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kathrynellison
Member
| Joined: | Mon Aug 11th, 2008 |
| Location: | California USA |
| Posts: | 4 |
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Posted: Sat Sep 13th, 2008 02:34 |
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Does anyone out there have an enlarged spleen? I have a huge one with positive iters for EBV, Chlymydia pneumonia,mycoplasm. Also have severe abd pain with portal hypertention. Docs don't want to do anything because I am not bleeding. Platelets down to 51 thousand. Enlarged spleen occured about 5 to 6 years ago when horrible headaches began.
Second question. My doc treating me for low thyroid, CFS, and adrenal insuffeciency wanted to test for lyme. I had one band that was positive 2 years ago. This new test with three panels will cost $1000.oo. Is it worth it? I seem to clinically fit a lyme profile and I know alot of these tests give false positives and negatives.
Grateful for any insight.
Kathryn
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Kathryn Ellison
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Julia
Advocate (on leave)
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Posted: Sat Sep 13th, 2008 11:43 |
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Hi Kathryn,
An enlarged spleen is quite common in sarcoidosis. I don't know if it's associated with any other Th1 diseases. But they're all only labels anyway - the link between all the Th1 diseases is CWD bacteria.
I think you're right to be wary of further Lyme tests. See Which diagnostic tests do I need?
"What is the Marshall Protocol?"
Simple Explanations
D-metabolites tests
Post Treatment Lyme Disease Syndrome - Definition, symptoms, transmission, testing, treatment, MP Member experiences.
(filelink) CFS success stories
Hypervitaminosis-D Symptoms
Success Stories
Bacteriality - a readable blog-style website by one of our members, with science-made-easy articles, an introductory 90-minute video, and interviews with recovering patients - an excellent introduction to the MP.
MP Memberships Temporarily Closed.
Please ask any further questions here at your own personal thread.
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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kathrynellison
Member
| Joined: | Mon Aug 11th, 2008 |
| Location: | California USA |
| Posts: | 4 |
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Posted: Tue Sep 16th, 2008 02:25 |
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Thank you Julia for your insight and recommending the other topics to me. I plan on purchasing the La conference CD's and Dr. Marshall' 4 set CD.
I need another docor in the La area and will focus on that aspect of treatment this week. I feel as though i am getting ripped off with the hundreds and thousands of dollars spent on supplements when I really need to be on the MP.
Thanks again.
Kathryn
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Kathryn Ellison
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Tue Sep 16th, 2008 06:07 |
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Kathryn,
Julia gave you much very good information!!!
I was diagnosed with Lyme eight years ago, and did the LLMD's AP. At the end of four plus years, my Bowen RIBb test was still at the highest dilution ratio. I was also taking about 90 pills per day. I now only take the MP pills, with calcium (no D) and small amounts of selenium and Vit-C daily and very small amounts of iodine once per month. I see improvements but they are very slow coming for me. I must have had one of the highest levels of CWD, plus I supplemented with D extremely heavily. Most of the supplements are useless, I have come to decide. They make others rich, and may actually interfere with your immune system.... like so-called "vitamin" D. Besides turning off your immune system, it can kill Norway rats in only 2 to 4 days.
The Bowen test use to cost $250, but is no longer available, and I understand that the test that replaced the Bowen costs only $300. What test are you being ripped off (IMHO) at $1,000. I wonder if someone is re-billing you at a higher price than what the lab charges. The only lab that I would recommend is Igenex, and their test for borrelia burgdorferi.
However, you do NOT need even the Igenex test. The only tests that is productive of what ails you, are the 125D hormone and 25D tests by Quest Diagnostics Labs. We have found that that lab produces the most reliable results.
But, probably you will have a hard time convincing the med docs that the 125D hormone test and 25D test are what you need. They still do not think of CWD bacteria being the one cause of our chronic illnesses, or as they like to call the problem sometimes... an autoimmune disease or condition. They still hold to the outdated and wrong Koch Postulates.
I would suggest that you study, study and re-study the MP information until you can be your own best advocate. I took almost three months of study before I started the MP.
The med docs will be able to guide you someday. But they are not there yet. You have to do the job...from your reading.
Wishing you, and all, wellness!!!
Dark Vader...aka, George
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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kathrynellison
Member
| Joined: | Mon Aug 11th, 2008 |
| Location: | California USA |
| Posts: | 4 |
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Posted: Tue Sep 16th, 2008 08:13 |
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Dear George,(darth Vader),
Thank you for your reply. Funnynthat youmentioned that lab because that was the onethat was recommended to me. From my reading on the MP,it doesn't seem that these labs have a whole lot to deternine if you are a MP candidate. I have chosen to do exactly what you have suggested in a previous email. I need to bone -up on the protocol until I know what i am getting myself into. Still, it sounds like you can relate to the inummerable supplements that are sold by the doctors who own the clinics.
Thanks for your input and interest.
I also have CFS,Crohns, TMJ,splenomegaley.
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Kathryn Ellison
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