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wind flower
Member
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Posted: Fri Aug 22nd, 2008 20:53 |
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I am preparing to begin benecar in a few months. I have been on minocyclene for an RA diagnosis for about 2 1/2 months. Prior to the mino, I was experiencing joint pain in my right wrist and both my thumbs which were all getting pretty bad and greatly interferring with my work. My other symptoms were "under control" for the most part. Since taking the minocyclene, I have had more fatigue, and various other different symptoms. The joints in my fingers started to ache terribly and were itching. I have had strong sugar cravings which I have never had. My muscles in my arms are sore, I have very vivid dreams at night and now I have pretty bad pain in my neck. I'm assuming that these are the herxes that all are speaking about and that they mean the medication is working? They are tolerable as over the years I have gotten used to it I guess. Just extremely aggravating and tiring. Not knowing what symptom will pop up next is turning into a real adventure!. I look forward to stopping the minocyclene and taking the benecar only as soon as I get a prescription from my doctor.
I did get a memory foam mattress which has helped a great deal with my neck, hip and back. It just makes you feel better in general. I'm sure that the little things to make you physically & mentally comfortable will do a lot to help the progress of the MP. thank you, windflower
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Julia
Advocate (on leave)
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Posted: Fri Aug 22nd, 2008 22:15 |
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Hi Martha,
I think you're right that you're experiencing immunopathology (IP, herx) on mino alone. I had to do mino alone for a few months because my doctor wouldn't give me benicar at first. It isn't recommended, as you can get quite bad herx, without the protective effects of benicar, but still, some of us have survived to tell the tale!
See Is pulsed minocycline alone effective?
I found that after about three months the mino wasn't having any effect any more. Then when I finally started benicar, and re-introduced mino, it started working again. Benicar is amazing 
So I would expect your symptoms to subside in a few weeks. But still, you'll have killed a few bugs to get you started. Do you have to wait so long before starting the MP?
Julia 
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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wind flower
Member
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Posted: Sat Aug 23rd, 2008 00:20 |
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| my doctor (actually she's a graduate in homeopathic medicine) is on maternity leave until mid september. Then I have to speak with her and then convince the doctor she works with to actually prescribe the benecar. If not, I have a friend in the MP who said maybe his doctor would take me on. I think this might be the hardest part of the process-just getting started. I've had symptoms for so long that I don't want to waste more time. I am going to look up the site that tells of doctors in my area. I don't think there are many listed...the girl at the office I've been working with though is the one who diagnosed me...she prescribed more vit. d, but agreed to check the 125 d-even wrote the script for a different lab so I could get accurate results. She then told me no vit. d when she saw the results. I asked her about the MP and she was familiar-said she heard about it at a conference. She's been great so far, but this will involve the doctor and may be a whole different challenge. I didn't think I would be accepted so soon in to the program, so now this delay of a Dr. is certainly a setback....trying not to get discouraged.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Offline
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Posted: Sat Aug 23rd, 2008 00:32 |
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Wind Flower,
Glad you are looking in earnest to find health care providers that will work with you on the MP.
As the next wave of acceptance for the MP begins to sweep the planet and more busy professionals hear about results at conferences, some will still continue to take action on a low 25D test exactly like they have been doing it for their entire career... exactly opposite of what the MP recommends. Whoops!
It is up to you to work with your health care providers to make sure the Marshall Protocol is not altered/changed/confused with some other info set, and that a corrected perspective of D test results and action to take are discussed with your doctor.
Please be sure to read and understand the required reading:
You will need a certified health care practitioner to work with you on the MP.
Few have doctors who have experience using the MP. But these doctors are still capable of monitoring your health status. Insights from others:
SUGGESTIONS TO GET YOUR DOCTOR ON BOARD WITH THE MP
Please add your suggestions/stories
You may wish to invite your Dr to join the
Private Section for Health Professionals Best to you Wind Flower -- Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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wind flower
Member
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Posted: Tue Aug 26th, 2008 01:50 |
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hello julia. I am replying to you because you mentioned that you were on minocyclene for several months before starting the MP. I was disappointed today to find out that my doctor will not be back from leave until early October.That would have me on minocyclene alone for almost 6 months by the time I get their approval etc. to start MP. So far my herxing has not been intolerable and doesn't feel like it's affecting my internal organs. Who knows what's really going on in there. I read your suggested reading about the use of mino alone.
Today, I woke up with such pain in my hands that had kept me up all night, I was miserable. The herxing is usually not too bad. My problem is that I cannot seem to find any antiinflammatory or pain reliever that I can tolerate except aspirin. They all seem to completely stop my digestion. I have been told by my friend that is participating in the MP that it is very important to keep the symptoms tolerable. My question, after all this, is do I try to just continue the mino until I can start the MP as long as my symptoms don't seem severe? Or do I quit taking them all together and do nothing for the next few months until I can hopefully begin the mp? Today I said hell with it and just skipped my dose. It was the first I have ever missed. Maybe I will take it less often, Tuesday&Friday instead of mwf. But all of this is with the guidance of just me and what do I know-don't want to be dangerous. My doctor would understand if I stopped-she warned me I may have to stop if my symptoms got really bad, but my nature is to fight through things until they get better. Any advise would be appreciated. I am feeling better tonight by the way. Thankfully none of my herx symptoms last terribly long....yet.
Respectfully, windflower
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Julia
Advocate (on leave)
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Posted: Tue Aug 26th, 2008 09:17 |
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Martha,
I'm not a medic, and you need to follow your doctor's instructions. But if it were me, I'd stop the mino until I got the benicar to protect my organs from immunopathology.
Julia 
____________________
ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Tue Aug 26th, 2008 20:54 |
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Wind Flower,
If you are not following the Marshall Protocol with your doctor, then whatever you are doing is not the Marshall Protocol. In addition, just as Julia suggests, you need to work with your doctor.
Julia also gave you this link but to get started on the great info in that link, here's a quote from Is pulsed minocycline alone effective?:
"We do not recommend that people pulse minocycline in order to give them a headstart with the Marshall Protocol. In fact, monotherapy with minocycline runs the risk of allowing previously cleared tissues of being repopulated by bacteria that are resistant to mincocyline alone."
Please constructively use this little time you are waiting and learn all you can from study of the required reading. Please use the topical alphabetical index in the FAQ to find a wealth of information. Jumping into some kind of variant based on misinformation, without a proper comprehension of a very new, very unique Marshall Protocol is never recommended here.
Best to you Wind Flower -- Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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wind flower
Member
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Posted: Wed Aug 27th, 2008 04:30 |
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| Oh no, I am not on the MP! I just hope to be in a few months. I am on the Road Back Foundation program and just caught in limbo until I can get my doctor to go along with the Marshall Protocol. I have been reading about it for months and corresponding with a friend that is on the MP. I am convinced that the MP would be the most successful treatment plan for me. I will just continue to read and not post anymore. I think I'm muddling the situation. thank you for the help so far. I will contact again if I can get something officially started with my doctor. sincerely, marthe
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Wed Aug 27th, 2008 05:21 |
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Wind Flower,
Maybe the choice can be to read and ask questions here about what you read, as opposed to asking about your responses as they relate to a different protocol?
That way, you get a chance to learn more without finding uncomfortable comparisons with what you and your doctor may be doing at this time.
So stay, read. Ask about what you read, here.
That will be of value to you in the future when limbo can just mean a fun party dance (wink), and you will be able to dance easily through any important future discussions with doctors (wink again).
Best to you Wind Flower--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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