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Karon (study member)'s questions for son
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Karon
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Joined: Sat May 3rd, 2008
Location: USA
Posts: 22
Status:  Offline
 Posted: Tue Oct 7th, 2008 21:45

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There is no time left to wait for me to progress farther first. Jake is showing more and more signs of autism. He is having daily major emotional episodes. He talks of hating himself and referes to himself as a loser. His math skills have gone back to 1st grade level and gets more than 50% wrong on his spelling tests. He hardley ever missed a word from K to 3rd. He is anti social and can not keep organized at school. The symptom that bothers me the most is the self hate. We have done the blood test and await the results

My main question is how do you legally pull him out of school NOW! My MP Dr. is out of town and will not be back to see him until the 20th of this month. I want the suffering to end and our home is already for him to begin the MP.
My next question is the proper dose of beni to use for him. He is 65 lbs.
I will wait to start until the 20th but want to take  the proper info to the Dr. to get the script filled asap.
He seems to be on a very fast downward spiral.
I am sad and desperate....ready to go to jail (if they let me have my MP meds)
ANYONE...PLEASE... help me help him...please!
 Parents of other children on the MP, I need to hear from you most of all ASAP.
I need/want my baby back.
Karon in Ca.



____________________
PTSD RA CFS Chron Inflam Disease| Naproxen Tramadol| 125D73 25D20(May08)| 25D14.4(Jul08)| PH1-Apr08| Lowlux Home Work NoIRS NoSun covered up| Ph2-Aug08
Dr Trevor Marshall
Research Team


Joined: Fri Oct 12th, 2007
Location: Thousand Oaks, California USA
Posts: 758
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 Posted: Wed Oct 8th, 2008 09:06

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A therapeutic probe would be the best way to see to what extent Th1 might be implicated, I think :)
 
Would it be possible for Doc to call me concerning the benicar dosing level?
 

Karon
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Joined: Sat May 3rd, 2008
Location: USA
Posts: 22
Status:  Offline
 Posted: Wed Oct 8th, 2008 18:46

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Thank You Dr. Marshall!!!!!

Yes she would and will. She will be back in town on the 13th and I have an appt. on the 20th (sooner if I can get in). We have already done the blood tests and will have results any day now.
It may seem I am over reacting to the outsider that knows nothing of Jake's or my history with health and school. I've read and re-read children on the MP many times, and follow Jason closely. If you can direct me to anything else to read or some other parents with children to connect with I would be very grateful.
Will you please PM the Contact info to me so that I may give it to her before our Appointment. I'm not sure your # is still the same from the MP site info. I would have to go back and find that.

Thanks for not judging me and assuming I have not already done the basic and beyond, measures (teacher meetings and homeschooling) to assess and assist my son. Jake scored a 77 on the PDD assessment scale. The score suggests mild PDD. This is thought to be mild autisum. It is TH1, and I am sure he has been infected since birth. To tell our whole story at this point seems like wasted time. If not wasted for us than maybe for you. If you think it would help you to know more about Jakes medical history I would be honored to get your opinion, otherwise we are here today and at least we have the only game in town to stop and reverse the disease process ASAP.

 I am emotional, and sad as any mother would be. My child is suffering and sinking while I am progressing. My need to protect and save (help) him is my first priority even while I am sick. We have homeschooled before and will again while on the MP together. Its the laws and or rules I need to learn so that our first priority is healing and not 4th grade agenda requirements. I thought other MP parents could point me in the right direction to find the fastest process to pull him out of public school and put him on some type of medical leave. It was a desperate reach out filled with emotion. Maybe a post to the wrong place, if so..... I am sorry.
It doesn't help that our Dr. has been unavailable during the last 2 weeks and will be for another week. It is what it is...and we must go forward.

Thank You so much for your reach out!!!
You have calmed the waters once again Dr. T.
Forever grateful.....more than words could ever say.
Karon
and soon....Jake ;)

Last edited on Wed Oct 8th, 2008 18:53 by Karon



____________________
PTSD RA CFS Chron Inflam Disease| Naproxen Tramadol| 125D73 25D20(May08)| 25D14.4(Jul08)| PH1-Apr08| Lowlux Home Work NoIRS NoSun covered up| Ph2-Aug08
natalie17
Advocate


Joined: Sun May 18th, 2008
Location: Melbourne, Australia
Posts: 313
Status:  Offline
 Posted: Thu Oct 9th, 2008 02:32

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Hi Karon,

You can find Dr. Marshall's no. in;
How to participate in the Private Section for Health Professionals

A complete history of Jake's health is better suited to your Doctor, not here. 

I'm not a mother, but I am a daughter (22, fell ill at 18) and I can see how much Mum worries sometimes - so I have a (very) tiny idea of how you feel, and I know how Jake would feel if he knows his mother is worrying about him.

Take good care and allt he best to Jake and yourself,
Natalie



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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
Karon
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Joined: Sat May 3rd, 2008
Location: USA
Posts: 22
Status:  Offline
 Posted: Thu Oct 9th, 2008 20:00

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Thanks for the quick link to Dr. Marshalls #.

Looking for parents more than anything else now. If you can help with that that would be great. No need to waste your time with me.......


Thank you Natalie17



____________________
PTSD RA CFS Chron Inflam Disease| Naproxen Tramadol| 125D73 25D20(May08)| 25D14.4(Jul08)| PH1-Apr08| Lowlux Home Work NoIRS NoSun covered up| Ph2-Aug08
Aussie Barb
Research Team


Joined: Sat Oct 13th, 2007
Location: Australia
Posts: 138
Status:  Offline
 Posted: Thu Oct 9th, 2008 21:16

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Hi Karon
see this FAQ Can children be treated with the Marshall Protocol? for the links to the Children on MP and you will be able to pm the parents.
all best, Barb ...

Karon
Member


Joined: Sat May 3rd, 2008
Location: USA
Posts: 22
Status:  Offline
 Posted: Thu Oct 9th, 2008 21:24

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Thank you Barb...

I don't know how I missed that! ( ohhhh, I know how I missed it...brain fog and emotion)


I found some the hard way yesterday. :X

You are my hero in many many ways:D

Love to you sis

Karon



____________________
PTSD RA CFS Chron Inflam Disease| Naproxen Tramadol| 125D73 25D20(May08)| 25D14.4(Jul08)| PH1-Apr08| Lowlux Home Work NoIRS NoSun covered up| Ph2-Aug08

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