many things. All the more reason to avoid convenience food and eat real food!
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Always consult a physician
Essential Info; FAQ; Julia's story
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Sheila-Fl
Member
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Posted: Thu Sep 18th, 2008 00:43 |
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Julia, Thank you for the MSG site. It was a great list for MSG hidden sources. The Splenda is truly a problem for me though. My body pain goes through the roof and I get a bad headache. What about using Stevia? Is that a problem for us.
Sheila
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Julia
Advocate (on leave)
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Posted: Thu Sep 18th, 2008 01:30 |
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| Sheila, click on the blue words 'at this link' in my last post, and you'll see that Dr Marshall says Stevia is okay. Please use the search box on the main site to see if you can find the information you need
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Always consult a physician
Essential Info; FAQ; Julia's story
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Sheila-Fl
Member
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Posted: Fri Sep 19th, 2008 03:27 |
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On Tuesday I will see a doc on the MP list. Just wondering if anyone has any suggestions to make sure this goes well. I am quite excited to be starting on this road and a bit nervous. So any input would be most appreciated. I have done my homework and truly understand the protocol. I am in the process of completing the download. Thank you all in advance for any help on this matter.  Sheila
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Julia
Advocate (on leave)
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Posted: Fri Sep 19th, 2008 07:49 |
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| Sheila, even if it's a doc on the list we've given you, they may not know as much as you would hope about the MP. So please have a look at Suggestions To Get Your Doctor On Board With the MP. Good luck!
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Always consult a physician
Essential Info; FAQ; Julia's story
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Sheila-Fl
Member
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Posted: Fri Sep 19th, 2008 15:18 |
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Will the antibiotic on the MP take the place of the Amoxycillan when having dental work. 
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Julia
Advocate (on leave)
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Posted: Fri Sep 19th, 2008 15:54 |
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Please keep all your questions together in your own thread for continuity.
It's important to learn to use the search facilities on the main site to see if you can find the information you need. How to do a site search
Using Google site search gives you two important links on dental work for its first two hits, and the third hit is about taking a different antibiotic for a while. The same information can be found by finding 'dental' in the FAQs Easy Finder & the ABC of MP - it's a good idea to save this in your Favourites.
But as always, let me know if you're still having difficulty finding the info
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Always consult a physician
Essential Info; FAQ; Julia's story
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Sheila-Fl
Member
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Posted: Sat Sep 20th, 2008 02:00 |
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I have been reading about the dairy products and I do not understand why the one's on the OK list are OK. If all dairy products are made from milk and milk most likely had Vit. d in it how do we know that the cheeses, yogurts, etc. are OK?Sheila
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Jeannine R.N.
Research Staff
| Joined: | Wed Oct 17th, 2007 |
| Location: | |
| Posts: | 50 |
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Offline
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Posted: Sat Sep 20th, 2008 06:23 |
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The amount of naturally occurring Vitamin D in dairy products will vary from product to product. It is relatively small compared to the products that are fortified. Yet consuming volumes of milk, for example, would result in a significant Vitamin D intake. Therefore we recommend the use of dairy products that have not been fortified with Vitamin D - in moderation only. This is taken from the link Dairy Products.
Unless, you prove to be having extreme difficulty reducing your 25-D, the focus of avoiding vitamin D foods should be on the big offenders.
Avoiding vitamin D from food and supplements is an essential aspect of MP. includes natural sources, such as egg yolks, fish, fish oil and fortified dairy products. Also, it is wise to read all labels, as in some countries, you will see that Vitamin D is added to many foods… including some brands of orange juice and bread.
There also is good discussion at http://www.mp-lifestyles.com.
It seems hard at first to get the food think down but after a couple of months is becomes a habit
Take care, Jeannine
PS if you are worried about your calcium intake please see Don't I need to take a calcium supplement to prevent osteoporosis?
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CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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Sheila-Fl
Member
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Posted: Sat Sep 20th, 2008 13:15 |
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| I don't believe you understand my question. I have no problem illiminating dairy. My question is this: How can we be sure that a manufacturer is not using fortified milk to begin with when they make a yogurt or any other dairy product. The law does not require them to list ingrediants that are in the base ingrediants. They only have to say Vit. D if they themselves add it in. It is like the canned tuna situation. The broth in the tuna has MSG, but the manufacturer does not have to list it. I have heard that there are advocate groups in Washington that have been trying to get this problem cleaned up, but so far I don't see any change. So let us assume that the Vit. D is in the milk that they use to make the cheese but becasue of the law allowing them to do so they do not list it on package. Is it then a problem with the MP?
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Julia
Advocate (on leave)
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Posted: Sat Sep 20th, 2008 14:34 |
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See Dairy Products - the link that Jeannine gave you, which explains,
The amount of added Vitamin A is an indicator of unlabeled added vitamin D
(This is the third hit in a google search for 'dairy' on the MP site. Please use the search facilities to see if your question has been answered )
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Always consult a physician
Essential Info; FAQ; Julia's story
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Sheila-Fl
Member
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Posted: Thu Sep 25th, 2008 02:09 |
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Is it possible to E-mail a person on the original study. She lives near me and her health issues are very similar to mine. Her name is Lori LH1953 in Wellington, Fl.
Thank you - Sheila
Last edited on Thu Sep 25th, 2008 02:10 by Sheila-Fl
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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Chris
Advocate
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 200 |
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Offline
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Posted: Thu Sep 25th, 2008 13:22 |
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Sheila,
You can always PM somebody, or look on their profile and see if they made their email public.
You can find their profile by going through the members button at the top of each page.
Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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Sheila-Fl
Member
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Posted: Thu Sep 25th, 2008 13:30 |
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Hello,
I am blocked from the original study site. I cannot open anything that has to do with personal information. I am on the other site. I tried and it would not open.
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CFS CFIDS Fibromyalgia Thyroid Nodule MCS IBS IC Start PH1 11/15/08, 25D-39, Klonopin, Armour Thyroid, Affrin, Eye Drops, Ambien, Noirs, Covered UP, Low Light, Indoors most of time. Sick for 26 years following C-Section 7/4/82
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