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curemyfriendsth1
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 Posted: Thu Oct 30th, 2008 02:19

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I'm not quite clear on whether preparation is needed for the 125d test. Probably because I've taken in so much information over the past week.

Should you reduce you 25d first? If so, should you test your 25d until it's at a low enough level before testing the 125d? Thanks.



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depression, allergies, Raynaud's, carpal tunnel, daily headaches, stopped up ears, tinnitus, prostatitis, hypertension, psoriasis 125D48 Ph1no 25D38(Nov08) Citalopram, Lisinopril
curemyfriendsth1
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 Posted: Thu Oct 30th, 2008 03:08

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I started researching the MP about a week ago in hopes of finding a treatment for my bipolar friend who has had little success with conventional treatments.

Now I'm thinking this might be my problem. I have many symptoms that after my research seem related or that I've seen mention of in the forums or literature plus several conditions that are listed in the diseases being treated. Are any of these symptoms not indicative of TH1 disease? I'm 36 and male.

Major Depression - diagnosed, currently taking SSRI to manage, 21 years
SAD - not diagnosed, but I always feel significantly more depressed in the winter even on the SSRI
Allergies -  very severe, diagnosed, trees, weeds, mold, dust mites, currently in 2nd year of shots, have had allergies my whole life
Chronic prostatitis - was diagnosed with prostatitis, round of antibiotics helped but it's still there all the time, 11 years
Raynaud's - not diagnosed, my mom's is diagnosed and I have the same symptoms
Cardiac Arrythmia - went away 6 years ago when I started SSRI though recurs briefly sometimes
Migraines -  went away 11 years ago for seemingly no reason
Back Pain - this one made me laugh, I thought everybody had that
Sinusitis - has gotten less frequent with age
Vertigo - cleared up a couple of years ago when I started allergy shots
Other symptoms - brittle teeth with no enamel on tops of molars, ringing ears though hearing tests are perfect, chronic stopped up feeling in the ears for 8 years, when I skip SSRI I feel aggresion and depression returning, fatigue (was at its worst 15 years ago), pain and tingling in wrists and feet that I have always assumed was due to repetitive stress injury, daily headaches, muscle and joint stifffness that I assumed was due to getting old, high blood pressure, insomnia, I have taken mountains of antiobiotics in my lifetime for strep throat, bronchitis, and sinus infections

I'm not suffering as much as my bipolar friend or as much as many of the others I've seen in this forum, but I have been amazed this week to find out how many of my symptoms have turned up in my research of the MP.

Last edited on Thu Oct 30th, 2008 03:33 by curemyfriendsth1



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JoshR
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 Posted: Thu Oct 30th, 2008 04:04

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Welcome!

All of your symptoms can indeed be caused by Th1 disease. And as I'm sure you are already aware, it can also cause many neurological conditions, including bipolar.

You may like to read: Is the MP an Applicable Treatment for my Disease?
The way to know for sure is with the D-Metabolites Tests. If you post the results according to How to post your D-metabolite Test results, a medical moderator will analyse them for you.

There is no need for any particular preparation before having your D levels checked.

If the D-Metabolite test results are inconclusive (which can sometimes happen, particularly if the sample is not handled exactly right), you can also try a therapeutic probe. What is a therapeutic probe?

Please familiarise yourself with the information on the main study site, starting with:
What is the Marshall Protocol?
Important Safety Warnings About the MP
PHASE ONE of the Marshall Protocol

And if you can't find the info you're looking for, just ask here.



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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
curemyfriendsth1
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 Posted: Thu Oct 30th, 2008 04:40

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Is there any information on the science behind how TH1 disease affects allergies to pollen, mold, and animals? I've only found mention of allergies here and there in posts. And since those allergies are related to the immune system, it seems given all the other information I've read that they would be affected.

But when I tell my allergist I'm discontinuing shots to treat a bacterial infection, he's going to tell me I'm an idiot. Unless I have some documentation to hand him perhaps.



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depression, allergies, Raynaud's, carpal tunnel, daily headaches, stopped up ears, tinnitus, prostatitis, hypertension, psoriasis 125D48 Ph1no 25D38(Nov08) Citalopram, Lisinopril
natalie17
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 Posted: Thu Oct 30th, 2008 05:00

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Hi Curemyfriendsth1 - (and I find it so admirabkle you are researching for your friend),

Basically the science behind th1 disease is all the same, and depending on your 'pea soup' you end up with different symptoms and therefore, different dx's.

You might like to have a read of -

Is it an allergy or is it an Immune response?
- but some of that may be more applicable to those already on the MP.


You may like to look a bit more at the science behind the MP;

The Marshall Protocol -- simple explanations

What is the basic definition of Th1 inflammation?

How does Th1 inflammation develop? What is successive infection?


As well as watching the video of Dr. Marshall's recent presentation at the 6th International Congress on Autoimmunity in Porto, Portugal.


I also recommend you frequently read Amy Proal's http://www.Bacteriality.com site. A good place to start is her recent presentation in vimeo (movie) format. Here is Amy's description and the link:

"In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 89 minutes."

http://bacteriality.com/2008/05/07/mpintro/

Take your time reading - I understand it's a lot, take care and let us know if we can help with anything else,
Natalie



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Julia
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 Posted: Thu Oct 30th, 2008 10:37

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I think the curing of lifelong allergies came as a wonderful surprise to many of us MP old stagers.  It seems to be confirmation that the MP medications are not the main bug-killer, but the re-activated and empowered immune system, now able to do its job properly.  Which is why the MP is working for such a wide range of diseases :):)



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curemyfriendsth1
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 Posted: Sat Nov 1st, 2008 00:32

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Is there anyone here that's attempting the MP mainly for bipolar disorder? Or with no other major problems than bipolar? I've heard that's being tried in the main study, but I was wondering if anyone here is doing it and what their progress has been.



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Julia
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 Posted: Sat Nov 1st, 2008 00:54

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Bipolar rarely, if ever, comes with no other major problems, but if you put bipolar in the search box at the top of the page you'll find the folks who are doing the MP for it.

MENTAL ILLNESS - esp. the section Bipolar: personal experiences on the MP

DrMo: Mike: Bipolar/ME: Life is great when you are not depressed and fatigued.



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Essential Info; FAQ; Julia's story
curemyfriendsth1
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 Posted: Sat Nov 1st, 2008 03:20

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So I guess I should be asking my friend if he has any other symptoms that he hasn't told me about. Or possibly he has not developed another serious problem yet. He just read my emails I sent about the MP. He thought it was SPAM because they were telling him there might be a cure.

Does Dr. Marshall or anyone else who believes in the MP think there might be other causes for bipolar disorder other than TH1 disease? So might some people have biploar symptoms because of TH1 disease while others have them for other reasons?

What's ME? I can't find that. Thanks.

Last edited on Sat Nov 1st, 2008 03:55 by curemyfriendsth1



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depression, allergies, Raynaud's, carpal tunnel, daily headaches, stopped up ears, tinnitus, prostatitis, hypertension, psoriasis 125D48 Ph1no 25D38(Nov08) Citalopram, Lisinopril
JoshR
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 Posted: Sat Nov 1st, 2008 04:33

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ME is myalgic encephalopathy or myalgic encephalomyelitis, which are alternative names for CFS.

I have no idea whether there may be other causes for bipolar disorder, but the important thing is that your friend can tell whether his case is caused by the Th1 pathogens by testing his D-metabolites and/or using a therapeutic probe.



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curemyfriendsth1
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 Posted: Mon Nov 3rd, 2008 23:12

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Well, sure enough my friend has back and leg pain severe enough to keep him from going to work or even getting out of bed sometimes. I've had some long talks with him and he'll be investigating the MP. I got my blood drawn for the d-metabolites test today from a very skeptical doctor. Thanks to the information on this site and the marshall protocol site, I was prepared to answer every one of his skepticisms. We'll see. I know those of you who have been on this treatment for a while are confident in it's validity, but I'm still in a state of disbelief that there may finally be an explanation for everything I have suffered and for the things I'm seeing some of my friends suffer from. I hope you all are right. The nurse today said "I hope everything comes out normal." I smiled at her and thought to myself, "I hope it doesn't because this is the first time I've ever found an explanation for what's been happening to me."

One question, the doctor brought up the point that a certain percentage of the population is going to have high 125d regardless of whether there's a disease causing it. I've seen in the section of this site where you post your test results language like "it would be expected that x% of people would have a lower result than this". I told the doctor about that and that possibly there are statistics being used that addressed this skepticism of his. Is that the case? And where can I find these numbers?

Last edited on Mon Nov 3rd, 2008 23:14 by curemyfriendsth1



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depression, allergies, Raynaud's, carpal tunnel, daily headaches, stopped up ears, tinnitus, prostatitis, hypertension, psoriasis 125D48 Ph1no 25D38(Nov08) Citalopram, Lisinopril
Julia
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 Posted: Tue Nov 4th, 2008 00:36

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The Merck Manual of Diagnosis and Therapy gives 45ng/ml as the highest healthy level of 1,25-D.  For further details see How to post your D-metabolites tests results.



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curemyfriendsth1
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 Posted: Tue Dec 2nd, 2008 21:56

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I've seen that beer and fish sauce are on the forbidden list. But I'm seeing that they contain no vit D when I research their nutrition info. Is the D so low that it's not being reported? And I guess someone starting the MP should avoid any D no matter how slight? Is wine OK? It's fermented with yeast like beer. And are avacados OK? Avacado oil is on the forbidden list, but when I research nutrition info on avacados no D is listed. And I'm unclear on whole grains and whole wheat. I've been eating whole grain bread and cooking with it for years now. What about those?

Last edited on Tue Dec 2nd, 2008 22:11 by curemyfriendsth1



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markt9452
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 Posted: Wed Dec 3rd, 2008 00:54

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Is the D so low that it's not being reported?
No - It's not always on the label.

I guess someone starting the MP should avoid any D no matter how slight?
Probably a good idea.  Within reason.

MY rule is - When in doubt  - don't eat/drink it until I can be sure and if I want to find out bad enough I contact the manufacturer.

Also if it has a health claim on the label  - "Good source of Calcium" for example -
I don't eat it.



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curemyfriendsth1
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 Posted: Thu Dec 4th, 2008 09:26

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Thanks. That helps.

What about whole grains and wine? Or foods made with whole grains like pasta? If beer's got D from the grain then what about everything else with grain? I've spent about two years adjusting my eating habits away from the junk it used to be, and now it looks like I've been eating something high in D at every meal. I've been putting bulgar wheat in soup and chili. Is whole grain rice safe?



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markt9452
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 Posted: Thu Dec 4th, 2008 10:09

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It seems to be different depending on where you live.  Here in Canada all the wheat flour is supplemented so I use spelt flour from the U.S. instead.

Some products are supplemented and some are not.  Sometimes it's on the label and sometimes it isn't.  It can be hard to tell.

I try and keep the carbs low but I still eat my fair share.

I really am not sure about the fermentation issue so I stay away from that stuff to - just in case.

The other issues are irradiated food and supplemented animal feed.  This can increase the D to.

Last edited on Thu Dec 4th, 2008 10:11 by markt9452



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seanlane
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 Posted: Wed Dec 10th, 2008 00:25

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Yo....whats up there keyboard man............

I need to learn how to post links....but until I do .....you can google "VDR NUCLEAR RECEPTOR IS  KEY TO RECOVERY FROM COGNITIVE DYSFUNCTION"

and read the paper published in 2008.

This is the first published paper that I know of that covers case studies where a variety of mental disorders receded.

PeAcE

p.s.. My bipolar disorder is barely evident......only when I herx....and it is mild at that...which just confirms to me that cytokine storms are the cause of mood swings and serotonin depletion

Last edited on Wed Dec 10th, 2008 00:29 by seanlane



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Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08]Armour/Cytomel Noirs avoid sun
curemyfriendsth1
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 Posted: Wed Dec 10th, 2008 22:25

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I'm wondering if I should go ahead and start the MP. My 25d was 38 about 5 weeks ago. I read that I don't have to get it down to the theraputic level to start, but would I just be wasting my time starting now because my immune system may be suppressed? I would have liked to start now since it's winter and it's easier to stay out of the sunlight. I have kids and don't want to be having light sensitivity issues this summer if at all possible. I've been off D for about 6 weeks. I've read I should retest after 3 months. My vertigo has come back after being gone for two years and I have patches of what must be psoriasis that I've never had before. I'm otherwise able to function at work and with the kids. Should I start or wait until my 25d is low? Is it possible to make progress on an immune system that's suppressed with 25d?

 

Last edited on Wed Dec 10th, 2008 22:34 by curemyfriendsth1



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depression, allergies, Raynaud's, carpal tunnel, daily headaches, stopped up ears, tinnitus, prostatitis, hypertension, psoriasis 125D48 Ph1no 25D38(Nov08) Citalopram, Lisinopril
seanlane
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 Posted: Thu Dec 11th, 2008 06:58

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My light sensitivity was very intense but only lasted 3 months......people are different though.

Knowing what I know now I am glad I started instead of waiting for the winter....I started at the beginning of summer....you can also read about my concerns which were similar to yours.

PeAcE

Sean

 



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curemyfriendsth1
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 Posted: Thu Dec 11th, 2008 08:06

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Sean is the guy that introduced me to the MP. He casually said one day, "I'm not bipolar anymore", and went on with our discussion, and I was like, "Wait, tell me about not being bipolar anymore."

Yeah I want to start now unless it's going to be a wasted effort because of my high 25d. Can progress be made with a high 25d? If the answer is you just gotta try it and see if you herx because every case is different, that's fine. I really want to try to get light sensitivity issues out of the way if possible before summer. I know there's no guarantees, but I'm trying to make a best guess on this. It's so easy to control light exposure right now in Memphis.



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