| Author | Post |
|---|
roonie
Member
|
Posted: Thu Aug 21st, 2008 18:39 |
|
Hi..i have been on the old board but never went ahead with the MP due to not finding a doctor near me and desperate financial woes. I have discussed the MP with my doctor. He has given me minocycline but refuses to give me a prescription for Benicar. I know i am not starting properly..but i am desperate. I have been sick for so so long (1981).I was clinically diognosed with lyme in 06'. I have responded to the lyme doctors abx treatment but am sliding backwards once again tow years later. I have asked my doctor for a 125-d test. My 25d is 45. The 125d test came back incorrect as they never stored the blood correctly.They refuse to retest again (like its my fault?) I had to gain "special permission" to have the test done the first time around. If i cannot find a doctor in my area ..i have no choice but to do the MP to the best of my ability. My questions are...................
Will the MP work if i do everthing but the Benicar?
will i get help from this board if i cannot gain everything needed to start the MP?
I have started the mino off and on for about 2 months now and am also have obtained and wearing the glasses as well. I am getting sicker and sicker without Benicar. Does this confirm that i have a th1 disease?
|
Dr Trevor Marshall
Research Team
|
Posted: Thu Aug 21st, 2008 19:14 |
|
There is no way the MP will work unless each of the major steps are implemented, at once. That is the only way the Science will all come together and induce recovery.
If you go ahead without adequate supplies of Benicar you are running an extreme risk that Immunopathology will damage your organs, especially the heart. There is no way you want to do that.
If you have a diagnosis of chronic Lyme then you definitely have an immune system weakened by the Th1 pathogens.
Look, There is a special session at the 6th Intl Congress on Autoimmunity in two weeks time specifically discussing the MP Science and Clinical results. This is in addition to all the papers we have already published in 2003, 2004, 2005, 2006, 2007 and 2008. Once the videos and transcripts are online from the upcoming session, any physician who will not prescribe the drugs is not worth persevering with. Maybe it will be enough for Doc if you print out the upcoming session details and the abstracts 
See the details here: http://www.marshallprotocol.com/forum39/12376.html
..Trevor..
|
roonie
Member
|
Posted: Thu Aug 21st, 2008 20:09 |
|
My cousin knows of a good friend that could also not find a doctor to treat her with the MP. She did the diet,avoidance of vit D and the abx and claims she is cured. She had Sarc.I can check one more time with her but , i am sure this is what she did.
i am awaiting the doctor list for which i have requested from this site. I asked for a list a couple years ago. I got Dr. Blaney. He was and is too far away for me to travel. I did email him. He explained that he knew of a female doctor in my area and he was to give me her name. That was the last i heard. I never did get her name so i am unsure as to what happened there. I do understand that Dr.Blaney is very , very busy.I will wait for the new list to come.
|
Dr Trevor Marshall
Research Team
|
Posted: Thu Aug 21st, 2008 20:29 |
|
It is very tempting for anybody with an incurable disease to declare "cure" whenever they start to feel a little better. But the underlying disease process will lead to relapse, generally in about 3-5 years.
|
roonie
Member
|
Posted: Thu Aug 21st, 2008 20:44 |
|
thats good to know . I will tuck that in my back pocket. Now tell me...did i read somewhere that the MP will bring people to a curative state? I may sound nieve....but i really dont remember what i heard. What exactly does curative state mean. Do all MPers slide backwards into poor health again at some time or is the MP a real cure?I am very curious to know now!
|
Dr Trevor Marshall
Research Team
|
Posted: Thu Aug 21st, 2008 20:55 |
|
If you can define "health" for me, as it is understood by a person with chronic disease, then the job of defining "cure" becomes much easier. Chronic disease develops gradually over a lifetime, and most patients have no concept of what "health" is really like
The MP eliminates all objective signs of physical disease from bloodwork, in addition to all neurological manifestations. It returns memory, cognition, energy. I suspect that any definition of "cure" would contain a subset of those factors
|
roonie
Member
|
Posted: Thu Aug 21st, 2008 21:28 |
|
is it any wonder then..that insurers will not cover the costs of the MP.
Insurers and mainstream medicine never want to find a cure for anything..they want to treat.
Is it any wonder then that the MP will be met with resistance...for you will change the world .....forever.... and we thank you for this. Now if only i could find a doctor willing to listen and believe!hehe
|
JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
| Status: |
Offline
|
|
Posted: Thu Aug 21st, 2008 23:05 |
|
Roonie,
You may appreciate:
Amy Proal's http://www.Bacteriality.com site. A good place to start is her recent presentation in vimeo (movie) format. Here is Amy's description and the link:
"In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 89 minutes."
http://bacteriality.com/2008/05/07/mpintro/
Some idea of the seriousness of immunopathology, and why your doctor should take it seriously too:
Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol
Safety warning Other details you might read:
Will the Marshall Protocol treat co-infections?
Why isn't the MP being used by more doctors?
Why won't my doctor consider the Marshall Protocol? Why Doesn't My Doctor Know This? Consensus science, Medicine is a business.
Letter of introduction for your MP supportive doctor Best to you Roonie--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
|
roonie
Member
|
Posted: Sat Aug 23rd, 2008 18:13 |
|
| I have sent you a pm in hopes of getting some help.
|
Julia
Advocate (on leave)
|
Posted: Sat Aug 23rd, 2008 18:25 |
|
Please note Board Policies:
Do not send your questions to Dr. Marshall or the Moderators by email or private message. Ask all of your questions in your personal thread. This is beneficial for all as others reading will gain from the answers. (If your question is of an intimate nature that you would find embarrassing to post, you may send a PM to a Moderator.)
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
|
roonie
Member
|
Posted: Mon Aug 25th, 2008 17:09 |
|
| I am in Canada. Does anybody know if there is a way to obtain Benicar without pay due to severe financial strain?
|
roonie
Member
|
Posted: Mon Aug 25th, 2008 17:13 |
|
| Just a question to something i found to be very strange. I began to do a mino probe some time ago. It seemed to me that every time i went to a different area, like a different city or geographical location, my herx or symptoms began to be worse. Any expeirience this...or do i have something else going on here? I should also mention that I also used to feel different in different geographical locations years ago when i first began to get sick.
|
Julia
Advocate (on leave)
|
Posted: Mon Aug 25th, 2008 17:47 |
|
Roonie,
Please go to http://www.MarshallProtocol.com and put 'benicar canada' in the search box. The eighth result should give you relevant information
When you say you did a mino probe, can you be more specific? How much were you taking and were you on any other meds?
Perhaps you were getting more daylight in some places than others. Perhaps your diet was different, or your sleep pattern, or some other element of lifestyle. There are also many environmental factors that can cause a change in symptoms in different places.
Julia 
PS Please keep all your questions together here in your own personal thread for continuity.
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
|
roonie
Member
|
Posted: Mon Aug 25th, 2008 20:36 |
|
By saying i did a mino probe....i began mino with 25 mg and slowly worked my way up to 100mg. I did this unfaithfully every other day. Only missed a day here or there. I did this while avoiding vit d in my diet and also wore the noirs. I should mention that i am greatful to Lon @ the Noir store for sending me the Noirs on my somewhat limited budget. Great person to say the least!
I would have to agree that environmental factors are a big part of what is going on with me. When i was at my worst (1993) i would react to many things. It first began with petro products and later spread to almost everything....if you can believe it. I had/have what some call environmental illness. I would get near gas or other petro products and my gums would bleed and fill my mouth with blood. I do believe that i was very near death. Also ....i would get perhaps 1 foot away from a wall plug in and my gums would bleed (electromagnetic field sensativity??).Hope this answers your questions.
|
Julia
Advocate (on leave)
|
Posted: Mon Aug 25th, 2008 20:46 |
|
Thanks for clarifying. It sounds as if you're reacting to the chemicals in different environments: many of our members have Multiple Chemical Sensitivities as one of their symptoms, no matter what their primary diagnosis is.
Do you feel that the probe indicated you were reacting to the mino? Mino alone only works for a few months, then you need Benicar to get it going again.
See Is pulsed minocycline alone effective?
Julia
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
|
roonie
Member
|
Posted: Mon Aug 25th, 2008 21:01 |
|
| I have no doubt in my mind that i was herxing. I became very bitchy(thought i was a woman)hehe. I also got many of my old symtoms back including rashes.The interesting thing is that this all came and went in cycles. One day my gums would bleed ..then two days of not..then back to bleeding....definately cycling...in my humble opinion. What are your thoughts on this? Now ..i just need to get on that Benicar!Thanks
|
Julia
Advocate (on leave)
|
Posted: Mon Aug 25th, 2008 21:19 |
|
Roonie,
I think you've answered your own question. Find an MP-friendly doctor!
Suggestions To Get Your Doctor On Board With the MP
Julia
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
|
roonie
Member
|
Posted: Mon Oct 13th, 2008 05:08 |
|
I was clinically diognosed with lyme disease. With this illness i also have severe chemical sensativities. It seems when i leave and go to a new environment i acctually feel better. An example of this would be travelling to a different city many miles away. I will feel better than the last environment than that of which i came from. Does this have to do with a certiain organ in the body causing these changes...does anyone know. I often wonder...if i could find out what the cause of this is maybe i can do something to correct it and live a somewhat better life. I do have a swollen tounge most of the time and was told by a chinese medicine doctor that a swollen tounge has to do with spleen.
When i tried a trial of minocycline and dark glasses along with no "D" foods for a few weeks, nothing really happened until I left my city and went a few hundred miles away...thats when old symtoms really showed themselves...and rather suddenly. Could it be that I have something else going on and not lyme?Does anyone else have this happen when starting the MP.Just wondering if i am the only one like this. Any help would be appreciated.thanks
|
Sallie Q
Member
| Joined: | Sat Aug 9th, 2008 |
| Location: | Australia |
| Posts: | 56 |
| Status: |
Offline
|
|
Posted: Mon Oct 13th, 2008 06:22 |
|
Welcome Roonie
Just a quick word from a new MP starter
the Advocates will probably need to know how much Benicar (olmesartan) you are taking, and how often, in order to direct you to the most appropriate information. (Marshall Protocol requires taking Benicar for at least a week before you start minocycline in order to commence dropping your D1.25 OH levels while protecting your organs against further inflammation).
Good luck with your wellness efforts. Sallie
____________________
fatigue,Sjogrens 1,25D(??)Phase1:20Sep08 NoIRslowLuxEtc 25D13.2(Jly08)independent PCPProfessionalsForum NoAltMeds appendectomy~9yrs b.cancer1990 some calcification old scans.HotFlush20yrs D-dysregulated~60%signs
|
Julia
Advocate (on leave)
|
Posted: Mon Oct 13th, 2008 12:23 |
|
Roonie,
There might be a combination of factors in this. Here is my non-expert guess:
First, the travel is giving you extra light, and before you're on the MP that can for some people be immunosuppressive and palliative.
Second, as I said to you earlier (above), Perhaps you were getting more daylight in some places than others. Perhaps your diet was different, or your sleep pattern, or some other element of lifestyle. There are also many environmental factors that can cause a change in symptoms in different places.
But this is all palliation - nothing to do with killing the bugs that are making you ill. No luck with finding a doctor yet?
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
|
Current time is 00:41 | Page: 1 2   |
|
