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ChristineL
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Posted: Tue Sep 23rd, 2008 16:44 |
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I am planning to approach my doctor about starting MP, but I have some questions about Vitamin D and the Therapeutic Probe. My endocrinologist did a general Vitamin D test about 6 weeks ago and I think the 25-D might be elevated (I remember the lab was Quest and the number was 46 - for what it's worth).
Does the D-25 have to be lower for the probe or MP to work? i.e. do I have to start avoiding vitamin D now in anticipation of starting the MP?
Additional info: I'm currently being treated for Hashimoto and I have or had Grave's disease. My inflammatory symptoms have not resolved since I started thyroid meds. I actually continue to get worse.
Thanks for your help!
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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JRFoutin
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| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
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Posted: Tue Sep 23rd, 2008 18:33 |
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Christine,
Welcome. This is your thread to ask questions. To be successful, your goal must be to learn as much as you possibly can about the Marshall Protocol, read all you can and then come here to ask questions for clarification after that.
You may have already started looking into required reading on the study site library. The topical directory is alphabetically organized into a clickable index, with a lot of the most important links already at the top. Links advocates give you are often from the FAQ (click here), so I would encourage you to learn to find much of your own information there first. Quicker, more to the point, and save this space for next-level questions after you have read first.
I also recommend you frequently read Amy Proal's http://www.Bacteriality.com site. A good place to start is her recent presentation in vimeo (movie) format. Here is Amy's description and the link:
"In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 89 minutes."
http://bacteriality.com/2008/05/07/mpintro/
You and your doctor might also appreciate Any's recent presentation at Porto.
If you have your D metabolites test results, it may be a great help to you and your doctor to have an experienced nurse moderator respond to them here:
Help with Understanding D-metabolite tests
Moderators will help you understand the values returned from lab tests in this forum
Per your questions, please review:
D-metabolites tests
Which diagnostic tests do I need?
What is a therapeutic probe?
THYROID DISEASE and Th1 inflammation
Meds whose doses are determined by blood levels (thyroid supplementation is one) need more frequent serum measurements to monitor possible changing needs as inflammation resolves and biochemistry changes. Suggest to study well this detail and discuss with your Dr.
My understanding is that the Hasimoto and Grave's will not resolve unless the MP is considered and will indeed continue to get worse (as you are already finding) unless you correct the core problem, which isn't going to happen with a singular focus on these very popular names of the disease or the palliations and crutches you have already explored. Please arrive at thinking the global Th1 as soon as possible.
You might also enjoy this link:
Hypervitaminosis-D Symptoms
High 1,25-D
If you didn't have a 1,25D assay in that "D" test your doctor ran earlier, be sure to have it tested (Quest has great information on how to do this correctly and it is good to see your doctor is already using Quest) before you begin the MP.
Best to you ChristineL--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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ChristineL
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Posted: Wed Oct 1st, 2008 15:37 |
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Thank you for your reply last week. I have another question as I am waiting to hear back from my doctor about hopefully starting MP:
I have blood sugar control issues (severe hypoglycemic symptoms) and I'm currently on Synthyroid for Hashimoto's. I've read on the study site that T-4 had some connection with the receptors that have to do with blood sugar control and related things. I suspect my dosage is too high. My endocrinologist doesn't look at free T-4 and T-3 and I'm not sure how that plays into this. I'm having a blood test again on Friday and was hoping someone could shed some light on this? Will Benicar help to alleviate the hypoglycemic symptoms or would I have to wait for the hormonal system to rebalance?
-Christine
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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JRFoutin
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Posted: Wed Oct 1st, 2008 16:31 |
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Christine,
All the things you are mentioning and quite concerned about are serious issues. These issues have already been addressed with many details on the http://www.marshallprotocol.com study site and http://www.bacterialtity.com because your issues are common in Th1 chronic inflammatory diseases.
You do want to take appropriate action.
Helping your doctor know your intent to "fix" the problem can be a great benefit to you, as opposed to focusing time and money on non-essential tests or getting on or continuing errant consensus-mandated "maintenance."
Let's see if we can help you better. Here is an important action item for you so you can help yourself best in your goal. In addition to the links I gave you above,
Please read:
Is the Marshall Protocol an Applicable Treatment for my Disease?
THYROID DISEASE and Th1 inflammation (print it for your doctor)
DIABETES and Th1 inflammation
BENICAR AMELIORATES INSULIN RESISTANCE.
If you plan to do the MP (and that is your decision to make and to take appropriate action to compel whoever your hired to be your doctor), then your doctor needs to know what to do or you need to find a doctor that will be willing to learn and work with you:
Private Section for Health Professionals
This private section is reserved for Health Professionals
You should always be prepared to conference with your doctor too, to make sure there is no deviation. If neither you nor your doctor are yet up to speed on information, or taking the information on a peripheral basis without really comprehending the task at hand, this can be problematic to say the least. Please remember your health and well being are at the epicenter of where incomplete information, faulty decision-making, or non-genuine action trouble hits hardest.
When in doubt, always start here first:
FAQ : alphabetical topical index to the http://www.marshallprotocol.com study site.
Then as your questions in this thread.
Best to you Christine--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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ChristineL
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Posted: Tue Oct 7th, 2008 19:20 |
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My current doctor has not given me an answer about helping with the Marshall Protocol. I got tired of waiting so I spoke to one who is on the referral list. He said he is willing to work with me; however, he has been frustrated in the past because insurance won't pay for the benicar. I don't think he has had much success because of this. Is it rare that an insurance company will pay for the benicar? I understand it is expensive. I have pretty good insurance (BCBS), but I don't know if it's that good! What should I be prepared for in terms of medication costs?
Thanks!
Christine
Last edited on Tue Oct 7th, 2008 19:20 by ChristineL
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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JoshR
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Posted: Tue Oct 7th, 2008 21:50 |
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Hi Christine,
Congratulations on finding a willing doctor! I understand that quite a lot of people on the MP have been able to get their insurance to pay for their Benicar. (The situation seems to be a bit easier here in Australia.) You should find the information in How To Obtain Insurance Benefit for Full Dose of Benicar useful.
You may also like to browse or search the ABC of MP for all kinds of answers to related questions that have come up in the past.
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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ChristineL
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Posted: Wed Nov 5th, 2008 18:53 |
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My doctor is insisting that I ramp up the benicar. I will start with one 40 mg pill one time a day for two days and go in for a BP check. I hope I can convince him at that time to let me take the full amount. If so, I will start the MP on Nov 12. I am taking 100 mcg of Synthroid for Hashimoto's.
I have two questions:
How long should I wait before having a thyroid test to check my levels?
Somewhere I saw reference to starting MP when you are not pre-menstraul, but I couldn't find it again. Is this very important?
Thank you so much for your help!
Christine
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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Dr Trevor Marshall
Research Team
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Posted: Wed Nov 5th, 2008 18:57 |
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Christine, it is dangerous to ramp up benicar, as you may start up the immune system but the 24hr dosing doesn't prevent the cytokines from (potentially) damaging the key organs.
Can you see if Doc would let you start on 20mg every 8 hours? That will not be enough, but it will at least give you a modicum of protection.
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ChristineL
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Posted: Thu Nov 6th, 2008 14:30 |
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I appreciate your input Dr. Marshall. I provided my doc with information on Benicar and why you shouldn't ramp up in the hopes he would let me start out at prescribed dosing schedule, but to no avail. Your suggestion might be a compromise he will accept. Thank you! 
Sincerely,
Christine
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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ChristineL
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Posted: Mon Nov 10th, 2008 15:05 |
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Is it possible to Herx hours after starting Benicar for the first time. I just started benicar and I'm feeling really bad. I get the results of my D tests today and will post them. (I was planning to try MP regardless of the D test).
Thanks for your help!
Christine
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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Knochen
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Posted: Mon Nov 10th, 2008 15:26 |
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Benicar may cause some pretty significant hormonal changes, and it's not unusual to feel quite odd during the initial adjustment period. This is why the MP has you start with Benicar alone. Once you have settled, then you add the antibiotic. This may take a couple of weeks, so be patient and keep up the full dose. Taking less than the recommended amount can actually cause you more discomfort since you will not have the full blockade.
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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ChristineL
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Posted: Mon Nov 10th, 2008 15:33 |
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Thank you for your reply.
I'm feeling even worse that when I wrote in today and I'm not sure how I'm going to get through the day. Can I take more benicar at this point or does that not help until you start the antibiotic?
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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Knochen
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Posted: Mon Nov 10th, 2008 15:50 |
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Please consult pages 5 and 6 of Phase 1 Guidelines.pdf for guidance on Benicar dosing and other strategies. It's up to you and your doctor how you proceed.
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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JoshR
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Posted: Tue Nov 11th, 2008 12:16 |
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| Are you still going ahead with the plan of ramping up the Benicar? If so, that would largely explain why you feel so bad.
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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ChristineL
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Posted: Tue Nov 11th, 2008 13:37 |
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No, I am taking the benicar according to MP. So far today is a bit better (day 3). We'll see how it goes....
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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ChristineL
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Posted: Wed Nov 12th, 2008 15:08 |
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I just had a Lyme IgM WB test and the IGM results suggest that there is a possibility of chonic lyme. I've never been treated for Lyme before. The doc is suggesting a further test to see if I have chonic lyme. Does this matter since I have just started MP for other autoimumne diseases? Will MP take care of it Lyme even if I have never been treated before?
IGM result
**39 kDa IND
**41 kDa +
IGG result
**31 kDa +
**39 kDa IND
**41 kDa +++
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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Dr Trevor Marshall
Research Team
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Posted: Wed Nov 12th, 2008 15:30 |
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Will MP take care of it Lyme even if I have never been treated before?
The MP is the only way to deal with Chronic Lyme, and it happens automatically as you recover
More info here:
http://bacteriality.com/2007/09/22/interview3/
http://bacteriality.com/2007/10/28/interview6/
http://bacteriality.com/2007/12/28/interview14/
http://bacteriality.com/2008/02/17/interview16/
http://bacteriality.com/2008/02/17/interview16/
http://bacteriality.com/2008/03/31/interview19/
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ChristineL
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Posted: Tue Nov 18th, 2008 17:20 |
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It's been just over a week that I've been taking the benicar every 6 hours (40 mg). I'be been feeling pretty bad since starting. Today I am experiencing a lot of lightheadedness and nausea and extreme fatigue. I wanted all this to stabilize before starting the mino. Not sure if that's going to happen.
Two possible reasons for having a difficult time:
Upon reading about benicar dosing, I realized that I may be going longer than 8 hours between doeses overnight (I've been going to bed so early). Also, we just moved to a new house and have no window treatments up yet. I've been trying to be good about covering up and wearing my glasses inside and the darker ones outside, but maybe that's not enough
Any thoughts? I'm also wondering when I should start the mino. I'm a bit nervous since I've been having a hard time on the benicar alone!
Thank you!
Christine
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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natalie17
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Posted: Wed Nov 19th, 2008 12:23 |
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Hi Christine.
Suggest seeing -
Why am I dizzy and/or fainting?
Do take care when changing positions... getting up more slowly, holding firmly, etc, so that you do not fall and hurt yourself.
: Lay low, stay in bed, drink adequate fluids, eat salty foods and wait for the symptoms to wane. Tools to check:
Do check with your Dr if necessary.
Nausea What should I do for my stomach problem?
Sea-Bands help with nausea for some people. They can usually be bought in pharmacies.
Although it seems the insomnia part does not apply, might be worth reading -
I have insomnia and fatigue. What should I do?
Your two possible reasons are very good ones. Most of us eithe rhve an alarm go off int he middle of the night (for example I am on beni every 6 hours, but I have an alarm go off at 3.30am for a dose - sounds horrible but you get vey used to it anddon't even remember taking it!).
Also worth remembering that some do feel worse on Benicar alone. Your symptoms may settle when you start minocycline.
See;
How long should I stay on Benicar? Why don't I feel better? When should I start minocycline? We suggest that you remain on Benicar a week or two until you are sure you are stable after allowing time for any changes that may occur as the hormones adjust.
Of course talk to your Doctor before making any changes.
Take care,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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ChristineL
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Posted: Wed Nov 19th, 2008 18:15 |
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Thank you for your reply to my last post Natalie.
I am concerned about my failure to take the benicar at least every eight hours overnight. I think I have been going close to nine hours at night (until last night). I've been taking the benicar every 6 hours (except at night) for 10 days and have been feeling pretty bad. Major fatigue is the biggest complaint. I thought maybe it is time to start the mino, but now I'm worried about the blockade. My doc is new to MP so he doesn't know if this it a show stopper for starting the mino.
Any thought?
Thank you!
Christine
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Hashimoto CFS like symptoms synthroid ph1Nov08 light exp r/t work & kids cover up at home NoIRs
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