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Sheldon
Member
| Joined: | Sun Oct 19th, 2008 |
| Location: | Vancouver, Canada |
| Posts: | 6 |
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Posted: Mon Oct 20th, 2008 02:26 |
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I have never heard of MP until I came across it by doing a random search. For at least ten years I have experienced flu symptoms an average of 1/2 the year, each year. I would go into healthy phases where I would feel fine and like a light switch move into a sick phase and then just as suddenly back to my healthy phase. In Nov. 07 things changed and I started to develop many of the symptoms of CFS. I have felt sick most of the time since then. I have gone from kayaking with Orcas each year and working out every 2 days when I was in my healthy phase to being happy if I could walk for 20 minutes without getting dizzy or exhausted. The only thing that showed up on my blood tests of any signifigance is that I have consistently shown low IGM (immunogobulins). So far no one can tell me what that actually means. I also have been increasingly experiencing bouts of gout and have had 2 kidney stone attacks about 2 years ago. I'm wondering if MP might help gout as well. I have tried the following:
Vit C IV's
Ozone IV
Dr. Beck's protocol
Dr. Wilson's Low body temperature Protocol
Accupuncture
Chinese Herbs
Classical Homeopathy
A huge list of high quality supplements
I've had a brain CT scan, ECG, lung Xray, blood pressure, all normal.
So far nothing has worked and I'm feeling progressively worse.
I've skimmed through most of the literature on MP and sent some of the information to my MD. I'm hoping that the antibiotics needed are available in Canada (probably under another brand name)
When I look through the restricted food list I haven't eaten 95% of those foods in the last year and have not taken Vit D suppliments (but still have worsening symptoms).
Any comments that would help me decide to do the MP would be greatly appreciated.
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natalie17
Advocate
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Posted: Mon Oct 20th, 2008 05:59 |
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Hi Sheldon,
Welcome. Sorry to hear about your ill health. Your story is a very familiar one around these parts (tests coming up normal, no one being able to tell what's wrong).
You didn't say what you have sent to your Doctor, but to get an existing Doctor on board with the MP, I usually suggest reading and passing on the relevant information from the following to him/her -
"What is the Marshall Protocol?"
Essential Information About the Marshall Protocol
Papers for Physicians
Suggestions to get your doctor on board with the MP
Letter of introduction for your MP supportive doctor
Phase 1 guidelines - Initial first step to discuss with your Doctor.
As well as suggesting your doctor join the Professionals' Forum
Also the consent to treatment form may help your Doctor feel more comfortable.
There are people doing the MP in Canada so the medications are available.
If your Doctor is not willing to support you on the MP, you can request a Doctor's list for your area in REQUEST FOR DOCTORS LIST (click here).
To determine if you have th1 disease/the Marshall Protocol is the right treatment for you, there are tests -
D-metabolites tests
(you can get help understanding them here, see How to post your D-metabolites tests results)
Your supportive Doctor may also like to do a therapeutic probe if the results of the D-metabolites tests are not convincing enough for him/her.
What is a therapeutic probe?
I assume you are off all the supplements and alternative treatments now, but just incase -
Why do I have to stop my alternative treatment and avoid most supplements?
I hope this helps, let us know if you'd like any further information.
Take care,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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Sheldon
Member
| Joined: | Sun Oct 19th, 2008 |
| Location: | Vancouver, Canada |
| Posts: | 6 |
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Posted: Mon Oct 20th, 2008 06:58 |
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Hi Natalie,
Thank you for your reply. I'll hear from my doctor soon and if he doesn't do it I've got another one I'll try. I will ask for a list. Hopefully there is one in Vancouver. We don't get a lot of sun here in the winter so I guess it's a good time to start. I still haven't decided yet but will read more testimonials.
I read your experience and was blown away at your courage to take on the MP at your age. It's great that you've come so far and I wish you all the best in your healing. I wouldn't be surprised if you write a book about your experience one day.
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natalie17
Advocate
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Posted: Mon Oct 20th, 2008 10:51 |
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Thank you Sheldon 
Best of luck
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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Sheldon
Member
| Joined: | Sun Oct 19th, 2008 |
| Location: | Vancouver, Canada |
| Posts: | 6 |
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Posted: Wed Nov 12th, 2008 05:20 |
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Hi Natalie,
I hope your doing well. I copied the recent correspondence below from the Test results section to see if anyone has any feedback or comments on the information below. The main question I have is should I do the tests again which would be easier at this point but maybe not accurate again or do the Therapeutic probe. Rather than risk giving me "medical advice" I would appreciate comments from anyone on what they would do. Thanks, Sheldon.
CFS- For 1 year so far. 10 years of constant Flu's. Extreme Exhaustion,cold sweats,dizzy occasionally, digestive problems, Occassional Gout, Kidney Stones 2 years ago. Consistent Low IGM.
Test date: Oct. 30th,2008.
Lifelabs did the test according to instructions
My diet has been pretty much Vit. D free for the last year with the exception of a product called Vega which contains D-pantothenate and ergocalciferol which I have taken on a regular (every 2 days) basis. The amount of both Vit. D's per serving is 25% of RDA.
Supplements: huge list but none with Vit. D. Some small amounts of folic acid. I haven't taken any supplements other than digestives enzymes and Hemp seed oil for about 4 months.
No Prescription Meds.
I haven't been avoiding sun/lights. Haven't started program.
No Benicar, ARB,ACE.
Results:
1,25D: 33.3 pg/ml
25D: 12.4 ng/ml
Thanks, Sheldon.
Sheldon,
Your 1,25-D is slightly above average at 33.3pg/ml. The population average is 25-29 pg/ml and it is above-average 1,25-D levels (hypervitaminosis-D) that cause many troublesome symptoms. Since you report many troublesome symptoms, either the lab result is in error or your paracrine (tissue) level of 1,25-D is much higher than the measured serum level. This sometimes occurs when the inflammation is in tissues not well perfused by blood (for example nerves, joints).
Your 25-D of 12.5ng/ml is low for someone who has been supplementing with vitamin D.
High levels of 1,25-D inhibit the conversion of vitamin D into 25-D resulting in a low level of 25-D. Your 25-D of 12.5ng/ml is quite low for someone who has not been avoiding ALL sources of Vitamin D. This suggests that your actual 1,25-D is high and the measurement of 33.3pg/ml could be a false low. The likely reason is sample mishandling.
Because your results are ambiguous, you have the option to retest (which isn't necessary unless Doc insists) or to do a therapeutic probe which is our recommendation.
Most supplements and many medications must be avoided on the MP.
Our clinical study is closed to enrollment, so you would need to work even more closely with your physician.
best, P.B.
Hi P.B.,
Thanks for your reply. After reading about the therapeutic probe I will probably do it. How long should I do it for to determine if there is inflammation? From what I have read if I am going to react I should notice something fairly soon after taking Benicar and/or the antibiotic if there is inflammation. Is this correct? If I develop light sensitivity would that be a sign of Th-1 inflammation? Is it essential that I avoid all daylight and wear NOIR glasses during the Therapeutic probe considering that I am looking for a reaction? I am assuming that, generally speaking, if I do not have Th-1 inflammation then I will not become light sensitive.
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