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Jon
Member
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Posted: Mon May 5th, 2008 19:25 |
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I cannot find the thread on the pharmacy that sells Minocin inexpensively. I believe it was out of Canada. Could someone please help..Thank you!! Jon
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Jon
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GeorgeinRollaMO
Advocate
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 331 |
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Posted: Mon May 5th, 2008 20:28 |
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Hi, Jon,
Put the words "minocycline + Canada" in the Search window at the top of the page over at the 'study' site.... and see what you get.  You may have to Register on that site, too, if you aren't already. Please use the same name if you can. Makes it easier to track your doings on the forums by the Advocates to help you. Thanks!
Glad to see that you are interested in doing the MP!!!
Wishing you, and all, wellness!!! 
Dark Vader...aka, George
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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Jon
Member
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Posted: Wed May 7th, 2008 16:34 |
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I didn't find anything using the search optionn...=(
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Jon
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Wed May 7th, 2008 17:16 |
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Jon,
I probably would not do a search on the study site, as nearly every post has some reference to minocycline. Better to try any major web search engine like google with refined keywords for your point of reference.--Janet
Also: You may wish to make contact with others in your area by private message. Canada
Medication purchasing strategies
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Jon
Member
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Posted: Sat May 10th, 2008 00:04 |
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My doc said Minocin (pelletized) would be his choice of initial abx. However,
All the data I've compiled and info i've read refers mostly to minocycline. Is there a difference from an MP perspective. Jon
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Jon
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 134 |
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Posted: Sat May 10th, 2008 00:21 |
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There is no difference. If you can get a tablet form it is easier to divide into the required increments.
please see What should I know about Minocycline?
Please ask all your questions in this thread by pressing the reply button.
Thanks, Barb ...
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Jon
Member
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Posted: Mon May 12th, 2008 19:15 |
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At this point In my disease development (RA) I have chosen to move forward with the MP and my Rheumy is working on becoming informed enough to follow the protocol as we speak.
However websites like [moderator removed links]serve their purposes to scare us away or create doubt. What are the true risks of MP? I admit several arguements are weak. However, like all newbies I am curious about the true risks. Heart attack 300 percent increase? Really? Will the informed please respond.
thanx Jon
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Jon
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Julia
Advocate (on leave)
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Posted: Mon May 12th, 2008 20:22 |
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Jon,
I've removed the links from your post because they might be a source of confusion to other newcomers who haven't yet read Dr Marshall's scientific papers. I'm not trying to censor anything - anyone can find the mud-slinging websites out there if they want to, but we're the ones that have got our lives back
Did you notice that the item on the second website you mentioned was written by someone whose livelihood is made by 'selling' vitamin D? I wouldn't expect him to like Dr Marshall's research findings that vitamin D supplements are bad for you.
Did you notice the assumption that Dr Marshall is somehow making a mint out of his 'theories'? Yet you know that Dr Marshall and his amazing band of nurse and research volunteers are freely sharing his discoveries with the world.
The first site has many ideas, but is short on scientific backup - and I couldn't find any success stories for the treatments he recommends. (Have you seen our vast, ever-growing library of Success Stories?) The list of 'increased risks' he gives is (well, I'm a lady, so I must be polite) sheer speculation. (Could I say downright lies and still be a lady?  ) Have you heard of anyone on the MP who has had a heart attack??
Thank you for giving us the opportunity to mention the mud-slingers, and thank you for asking us instead of just swallowing the rubbish that's out there.
Of course we must all make our own judgements, and to do so we need to read all we can. But when I was researching about my sarcoidosis five years ago, I soon realised there was only one site where anyone really knew what they were talking about (it was Sarcinfo.com in those days, before it came to be nicknamed the Marshall Protocol), and only one where there was a note of jubilance and hope, because sick folks found they were getting better.
Julia 
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ALWAYS CONSULT A PHYSICIAN
Essential Info; FAQ; Julia's story
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Jon
Member
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Posted: Mon May 12th, 2008 20:42 |
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Thank you for your response. I agree with you whole heartedly. It threw me off when he went so far as to add percentiles to risks...I have read just about all the forums, how to's, success stories etc...but I am just a week or two away from starting the MP and I thought I'd ask those who could give me credible answers(you)..=)
JOn
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Jon
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Mon May 12th, 2008 22:20 |
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Jon,
The biggest risk is always failure to capture and sort correct information, and most of all, knowing what to take action on. There are many variations to failure, but success seems to have but one recipe.
Those who can read, comprehend, and take correct action are better suited for the significant change in perspectives that the MP requires of those who undertake the task of really getting well.
A palliation focus ("make me feel better quickly"), expectations for a short term solution ("I want it now"), and complaints about the long term solution are common and easy to find everywhere.
While looking at success stories, ask what these people had to invest in the way of information gathering, time, and compliance to get to where they are now. That is the investment required by all who want the same results.
Best to you Jon, and your investment to achieve success--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Jon
Member
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Posted: Wed May 14th, 2008 19:18 |
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Quality being the "BIG" issue with supplements. Anyone have working knowledge of a good Probiotic? Jon
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Jon
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Wed May 14th, 2008 20:34 |
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Jon,
Please be sure to keep your questions in this thread for continuity.
Also, it is best to use the FAQ and search feature on the study site where I found:
Should I take probiotics?
Dr Marshall wrote: "The science tells me that palliation from probiotics probably comes from overloading the innate immune system in the GI tract."
The real BIG issue with supplements, actually, is that supplements -- including probiotics -- are not recommended. Those who are members of the study site work with with their health care team in determining if palliative options might be required.
Please read the study site progress reports as part of your required reading -- lots of good information daily  .
Best to you Jon--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Jon
Member
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Posted: Thu May 15th, 2008 03:57 |
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So we don't take anything to keep our bacteria balanced in our stomache during
extended use of abx? I thought i read that...and the possiblity of me being overloaded with info is certain. I have read everything i can find on this website and must be confusing it with what my doctor suggests with abx therapy (AP Method). . Jon
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Jon
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
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| Posts: | 556 |
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Posted: Thu May 15th, 2008 04:16 |
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Jon,
You may want to spend some time sorting the details of the MP out for yourself so you understand the MP really well. You already suspect the AP is not the MP, and you are correct.
Should I take probiotics?
Probiotics kill 24 people in The Netherlands
When you understand the Marshall Pathogenesis and the relationship of pathogens responsible for Th1 chronic inflammatory disease and what your immune system must do to get rid of them, then you will be in a better position to explain bacteria and your health care goals with your physician.
Did you get a chance to see Amy Proal's presentation on her http://www.Bacteriality.com website? Here is Amy's description and the link:
"In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 89 minutes."
http://bacteriality.com/2008/05/07/mpintro/
Best to you Jon--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Jon
Member
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Posted: Thu May 15th, 2008 16:15 |
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Oh yes I have watched the video (bacteriality.com) and continue to check her website. I think it was a slight confusion (brain fog) about Probiotics. I feel I am very close to being ready to move ahead with the MP. I have been practicing low D intake and sun avoidance. My physician mailed me the script to get my vit. D 25 and 125 tested. He has the Physicians MP paperwork, and several of us from southern california are going to be working with this docotor on the MP (all as new patients and he is an AP doc doing the MP). He takes regular Insurance for any of you
Californians out there unable to afford the cash charge most MP doc's are charging in our area. I read and reread for things to set in. I'm off to buy some Noir's. My job will make the sun avoidance a bit more difficult than the avg person but I'm on a mission. Thank you so much for your responses and time spent monitoring all us Noobs. Jon
Last edited on Thu May 15th, 2008 16:17 by Jon
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Jon
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Jon
Member
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Posted: Thu May 15th, 2008 18:35 |
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Ok, reading foods and recipe's etc...Under the recipe section...Ingredients are often marked with (MP approved). Is there a list of what types or name brands. Is there a list we can contribute to or quickly refer to? Jon
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Jon
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scooker48
Member
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Posted: Thu May 15th, 2008 19:03 |
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Jon,
If I may chime in here, the idea behind the MP is to 1) avoid foods with Vitamin D and 2) take the Benicar. In a boiled down nutshell.
Foods that contain "Vitamin D" or "Vitamin Death" as I now call it, are : seafood or fish, egg yolks, milk, mushrooms. Cheese is okay, but make sure the "Vitamin A" content is 6% or less. Half & half mixed with water and chocolate is wonderful. I am no longer afraid of fat in my diet, as in pre MP days.
To directly answer your question, I know of no list of foods. You must read the labels in the grocery store.
I eat plenty of vegetables (spinach, carrots, onions, lettuce, artichoke hearts, califlower, etc.) and meats trimmed of all fat (turkey breast, chicken breast, pork chops trimmed of fat, and an occasional T bone steak again trimmed of all fat). I have used the "low carb" approach, and don't eat potatoes etc. I'll gladly send some recipes if you need them.
Cooking is now a simple function of everyday life, and I enjoy it. Pre MP it was very complicated, and drugery.
Welcome to the MP.
Sherry
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Jon
Member
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Posted: Thu May 15th, 2008 19:24 |
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Thank you...once again ...I'd love to have some recipes. Having tried so many diets prior to finding the AP and moving on to the MP...I've literally become a professional stay away from foods experts. The things I've been avoiding are very similar to the MP with some refineement so the change over won't be to difficult. I do cook and would love scrumptious recipes to mix up the menu other than the ones already found on the MP main site. Jon
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Jon
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Jon
Member
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Posted: Thu May 15th, 2008 19:45 |
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I have a friend with Fibromyalgia, her husband was ready to leave her, and I pulled him aside to explain why she is like she is. I explained the brain fog, behaviorial changes, the never enough sleep etc... assuring him she had a bacterial infection and that there is alot of new research and hope with the MP I may have saved her marriage and she's introducing the MP to her physician in a few weeks. Is there a particular link that people find particularly helpful under these circumstances. I think getting him to read through the entirety of this site and the main MP site might be asking too much of him right now. Jon
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Jon
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Thu May 15th, 2008 19:49 |
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Jon,
Knochen's MP Recipe Site
As Knochen has indicated on another's post, foods centered around mostly veggies, some fruits and some meat.
Diet and Disease: Eating for Health
I eat real food. Single ingredient items are easy to purchase and fresh is best.
Occasionally, some have found that an item here or there that someone else on the MP can eat isn't supportive for their immunopathologic response controls, but you can start with the known foundation that generally works for most and then do some discovery on your own from there.
Best to you Jon--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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