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Aussie Barb
Foundation Staff
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
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Posted: Sat Sep 13th, 2008 18:22 |
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MP news, events in Oz
Australian Autoimmunity Foundation Inc Membership:
http://www.ausautoimmunity.org.au/ for Information and to download your application form and to see all patient support information.
If you have been thinking about joining Australian Autoimmunity Foundation Inc perhaps now is a good time. Please ask by email for an application form. info@ausautoimmunity.org.au
The AAF newsletter is online at
http://www.ausautoimmunity.org.au/reports-and-newsletters.htm
News at http://www.ausautoimmunity.org.au/news.htm
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Checklist: basic links for MP
We encourage you to fill your profile > Australia
You may wish to make contact with others in your area by private message.
Also available from the Australian Autoimmunity Foundation
Copies of the DVD containing the presentation Dr Marshall gave to the University of Melbourne last November. You may wish to take a copy to your Dr next visit.
You may wish to invite your Dr to join the PRIVATE SECTION FOR HEALTH PROFESSIONALS
Letter of introduction for your MP supportive doctor
Letter to Patients Patient Education Packets: suitable for doctors to give to patients they are introducing to the Marshall Protocol.
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Benicar®: Available by script for Olmetec x 120 tablets (is 4 boxes x 30 tablets) with 5 repeats. is available as an Authority script if your Dr will phone for it for you. Available at your local Pharmacy. If they dont have it on hand they can order it in.
SEE FULL INFORMATION BENICAR: Where to purchase Benicar for self-pay members
Olmetec® tablets are now available on the PBS. They are exactly the same as the Votum tablets, with C15 on the back. see pbs site:
http://www.pbs.gov.au/html/consumer/search/results?term=Olmetec&publication=GE
Olmesartan medoxomil - which is sold as the branded Benicar® in the USA and as Votum in Germany is also available in capsules (capsules are not PBS) in Australia at Compoundia: see below.
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Minocycline script:
if you get a script for mino 100mg is capsules .... no repeats
50mg mino is tablets.... can get repeats.. can split with a tablet splitter.
Minocycline, Clindamycin, Bactrim, Azithromycin, (4 of the 5 MP antibiotics) are available at your Pharmacy on PBS.
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Australian Members please note: Most of your MP supplies are available from the Compoundia Pharmacy. details below.
*Olmesartan medoxomil - which is sold as the branded Benicar® in the USA and as Votum in Germany is also available in capsules (capsules are not PBS) in Australia at Compoundia. see also re Benicar PBS availability above.
*For medications you need to give them a few days notice. They will be able to compound the medications, ie all or any of the Phase 1, 2, 3, antibiotics into smaller doses if you prefer not to have to divide them yourself.
*NoIR glasses in stock so you should be able to get them fairly quickly. Appropriate sunglasses are essential. A basic purchase would be 2 pairs of NoIR sunglasses -10% indoor and 2% outdoor with optional extra pair 40%.
See PROTECTING YOUR EYES
Health Insurance Benefit for NoIR glasses: see below
* make Invisible Zinc Cream.
*Milk of Magnesia (for constipation) Compoundia are able to provide us with 500mg Capsules rather than 250mg of Magnesium Oxide. (ie take only 3 Capsules to produce the desired result within 24 hours.)
*Quercetin for Aussies: available in 200mg Capsules. may be helpful once established in MP. Not recommended in early stages.
All Available from:
Compoundia
Australian Compounding Pharmacy
16 St Mangos Lane
Docklands VIC 3008
email : bertfrigo@compoundia.com
Website http://www.compoundia.com
Phone 03 96702882
Fax 03 9670-9615
You can contact them by email and / or phone call.
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Aussie Barb
Foundation Staff
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 148 |
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Posted: Sat Sep 13th, 2008 18:23 |
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HEALTH INSURANCE BENEFITS FOR NoIR MEDICAL GLASSES
I have had many requests in regards to claiming health insurance benefits for NoIR Medical Glasses. Sydney Chris's approach - whereby he used a prescription from his GP to support his claim - is probably the best way to go, - at least for making a claim from a smaller fund. Chris says "I received a refund from NRMA Health for glasses, with a supporting letter from my treating Dr stating they were for medical purposes and as such were PRESCRIBED...! (ie prescription glasses)"
There are several hundred Health Insurers and they all have different rules for ancilliary benefits
The larger funds ( such as Medibank Private) have rigid rules in the area of rebates for optical products. They will only provide rebates for purchases from providers who have been formally registered with them.
It is not presently possible for the Australian Autoimmunity Foundation (AAF) to become a Medibank Private Authorised Optical Dispenser, because none of our existing volunteers providing this service would qualify as an Optical Mechanic or as an Optical Prescriber.
If we do have any Australian members who have worked as an Optician or as an Optical Mechanic, we would love to hear from you, as your "supervision" of our busy mail order room might be all that is necessary for us to become recognised by Medibank Private as an Authorised Optical Dispenser
Robert Townsend
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Aussie Barb
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Posted: Sat Sep 13th, 2008 18:24 |
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NBassal wrote:
I am a medical doctor who has started using the MP with some patients.
I am organizing a networking meeting
on the 17th Sept at 7.30pm
at the Wholistic Medical Centre
in 17 Randle St, Surry Hills, Sydney. NSW. 2010.
We are wanting to have patients there as well as health care providers and other interested parties to share experiences and lend support.
You are most welcome to come as well and invite others if you wish.
Regards
Nick Bassal
nbassal@bigpond.com or send a private message
http://www.wholisticmedicalcentre.com.au
The Wholistic Medical Centre is just across the road from Central Railway. There is also plenty of street parking in Randle Street. Please arrive a few minutes earlier. Look forward to seeing as many MPers as possible.
I'm a doctor at the Wholistic Medical Centre (WMC) who has started using the MP with patients. The WMC is just across the road from Central Railway and we have a meeting room that can seat 20-30, so if you need a free venue for your meeting, happy to help.
Dr Nicholas Bassal.
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Aussie Barb
Foundation Staff
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Posted: Sat Sep 13th, 2008 18:47 |
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Vicki SA wrote:
MELBOURNE PATIENTS NETWORKING MEETING AND ANNUAL GENERAL MEETING : AUSTRALIAN AUTOIMMUNITY FOUNDATION, INC
Melbourne and other Victorian MPers have an opportunity to meet
on Sunday October 5 meeting will commence at 10.30 am
venue is the Meeting Room at Balwyn Library, 530 Whitehorse Road, Balwyn
There is off street car parking at the side of the library and wheelchair access. Entry to the meeting room is via the main library entrance foyer.
The Annual General Meeting of the Australian Autoimmunity Foundation will also be held on the same morning. Members and non members are all welcome. The main purpose of the formal meeting is to receive the 2008 annual report and to elect a new management committee for the coming year. Interstate members who would like any other business discussed at the AGM are asked to email me prior to the meeting. Anyone wishing to nominate for a position on the committee should also contact me. We are particularly wanting to recruit someone to the committee to handle communications of MP material to medical practitioners.
Vicki Ryan
Secretary/Treasurer
Australian Autoimmunity Foundation
http://www.ausautoimmunity.org.au/
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Aussie Barb
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| Joined: | Sat Oct 13th, 2007 |
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Posted: Thu Sep 18th, 2008 22:57 |
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NBassal wrote:
Fellow Aussies,
Just to let you know we had our MP support meeting last night (17-9-08) in Sydney (Surry Hills). Had 17 people who came along to share their stories and support each other with details of their experiences. It was very heart warming to hear from people who have done very well and are seeing results after months of feeling sick from the Herx reactions. They were a fountain of knowledge on so many matters and answered lots of questions. I can see that without that sort of support it would be so much more difficult to stick with the MP.
Because everyone found it useful, we plan to meet again in 2 months time.
I'll post about the next meeting.
Dr Nick
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Aussie Barb
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Posted: Fri Oct 24th, 2008 07:38 |
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Sydney Patient Networking Meeting
To all Sydney MP'ers. their family and friends.
The Wholistic Medical Centre and the Australian Autoimmune Foundation are pleased to advise details of the next patient networking meeting:
Date: 22nd November, 2008
Time: 1.30pm
Location: Wholistic Medical Centre - Sydney. 1st floor 17 Randle St, Surry Hills. Just opposite Central Railway. (Devonshire St exit)
Dr Nick Bassal and I will look forward to seeing you there.
Please RSVP to Dr Nick (nbassall here) or myself (sydney chris at MP site) via an IM that would be much appreciated.
Regards
Sydney Chris
AAF Committee
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Aussie Barb
Foundation Staff
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Posted: Sun Nov 23rd, 2008 00:44 |
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Sydney Chris wrote:
Sydney Patient Meeting - 22 November
We are pleased to report that another successful meeting was held at the Holistic Medical Centre in Surry Hills yesterday afternoon.
Around 12 MP patients at various stages of treatment and cure attended and shared both their experiences, hopes and questions about being on and progressing their treatment on the MP.
At this point we are scheduling our next meeting in February 09. We will look forward to seeing as many as possible at that time.
Best to all..
On behalf of;
Dr Nick, the Australian Autoimmune Foundation and myself.. Sydney Chris
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johnfp
Member
| Joined: | Sat Dec 6th, 2008 |
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Posted: Tue Dec 30th, 2008 13:38 |
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Hi,
Are there any meetings in Brisbane?
Thanks,
John
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beebop3002
Member
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Posted: Sat Jan 3rd, 2009 02:14 |
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I have prescription lenses and I see that the site recommends zeiss lenses,
I know i have to get the skylet sport for outdoors, but which one should i get for indoors ?
thanks
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Chris
Moderator
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
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Posted: Sun Jan 4th, 2009 06:35 |
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Dr Marshall made notes on that at http://sarcinfo.com/zeiss.htm
-- Chris
see also
http://AutoimmunityResearch.org/Phase1.pdf
http://AutoimmunityResearch.org/Phase2.pdf
____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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roberttownsend
AAF (Aust) Executive
| Joined: | Sun Aug 31st, 2008 |
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Posted: Mon Feb 9th, 2009 04:33 |
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MELBOURNE PATIENTS NETWORKING MEETING
Melbourne and other Victorian MPers have an opportunity to meet up - and share ideas and experiences about living on the MP - on Sunday March 22 nd.
The venue is the Meeting Room at Kew Library, Whitehorse Road, Kew and will commence at 10.30 am.
We have the room booked until 1.00 pm. Optional BYO lunch : we have the use of a small kitchenette.
There is off street car parking at the side of the library and wheelchair access. Entry to the meeting room is via the main library entrance foyer.
Robert Townsend
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Aussie Barb
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Posted: Sat Mar 21st, 2009 19:36 |
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SYDNEY MPers NETWORKING MEETING
To all Sydney MP'ers, their family and friends,
You are invited to come along to our next meeting to share your story and inspire others. An opportunity to meet up - share ideas and experiences about living on the MP.
Location: Wholistic Medical Centre - Sydney. 1st floor 17 Randle St, Surry
Hills. Just opposite Central Railway. (Devonshire St exit)
Saturday 28th March. 1.30pm to 4.30pm
Dr Nick Bassal and Chris Boys (from AAF) will look forward to seeing you
there.
Regards
Chris
AAF Committee
PS Please let us know you want to come so that we can have sufficient
catering for those present. Just email the address below with numbers
coming:
nbassal@bigpond.com
http://www.wholisticmedicalcentre.com.au
see Sydney listed Members
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Aussie Barb
Foundation Staff
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 148 |
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Posted: Fri Apr 3rd, 2009 03:31 |
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Quercetin for Aussies: is now Available in 200mg Capsules from:
Compoundia
Australian Compounding Pharmacy
16 St Mangos Lane
Docklands VIC 3008
email : bertfrigo@compoundia.com
Website http://www.compoundia.com
Phone 03 96702882
Fax 03 9670-9615
You can contact them by email and / or phone.
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Aussie Barb
Foundation Staff
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 148 |
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Posted: Sat Apr 4th, 2009 02:02 |
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Sydney Patient Meeting
To the 25 patients, carers and medical professionals who attended the patient networking meeting last weekend, our sincere thanks for your honesty, courage and effort in attending and contributing.
It was great to see a number of people, formerly very ill, now faced with the question of when and how to wean off the antibiotics after defeating their illnesses.
Even more so a number were unable to attend, because for the first time in many years they were just 'too well' to not be at functions with family and friends.. .
The pressures of such a large group unfortunately stopped us for being able to discuss all of the issues that were on the table, which is something we rectify with a slight change in format next time.
Our sincere thanks again to Dr Nick Bassall of the Wholistic Medical Centre for hosting the meeting at his surgery.
Best to all and many thanks again. We will look forward to seeing as many as possible at the next meeting in 3 - 4 months time...
Sydney Chris
Australian Autoimmune Foundation
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roberttownsend
AAF (Aust) Executive
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Posted: Mon Apr 6th, 2009 05:47 |
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SYDNEY SEMINAR/WORKSHOP FOR MEDICAL PRACTITIONERS
The Australian AutoimmunityFoundation (AAF) is holding a seminar/workshop for Medical Practitioners on the Clinical Management of MP patients.
It will be held in Sydney on the afternoon of June 20.
Presenters include two GPs - Dr Greg Blaney from Canada and Dr Schloeffel from Sydney - as well as Professsor Marshall. Dr Blaney and Professor Marshall will present via video/tele conference.
If you would like your own doctor invited to this seminar would you please advise the AAF Secretary [vicryan@ausautoimmunity.org.au].
Transport between the airport and the seminar venue will be arranged for any interstate doctors wishing to attend.
Robert Townsend
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virginiasydney
Member
| Joined: | Sat Apr 11th, 2009 |
| Location: | Sydney, Australia |
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Posted: Sat Apr 18th, 2009 00:55 |
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Hi Chris,
I wondered if you have scheduled a date for the next MPer's networking meeting ?
Kind regards and thanks,
Virginia Baker Woolf
Last edited on Sat Apr 18th, 2009 00:58 by virginiasydney
____________________
CFS No steroids Current meds - Imovane and mersyndol for sleep,D-25Jul08 13, Feb09 44(supplementation)started MP April 20 Benicar 6xhrly no abx. tried Mino8x 28/4-15/5
D-25 19.6 may 27 low lux NoIRS
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Vicki SA
AAF (Aust) Executive
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Posted: Wed Apr 22nd, 2009 09:13 |
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G'day Virginia,
There is no date set yet for the next patient meeting in Sydney but it will be posted here when there is. Add this topic to your watched topics list!
Cheerio Vicki
Secretary AAF
____________________
ME/CFS 2000, Splenectomy 1980, MP Ph 3 12/1/07, Ph 2 13/4/06, Mino100mg qod 16/3/06, Benicar 40mg q8hrs 27/12/05, NoIR/sunlight Oct05, D tests Dec 06 25D=10, Mar 06: 1,25D=24.23, 25D=12, Sept 05: 1,25D=46.9pg/ml & 25D=16.48 ng/ml, Meds: Zoton, Endep,
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roberttownsend
AAF (Aust) Executive
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Posted: Tue Apr 28th, 2009 10:03 |
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MP BASICS TUTORIAL FOR HEALTH PRACTITIONERS TO BE HELD IN SYDNEY
The Australian Autoimmunity Foundation (AAF) is holding an MP Basics Tutorial for Health Practitioners in Sydney on the morning of June 20.
The tutorial will be presented by Sydney GP Dr Nyrie Dodds.
A brochure advertising the tutorial will be mailed to NSW AAF members this week, for distribution to any of their own health practitioners who might be interested.
The seminar will be held in the CATS Seminar Room,
Law Building 101,Kensington Campus,
University of New South Wales
from 11.30am – 1pm
Robert Townsend
The AAF newsletter is online at
http://www.ausautoimmunity.org.au/reports-and-newsletters.htm
News at http://www.ausautoimmunity.org.au/news.htm
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virginiasydney
Member
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Posted: Sun May 10th, 2009 02:58 |
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Hello,
Could someone let me know how and where I order NOIR glassses ? I am in
Sydney.
Thanks,
Virginia
____________________
CFS No steroids Current meds - Imovane and mersyndol for sleep,D-25Jul08 13, Feb09 44(supplementation)started MP April 20 Benicar 6xhrly no abx. tried Mino8x 28/4-15/5
D-25 19.6 may 27 low lux NoIRS
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roberttownsend
AAF (Aust) Executive
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Posted: Sun May 10th, 2009 22:19 |
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Virginia
This information is at the Australian Autoimmunity Foundation website at
http://www.ausautoimmunity.org.au/
Robert
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