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curemyreed
Member
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Posted: Thu Aug 7th, 2008 18:13 |
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I expect to have my first D metabolite levels checked in 2 weeks. That will be 2 weeks after having the last dose of steroid eye drops (Pred-Forte & Acular) which have been titrated down after 2 months use with this bout of uveitis. Will that affect the test? Do I need to wait a specific amount of time post-medication to test? If this is too specific a medical question please forgive and point me toward discovering the answer myself!
Thanks.
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Penni
CFS*Fibromyalgia*Uveitis 2x 2008*Biopsy:Granuloma Lt elbow 2008*Rt hippain*Daughter(6)Autism*NoIRS*Labs pending*Benicar ordered*
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Julia
Advocate (on leave)
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Posted: Thu Aug 7th, 2008 18:55 |
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Hi Penni,
No, there's no need to wait. Just mention it to the medical moderators when you post your test results: see How to post your D-metabolites tests results.
D-Metabolites tests
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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curemyreed
Member
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Posted: Wed Oct 1st, 2008 18:46 |
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In looking at Capt. Tom Perez's presentation in Portugal I noted that sarcoidosis was not one of the diseases included on the chart. Any thoughts as to why? As best I can tell this group would be the largest in the study since Dr. Marshall began with himself and others whose infection manifested as sarcoidosis and this community would be most aware of the MP.
Also, on a personal note, I was so pleased to see uveitis on the chart. Uveitis in one eye immediately followed by uveitis in the other eye is what led me to the MP. I'm printing this 4-page document up and handing it out to those who figure I'm a kook off on a tangent!!! I'm also handing it out to the many folks I know who are ill or who love someone who is ill with "autoimmune disease".
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Penni
CFS*Fibromyalgia*Uveitis 2x 2008*Biopsy:Granuloma Lt elbow 2008*Rt hippain*Daughter(6)Autism*NoIRS*Labs pending*Benicar ordered*
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curemyreed
Member
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Posted: Wed Oct 1st, 2008 19:02 |
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Could a moderate tell me if I've posted right? I have an established thread, I believe, titled "curemyreed's questions" in which I posted my first question. To post this question I went to My Account at the top right of screen, then went to "curemyreed's questions", then when that screen came up clicked New Topic. It appears that a new thread was started instead of coming up under my previous stuff. If this isn't right, please instruct me how to do this properly.
Thanks.
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Penni
CFS*Fibromyalgia*Uveitis 2x 2008*Biopsy:Granuloma Lt elbow 2008*Rt hippain*Daughter(6)Autism*NoIRS*Labs pending*Benicar ordered*
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JoshR
Advocate
| Joined: | Mon Aug 18th, 2008 |
| Location: | Sydney, Australia |
| Posts: | 210 |
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Offline
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Posted: Wed Oct 1st, 2008 19:16 |
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Dr Marshall explained the absence of sarc from the chart over on the main site in this thread:
I presented our data on Sarcoidosis in 2004 at the 4th Intl Congress on Autoimmunity in Budapest, following publication of "Sarcoidosis Succumbs..."
http://dx.doi.org/10.1016/j.autrev.2003.10.001
Sarcoidosis is 'a done deal', even if the rest of the world haven't caught up with that just yet.
My own Porto presentation mentions that Sarcoidosis was reported at Budapest.
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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curemyreed
Member
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Posted: Wed Oct 1st, 2008 19:53 |
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Thank you! I knew there was a reason, just didn't know what it was!!!
A "done deal" sure put a big smile on my face! I am so very thankful to have discovered Dr. Marshall and his protocol.
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Penni
CFS*Fibromyalgia*Uveitis 2x 2008*Biopsy:Granuloma Lt elbow 2008*Rt hippain*Daughter(6)Autism*NoIRS*Labs pending*Benicar ordered*
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Sallie Q
Member
| Joined: | Sat Aug 9th, 2008 |
| Location: | Australia |
| Posts: | 56 |
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Online
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Posted: Wed Oct 1st, 2008 21:53 |
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Penni, just click on your own thread ‘curemyreed’ whether you are in My Account OR in Ask Your Questions Here.
Then click on the lozenge shaped button ‘Reply’ to post another question
you seem to have the hang of it now. Must admit that when starting a couple of months ago, some days I got the right button and other days... well they were probably just a fog 
Regards…Sallie
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fatigue,Sjogrens 1,25D(??)Phase1:20Sep08 NoIRslowLuxEtc 25D13.2(Jly08)independent PCPProfessionalsForum NoAltMeds appendectomy~9yrs b.cancer1990 some calcification old scans.HotFlush20yrs D-dysregulated~60%signs
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